The Acoustic Neuroma and Meningioma Network
AMNET is a support group of Acousti Neuroma or Meningioma patients based at Addenbrookes Hospital, Cambridge. It holds regular meetings, issues a newsletter and offers a range of booklets and information.
Alison Fracella Research Trust
Funds research, treatment and elimination of Glioblastoma brain tumours and provides patients with comprehensive information and support.
The Andrew McCartney Trust Fund for Brain Tumour Research
Raises funds for research through the sale of images taken by Andrew McCartney, a keen landscape photographer, before his death from a brain tumour.
The Association of British Neurologists
The ABN offers information for consultant neurologists, trainee neurologists and their patients. It aims to improve the health and well-being of people with neurological disorders by advancing the knowledge and practice of neurology in the British Isles.
Astro Brain Tumour Fund
Astro Fund raises money for research into low-grade gliomas and provides support to sufferers and their carers. Please call 01485 572767 or email info@astrofund.org.uk
Basic Charity
BASIC is a brain and spinal injury charity affiliated to the Greater Manchester Clinical Neuroscience Centre with useful information for brain tumour patients and their carers, as well as for patients recovering from severe brain injury.
Brain & Spine Foundation
A national organisation, set up to develop research, education and information programmes for people affected by disorders of the brain and spine. They provide a helpline staffed by neuro-nurses and a useful glossary of definitions of medical and technical words and procedures. Copies of the Brain and Spine Information Booklets can be obtained via the help-line or downloaded from the website.
Brain Tumour Action
Provides information, support and counselling for brain tumour patients, their friends and families, including a telephone help-line staffed by Neuro-Oncology nurses and trained counsellors. Leaflets can be downloaded free. They also raise funds for brain tumour research. In addition, Brain Tumour Action operates as a useful self-help news and discussion group for patients, carers and others affected by a brain tumour.
Brain Tumour Research Campaign
Acts in association with the Way Ahead charity to raise public awareness and fund research into brain tumours at Charing Cross Hospital. A Member Charity of Brain Tumour Research.
brainstrust
Explores brain tumour treatment worldwide and is developing a UK-wide strategy dedicated to improving proactive care for brain tumour sufferers. This helpful website provides a useful `who can help' guide to show you which way to turn if you or your child have been diagnosed with a brain tumour and this is available to download free from the website. Brainstrust also supports patients and carers at the point of diagnosis, or at any point on this hard journey via a useful helpline, giving practical advice about what you can do to take control of the situation. Advice is geared to each individual case and is based on a wealth of experience working with the brain tumour community, both in the UK and internationally. Please call 01983 292405 or email hq@brainstrust.org.uk. They are a Member Charity of Brain Tumour Research.
Brainwaves NI
A Northern Ireland based support group for brain tumour sufferers, children and adults, their families and carers. A Member Charity of Brain Tumour Research.
British Acoustic Neuroma Association
BANA is organised and administered by people affected by acoustic neuroma and exists for mutual support, information exchange and listening.
BT Buddies
This website provides a forum, as well as information about types of brain tumour, treatment and stories of hope. they carry a list of global brain tumour organisations www.btbuddies.org.uk/links/87-brain-tumour-organisations-worldwide.html
BUPA
BUPA provides a useful factsheet on brain tumours.
The Epidermoid Brain Tumour Society
The society is administered by international members affected by the epidermoid brain tumour, and was organised for the purpose of giving information, support and to provide a connection with others. Our organisation consists of the newly diagnosed, the experienced patient with one or many craniotomies, and those who have not had surgery along with families, caregivers, and medical professionals. Although this tumour is benign, it has devastating results in the brain, with or without surgery. We hope to raise funds for research of benign tumours of the skull base.
Neurological Alliance
The Neurological Alliance enables charities to work together to improve the quality of life for all those in the UK living with a neurological condition and has a directory of organisations which can provide individual support to people with a neurological condition.
NHS Choices
Find everything you need to know about medical conditions, symptoms, health tests, treatments, operations and services.
NICE Guidance for Brain Tumours
A patient guide to complement the NICE national guideline for health professionals.
Patient.co.uk
For comprehensive health information which includes cancer of the brain and brain tumours. A leaflet which includes an excellent overview of the different types of brain tumour, information on symptoms, diagnosis and treatment is available to download.
Pituitary.org.uk
The Pituitary Foundation works to provide information and support to those living with pituitary disorders, including patients, their relatives, friends and carers.
The Ed Evans Foundation
In memory of 27 year old Ed Evans who passed away in 2007, this organisation is based in Wales, UK and raises funds for cancer and brain tumour charities.
The International Brain Tumour Alliance
The IBTA seeks to be an alliance of the support, advocacy and information groups for brain tumour patients and carers in different countries and also includes researchers, scientists, clinicians and allied health professionals who work in the area of brain tumours.