IN OUR HEARTS... for these families, life will never be the same again


The diagnosis of a brain tumour is devastating for the patient, their family and friends. 

For these people life will never be the same again.

These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.

Aaron Irvine

Aaron was first diagnosed with a brain tumour at the age of two and a half, but not without his mother having to fight for six months to get doctors to take his symptoms seriously.  The operation and subsequent radiotherapy left him with lots of physical and educational disabilities, but he got on with life and never complained.  At the age of 29 his tumour came back – his mother (who has her own disabilities) had to fight to get any support for him.  Aaron passed away five months later in 2011. Read Aaron's story...



Abigail Lightbown

Abigail was a healthy and active girl who loved karate and crafts.  Then, aged nine, she was diagnosed with a life-threatening brain tumour.  Two years later, at just 11 years of age, she lost her courageous battle with brain cancer, leaving her parents, Bernie and Gary, and six-year-old brother Jack, broken hearted. Read Abigail's Story...



Alison Phelan

Alison is the inspiration behind the charity Ali's Dream, (founder member of Brain Tumour Research) which was set up by her family and friends following her loss in June 2001, three weeks before her eighth birthday.  She had been diagnosed with a brain stem glioma in August 2000 - Read Ali's Story...



Amita Charavda

Along with her husband Mahendra, Amita had owned a shop called “Lucky Jewellers” on Belgrave Road – Leicester’s Golden Mile for nearly 40 years. She was looking forward to enjoying retirement and having more leisure time to spend with family and enjoy lovely holidays. Tragically, she passed away from a brain tumour, aged 55, just three months after diagnosis.


“The speed in which we lost Mum was so shocking. I couldn’t believe that in this day and age Mum could have something which was incurable.” Here is Amita’s story as told by her daughter, Sneha…
 



Andrea Thursfield 

Andrea passed away just nine months after being diagnosed with a grade 4 glioblastoma multiforme (GBM) brain tumour. She was 46. The mother of a teenager and much-loved partner of Nick Butler, she underwent surgery, chemo- and radiotherapy but could not be saved. She and Nick had a short-lived romance as teenagers and then met again by chance 21 years later. Nick tells Andrea’s story…
 



Angus Anthony

Angus was a much loved husband and father of two boys.  He was diagnosed with a very rare and very aggressive cerebral lymphoma brain tumour about which almost nothing is known.  It was hoped that a stem cell transplant might give him an extra seven years, but unfortunately it didn’t work. Read Angus's story...



Anna Olivia Hughes

Anna was diagnosed with a brain tumour in February 2005.  For 15 months she spent every other week in hospital but sadly, Anna lost her battle and passed away aged 3 years and 8 months.  She was an inspiration to everyone she met and her parents set up the charity Anna's Hope to give future children a better chance of survival - Read Anna's Story...



Ashley Shameli

Ashley Shameli was 22 and training to be a solicitor when he was diagnosed with a grade two astrocytoma brain tumour after suffering a massive epileptic seizure. He underwent several operations with the pioneering brain surgeon Henry Marsh and endured gruelling chemotherapy and radiotherapy. He lived for another eight years and died aged 30, leaving his beloved mum Jeanette, his dad, his older sister Shardi and younger brother Shervin.


“When Ashley was born I was six-and-a-half. I remember being so proud to be the big sister of such a beautiful, happy little boy. My other brother, Shervin, was born a year and half later. The three of us were exceptionally close as children and lived together when we moved to London. I will never forget Ashley’s beautiful smile, his cheeky dimple, his twinkling eyes and his kindness. He adored his family and we adored him.” Ashley’s sister Shardi tells his story…
 



Aurora Provenzano

Aurora was just six years old with her whole life ahead of her when she was diagnosed with a brain tumour.  She fought a brave battle for three and a half years, but sadly lost the fight and left her parents and two sisters, Isabella and Chiara with a huge hole in their family.  In February 2011 the family decided to set up a Brain Tumour Research Umbrella Group 4 Aurora - Read Aurora's Story...



Becky Speirs

Becky was a wife and mother of three children, aged 6, 10 and 11 when she died of a brain tumour at the age of 40.

Becky's husband Colin has set up the charity Headcase to raise funds for research into glioblastoma multiforme - Read Becky's Story...



Ben Whitehouse

Ben Whitehouse was travelling on a train with his girlfriend Rachel when he suffered a severe seizure. He was taken straight to hospital where he was diagnosed with a high grade glioblastoma brain tumour. The couple were married in Hampshire in April 2012 and just days after they returned from honeymoon in Cambodia, Ben became ill once more. He passed away three years after his diagnosis. He was 34.


