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APPG on Brain Tumours

Just 1% of national spend on cancer research has been allocated to brain tumours

All-Party Parliamentary Group on Brain Tumours

The All-Party Parliamentary Group on Brain Tumours (APPGBT) was established in 2005 to raise awareness of the issues facing the brain tumour community in order to improve research, diagnosis, information, support, treatment and care outcomes.

Since 2005, MPs and Peers from across the political spectrum have worked together in supporting the brain tumour community, researchers, clinicians and most importantly, patients and their families.

The APPGBT came into being after founding member charities of Brain Tumour Research had worked tirelessly to raise the need for more research into brain tumours up the political agenda. Our Patron, the Right Honourable John Bercow MP, Speaker of the House of Commons, and Sue Farrington Smith MBE, co-founder and trustee of Ali’s Dream (and now Chief Executive of Brain Tumour Research), were instrumental in establishing the APPGBT.

APPGBT Officers & Committee

Working within Parliament, Officers are elected on a yearly basis by their fellow Parliamentarians. Led by the Chair of the APPGBT, Derek Thomas MP, Officers oversee the group’s activities and promote the issues of the brain tumour community across Parliament and beyond.

  • Derek Thomas MP - Chair
  • Rt. Hon Alistair Carmichael MP - Vice Chair
  • Jim Shannon MP - Vice Chair
  • Pauline Latham MP - Vice Chair
  • Kevin Brennan MP - Vice Chair
  • Lord Carlile of Berriew - Vice Chair
  • Baroness Masham of Ilton - Vice Chair

“I am honoured to have the support of the brain tumour community and my colleagues in being elected chair. It is essential that the UK leads the way in investing in research into brain tumours. Our APPG will call for action and leadership from the Government. A brain tumour diagnosis is as devastating today as it was 20 years ago, this is unacceptable for all the patients and families in our communities."

- Derek Thomas MP

APPGBT Meetings

APPGBT members meet throughout the parliamentary calendar to discuss current policy issues, hear from expert speakers and listen to members of the brain tumour community.

Upcoming meeting - 20th November 2018

The next meeting of the APPGBT will launch the report of the APPGBT’s ‘Inquiry into the economic and social impacts of brain tumours’. 

The Inquiry has found that the historic underfunding for research into brain tumours is leaving our society with increasing numbers of people diagnosed and living with brain tumours. These people are not only dealing with the physical side effects, they are dealing with a huge financial burden, which is also impacting the lives of their families and the wider economy. 

This page will be updated with details of the meeting in late November/early December 2018.

Most recent meeting - 17th July 2018

The meeting heard from Mike Batley, the Deputy Director of Research Programmes at the Department of Health and Social Care (DHSC), about the DHSC’s plans to increase investment into brain tumour research. 

The meeting also received an update on the evidence that the ongoing APPGBT Inquiry into the costs of brain tumours has collected throughout Spring 2018. Across web forums, formal written evidence and oral evidence sessions, the Inquiry has received over 250 pieces of evidence. This will inform the Inquiry’s final report, which will be published later this year to add weight to the need for increased investment in research. 

Copies of minutes from APPGBT meetings are linked below:

Minutes of the APPGBT Meeting (inc. Annual Income & Expenditure Statement) - 17th July 2018

Minutes of the APPGBT Meeting - 1st May 2018

Minutes of the APPGBT Meeting - 27th February 2018

Minutes of the APPGBT Meeting - 28th November 2017

APPGBT Briefings to Parliamentarians

In support of APPGBT members, MPs and Peers across Parliament, we publish briefings tailored to each meeting’s specific policy issue.

These documents inform MPs and other activists of the latest developments in our campaigning.

Download your copy of each briefing using the links below:

July 2018 - A momentous year

February 2018 - A cost too much to bear?

November 2017 - Securing brain researchers' and patients' needs as we leave the European Union

APPGBT Secretariat

The Secretariat to the All-Party Parliamentary Group on Brain Tumours is provided by Brain Tumour Research. The Secretariat receives assistance from PB Political Consulting and The Brain Tumour Charity for the purposes of organising meetings.

APPGBT Privacy Policy

The Privacy Policy of the APPGBT can be found here.

This is not an official website of the House of Commons or the House of Lords. It has not been approved by either House or its committees. All-Party Parliamentary Groups are informal groups of Members of both Houses with a common interest in particular issues. The views expressed in these web pages are those of the group.

 

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