Help is online, whenever you need it
Some of our fellow charities have set up online brain tumour support groups for patients and families of those touched with a brain tumour – find the group that is right for you and get in touch using the links below.
Low Grade Glioma Support
Astro Brain Tumour Fund run a Facebook support group for people with low grade gliomas. The group is a mix of patients and caregivers, which provides a unique opportunity to benefit from all perspectives. Members can seek advice based on other peoples' experience of treatments, hospitals and surgeries; to share tips, advice and information as well as a safe place to vent, celebrate and seek and give emotional support.
When requesting to join, a private message will be sent to the applicant to ensure that this group is the right group to support them.
Brain Tumour Support
brainstrustA closed support group is run by brainstrust on Facebook where lots of friendly patients and carers hang out. It is a warm and welcoming group who will comfort you, answer questions, make you smile and, importantly, are in the same situation as you.Posterior Fossa Syndrome Parents Group
The Danny Green Fund run a Facebook support group for parents of children who are suffering from Posterior Fossa Syndrome, also known as Cerebal Mutism. The group is a mix of patients and caregivers from all over the world, where members can seek advice based on other people's experience of the condition. It is a safe environment for parents to share views and concerns, vent and offer support to others in a similar situation.
When requesting to join, a private message will be sent to the applicant to ensure that this group is the right group to support them.