“We had been married for just 15 months when Ben died. I never imagined that after such a short time I would be on my own. In those last few weeks when he was so ill we talked a lot. He deteriorated so fast but I kept talking to him although I don’t know how much he understood or even heard. Life is still hard but at least we had the chance to say goodbye." Ben’s wife Rachel tells his story…

 

 



Bill Foulkes 

Bill was the most gorgeous, loving man you could ever wish to meet.  He was a wonderful husband and father.  He was passionate about his family, his business, golf and boating.  Bill’s life was cut short by a brain tumour.  He was diagnosed with a glioblastoma multiforme and survived just 13 months – which was the worst case prognosis the surgeon gave us. Read Bill's story...



Brian Cross

Brian lived in Gressenhall near Dereham, Norfolk and was a great family man and a wonderful husband. He had three children – Camilla from his first marriage and Rosie and Tom from our marriage. He cared deeply about each one of them and was particularly protective about Camilla who suffered badly with asthma and eczema from an early age. Brian was diagnosed with a rare lymphoma brain tumour and passed away almost a year later, aged 62, on 23rd September 2006.
 

“Brian knew he was going to die. There were still lots of things he wanted to do, but he was at peace with himself, which was a huge comfort to me. We used to sit together in the garden and he would tell me everything he wanted me to do with the children and his businesses after he had gone. He was an amazing man, even in the last year when he was dying.” Here is Brian’s story as told by his wife, Sally…
 



Carol Cooper

Carol was a much loved sister and daughter and mother of grown-up twin sons, Simon and Mark.   She had a really caring nature, so it was hardly surprising that for over 20 years she worked with the mentally ill.  But, at the age of 53, within the space of six short weeks, Carol was diagnosed with a brain tumour and passed away - Read Carol's Story...



Caroline Cronin née Johnson

Marine biologist Caroline Cronin’s biggest wish after being diagnosed with a terminal brain tumour was to get back to work. There were two things she felt she still wanted to achieve – to get married and have a baby. She defied expectations to achieve both and the family were able to spend precious months at home together before Caroline passed away in October 2013 at the age of 32, leaving her husband Marcus and their six-month-old daughter Florence.

“The few times that Caroline allowed anyone to see her upset about her condition was when she worried about how her illness affected others. We both desperately wanted to be married and felt blessed to have a baby together. The grieving process takes a long time but knowing Caroline was able to do the two things she most wanted makes it a bit easier. We had been through so many very difficult times together and, when Caroline died, I was just grateful that it was as she had wished. I held her hand as she passed away at home. The first thing I did was to hold Florence and, in a way, it meant I didn’t feel as if I had lost Caroline completely as I had our baby.” Caroline’s husband Marcus tells her story…
 



Caroline Foster

For several months it was thought that Caroline was suffering with depression and then a breakdown.  Then, at only 38 years of age and with a two and a half year old daughter, Erin, Caroline was diagnosed with an aggressive brain tumour.  Just six weeks later she passed away leaving her family distraught and her little daughter without a Mummy. Read Caroline's story...



Claire Hollister

My darling daughter, Claire, had her life cut short by a brain tumour - the very same disease which had killed my sister, Valerie, 10 years previously. Claire was just 30 years old when she passed away, just 14 months after diagnosis with a grade IV gliosarcoma. Read Claire's Story...



Clive Gathercole

Husband and father of four boys, Clive Gathercole was eventually diagnosed with a glioblastoma brain tumour after suffering months of health problems. He died in August 2012.
 

“In my anger I thought about complaining about the terrible care we received and the problems with securing a proper diagnosis, but I am not sure looking back at the past negatively is helpful, so instead as a family we are forging ahead with our fundraising plans to fund more research into brain tumours. I would hate to think of other families facing what we have been through, and think the lack of awareness of this disease is a tragedy in its own right.”


Read Clive’s story as told by his wife Wendy…



Danny Horton

My brother, Danny, was a healthy, sporty, fun-loving young man but in 2010 he passed away, aged 36, with an astrocytoma brain tumour. Just six months later in the same year, my wife, Maddie, lost her father to the same cruel disease. Read Danny's Story...
 



Dean Wood

Dean was a healthy man who worked hard (up to 60 hours per week) as a builder, and then enjoyed a drink and playing pranks.  He loved his family and was very loyal to his friends – he had the same best friend since the age of seven.  When Dean was 27 he was diagnosed with a glioblastoma multiforme grade IV which he fought with so much courage and his indomitable sense of humour; nevertheless he was cruelly taken from us just seven months later. Read Dean's story...

 

Dean's family have established an Umbrella Group, the Free Bird Trust in his memory.



Diana Ford

Our eldest daughter, Diana, was aged 42 and the mother of three young boys aged seven, five and two, when she was diagnosed with a brain tumour in 2002.  She survived barely three weeks.  Her death inspired Sandy, my husband, to set up The Diana Ford Trust and to campaign for an alliance of brain tumour charities - Read Diana's Story...



