Wear a Hat

 

Wear A Hat Day is a huge success.

THANK YOU EVERYONE! The support for Wear A Hat Day 2014 has been amazing. The early indications of funds raised are very promising, not least swelled by the fantastic text donate enthusiasm.

We're busy sending out Thank You letters and Fundraising Certificates - look out for yours in the post and maybe Tweet a photo when you get it or share the news with us on Facebook.

 

We don't let the dust the settle around here, much more to be done to keep brain tumour research funded, so we're working on an exciting all-new fundraising campaign right now, and we'll share all the good news and fun ideas we're creating with you just as soon as we can.

 

In the mean time, if you're not already on our database and would like to be kept informed about all our latest activities, then please drop us a line on 01296 733011 or send a quick email with your details and we'll get right back to you! 

 



 

HatSelfies! You, Your Hat, Your Donation ... 

The #HatSelfie photo is all the rage now and a perfect tie-in to #WearAHatDay

Whether you're already holding a #WearAHatDay event or you're just hearing about it now and want to support the campaign and the cause, you can text to donate right now!

 

Text the message WEAR12 £3 to 70070 (the value can be anything up to £10/text message) and send us your best #HatSelfie on social media (that's a photo of yourself in a hat, taken by you, shared on our Facebook page or Twitter feed or via Pinterest). Many people are sending us the #HatSelfie and the donation screenhot of their phone at the same time.

 

For more information about getting involved in #WearAHatDay or any of our fundraising campaigns, visit our Fundraising pages.

 

Thank you for helping to #FundTheFight.    



 

New hope for 16,000 people diagnosed with brain tumours each year as three new research partnerships are announced at Speaker’s House

Patients, carers, scientists, clinicians and charities from across the UK head to Westminster for the launch of ground-breaking new collaborative partnerships between Brain Tumour Research and Research Centres of Excellence. The announcement opens a new chapter in long-term sustainable and continuous research into the biggest cancer killer ofchildren and adults under 40. 

After a robust selection process including the formation of a Scientific and Medical Advisory Board and completing a series of stringent international peer reviews, we are very pleased to launch partnerships with three new Research Centres, paving the way for a £20 million investment in brain tumour research over the next five years. The new Centres are: Queen Mary University of London in collaboration with UCL Institute of NeurologyImperial College Healthcare NHS Trust (London) and Plymouth University Peninsula Schools of Medicine and Dentistry.

 

Read the full press release here.

 

 



Wear A Hat Day - bigger, Better, HATTIER!

The UK’s official Wear A Hat Day 2014 takes place on Friday 28th March.

Wear A Hat Day Brain Tumour Research National Fundraising AwarenessRegister today to take part in the nation’s ONLY national brain tumour awareness campaign that generates funds for sustainable and continuous long-term research into brain tumours. 

 

Help us raise £1 MILLION for a new Research Centre.

 

Start planning your event now! 


 



 

Welcome to 2014

In April this year it will be five years since we launched Brain Tumour Research. It’s been an inspirational, challenging and sometimes heart-breaking journey.

Sue Farrington Smith Brain Tumour Research New Year Message We launched with two clear objectives - to grow the market for brain tumour research fundraising and to establish seven centres of excellence dedicated to brain tumour research in the UK. We began by highlighting the chronic inequalities in funding for brain tumour research and we published our first incisive report in June 2009 revealing the shocking statistics for the first time that have now become the main stay of many brain tumour charities core messaging.

 

In July last year we reinforced these ongoing issues with a more penetrating and authoritative report on national research funding flows. Our report, which concluded that funding for brain tumour research is seriously lagging behind funding for other serious diseases at the current levels of national support, it could take another 100 years to find a cure! We presented our report to Government and the larger cancer charities as well to the general public as a direct call to action to get behind our cause and help #FundTheFight.

 

Funding for research into brain tumours is gathering momentum and we had our best fundraising year ever in 2013, with just under £4m raised by us and our member charities. This is an amazing achievement and it shows clearly how much you are already rallying behind our mission – thank you. But there’s more to be done. Please, read my full message here.

 

Yours in hope,

 

Sue Farrington Smith,

Chief Executive.

 



 

Believe 2013 - latest issue out now!

 

Believe Magazine UKs leading source of inspiring stories for brain tumour reserach activitistsThe latest issue of Believe – the UK’s best news magazine for brain tumour activists – is now published. Packed full of stories, news and research updates, it’s an inspiring read for any current (or future) member of the Brain Tumour Research family.

