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Volunteer Stories

Help us fund the fight Together we will find a cure

Without dedicated volunteers, our work would not be possible

While every volunteer has different motivations, they all share a common goal – to help us find a cure for brain tumours.

Read their inspiring stories

Why I Volunteer - Adam Holbrook

Baker Adam Holbrook decided to volunteer for Brain Tumour Research after his brother Steve lost his fight against GBM brain tumour in 2016. Experiencing the far-reaching consequences of the disease first-hand and learning about the historic underfunding of research into brain cancer, Adam wanted to help where possible.

In the office, Adam undertakes various tasks, packing orders, stock taking and very importantly bringing cake!

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Why I Volunteer - David Rickard

David started volunteering with Brain Tumour Research after reading on Facebook about its work.

His connection to us is very personal, as his son Ben was diagnosed with a low-grade polycystic astrocytoma at the age of two.
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Why I Volunteer - Emma Carrick

Emma Carrick, a 51-year-old from Milton Keynes, has volunteered for Brain Tumour Research following her husband Brian’s diagnosis in October 2016. Emma enjoys the networking and sense of community she gains from her volunteering and speaking to people who have had similar experiences. Now that Brian is doing well, the couple are looking forward to seeing U2 on five separate venues on their world tour later this year.

Emma tells us about her volunteering…

I have volunteered at the Brain Tumour Research charity for nine months, since my husband Brian’s diagnosis. After suffering a seizure, Brian was diagnosed with a grade 2 oligodendroglioma in October 2016. Having endured surgery, radiotherapy and chemotherapy, we are very pleased that he is doing well.
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Why I Volunteer - Lorraine White

Lorraine decided to volunteer for Brain Tumour Research after finding out about the charity during her frequent visits to John Radcliffe Hospital with her granddaughter Shannon. 

Shannon was diagnosed with a craniopharyngioma brain tumour when she was nine years old, 11 years ago. After seeing her granddaughter undergoing six operations and various treatments that left her blind, Lorraine is motivated to help Brain Tumour Research and raise awareness.

She sees brain tumours almost like a hidden illness. Lorraine explains: "If Shannon hadn’t had a brain tumour, we wouldn’t have known about this type of cancer or the charity’s efforts to fund vital research. Sadly, it is often only if you have a connection to the disease that you start to pay a close attention and strive to find more information."
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Why I Volunteer - Maria Pata

Maria decided to volunteer with Brain Tumour Research as she was diagnosed with a meningioma in 2010 and underwent surgery to have the tangerine size tumour removed. She feels the charity does a lot for the community and wants to be part of it.

She joined the organisation in February 2016 while juggling business coaching and looking after her two young boys. 

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Why I Volunteer - Shannon Moore

Student Shannon Moore, 21, from Aylesbury, has volunteered for the Brain Tumour Research charity with her nan, Lorraine White, since July 2013. Having been diagnosed with a craniopharyngioma at the age of nine, Shannon has enjoyed volunteering as a means to meet new friends and to be a part of making a difference. She now studies at the University of Portsmouth and hopes to pursue a career in sound engineering.

Shannon tells us about her volunteering…

As I am currently on a break from university, I volunteer at the Brain Tumour Research charity with my nan, Lorraine, on a regular basis. I was diagnosed with a craniopharyngioma in 2005, aged nine, after losing my sight and suffering from severe headaches. A few years after my diagnosis, my nan received a leaflet about a pamper evening for Ali’s Dream, a founding Member Charity of the Brain Tumour Research charity.
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