National Research Funding Report 2016

Addressing the historic underfunding of brain tumour research

Our National Research Funding Report, released October 11th 2016, highlights the continued underfunding and lack of awareness surrounding brain tumour research.

Devastatingly, every week, a family loses a child to a brain tumour, more than those lost, under the age of 15, to leukaemia.

In contrast to increasing survival rates for other cancers such as breast cancer and leukaemia, people dying from brain tumours under the age of 75 increased by 10%.

In 2015, charities funded 86% of national research into brain tumours, while Government spend on brain tumour research represented just 0.52% of its total spend on cancer research.

On October 18th, we took this new information to the first meeting of the Government's Task and Finish Working Group, established in the wake of the Parliamentary debate on funding for brain tumours.

Brain Tumour Research will play a key role in these meetings, addressing the need for greater levels of brain tumour research funding in the UK. 

Read our full report on online here
, or click here to download a PDF copy

Watch Channel 4 News featuring our report over on YouTube.


Give hope with every card this Christmas

It's that time of year again -- our Christmas cards are now available to purchase! 

With a whole host of new designs for 2016, there's never been a better time to share a message of hope with your family and friends. 

Simply visit our Christmas Cards page to see the full list of designs and purchase your favourite -- check out our fun festive video if you're having trouble choosing!

Could you sell a box of cards in your local area on our behalf? Contact us today!

Read Believe Autumn 2016 now!

The newest edition of Believe - our news magazine for brain tumour activists - is now available! Check it out, along with our past issues, here!

It's packed with great stories, as well as updates from our Centres of Excellence, news from our Member Charities and details of our upcoming events! Read all of this and more online here.

If you do not receive our mailings and would like us to send you a copy (or even a box to distribute!) please contact us. If you would like your story featured in a future issue of Believe, please contact Natasha with your story. 


Nicki Waterman Sun Fitness Expert Passed Away from Brain Tumour Paying Tribute to Nicki Waterman


We are paying tribute to Nicki Waterman, Celebrity Fitness Trainer and The Sun newspaper's fitness expert, who passed away following her brave battle with a glioblastoma brain tumour, the most aggressive and deadly form of the disease.


Sue Farrington Smith, Chief Executive of Brain Tumour Research, celebrated Nicki's determination and bravery: “She did so much to raise awareness of brain tumours and the need for research funding when she told her story in The Sun and continued to be a friend of the charity, supporting us on social media and attending our campaigning events. It was a privilege to meet her at the Houses of Parliament in March. We will remember this courageous and beautiful woman, taken far too soon.”


Nicki's friends, family, colleagues and clients are fundraising for Brain Tumour Research in her memory -- you can show your support on social media by posting a #SweatySelfie whilst exercising and texting SNAP53 £3 to 70070 to donate


You can also show support on the JustGiving page set up in Nicki's memory.


Read more on our Blog.

The Just 1 Project

The Just 1 Project is a ground-breaking effort to raise £500,000 for 5 charities in just 5 months, by simply donating £1 and sharing the project on social media. Brain Tumour Research has been chosen as one of the charities to benefit from this unique challenge.
In this project, created by behaviourist Jez Rose, the sharing is just as important as the donating -- imagine how much could be raised if each of your friends on Facebook, Twitter and LinkedIn were to donate £1 and pass it on!
To find out more and get sharing, visit The Just 1 Project webpage.

All-Party Parliamentary Group on Brain Tumours - July 2016

The All-Party Parliamentary Group on Brain Tumours and members of the brain tumour community met in the heart of Parliament on July 13th, reviewing the landmark success of this year’s Petitions Committee inquiry into brain tumour research funding.

As part of this, they discussed how the new Government can take forward their recommendations in the year ahead.

Chair of the APPG on Brain Tumours, Rebecca Harris MP, remarked: “The last year has seen the profile of brain tumours raised in response to the absolutely stunning petition into brain tumour research which attracted over 120,000 public signatures and secured a fantastic debate in Westminster Hall.”

Read our full write-up over on our blog. 

Liquid aspirin breakthrough for brain tumour research 

ground-breaking scientific breakthrough from our University of Portsmouth Research Centre of Excellence has been unveiled today in the form of liquid aspirin.

