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Support Groups
16,000 people diagnosed with a brain tumour every year
Contact your local support group
This list represents a range of support groups for patients and families affected by brain tumours. We thought you'd like to know where they are and how you can contact them. Please note, this list is only as effective as information we've been given at the time of adding it.*
Sadly, diagnoses of brain tumours are increasing so there is always going to be a need for more support groups. If you have a group but it is not shown in our list, please send your details to info@braintumourresearch.org so we can include it.
| Location | Meeting Times | More Information |
Belfast | Monthly Second Wednesday of each month except July, August and December. 7:30pm - 9:30pm | Run by Brainwaves 02893 372595 Key co-ordinator: Kate Ferguson |
| Birmingham John Lewis Community Hub 2 Station Street B2 4AU | Third Thursday of every month. 10:30-12 noon. | Run by Brain Tumour Support Contact Suzie Moon - suzie@braintumoursupport.co.uk |
| Bristol Turnberries Bath Rd Thornberry South Gloucestershire BS35 2BB | First Wednesday of month 10:30-12 noon. | Run by Brain Tumour Support Contact Amanda Love - 07711 597 164 amanda@braintumoursupport.co.uk |
Cambridge The Acoustic Neuroma and Meningioma Network (AMNET) | Quarterly meetings Nov 29 2008 March 28 or April 5 2009 July 11 2009 Nov 28 2009 | For patients diagnosed with an acoustic neuroma or vestibular schwannoma brain tumour www.amnet-charity.org.uk or call Alison Frank on 01953 860692 |
| Cork Cork University Hospital | Contact : Avril O’Sullivan - Patient Support Services Administrator Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4 Ph: +353 1 2310533 Fax: +353 1 2310555 Email: aosullivan@irishcancer.ie Web: www.cancer.ie | |
| Cornwall The Liskerrett Community Centre Varley Lane Liskeard Cornwall PL14 4AP | Bi-monthly - Second Tuesday of month 11:30-1pm | Run by Brain Tumour Support Contact Julie Liddle - 07711 597 165 julie@braintumoursupport.co.uk |
| Cornwall Truro Library Union Pl Truro TR1 1EP | Bi-monthly - Second Tuesday of month 11:30-1pm | Run by Brain Tumour Support Contact Julie Liddle - 07711 597 165 julie@braintumoursupport.co.uk |
| Coventry Social Club Walsgrave Hospital Clifford Bridge Road Coventry | Monthly | Open to all patients diagnosed with a brain tumour, and families, friends. Contact Ian Edwards on 02476 965 326 |
| Coventry Ansty Social Club CV7 9JD | Third Monday of every month 3:00-4:30pm | Run by Brain Tumour Support and Brainwaves Contact Louise Tully - 07711 597 168 louise@braintumoursupport.co.uk |
| Devon FORCE Cancer Charity Corner House Barrack Road Exeter EX2 5DW | First Friday of every month 1:30-3pm | Run by Brain Tumour Support Contact Julie Liddle - 07711 597 165 julie@braintumoursupport.co.uk |
| Dorset The Grove Hotel 2 Grove Road East Cliff Bournemouth BH1 3AU | Bi-monthly - First Tuesday of month 1:30-3pm | Run by Brain Tumour Support Contact Jane Halls - 07711 597 166 jane@braintumoursupport.co.uk |
| Dorset Dorchester Meeting Room 2 Dorford Centre Bridport Road Dorchester DT1 1RR | Bi-monthly - First Wednesday of month 10:30-12 noon | Run by Brain Tumour Support Contact Jane Halls - 07711 597 166 jane@braintumoursupport.co.uk |
| Dublin St Lukes Hospital Dublin | Contact: Avril O’Sullivan - Patient Support Services Administrator Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4 Ph: +353 1 2310533 Fax: +353 1 2310555 Email: aosullivan@irishcancer.ie Web: www.cancer.ie | |
| Edinburgh Maggie’s Centre Western General Hospital Edinburgh | Monthly First Tuesday at 7pm No meetings in Jan or Jul | Contact Alice MacGregor 0131 334 3609 |
| Galway University Hospital Galway | Contact: Avril O’Sullivan - Patient Support Services Administrator Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4 Ph: +353 1 2310533 Fax: +353 1 2310555 Email: aosullivan@irishcancer.ie Web: www.cancer.ie | |
| Glasgow The PRTC West Glasgow Carers Centre, Anniesland Cross, 1561 Great Western Road | Monthly Second Monday from 7pm - 9pm | Contact Sheena Muir 0141 942 4475 |
| Gloucester Maggie's Centre College Baths Road Cheltenham GL53 7QB | Second Tuesday of every month 1:30-3pm | Run by Brain Tumour Support Contact Louise Tully - 07711 597 168 louise@braintumoursupport.co.uk |
| Guildford The Fountain Centre St Lukes Centre Royal Surrey Hospital Egerton Road Guildford GU2 7XX | Monthly Second Tuesday from 12 noon to 3pm | Contact Anne Wittle 01252 834784 |
| Haywards Heath Sussex Brain Tumour Support Group | Monthly 2nd Tuesday from 7pm to 9pm | Please contact either Jill Collins 01444 243492 or Charlotte Tripp 01273 412519 (after 7pm) to confirm your attendance and where to meet. |
| Hereford St Michael's Hospice Frome Close Bartestree Hereford HR1 4HA | Monthly 4th Thursday from 11am-12:30pm | Run by Brain Tumour Support Contact Amanda Love - 07711 597146 amanda@braintumoursupport.co.uk |
