UK Government acknowledges more must be done
for brain tumour patients
The UK Government has formally acknowledged that more needs to be done for brain tumour patients and their families.
Health Minister George Freeman MP announced a package of measures at a Westminster Hall debate on Monday 18th April which was prompted by an e-petition launched by the family of Stephen Realf, lost to a brain tumour at the age of 26, and backed by Brain Tumour Research.
Our Chief Executive, Sue Farrington Smith, who lost her niece Alison Phelan to a brain tumour just before her eighth birthday, said: "I am immensely proud that, with the support of thousands of patients, families and activists, the woeful underfunding of this dreadful disease has now been acknowledged. Finally, our voices have been heard and the work of the past 15 years has not been in vain.”
The Government will:
Set up a “Task and Finish” working group at the Department of Health looking at areas highlighted by the Petitions Committee report.
Request the National Institute for Health Research (NIHR) produce a national register within a year to examine how public funds are spent on research.
Seek to improve levels of earlier diagnosis and include brain cancer in the Genomics England programme.
Read our full press release here.
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