Diane Wright

Diane lost her life to a brain tumour at the age of 59, having previously battled with breast cancer. The tumour was so aggressive, Diane survived just eight weeks from diagnosis. 

Here is Diane's story...



Donna Osborne

Donna was so many things: a beautiful daughter, a caring sister, a stunning bride, a wonderful wife, and a proud, protective and perfect Mum to our three children.  She was always smiling, always thinking of everyone but herself. She slipped away from us aged 43, less than five years after being diagnosed with a brain tumour. Throughout the darkest and hardest of journeys, Donna was grace personified. Read Donna's Story...



Eddy Kirby

Within a fortnight of walking one of his two beloved daughters down the aisle on her wedding day, Eddy Kirby was suddenly taken ill and after tests he was diagnosed with an aggressive glioblastoma multiforme (GBM) brain tumour. It was inoperable and although he underwent treatment, Eddy’s condition deteriorated rapidly. He passed away, aged 64, on 7th March 2015, his late father’s birthday. In addition to leaving two daughters, Emma and Sarah, Eddy also left a partner Carol and his mother, Marjorie, aged 93. His daughter Emma tells his story…
 



Evie Evans 

First-time parents Kelly and Marc Evans were overjoyed at the safe arrive of their beautiful baby daughter Evie on 9th March 2007. Their first sense that anything was wrong came when she was 18 months old. Eleven months later, after being examined in connection for repeated vomiting, a CT scan revealed a mass in Evie’s brain. She was diagnosed with an extremely rare Atypical Teratoid Rhabdoid Tumour (AT/RT), most prevalent in the under-three’s. She endured surgery and treatment but passed away, with her parents at her side, on 4th November 2009. She was just two-and-a-half. Evie’s mum Kelly tells her story...
 



Fin Church

Fundraiser, karate black belt, Guinness world record holder and Child of Courage, Fin Church lost his battle with brain cancer at the age of 11. The eldest child of Penny and Wayne Church, Fin was also big brother to Kenzie and Tegan. In the 17 months after his diagnosis, Fin endured neurosurgery, chemotherapy and radiotherapy, taking part in trials including testing the efficacy of re-purposed drugs. In his final days, he dictated a letter in which he talked of his love for his family, his fondness of chocolate and curry, and his fear of losing the fight.
 

“I am ashamed to admit that there came a stage when I wished Fin had leukaemia. Surely that would be better, there were treatments and things would be OK wouldn’t they? Investment in research and increased public awareness meant leukaemia was no longer a death sentence. But where is the investment and subsequent improvement in outcomes for patients with brain tumours? As we fought as hard as we could for Fin, we were sickened to learn that the treatment for brain cancer is antiquated and barbaric, as cruel as the disease itself.” Fin’s mum Penny tells his story...
 



Gaye Chaffe

A former officer in the Metropolitan Police, Gaye Chaffe was diagnosed with an oligodendroglioma brain tumour in 1992. Her husband Simon supported her through two craniotomy procedures and subsequent treatment. The tumour spread to her brain stem and she passed away six years later in her husband’s arms, leaving two sons aged eight and three. Her husband Simon tells her story…
 



George Michael Harrison

George was diagnosed with a brain tumour at the age of 25. He underwent surgery and married his childhood sweetheart Georgina 13 months later. Sadly his tumour returned five years later. He had radiotherapy and chemotherapy which left him partially paralysed with double vision and memory problems along with other side effects. Together with Georgina, George’s mum Sondra cared for him during his last months. He passed away with them and his sisters by his side in June 2010. George’s mum Sondra tells his story…
 



Georgie Beadman

Georgie Beadman wife, mother, daughter, and sister, died seven years after being diagnosed with a low grade glioma. She was a talented potter who loved music and the arts. In February 2015, Georgie died at the age of 41 leaving a husband and two small children.
 

“It is desperately sad to think that brain tumours kill more children and adults under the age of 40 than any other cancer and I was shocked to learn this area receives just 1% of the national spend on cancer research. A number of the girls who Georgie met during her year as a debutante are now involved in fundraising to support vital research into brain tumours which is wonderful. We were unable to help Georgie but I am sure that we can help others.”
 

Georgie’s mother Anne Hobson tells her story…
 



Gillian Fenton

A loving wife, mother and grandmother, Gillian built her life around creating a happy home for her family. At first misdiagnosed with multiple sclerosis, her anxious family were finally told she had a tumour of the central nervous system and she passed away six months later at the home she was dedicated to making.


