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Press release

Less than 20% of those diagnosed with a brain tumour survive beyond five years

Anniversary ball to celebrate 10 years and bring hope and support to brain tumour patients

Anniversary ball to celebrate 10 years and bring hope and support to brain tumour patients

A Welsh charity helping to fund research into brain tumours at Cardiff University while supporting cancer patients is holding a ball to celebrate its 10th anniversary.

The Thorne Mason Trust, based in Pembrokeshire and a member charity of the Brain Tumour Research charity, was set up by Mike Mason and his wife Debi of Haverfordwest in 2008 after Mike was diagnosed, aged 53 with a brain tumour. The Thorne Mason Trust was registered as a charity in 2009.

In August 2007, having experienced a sensation of numbness in his foot while playing football which spread to his leg and his left side, Mike collapsed. He was taken to hospital where doctors discovered he had a highly aggressive brain tumour known as a glioblastoma multiforme (GBM).

Mike underwent radiotherapy and chemotherapy and refused to accept he was going to die. He had a good year health-wise until October 2008 when he started to drag his leg again. Mike was then given further chemotherapy, but his mobility continued to worsen and he started having fits. He eventually lost the ability to speak and then to do anything at all, before passing away at home aged 55 in November 2009.

Debi said, after losing her beloved husband: “We were together for 33 years, but something happened on one day and nothing will ever be the same again. We never planned for one of us dying so relatively young – we always planned for what we would do together when we were old.”

Brain tumours kill more children and adults under the age of 40 than any other cancer, yet historically, just 1% of the national spend on cancer research has been allocated to this devastating disease.

The Thorne Mason Trust, which has raised more than £75,000 over the years, is celebrating its landmark anniversary with a glittering black-tie event on 23 March at the Beggars Reach Hotel in Burton, Milford Haven. Tickets are £35 and include a three-course dinner with coffee and mints, a DJ and live music courtesy of well-known local group Renthouse Groove.

Mike’s daughter Jesse, 32, an Art teacher at Ysgol Bro Gwaun in Fishguard, said: “We are very grateful to Vaughans in Haverfordwest, with electrical showrooms across Wales, and Essex Smart & Windscreens for sponsoring the ball, as well as to the local community who have generously donated to our silent auction. There will be lots valued from £20 up to more than £500, including a golf day at Celtic Manor, as well as hotel and spa stays.

“During the night we are also proud to be presenting a cheque for a further £10,000, having previously donated £20,000, to sponsor PhD research student Catia Neto and support vital research into GBM brain tumours at Cardiff University. Researchers at Cardiff collaborated with scientists at Brain Tumour Research’s Centre of Excellence within the University of Portsmouth for this project. We are very happy that Sue Farrington Smith, chief executive of Brain Tumour Research, is coming to our ball and has agreed to accept the cheque on behalf of Cardiff University.”

Sue said: “I am delighted to be attending the ball to celebrate the Thorne Mason Trust’s 10th anniversary, which falls in the same year as Brain Tumour Research celebrates its own 10th anniversary!

“Brain tumours are indiscriminate; they can affect anyone at any age. Mike’s story reminds us that less than 20% of those diagnosed with brain tumours survive beyond five years compared with an average of 50% across all cancers. We cannot allow this situation to continue.

“The research collaboration between Cardiff University and our research centre within the University of Portsmouth, couldn’t have been possible without the support of the Thorne Mason Trust and has led to a greater understanding of GBMs. It is only through innovative research projects like this that we will find a cure for brain tumours.”

Brain Tumour Research funds sustainable research at dedicated Centres of Excellence in the UK; it also campaigns for the Government and the larger cancer charities to invest more in research into brain tumours in order to speed up new treatments for patients and, ultimately, to find a cure. The charity is calling for an annual spend of £35m in order to improve survival rates and patient outcomes in line with other cancers such as breast cancer and leukaemia.

To obtain tickets priced at £35 per person, go to www.tickettailor.com/events/thornemasontrust 

 

For further information, please contact:

Liz Fussey at Brain Tumour Research on 07811 068357 or  Liz@braintumourresearch.org

 

Notes to Editors

Brain Tumour Research is the only national charity in the UK dedicated to raising funds for continuous and sustainable scientific research into brain tumours, and we are a leading voice calling for greater support and action for research into what scientists are calling the last battleground against cancer.

We are building a network of experts in sustainable research at dedicated Centres of Excellence whilst influencing the Government and larger cancer charities to invest more nationally.

We welcome recent funding announcements for research into brain tumours from the UK Government and Cancer Research UK – £65 million pledged over the next five years. However, this potential funding of £13 million a year comes with a catch – money will only be granted to quality research proposals and, due to the historic lack of investment, there may not be enough of these applications that qualify for grants from this pot.

We want research funding parity with breast cancer and leukaemia. We are calling for a £30-35 million investment every year for research into brain tumours in order to fund the ground-breaking research needed to accelerate the translation from laboratory discoveries into clinical trials and fast-track new therapies for this devastating disease.

The Brain Tumour Research charity is a powerful campaigning organisation and represents the voice of the brain tumour community across the UK. We helped establish and provide the ongoing Secretariat for the All Party Parliamentary Group for Brain Tumours (APPGBT) which published its report Brain Tumours A cost too much to bear? in 2018. Led by the charity, the report examines the economic and social impacts of a brain tumour diagnosis. We are also a key player in the development strategy for the Tessa Jowell Brain Cancer Mission. 

Key statistics on brain tumours:

  • Brain tumours are indiscriminate; they can affect anyone at any age
  • Brain tumours kill more children and adults under the age of 40 than any other cancer
  • Historically, just 1% of the national spend on cancer research has been allocated to brain tumours
  • In the UK, 16,000 people each year are diagnosed with a brain tumour
  • Brain tumours kill more children than leukaemia
  • Brain tumours kill more men under 45 than prostate cancer
  • Brain tumours kill more women under 35 than breast cancer
  • Less than 20% of those diagnosed with a brain tumour survive beyond five years compared with an average of 50% across all cancers

Please quote Brain Tumour Research as the source when using this information. Additional facts and statistics are available from our website. We can also provide case studies and research expertise for the media.

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