 

If you are not on our mailing list (or perhaps you’ve moved and aren’t sure if we have your new address) and you would like a copy of Believe, please email us with your full postal address. We can send out multiple copies or even a box full (140 copies) to share with all your supporters, friends and family et al.

 

The next issue is already in development - if you think we should tell your story, then please let us know! We can’t include every story in the magazine (not for the love of trying!) but our Facebook page is a never-ending source of wonderful supporter updates. You can post on our Facebook page at any time.



Sarah Beeny Launches New E-petition for Brain Tumour Research.

Sarah Beeny Launches Brain Tumour Research E-petitionEntrepreneur, Property Expert, TV Presenter and active campaigner on behalf of Brain Tumour Research, Sarah Beeny is launching our new e-petition. Sarah is leading our call to action for everyone to get behind this e-petition.

“I am asking YOU to PLEASE sign this e-petition TODAY. I’ve lost two people dear to me from brain tumours and I’m campaigning with Brain Tumour Research. With your help, we can achieve the greatest groundswell of support in lobbying our government since the idea of a united campaign voice against brain tumours was first conceived over 10 years ago. The brain is often seen as the last battleground of cancer and brain tumours are the number one cancer killer of children and adults under 40. Yet the science seeking a cure is shockingly underfunded, receiving less than 1% of the national spend on cancer research. So please join me and SHOW YOUR SUPPORT so that together we can reach our goal of 100,000 signatures. Thank you.”    

Click here to sign the e-petition today.

 

To read our reports unearthing the truth about the shocking lack of funding and other statisitics relating to brain tumour research, visit our Published Reports page

 



Eight institutions are bidding to be the new Brain Tumour Research
Centre of Excellence

Institutions Bidding To Become New Brain Tumour Research Centre of Excellence Funding the FightEight leading British universities and hospitals have been shortlisted in a stringent, peer-reviewed selection process to become the next Brain Tumour Research Centre of Excellence. The successful institution will enter a funding partnership with us, defining a new chapter in long-term research. Our detailed analysis of the funding flows for brain tumours shows they still receive less than 1% of the national spend on cancer research, despite more children and adults under 40 dying of a brain tumour than any other cancer, and an increasing trend in diagnoses and deaths from this devastating disease.

 

Our unique national strategy means we will be providing 100% of our funds to support sustainable and continuous ground-breaking world class research at two Centres of Excellence from 2014. 


The eight applicants include:

  1. The Blizard Institute at Barts and the London School of Medicine, Queen Mary University of London, in collaboration with UCL Institute of Neurology
  2. Imperial College Healthcare NHS Trust (London)
  3. Centre for Cancer Research and Cell Biology at Queen’s University Belfast
  4. University of Bristol
  5. The Walton Centre NHS Foundation Trust (Liverpool)
  6. The University of Central Lancashire (UCLan)
  7. Plymouth University Peninsula Schools of Medicine and Dentistry
  8. Queen Elizabeth Hospital Birmingham, School of Cancer Sciences

Our vision is to establish seven such centres around the UK. We expect this process to result in closer ties with all these leading centres (and indeed other establishments that were interested but could not apply this time for various reasons) and unsuccessful applicants on this occasion will be encouraged to re-apply to be among our future centres. Read the full press release here

 



Mark Hunter MBE Ben Mee Dartmoor Zoo Devon Conquer Together Fear Snake Boa Constrictor Autumn Fundraising Campaign Brain Tumour ResearchConquering Fear at Brain Tumour Research Campaign Launch

Brave smiles from Olympic rower and new Patron Mark Hunter MBE (right) as he gets to grips with his snake phobia at the launch of our Conquer It Together autumn fundraising campaign at Dartmoor Zoo, aided by zoo owner Ben Mee.

Are you ready to overcome a life-long fear or reach new heights of endurance? Whatever you've been to meaning to challenge yourself with, you can join our autumn campaign and #ConqueritTogether

With your help, we can raise the £1 million we need to fund a new Centre of Hope for brain tumour research. Find out more and register today.

