#Hattastic plans for Wear A Hat Day!


The excitement is building as thousands of you are getting ready for Wear A Hat Day on Friday 31st March! Set to be the HATTIEST by far, we are expecting funds raised to significantly exceed previous years, enabling us to fund more sustainable research into brain tumours. 


No matter where you are or what you have planned, you can show your support via text donate -- simply text HAT to 70660 to donate £5*.


Don't forget to send us your photos -- we can't wait to see how you take part in Wear A Hat Day!


Haven't signed up yet? There's still time! Register today. 
 


* Texts cost £5 plus network charge.
Brain Tumour Research receives 100% of your donation.
Obtain bill payer’s permission.
Customer care 01908 867200. Charity no. 1153487 (England & Wales) SC046840 (Scotland)

 



Drug repurposing - a novel approach for the treatment of brain tumours


Our Director of Research, Dr Kieran Breen, featured in the Mar/Apr 2017 edition of Oncology News with an article highlighting the promise shown by repurposing drugs that are already in existence for the treatment of brain tumours.


We highlighted this key issue in our Invest in a Cure manifesto. The issue was also identified by the Governmental Task and Finish Group, established in response to the UK Petitions Committee's report on poor levels of funding for brain tumour research.


Read the full article here.



Speaker's House 2017


On Wednesday 15th March, we were joined by supporters, scientists, celebrities and MPs alike for our annual brain tumour awareness March event at Speaker’s House, kindly hosted by our long-standing patron, Rt Hon John Bercow MP.


Following a welcome to the House by John, Debbie McGee, wife of the late Paul Daniels, spoke on behalf of the thousands of families who have lost a loved one to a brain tumour.


Emotive speeches were also given by Bethany and Chloe Lloyd, who lost their father Steve in December 2015; Wayne Church, who lost his son Finlay at the age of 11 and Ben Anderson, a patient who was celebrating his 18th birthday that day. All speakers poignantly described how they had been affected by the disease and also highlighted the ongoing battle for greater parity of funding for brain tumours.


Dr Helen Campbell, who provides the secretariat to the Government's Task and Finish Working Group, updated us on progress. She explained that the barriers have been identified and the group is now working on how these will be broken down.


Our humblest thanks to all who attended this flagship event. Together we will find a cure.

 



The Nicki Waterman Kerala Challenge


Last weekend, a team of amazing supporters set off for an epic fundraising event, The Nicki Waterman Kerala Challenge


Nicki Waterman, who was one of the UK's foremost fitness experts, died from an aggressive brain tumour in 2016, just 15 months after diagnosis. In her final days, the 53-year-old told her family and friends: “There is nothing you can do for me now — but please help others.”


Close friend and celebrity client, Denise van Outen together with Nicki’s daughter, Alex Thrussell, are now honouring her wishes with this fantastic challenge.


The team are aiming to complete the 187-mile ride in just five days. Traversing the challenging sub-tropical landscape of Kerala in southern India, they will face sweltering average daily temperatures of around 30˚C. Follow their adventure on social media #NWKC2017.


Read the full story and show your support over on JustGiving or Text NICKI to 70660 to donate £5*


*Texts cost £5 plus network charge. Brain Tumour Research receives 100% of your donation. Obtain bill payer’s permission. Customer care 01908 867200. Registered charity number 1153487 (England and Wales) SC046840 (Scotland). Company limited by guarantee number 08570737.

 



Brain Tumour Awareness Month


March is Brain Tumour Awareness Month. To begin this month of campaigning for greater brain tumour awareness and research funding, a poem was read and a minute silence was observed in memory of the countless loved ones who have been lost to a brain tumour.


Read the poem, and stories of those we keep in our hearts, here


You can show your support throughout March by adding our unique Twibbon to your profile picture on Facebook or Twitter.


 



Hobbycraft supporting Wear A Hat Day


We are extremely excited to announce that Hobbycraft stores nationwide will be taking part in Wear A Hat Day 2017 throughout February and March!


There are so many ways you can join in with Wear A Hat Day at your local Hobbycraft store. It’s never been easier to get involved and have a great time fundraising for Brain Tumour Research!


Hobbycraft will be holding a series of instore events, including hat-making workshops, across more than 80 stores nationwide in the run-up to Wear A Hat Day. Find out more and get involved here. 



Read Believe Spring 2017 now!
 

The latest edition of Believe - our news magazine for brain tumour activists - is now available. 


Packed with inspiring stories, including updates on our brain tissue bank collaboration and exciting news about Wear A Hat Day 2017! Read all of this and more online here.


If you do not receive our mailings and would like us to send you a copy (or even batch to distribute in your work place or local community) please contact us. If you would like your story to be considered for inclusion in a future issue of Believe, please contact Natasha and she'll be happy to talk to you! 

 



Remembering Paul Daniels


As a tribute to the great magician Paul Daniels, we are delighted to announce a special and unique Rabbit in a Hat badge.

Produced in collaboration with Debbie McGee, Paul’s widow, the badge is symbolic of his enduring popularity as an entertainer, television personality and of course a hugely talented magician.

Paul died in March 2016, shortly after announcing his diagnosis of an inoperable brain tumour.
Debbie says: “He died four weeks and five days after the diagnosis. I still miss him every day. I still love spending time with our rabbits – they make me think of him.

“I am really proud to be able to work with Brain Tumour Research in this way and I think Paul would have been too. I hope everyone will buy at least one of these badges – by wearing one, you’ll be remembering Paul and supporting vital brain tumour research.”


Buy your badge
directly from our eBay page for a suggested donation of just £5, while stocks last.
 