“I miss my mum every day. I miss being able to talk to her, I went to her about everything and find myself reflecting on what she would have said about things. Sometimes I have very vivid dreams where we have conversations and I wake up feeling as if we really have spoken. It is only now I am able to talk about my mum openly and remember her without the fog of bereavement. I know only too well how little is known about the effects of cancer on the brain. Research is the only way we are going to make a difference and prevent other families suffering as we have done.” Gillian’s daughter Sarah MacFadyen tells her story…

 



Glenn McMahon

Husband, son, father and step-father, Glenn McMahon was diagnosed with an aggressive glioblastoma multiforme stage 4 (GBM) brain tumour after experiencing co-ordination problems on the golf course. He married Wendy in February 2014 and, knowing their time together would be cut short, the couple set about making the most of their lives through travel, socialising and their mutual love of fine food. Glenn died in June 2015 at the age of 53.
 

“To be told it was a brain tumour was like being hit by a bus. Glenn asked straight away how long he had and was told the short prognosis. We were devastated. We had begun to suspect Glenn might have motor neurone disease and never dreamt it would be a brain tumour. We had both been married before and having found each other now faced our future which was going to be cut short.” Glenn’s wife Wendy tells his story…

 



Hugh Walker

During the four months Hugh survived following his diagnosis, he was a pillar of strength. He knew he was dying, yet he spent lots of time with me talking and passing on his strength. He told me his goals and what he wanted me to do with the children and for myself. He asked that he be cremated and buried under the apple tree in the garden and that a friend of his should make a bench so that we could sit there and be with him. Read Hugh's story... 

 

 



Ian Meek

 

In 1995 Ian was diagnosed with a brain tumour.  Married to Sally with three children, Ian counted himself one of the lucky ones because he survived so long.  In 2009 the tumour turned cancerous and he had to undergo an operation to remove part of it and then undergo a fairly intensive period of chemotherapy whilst training for the famous three peaks challenge, which became known as Meek’s Peaks.  Sadly Ian passed away on 1st August 2012 leaving a legacy of research at Leeds University having raised over £105,000.

 



Ian Walsh 

Former fireman and pub landlord Ian Walsh was taken ill at Christmas and, within a month, he was diagnosed with a high grade glioblastoma multiforme (GBM) brain tumour. He passed away in August 2015, just four months after marrying his “soul mate” and long-term partner Glenda.


“The doctors tried to ensure he had the best quality of life for as long as possible. The day we got married was a bitter sweet occasion; you marry someone for life and I now realise we should have done it years ago. We had been together for a long time and kept putting it off, saying next year ...” His wife Glenda tells his story…

 



Jack D'Lima

Jack was only a toddler when he was diagnosed with a brain tumour but, despite battling for his life for more than eight years, he lost the fight.  His parents feel consumed and suffocated by the emptiness they are left with, but they have to pick up the shattered pieces and rebuild their lives for the sake of their other two sons - Read Jack's Story...



Janet Disney

Wife, mother and grandmother Janet Disney passed away just weeks after being diagnosed with a primary malignant brain tumour. She had lived her whole life in Wellington, Somerset, and was married to Steve for 36 years. The couple were members of the United Reformed Church and Janet, a keen baker who loved her holidays, was 74 when she died in June 2015.

“We had to wait for the scan results. We told the consultant we were due to go away for a few days to our caravan and it was agreed we should still go. As it happened, we were on our way to Dorset when the call came. It was devastating and I was in tears as I was told that Janet had an inoperable brain tumour on the left hand side and that, eventually, her right side would diminish. In fact, her whole body was affected for the last six weeks or so of her life. She relied on me completely for the last month and, as any husband would, I did everything for her.” Janet’s husband Steve tells her story…

 



Jeffrey Grey

Jeffrey was a loving father of two older children from a previous relationship and of our son, Christopher, aged 12, when he passed away aged 54, just nine months after diagnosis of a brain tumour.  By tragic coincidence, Jeffrey’s father had died of the same disease two years previously. Read Jeffrey’s story…



Joel Evan Green

Joel was just a year old when he was diagnosed with a brain tumour. Born into a large and loving Christian family, Joel defied expectations but was eventually lost at just four years old. Now his parents Ryan and Amy, together with Joel’s four siblings, are remembering the little boy in a most remarkable way. They have developed a video game which allows players to experience the highs and lows of Joel’s cancer journey through the interactivity that only a video game can offer.


“Life is very game-like. Fighting cancer is like a game because you’re trying to do just enough to kill the cancer but not hurt the child. You balance all the options. And it is a multiplayer game because you have doctors, nurses and family all involved in this process of trying to keep your child alive. There are puzzles, as well as simple mechanical tasks like administering medication, taking blood pressure, giving him food – or making him laugh. The difference is that, in a game, if you’ve mastered the skillset, you can beat the level. That’s where the comparison stops.” Joel’s parents Ryan and Amy tell his story…
 



John Annis 

Devoted husband and dad John Annis was diagnosed with a grade IV glioblastoma brain tumour in December 2013. One year later, he lost his life after collapsing in the shower room at home in the arms of his wife Julie. He was 48. John and Julie were teenage sweethearts and had been married for 27 years. Their daughter Sophie was just eight when she lost her dad. John’s wife Julie tells his story...
 