| Leeds Crowne Plaza Hotel Wellington Street Leeds LS1 4DL | 6:30pm, 1st Thursday in the month | Run by Brain Tumour Research and Support across Yorkshire (BTRS) for adult brain tumour patients and carers. Free car parking and refreshments. Contact Sam Wilson on 07539 457239 for more information or www.btrs.org.uk |
| Leeds St James Hospital, Leeds | Monthly 1st Tuesday from 6.30pm to 8pm | Run by Neuro Oncology Leeds Teaching Hospitals 01943 870770 |
| Lincolnshire Lincolnshire Brain Tumour Support Group | Dates vary, check website for details | The group is open to anyone diagnosed with a Primary Brain Tumour either benign or malignant and their partners and carers. Patients should be resident in Lincolnshire and/or treated at United Lincolnshire Hospital Trust (ULHT) www.lbtsg.co.uk |
| London St Thomas Hospital Richard Dimbleby Centre Second Floor Lambeth Palace Road London | Monthly First Monday 1.30pm – 3 pm | Contact Barbara - 0207 188 5918. |
| London The Resource Room Bloomsbury Healthcare Library Bonham Carter House 52 Gower St, London | Monthly First Tuesday every month, 6pm to 8pm. | Support group for low-grade glioma patients, family and friends. Contact Emma Townsley or Orla McKee, Neuro-Oncology Clinical Nurse Specialists, on 0207 3918833 |
| Oxford 5 Abingdon Road Didcot OX11 9Bl | Quarterly meetings for children with a brain or spinal tumour and their families. (Information day, Fun Day, Pantomine, Adolescent weekend) | Run by Friends of Oscar Contact Carol - 01235 816310 carolharrison@utdsl.com |
| Shrewsbury Hamar Centre Royal Shrewsbury Hospital North Mytton Oak Rd, Shrewsbury SY3 8XQ | Quarterly 11am-12:30pm | Run by Brain Tumour Support and The Brain Tumour Charity Contact Christine Bettson - 07711 597169 christine@braintumoursupport.co.uk |
| Somerset Somerset Sight Northfield House 51 Staplegrove Road Taunton TA1 1DG | Monthly Every 3rd Tuesday 10:30am to 12pm | Run by Brain Tumour Support |
| Southampton Wessex Cancer Trust 91-95 Winchester Road Chandlers Ford Hampshire SO53 2GG | Monthly second Tuesday of every other month, at 1.30pm – 3.00pm. | Run by Brain Tumour Support Contact Penny Spurr - 07711 597166 jane@braintumoursupport.co.uk |
| Staffordshire The Carer's Centre North Staffs Carer's Association 1 Duke Street Fenton Stoke on Trent ST4 3NR | Monthly Every 3rd Thursday from 1:30 - 3:30pm | Run by Brain Tumour Support Contact Christine Bettson - 07711 597 169 christine@braintumoursupport.co.uk |
| Sutton, Surrey Royal Marsden NHS Trust Downs Road Sutton Carers’ group and Patients’ group meet at Richard Wells Rehab Centre | Monthly Third Thursday at 7.30pm to 9pm. | Two support groups: one for carers and one for those diagnosed with a brain tumour For information, contact Helen White on 020 8661 3038 or Helen.white@rmh.nhs.uk |
| Tamworth Coton Centre Comberford Road Tamworth B79 9AA | Monthly First Monday of every month from 11am to 1pm. The meetings will be confidential and parents can share their stories, talk and listen to each other, and support one another. | Poppy Fields Special Mummies and Daddies. Call Lisa Guilder on 07830 302622 or email lisa.guilder@homecall.co.uk. The meetings will be confidential and parents can share their stories, talk and listen to each other, and support one another. |
| Walsall Aldridge Social Club High Street Aldridge Walsall WS9 8LZ | Monthly Last Thursday of each month 7-8:30pm | Run by Brain Tumour Support Or Kieran WiddowsonVolunteer Group Co-ordinator Mobile: 07725 114279 |
| Wolverhampton Light House Coffee Shop The Chubb Building Fryer Street Wolverhampton WV1 1HT | Monthly 2nd Thursday 1-2:30pm | Run by Brain Tumour Support Contact Suzie Moon,Brain Tumour Support Services Co-ordinator: suzie@braintumoursupport.co.uk |
Worcestershire The Countryside Centre Worcester Woods Country Park Wildwood Drive Worcester WR5 2LG | Monthly First Friday of the month, at 10.30am – 12 noon. Social events are arranged for every other month. | Run by Brain Tumour Support Contact Louise Tully, Brain Tumour Support Worker for Worcestershire: |
Other helpful organisations where you can receive specific support
Low-grade gliomas
Astro Fund raises money for research into low-grade gliomas and provides support to everyone whose lives are touched by this tumour type through their online support group. For general enquiries telephone: 01485 572767 www.astrofund.org.uk
Meningioma UK
Offers support and information to anyone who has this kind of primary brain and spine tumour, and raises awareness of its often life-changing effects. www.meningiomauk.org
Pituitary Tumours
Over 40 support groups across the UK run by the Pituitary Foundation www.pituitary.org.uk
*We do not take responsibility for checking the ongoing accuracy of information provided on this page.