 

You can read more about Mark's experience facing his fears and confronting the snake in our press release here

 



Celebrity Chefs line up to support Brain Tumour Research summer campaign – “Host for Hope”

 

Adam Byatt Host for Hope Brain Tumour Research Summer Party Campaign Feed Vital ResearchAlain Roux Host for Hope Brain Tumour Research Summer Party Campaign Feed Vital ResearchFelipe Fuentes Cruz Benito's Hat Host for Hope Brain Tumour Research Summer Party Campaign Feed Vital Research

James Martin Host for Hope Brain Tumour Research Summer Party Campaign Feed Vital ResearchValentine Warner Host for Hope Brain Tumour Research Summer Party Fundraising Campaign Help Feed Vital ResearchVivek Singh Host for Hope Brain Tumour Research Summer Party Campaign Feed Vital Research

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

We are very proud to have fantastic support from a number of celebrity chefs, including Alain Roux (© In-Press Photography),  Felipe Fuentes Cruz, Adam Byatt, James Martin, Valentine Warner (© Clare Richardson), and  Vivek Singh who have all joined forces with Brain Tumour Research to promote the charity’s summer campaign – Host for Hope. Each of the celebrity chefs has donated carefully chosen recipes to support the cause, all are available on the Host for Hope fundraising pack page

 

James Martin said: "I'm hugely impressed by what this charity is doing to raise awareness and I'm very honoured to join their Host for Hope campaign. There is really no excuse why you can't get involved and help feed vital research."



Brain tumours are the leading cause of cancer deaths in the young - and research funding is falling

In another pioneering report, we shed more light onto the controversial lack of funding into the deadliest form of cancer for the under 40s.

Exclusive report into funding for brain tumour researchAlmost three quarters (73%) of brain tumour deaths occur in those under 75. For cancer as a whole, deaths under 75 are less than a half (47%). Yet brain cancer continues to receive less than 1% of the national spend on cancer research. An exclusive new report released on 1st July by Brain Tumour Research shows that treatments for brain tumours lag seriously behind other cancers. 

 

For the full press release on this story please click here and for the full report click here. For more information about our groundreaking reports please visit our Published Reports page.

 

Our mission is to raise £7 million a year to fund world-class sustainable and continuous scientific research into all types of brain tumours in seven Centres of Excellence across the UK. Our centres will work together sharing knowledge locally, nationally and internationally to find a cure for brain tumours whilst educating the next generation of leading neuro-oncologists.

Can you Sponsor a Day of Research to help us achieve our mission? Click here to find out more or call 01296 733011 or email info@braintumourresearch.org for more information. Thank you.



Host for Hope returns this summer

The warm weather is finally here, just in time for you to help fund the fight by planning a great summer party!

Host for Hope encourages people to get together for food and drink whilst supporting a fantastic cause. It’s a great opportunity to invite your friends, family or work colleagues to a social gathering whilst asking them to bring a fiver (or more!) to help fund desperately needed research into this devastating disease.

Dinner date, garden gig, brilliant BBQ, perfect picnic or a big breakfast, plan the event you’d like to host, pick a date and a venue – home, village hall, school, restaurant or pub – and decide the minimum charge for your guests to join the party. Whether it’s £5 or £50 a head, all funds raised go to support research at our Centres of Excellence.

So put a date in your diary, invite some guests and develop your plans to Host for Hope – from baking cakes for your coffee morning to getting out the recipe books for your dinner party! Several high-profile and famous chefs are now backing our campaign - Adam Byatt, Alain Roux, Vivek Singh, and Valentine Warner have each provided a 'signature' recipe. These recipes, along with many other suggestions created specially for your party, can be downloaded as part of our Host for Hope online fundraising pack.

And here's the icing on the cake:

Special Host for Hope oven gloves, aprons, mugs, and tea towels have also been produced to help you promote your event – for further information and details about ordering your own set of merchandise please visit the Host for Hope pages on our website.   



 

Brain Tumour Research is chosen as charity for Bridport Hat Festival

Great news! We have been chosen as a charity partner for the Bridport Hat Festival for the second year running.

Many thanks to Rodger & Monica Snook and all at Snooks the Hatters for their support once again. We are delighted that the festival recognises the synergy with and importance of our nationwide event, Wear A Hat Day.

 

The fourth Bridport Hat Festival will take place on Friday 6th and Saturday 7th of September 2013. Starting with music and more on the Friday evening, the town centre will be taken over by thousands of hat wearers throughout Saturday, with competitions, trade stalls, food & drink, live acts, some surprises, and a mass hat-wearing photo-op in ‘Bucky Doo’ Square. So come on down and get inspired for next year’s Wear A Hat Day. We'll be there, and it’s a great way to meet hatters, milliners and other hat-wearing enthusiasts. 