John Fulcher

John Fulcher was taken ill on a business trip to Canada. He was diagnosed with an inoperable glioblastoma brain tumour and, together with his wife and accompanied by a nurse, was flown home to the UK. Under the care of Kevin O’Neill, consultant neurosurgeon at Charing Cross, John underwent several surgeries but died ten months later. His widow Wendy is chair of Brain Tumour Research.


“While John was ill and after his death I learnt how little was known about brain tumours and how little research funding was available. I am proud to say that the Brain Tumour Research Centre of Excellence at Imperial College London opened in September 2015, is part of John’s legacy.” John’s wife Wendy tells his story…

  



John McCabe CBE

Composer, pianist and former Director of the London College of Music, John McCabe CBE was lost to a brain tumour on 13th February 2015, just weeks before his 76th birthday. He had been married to Monica for 40 years and lived in Kent. John was widely loved and respected across the world of classical music. His wife Monica tells his story…
 

Photo by Mark Allen



John McMahon

John was looking forward to a long and happy retirement with his wife Judith. Previously fit and well, he began experiencing seizure and was later diagnosed with a low grade glioblastoma brain tumour. Within months the tumour had changed to an aggressive grade IV and he underwent radiotherapy and chemotherapy. He defied expectations to live for three-and-a-half years, losing his battle in June 2014. Here, his wife Judith tells his story…

 



John Pettyfer

John was just 51 years old when his life was cut short by a glioblastoma multiforme, but right up to his last few days he continued to think of and care for his family and animals, rather than dwell on himself.  He was a very brave man who kept everyone entertained with wonderful anecdotes and his great sense of humour - Read John's Story...



Jacob James Pryce

Baby Jacob was born on 29th November 2014, a second child for Julie and Andy and a beloved brother to Jessica who was just two. Initially diagnosed with a respiratory infection, Jacob’s condition deteriorated and he was admitted to hospital where an aggressive glioblastoma brain tumour was discovered. He underwent surgery and died the same day. He was just three months old.

“To lose a child is the worst possible thing and I wouldn’t wish it on anyone. We talk about Jacob every day, Jessica says good morning and goodnight to him and chats about him as she rides her bike, imagining he would be doing the same thing. We knew nothing about brain tumours before this happened. Now they are a part of our lives. It doesn’t make sense to think that brain tumours kill more children and adults under 40 than any other cancer yet just 1% of the national spend on cancer research is allocated to this devastating disease. Jacob had his whole life ahead of him. If anything good is to come out of this it will be that more money will be invested in research.” Jacob’s parents Julie and Andy tell his story…

 



Jayendra V Patel

JV (as he was always known), found out he had a grade IV glioblastoma multiforme in his temporal lobe on his birthday and two weeks before his eldest daughter was due to get married.  Just over a year later, his immediate family were all present when JV died - Read JV's Story...



Janette "Jay" Sherell

Jay Sherrell passed away in May 2015, a little over three years after being diagnosed with a grade 4 glioblastoma multiforme. She was 43 and left two young children, an identical twin sister, an older brother and sister plus her mum.
 

“Although we had known for some time that this moment was coming, I was still extremely shocked when Jay died and, to start with, didn’t really cope at all. I truly felt as if I had lost my shadow. It was as if someone had cut off my arm. I still dream about her a lot and have flashbacks of the times that we were teenagers doing silly things. I talk to her all the time as if she is still here with me. Of course I miss her like mad but I see her every day when I look in the mirror.” Jay’s sister Clair tells her story…

 



Jon Winn

Father-of-five Jon Winn died after a five year battle with a brain tumour he didn’t even know he had. The glioblastoma mulitforme (GBM) which took his life wasn’t diagnosed until after his death. His partner is angry that he was misdiagnosed and endured a nightmare five years struggling to get answers.

“As the months went by, Jon continued to go downhill and I had to give up work to look after him. Jon lost his speech and it became difficult for him to move around. He could no longer play football with the boys. I did my best to see that we could still do things as a family.” Hayley, Jon’s long-term partner, tells his story…



Katrina Durham

Katrina was eventually diagnosed with an Astrocytoma grade III, having experienced seizures for several years – her consultant had been happy just to monitor her.  Eventually, however, despite a craniotomy and chemotherapy, Katrina succumbed to the tumour and passed away at the age of 43. Read Katrina's Story...



Katherine Carnegie

Katherine was the much loved mother of Ella and Milo, who received the devastating news she had a grade four glioblastoma in 2004. After an exhausting battle with the disease and a worldwide search for effective treatment Katherine died on March 31st 2007. Read Katherine's story ...