A warm welcome to In Sue's Name


We are extremely pleased and privileged to announce to announce the launch of new Member Charity, In Sue’s Name. We hosted the launch of our newest Member Charity on Thursday 2nd February at our Centre of Excellence in Queen Mary University of London.

In Sue’s Name has been set up by Kathleen and David Taylor in memory of their 42-year-old daughter, Susan Blasotta, who passed away in January 2011; just six weeks after diagnosis with an aggressive glioblastoma brain tumour.

Read the family’s heart-breaking story here.

Find out how you can support this incredible charity on their mission to raise £1million in 10 years over on their website.

We are privileged to be supported by numerous Member Charities from across the UK, united with us in our mission to find a cure. Find out more about these collaborations.
 



Wear A Hat Day Limited Edition Brooch 2017


Blending chic, fun and pop aesthetics, our 2017 brooch is based on a design by cutting edge milliner Piers Atkinson. Wearing his famous Pom Pom cap design is a striking way to support Brain Tumour Research.

Sadly, there is a serious intent underpinning this collaboration as Piers has a close friend who was diagnosed with a brain tumour.

"Having learned more about this devastating disease and the need for increased research to get closer to a cure I am so pleased to have contributed in this way. I hope everyone who wears this brooch enjoys the comments of friends and strangers and it happy to explain with pride that they wear it to support Brain Tumour Research."


Buy yours from eBay now. 


See our other Limited Edition brooches here.
 Each brooch is limited to a run of 500 and comes with a Certificate of Authenticity to verify this.

 



Our Chief Executive Sue Farrington Smith awarded MBE 
 

Sue Farrington Smith awarded MBE We are hugely honoured and delighted to announce that our Chief Executive, Sue Farrington Smith, has been awarded an MBE in the New Year’s Honours.
 

“I cried when I heard the news. It is such a great honour. It made me realise the enormity of what has been achieved in the last 15 years, since we lost my sister’s little girl, Alison Phelan, three weeks before her eighth birthday.
 

I feel blessed that so many patients, families and supporters choose to fundraise and campaign alongside us. They keep me motivated.
 

There are so many people who have been with me and Ali’s family and friends on this journey. We have always been so completely focused on finding a cure for brain tumours and now, more than ever before, we have such hope for the future. I know that together with our supporters we will find a cure.”
 

- Sue Farrington Smith MBE
 

As 2016 draws to a close, we wish you all health and happiness for the New Year and look forward to the progress we will make together in 2017. Together we will find a cure.
 

Read Sue’s full blog post here.

 



Thank you from Brain Tumour Research


2016 has been a year of change.


Over 120,000 of you signed our e-petition, leading to a groundbreaking brain tumour debate at Westminster.


We launched our latest Report on National Research Funding in October. This revealed a troubling status quo in brain tumour funding.


We’ve had our best ever year of fundraising and have now crossed the £10 million mark for all-time funds raised.


Thank you for your generosity, your strength and your voice.


Read our full review of the year, and ways to stay involved in 2017, over on our blog.



APPG on Brain Tumours - December 2016

 

At the APPG meeting in Westminster earlier this month, scientists, clinicians, patients and MPs all spoke in favour of our unique strategy of funding long-term research at UK Centres of Excellence.


Thanks to your support, our influence in Parliament has never been stronger. We will carry this momemtum with us into the next Task and Finish Working Group meeting in January 2017, where we will continue to call for urgent investment in brain tumour research.


Read our full review of the APPG meeting here.


Download our briefing to Parliamentarians from the meeting, "Accelerating the rate of progress in brain tumour research", here.

 



Research news on our blog

New on our blog -- our Director of Research, Dr Kieran Breen, probes the reality behind the headlines.


A recent article claimed new drugs may shortly be available for treatment of atypical teratoid rhabdoid tumours (AT/RT), but is this really the case? Read more over on our blog. 


You can find all of our recent research updates and news over on our blog -- other recent stories include insights into the American Society for Neuro-oncology annual meeting and looking to the future of licensing drugs for the treatment of brain tumours



Britain Against Cancer Conference 2016


The annual Britain Against Cancer conference took place in Westminster this week. Hosted by the All Party Parliamentary Group on Cancer and attended by more than 450 people, the conference was a great opportunity for us to use our authority within the field of brain tumours to positively influence understanding of this disease.

Simon Stevens, Chief Executive of NHS England, shared positive news about cancer survival rates and prevention but recognised more still needs to be done. The event also offered us the chance to discuss key findings from our Report on National Research Funding with policy experts and Government decision makers.

Click here to read our full blog from the day.

 



National Research Funding Report 2016

Addressing the historic underfunding of brain tumour research


Our National Research Funding Report, released 11th October 2016, highlights the continued underfunding and lack of awareness surrounding brain tumour research.


Devastatingly, every week, a family loses a child to a brain tumour, more than those lost, under the age of 15, to leukaemia.

In contrast to increasing survival rates for other cancers such as breast cancer and leukaemia, people dying from brain tumours under the age of 75 increased by 10%.


In 2015, charities funded 86% of national research into brain tumours, while Government spend on brain tumour research represented just 0.52% of its total spend on cancer research.


On October 18th, we took this new information to the first meeting of the Government's Task and Finish Working Group, established in the wake of the Parliamentary debate on funding for brain tumours.

Brain Tumour Research will play a key role in these meetings, addressing the need for greater levels of brain tumour research funding in the UK. 


Read our full report online here
, or click here to download a PDF copy


Watch Channel 4 News featuring our report over on YouTube.


 




It's Me
 

We share the personal stories behind the devastating statistics as patients, parents and loved ones detail their brain tumour experiences. 




Let's Connect
Register now for Wear A Hat Day
Make a donation here
We aim to fund brain tumour research in the same way as leukaemia, breast and other cancers - will you help us?