 

New Lord Mayor of Portsmouth announces Brain Tumour Research as her charity partner

Following Lynne Stagg’s election as Lord Mayor of Portsmouth, Brain Tumour Research is delighted to announce it has been chosen as one of the Lord Mayor’s charity partners.

Lynne Stagg has much reason to select this cause to benefit from her fundraising activities this year. Sadly she has lost several family members to brain tumours including her brother and father in law. 
 
Councillor Stagg said, “More people under 40 die of a brain tumour than any other cancer yet brain tumours remain one of the most underfunded areas of research. After losing my brother and other family members I wanted to highlight this great cause in their memory. Portsmouth residents have a fabulous track record of supporting local and national charities. We have a world-class brain tumour research centre here on our doorstep, which I am immensely proud of.”
 
A prize draw raffle was held as part of the Mayor Making evening dinner on Monday 20th May, which raised over £1,000. The donations will help fund the charity’s Centre of Excellence research laboratory in the University of Portsmouth led by Professor Geoff Pilkington, one of the world’s leading brain tumour research scientists.
 
Read more about this news here.


2012 News Magazine

 

The 2012 edition of our Believe magazine is packed with stories of events organised by our wonderful supporters and fundraising groups, news about our Wear A Hat Day Campaign, latest research publications and lobbying achievements as well as updates from our member charities.

 

Please ask Sarah sarah@braintumourresearch.org if you would like a copy. We can also send you a box of magazines to give to your family, friends, work colleagues, and to place copies in local businesses, GP’s, pubs, clubs, hotels, libraries, hairdressers and anywhere there is a waiting room. 

 

Together we can make a difference by raising awareness of this devastating disease and give hope to the thousands of people diagnosed with a brain tumour each year and their families.

 

If you are not yet on our mailing list and would like a copy of our news magazine, again please email sarah@braintumourresearch.org

 

Thanks.

 



We need you to sign the brain tumour e-petition

In March 2012, Brain Tumour Research's late patron Bill Tarmey, alias Coronation Street’s Jack Duckworth, launched an e-petition on behalf of the brain tumour consortium.  Bill’s son Carl was diagnosed with a brain tumour in 2009, at the age of 42 and the family now work tirelessly to raise awareness of brain tumours.

This petition replaces the one Rachel Clark initiated. Rachel's gained over 11,000 signatories but the life of an e-petition is only a year and Rachel's petition has now lapsed.

Brain tumours kill more people under the age of 40 than any other cancer, including more children and life expectancy for people with brain tumours has not increased for 40 years. They are responsible for an average loss of life of over 20 years and up to 40% of all cancers which initiate outside the brain lead to a secondary cancer in the brain, though many secondary brain tumours are not recorded.

This petition therefore calls on the Government to take action to:

  • Improve brain tumour diagnosis.
  • Enforce best practice in brain tumour care.
  • Increase the proportion of cancer research spending on brain tumours.

To make a real difference we need over 100,000 people to sign the e-petition so please sign Bill’s e-petition here http://epetitions.direct.gov.uk/petitions/35167 and spread the word. Together, we will find a cure.



HeadSmart Campaign

The HeadSmart campaign is run by a partnership between Brain Tumour Research member charity the Children's Brain Tumour Research Centre (CBTRC) at the University of Nottingham, the Royal College of Paediatrics and Child Health and The Brain Tumour Charity (TBTC), and has been funded by The Health Foundation and TBTC.


 

Research has shown that there is considerable variation in the time taken to diagnose childhood brain tumours in the UK. Half of all children and young people diagnosed with a brain tumour take longer than three months to be diagnosed. The aim of the HeadSmart campaign is to reduce the time taken to diagnose brain tumours so that all children and young people with a brain tumour are diagnosed within five weeks of developing symptoms or signs of a brain tumour.
 

The Diagnosis of brain tumours in Children guideline was produced by the CBTRC, with funding from the Big Lottery Fund in conjunction with the TBTC. In 2008 the guideline was appraised and endorsed by the Royal College of Paediatrics and Child Health (RCPCH). The guideline advises healthcare professionals on the identification, assessment and investigation of children presenting with symptoms and signs that could be caused by a brain tumour.
 

The symptoms covered by the guideline have also been used to produce age-specific symptom cards in order to raise awareness of the signs and symptoms among parents and young people.
 

Download the symptom cards   


We think this is a fantastic initiative and will be working with TBTC and other members of the Brain Tumour Consortium on a similar initiative to speed up diagnosis for adults.  





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