16,000 people diagnosed with a brain tumour every year
Listening to our brain tumour community, we know that sometimes a book can help you to cope, to learn more about the disease, to discover other people’s stories and find inspiration in their words.
We’ve pulled together a list of book titles that we think might be helpful for those living with a brain tumour, having lost someone to the devastating disease, or understanding the challenges facing those who work in front line of treatments.
We’ve summarised the books on this page and provided a link to where you can buy them online. Don’t forget, if you buy from Amazon, you can use Amazon Smile (check out our article on this in our autumn 2018 issue of Believe magazine here) or if shopping on other sites, try using easyfundraising - either way, you can shop online and raise funds for Brain Tumour Research at the same time. What's not to like?
A Brain Tumour Travel Tale – Claire Bullimore
“In 2008 I was diagnosed with a rare brain tumour when I was 25... I keep a diary that I have now turned into this book. The book shows my true emotions and hardships of a brain tumour, surgery, recovery and then the scars inside and out.” – Claire Bullimore
Admissions: A life in Brain Surgery – Henry Marsh
Henry Marsh has spent a lifetime operating on the surgical frontline. There have been exhilarating highs and devastating lows, but his love for the practice of neurosurgery has never wavered.
Bitter Sweet – Gordon Shaw
This comic book has been created by graphic artist Gordon Shaw, following his diagnosis with a brain tumour to help people gain a greater understanding of cancer and the effect it has on patients. Gordon, who has named his tumour Rick (from the word ‘turmeric’), was diagnosed with a low-grade brain tumour in 2012 which quickly progressed to being high-grade. He is donating 5% of the proceeds from sales to Brain Tumour Research.
Purchase this book here.
Read Gordon’s brain tumour story here.
Brain Tumours: Living low grade – Gideon Burrows
Slow growing brain tumours change lives forever. This readable and moving non-technical guide is about living with a low grade tumour, a diagnosis given to thousands of people every year.
Do No Harm – Henry Marsh
“Why has no one ever written a book like this before? It simply tells the stories, with great tenderness, insight and self-doubt, of a phenomenal neurosurgeon…” – The Observer
The Finch in My Brain: How I forgot how to read but found how to live – Martino Sclavi
"I have a Finch on the left side of my brain, and no matter what happens along the way, I know that it will help me to fly and transform all my handicaps into new ways of seeing and narrating the comedy and drama of everyday life." – Martino Sclavi
The Hope that I Have…to remission and beyond – Dr Tanya Malpass
Written by a retired A&E consultant who was diagnosed with a glioblastoma multiforme (GBM) brain tumour in 2015, this book is humorous and full of hope and optimism. Tanya encourages the reader to question everything and remain open-minded about what might help to put cancer behind them.
Purchase this book on Kindle, and in print from Tanya’s blog (later also to be available via Amazon)
Read Tanya’s brain tumour story.
It's All In My Head: How to Survive a Brain Tumour and Find Peace of Mind – Jo Barlow
Jo’s real life story of feeling constantly dizzy and drunk for 4 months at the start of 2016, finally getting a MRI, and finding out she needed urgent brain surgery on a Hemangioblastoma (a benign blood vessel tumour) in her cerebellum. Written in the hope that her explaining how she felt both emotionally and the odd physical sensations that worried her, will support and help others who have been diagnosed with a brain tumour, or anyone needing brain surgery.
Life Matters: How Grief and Horses Changed My Life - Kathryn White
The true story of Kathryn White, who lost her husband and soulmate Ian to a brain tumour. Kathryn’s world is suddenly shattered into tiny, heart-breaking pieces as she is plunged into widowhood aged 37. It’s testament to her fighting spirit and courage that she begins to rebuild her life, determined to live it to the full.
10% of all profits from sales of this book will be coming to Brain Tumour Research.
Like A Hole In The Head – Ivan Noble
Faced with a desperately hard battle against cancer, Ivan decided he would like to share his experiences with readers of the BBC News website. He hoped it could help demystify a disease that touches so many lives, and would allow people across the world to discuss the disease and share their experiences.
Living with a brain tumor: A guide to taking control of your treatment – Peter Black
Each year, thousands of people are diagnosed with a brain tumour. Dr. Peter McLaren Black provides an accessible medical resource for adult patients and their families.
The Man Who Mistook His Wife For a Hat – Oliver Sacks
“Oliver Sacks has become the world’s best-known neurologist. His case studies of broken minds offer brilliant insight into the mysteries of consciousness” – The Guardian.
My Daddy Is My Superhero – Michaelagh Broadbent
“The book was inspired by my experience of explaining my husband's brain tumour illness to my elder son, and is intended to help begin conversations surrounding serious illness and death with young children. I hope it will help many families who find themselves needing to start these types of conversations, or wishing to continue conversations they have already introduced to their children.” - Michaelagh Broadbent
The Neuroscientist Who Lost Her Mind: A Memoir of Madness and Recovery – Barbara Lipska
When neuroscientist Barbara Lipska was diagnosed with brain cancer, she thought she knew about the physical toll. But she was unprepared for its effect on her behaviour. “I was a caricature of my worst traits.” – Barbara Lipska
Pear Shaped – Adam Blain
The true story of Adam Blain, a 44-year-old London lawyer and family man who one day, ends up in A&E after a series of headaches and consistent nausea. Expecting to be sent home with a packet of Paracetamol, he’s shocked when harassed doctors are suddenly offering to buy him gourmet coffee.
Story Hats for Charlotte! – Janet Dowling
Charlotte is a young girl from Sidmouth, Devon who has a brain tumour. It's her goal to raise £19,000 for Brain Tumour Research - to pay for one week of research. Local storyteller Janet Dowling compiled this collection of traditional tales from around the world (all involving hats) to sell and help her reach her target. Anyone from 5 to 105 years will enjoy them! PLUS there are illustrations of hats (by Vicky Jocher) for you to colour. Two books for the price of one!
To purchase this book, please, contact Janet Dowling at Janettells@gmail.com.
Until Further Notice, I Am Alive – Tom Lubbock
In 2008, Tom Lubbock was diagnosed with a rare brain tumour and told he had only two years to live. Physically fit and healthy, and suffering from few symptoms, he faced his death with the same directness and courage that had marked the rest of his life.
When Breath Becomes Air – Paul Kalanithi
At the age of 36, on the verge of completing a decade’s training as a neurosurgeon, Paul Kalanithi was diagnosed with inoperable lung cancer. One day he was a doctor treating the dying next he was a patient struggling to live.
You are my sunshine: One woman's inspirational battle with illness and disability – Anna Gray
‘You are my sunshine' is the inspiring true story of one woman's battle against illness and disability; it charts her struggles adjusting to her new life and disabilities and the limitations which they bring. The book details her interactions with the medical staff and the progression of her life and her condition; and ultimately time spent in hospital. It tells the story of this woman’s life of illness and her battles to remain positive amidst all the chaos.