Levi Ringer

Levi enjoyed a normal six year old life until feeling unwell and complaining of headaches in December 2005.  Levi died in his mother's arms and surrounded by his loving and devastated family on 29th August 2006 at the age of just 6.  The charity Levi's Star was founded in his memory by his mum and grandma - Read Levi's Story...



Louis Kenney

Louis passed away at the age of 13, having endured leukaemia, a crushed leg in an accident with a lorry and ultimately secondary brain cancer, when his family had to fight all the way to get the treatment he deserved. Throughout his short life, Louis was almost never without a smile or a joke.  He kept everyone strong when they were supposed to be keeping him strong.  Weeks before his family lost him, his baby brother Jesse was induced so that Louis could get to know him and hold him. Read Louis's story...



Louise Hudson

Louise Hudson was diagnosed with an astrocytoma brain tumour at the age of 26. She continued to live alone in London near her beloved Camden for a number of years although she became increasingly unwell. During the final weeks of her life, Louise moved into her mother Susan’s home and spent her last days surrounded by friends and relatives with the family cat sleeping beside her. Louise underwent gruelling surgery and radiotherapy and survived a relatively long time before losing her battle ten years after her diagnosis.


“Although she was very ill, Louise was extremely active and it was hard work. After a while, we made up a bed for her downstairs and she was able to enjoy the sunshine, looking out into the garden and sometimes lying outside on a sunbed. The cat took to sleeping on her bed and lots of her friends would visit; sometimes there would be a party atmosphere.”

Louise’s mother Susan tells her story…



Maggie Harvey

Maggie was a woman who loved life, her job and her family and friends.  She had always lived life to the full until she was diagnosed with a glioblastoma multiforme.   She and her family then felt like they had stepped onto a roller coaster, yet they were determined to make the most of the time Maggie had left - Read Maggie's Story...



Mark Cogan

Mark fought and lost a 16 month battle with a brain tumour, leaving his extended family and many friends, particularly from his life as an outstanding martial artist, utterly devastated. Read Mark's story...



Mark Gash

Out of the blue, Mark had a fit one evening and, following a visit to his local hospital, was diagnosed with a brain tumour.  Just three and a half weeks later he passed away - Read Mark's Story...



Mike Dandy

Mike and Eithne were happily married for 31 years and had two children, Peter and Eleanor.  Mike had recently sold his company and they were looking forward to a long retirement together.  Then Mike was diagnosed with a grade IV astrocytoma and was given a prognosis of just eight weeks. Read Mike's story...



Mike Mason

Mike was a wonderful husband and family man with a great passion for football.  He was diagnosed with a glioblastoma multiforme in 2007 and died just over two years later.  Read Mike's Story...



Mike and Jenny Parry

Husband and wife Mike and Jenny Parry were both lost to aggressive glioblastoma multiforme (GBM) brain tumours. Jenny endured the loss of her husband, aged 56, only to be diagnosed with the same tumour type 15 years later. Having seen Mike go through gruelling surgery only to have the tumour grow back almost immediately, Jenny refused treatment. Instead she spent her final weeks making the most of the time which remained with their daughters Charlotte and Justina. Their daughter Charlotte tells their story…
 



Naseem Pishvaie

Destined for a bright future as a performer, Naseem Pishvaie battled with an aggressive glioblastoma multiforme (GBM) brain tumour for three years. She first became ill just a year after following her dream by attending a school for the performing arts. In the difficult times that followed she managed to keep her sense of humour and remained positive. She died in 2009, just a few weeks short of what would have been her 22nd birthday.


“My daughter was always beautiful and remarkable but the depth of her beauty was never more apparent than in the courage with which she faced her illness. To battle such a serious illness and treatment with its undesirable side effects showed tremendous bravery, dignity and determination. We have been told that she was an inspiration to the patients she knew at the hospice day centre which she attended weekly.”

Naseem’s mother Geri tells her story…



Neville Holt

Neville was a loving husband and proud father and grandfather of two sons, a daughter and four grandchildren.  Once his brain tumour was finally diagnosed, he survived barely another 14 weeks, yet his GP had insisted his symptoms were down to a mild stroke.  He was physically very fit, enjoyed his garden and walked regularly.  Read Neville's Story...



Nick Cotton Foundation In Our Hearts Brain Tumour ResearchNick Cotton

Nick was a loving and intelligent man with a great sense of humour, who loved life.  He had only been married six months when he was diagnosed with an aggressive anaplastic oligodendroglioma brain tumour.  Less than 10 months later, at the age of 30, Nick passed away, having exhausted all known treatments. Read Nick’s story



Nigel Barber

Nigel passed away in June 2013, two years after being diagnosed with an aggressive grade IV glioblastoma multiforme (GBM) brain tumour. Prior to his diagnosis, he was fit and living a busy life as a husband and father of two sons, now aged 31 and 26, working as a ‘rocket scientist’, and enjoying sailing on the south coast. Philippa tells Nigel’s story…
 



Ng Tin Kau

Ray’s father was diagnosed with a glioblastoma multiforme in 2007 and given a prognosis of just a few months, yet for nearly a year he defied the doctors’ predictions and made spectacular progress until the tumour returned with a vengeance and he lost his battle. - Read Ng Tin Kau's story... 