Early tests show liquid aspirin is ten times more effective than any existing chemotherapy at killing brain cancer cells -- read more over on the Daily Mail

You can read our full press release on our blog

Do mobile phones cause brain tumours? 

Mobile and cordless phones emit a form of microwave energy known as radiofrequency electromagnetic fields (REF). The media is full of alarming news stories about possible links between mobile phones and cancer. This is a controversial subject and, despite a number of scientific studies, the results have been contradictory making it a hard to draw a conclusion.

Our Director of Research, Kieran Breen, provides an up-to-date report on this situation over on our blog.

WHO publishes new guidelines on brain tumour classification

In May 2016, the World Health Organisation (WHO) published new official guidelines for the classification of brain tumours. Last published in 2007, this update now includes genetic and molecular information of tumours combined with their histology (the way tumours are examined under a microscope) into the classification process, which will help refine expert diagnosis and treatment of brain tumours.

The updated guidelines are a positive step forward for scientific research into and clinical treatment of brain tumours. Find out more about these reclassifcations over on our blog. 

It's Me

We share the personal stories behind the devastating statistics as patients, parents and loved ones detail their brain tumour experiences. 

Virgin London Marathon 2017 


The ballot for entry into the Virgin London Marathon has now closed, but that does not mean you have missed your chance to compete in one of the most iconic races in the world. We have charity places available!

To register your interest in being a part of our team for 2017, contact us at  

Now is your opportunity to help us get closer to a cure for brain tumours.

All runners joining our team will receive: 
  • Customised runner vest with name of your choice
  • Fundraising help (Assistance in setting up your online fundraising page and general tips along the way)
  • Facebook Support Group
  • Post Marathon Reception

We can't wait to hear from you!


Fancy a different challenge?

Visit our new Calendar of Events page and take your pick from our list of exciting opportunities to help get closer to a cure in 2016! 


UK Government acknowledges more must be done

for brain tumour patients

The UK Government has formally acknowledged that more needs to be done for brain tumour patients and their families.

Health Minister George Freeman MP announced a package of measures at a Westminster Hall debate on Monday 18th April which was prompted by an e-petition launched by the family of Stephen Realf, lost to a brain tumour at the age of 26, and backed by Brain Tumour Research.

Our Chief Executive, Sue Farrington Smith, who lost her niece Alison Phelan to a brain tumour just before her eighth birthday, said: "I am immensely proud that, with the support of thousands of patients, families and activists, the woeful underfunding of this dreadful disease has now been acknowledged. Finally, our voices have been heard and the work of the past 15 years has not been in vain.

The Government will:

  • Set up a “Task and Finish” working group at the Department of Health looking at areas highlighted by the Petitions Committee report.
  • Request the National Institute for Health Research (NIHR) produce a national register within a year to examine how public funds are spent on research.
  • Seek to improve levels of earlier diagnosis and include brain cancer in the Genomics England programme.

Read our full press release here


If you would like to receive our campaigning updates via email and are interested in learning about our future lobbying events, please register your details with us here.



The iKnife: A new era for the treatment of brain tumours

In its first patient trial, run by the scientists at the forefront of our Research Centre of Excellence at Imperial College Healthcare NHS Trust, the iKnife has successfully proven its ability to accurately identify brain tumour tissue. This offers real-time analysis and therefore, immediate treatment options. The whole process takes a couple of seconds and is entirely non-invasive. 


"Advances in brain tumour surgery such as this are very exciting and gives hope to the thousands of patients and their families diagnosed with a brain tumour each year.


"We are proud to be partnered with Kevin O’Neill and his pioneering team who are leading our Brain Tumour Research Centre at Imperial College. Our mission is to build a network of experts in the field of brain tumour research to improve outcomes for patients and ultimately find a cure. This technique and forthcoming trial will bring us a huge step forward in achieving our aims." Brain Tumour Research Chief Executive, Sue Farrington Smith.


Read more about the iKnife trial and advancements here.


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We aim to fund brain tumour research in the same way as leukaemia, breast and other cancers - will you help us?