Pam Delome

Pam was the proud mother of four children, five grandchildren and two great grandchildren.  She used to go out to the US for six months over the winter every year to visit her sons and daughter who lived there and it was on one of these visits that her daughter first became aware of certain personality changes.  Eventually Pam was diagnosed with a glioblastoma multiforme grade IV.  She passed away just over a year later in 2011 - Read Pam's Story...



Pamela Rawnsley

Jeweller and silversmith Pamela Rawnsley was struck down with a glioblastoma multiforme brain tumour and died at the age of 62, 99 days after diagnosis. Widely considered to be at the height of her creative powers with much more to give, Pamela’s work was inspired largely by a reaction to places and she loved the wildness of the landscape and the weather in the Brecon Beacons where she lived and worked.


“Brain tumours, it seems, are a unique enemy. They appear to be unprovoked. They can be dissembling, insidious, masters of disguise. Their forces come in a complex variety of forms. When attacked, they can retaliate at once with sometimes overwhelming power. They move fast, often unpredictably. They are equipped with impressive layers of armour. They pick out children. They have terrible weapons that we struggle to match. Their numbers are growing. Doesn’t it shame us that we fail to meet this unique enemy on equal terms?” Pamela’s husband Matthew tells her story…

       



Paul Halfpenny

Paul was just starting out on married life when he was diagnosed with a benign brain tumour, which later became malignant. His courage and determination to leave a lasting legacy for others diagnosed with brain tumours saw him raising tens of thousands of pounds to fund vital research to find more effective treatments and ultimately a cure. Read Paul's story...



Paul Mills

Paul was enjoying life with his family in Singapore. With a great career and a busy social life, they were living their dreams. But within months he was diagnosed with a grade IV glioblastoma multiforme (GBM) brain tumour. He passed away 20 months later leaving wife Emma and young son Thomas. Emma tells his story…

 



Paul Mitchell

Paul was a loving husband and father of four year old John James when he was diagnosed with possible depression in 2001.  Instinctively his wife knew that this was not the correct diagnosis, but she never expected that the underlying cause of his illness was a brain tumour which was to take his life in just 18 months - Read Paul's Story...



Ralph Baker

Newspaper printer Ralph Baker suffered excruciating headaches and swelling to his head before his brain tumour was diagnosed in 1954. Surgery was deemed impossible and the prognosis with radiotherapy was very poor so he received no treatment. Within three months of his diagnosis, Ralph lost his life. He was 43. Here is Ralph’s story…



Phil Barnes

Phil was just 63 when he was diagnosed with a grade IV glioblastoma multiforme.  Less than a month later he was dead.  We never had any inkling that his condition was so serious. Read Phil's story...



Phil Coles

Phil lived for seven years following the diagnosis of a brain tumour in 1998.  His illness was a long and difficult emotional journey for his close family - although he remained brave, stoical and accepting of his condition throughout - Read Phil's Story...



Rebecca Ann Shone Walker

Rebecca battled five brain tumours and passed away on 25th January 2015. She was 33. When she was diagnosed with her second brain tumour, Rebecca and John, her teenage sweetheart, married quietly on her birthday. The following year she was in remission and they renewed their vows in a celebration of her life. When the devastating news came that her illness was terminal, despite numerous operations and many gruelling months of chemotherapy and radiotherapy, Rebecca planned her own funeral and even filmed herself giving a reading which was shown at the service. Her mother Marilyn tells her story…
 



Robin Menary

Robin was a strong, healthy, happy and very sporty 36 year old, looking forward to the birth of much longed for twins, when, without warning, he was diagnosed with a grade IV glioblastoma brain tumour - one of the deadliest forms of cancer. Only 17 months later, on 24th August 2011, Robin died aged just 38.
Read Robin's story...



Ross Pearman

Ross was diagnosed with an Astrocytoma grade II at the age of 30 and had to give up work because of the many seizures he was experiencing.  He was cared for by his wife, Amanda, a trained nurse, as well as extended family, and kept positive by focusing on his two young children, but, at the age of 35, Ross lost his battle against his tumour, leaving his wife without a husband and two young sons – Phoenix, four, and Xavier, 17 months, without their father. Read Ross' story...

 



Sam O'Callaghan 

Toddler Sam’s morning vomiting was initially put down to a stomach bug but within weeks an MRI scan revealed he had a brain tumour. He underwent multiple surgeries and gruelling chemotherapy treatment. Accompanied by mum Fiona, father Eoin and brother Luke, Sam received NHS-funded proton beam therapy in America. Despite the efforts of medical teams on both sides of the Atlantic and the love and support of his family, Sam passed away at home in May 2014. He was just five years old.

“We were told our precious toddler had a mass on his brain and needed surgery. It was horrifying. We signed consent forms knowing that Sam might not survive the surgery or could be left with permanent disabilities. If we didn’t sign he would die anyway. There was no choice to make. Sam’s condition was deteriorating so rapidly that within the space of a few days of his first symptoms he could no longer get out of bed.” Sam’s mum Fiona tells his story…

 



Stephen Carroll

Steve was a devoted husband to Lina and father of three children - Kevin, James and Sarah - when he died of a brain tumour at the age of 59 in June 2012. Read Stephen's story...



Stephen Realf

Journalist Maria Lester’s moving account of her brother Stephen’s brain tumour battle was first published in the Mail on Sunday’s YOU magazine*, a year after he passed away in August 2014 at the age of 26. She launched an e-petition which quickly attracted thousands of signatures and became the first to prompt an inquiry by the new House of Commons Petitions Committee.
 

“Stephen packed more into the six years after his diagnosis than most people do in 86. But he couldn’t keep fighting forever. By the time his 26th birthday came around he was in a wheelchair. He went into a rapid decline, losing his ability to speak, eat or even get out of bed. I don’t like to dwell on those final few weeks, as that’s not the Stephen I remember. To me, he will be forever dashing, forever dignified, forever beaming that beautiful big smile.” Stephen’s sister Maria tells his story…
 



Steve Lloyd

Husband, father-of-two and West Ham fan Steve Lloyd passed away in September 2015 seven years after being diagnosed with an aggressive and inoperable glioblastoma multiforme (GBM) brain tumour. He had just turned 40. Steve underwent treatment and retired from work in January 2015 in order to spend as much time as possible with his wife Angela and daughters Bethany, 12, and Chloe, 10. They were at his side when he passed away.

“It makes me very angry to think that this horrible cancer affects so many relatively young people like Steve, who wasn’t even 40 when he was diagnosed. It seems crazy to think that so little investment is made in this area. Where are the cures, where are the medical breakthroughs, where are the clinical trials which could have given us precious extra time?” Steve’s wife Angela tells his story…

 



Sunita Nathwani

Mum-of-three Sunita was diagnosed with a type 2 meningioma brain tumour after an eye test at Specsavers. She underwent surgery and treatment but lost her battle less than two years later. Her husband Upin has been left with a void in his life and is comforted by the pride he feels in their talented and beautiful children.


“I have lost my partner in life and growing old without her is scary; such a big void has been left in my heart and in my life. However Nita has left me three amazing, talented and beautiful kids which I am so proud of. I know she is looking down and thinking the same. I can see her in all of them, so I will never have to look at a picture if I feel sad. I see them and I will smile.” Sunita’s husband Upin Nathwani tells her story…

 



Taylan Rawlinson

Taylan was an incredible boy who was sadly taken away from his family on 19th August 2009 at the age of just seven. He was a special little star full of love, warmth, joy and laughter. Just 10 months before he passed away, he was diagnosed with a rare form of brain tumour located in the brain stem. In January 2010 his family set up a Brain Tumour Research Fundraising Group and founded Taylan's Project - Read Taylan's Story...



Tom Lubbock

Writer and illustrator Tom Lubbock was chief art critic of the Independent until his death in 2011. Married to artist Marion Coutts and with a son Eugene, Tom lost his life to an aggressive brain tumour aged 53, just over two years after diagnosis. Tom’s book Until Further Notice I am Alive, (Granta, 2012) is a lucid and compelling description of that experience from the inside. After his death Marion went on to publish her acclaimed memoir, The Iceberg. (Atlantic Books, 2014) Marion tells his story...

 



Trudy Shingler

Trudy was a 35 year old forensic psychologist, a wife and mother of 3 year old Phoenix. On 22nd October 2010 Trudy was officially diagnosed as having a Glioma tumour (the specific type was an Anaplastic PXA Grade IV). Less than four months later she passed away. Read Trudy's Story...



Valerie Emms

Valerie was a healthy, fit mother of four grown-up children, who enjoyed golf, gardening and walking her dog when she suddenly started to experience a range of symptoms.  Various doctors diagnosed stress and a trapped nerve, but two months later it was discovered that she had a grade IV glioblastoma multiforme.  Her daughter, Helen, was able to accept and come to terms with the fact that her mother was dying and help Valerie on her journey of letting go.

 

Here’s Valerie’s story…



Yashpal Gill

Yashpal Gill died of a brain tumour in 2002 after a very short illness - he was just 50.  He was a self-employed accountant and a very active man.  His death left his wife, Bali, and two sons devastated - Read Yashpal's Story...





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