Our Fundraising Groups
16,000 people diagnosed with a brain tumour every year
Our amazing family of Fundraising Groups
Championing the fight against brain tumours and raising thousands for our cause, helping us build network of experts in sustainable research at dedicated Centres of Excellence and supporting us as we influence the Government and larger cancer charities to invest more nationally.
4 Aurora4 Aurora has been set up by Margherita and Francesco Provenzano to raise much needed funds for research into this devastating disease. They named the Fundraising Group in memory of their beautiful daughter. Aurora was just 6 years old with her whole life ahead of her when she was diagnosed with a brain tumour. She fought a brave battle for three and a half years, but sadly lost the fight and left her parents and two sisters, Isabella and Chiara with a huge hole in their family.
Her parents wanted to do something to help because they know that right now another family somewhere is getting the news that their loved one has a brain tumour. They also want to raise awareness of brain tumours and let people know how shocking it is that only 1% of national cancer research spending is on brain tumours. When Aurora was in hospital, Margherita, Aurora's mother, actually remembers thinking, "why couldn't she have had leukaemia?" as she would then have stood a good chance of surviving.
Read Aurora's story.
Aaron's Legacy of HopeLinda Irvine has set up Aaron's Legacy of Hope in memory of her son Aaron. Aaron was first diagnosed with a brain tumour at the age of two and a half, but not without his mother having to fight for six months to get doctors to take his symptoms seriously. The operation and subsequent radiotherapy left him with lots of physical and educational disabilities, but he got on with life and never complained. At the age of 29 his tumour came back – his mother had to fight to get any support for him. Aaron passed away five months later in 2011.
Read Aaron's story.
Aladdin's Lamp FundSandy Foulkes set up Aladdin’s Lamp Fund in memory of beloved husband and father, Bill. Bill passed away in April 2010, thirteen months after his diagnosis with a glioblastoma multiforme. He was passionate about golf and boats and the owner of a yacht chandler’s called Aladdin’s Cave, hence the inspiration for the name of the Fundraising Group. Sandy was introduced to Prof Geoff Pilkington, who heads up research at the Brain Tumour Research centre of excellence in Portsmouth, through a mutual scientist friend and now helps Geoff out with administrative duties, as well as undertaking fundraising for Brain Tumour Research.
Read Bill's story.
Albie and Beyond
This fundraising group has been set up to keep Albie’s memory alive by supporting research into brain tumours in the hope that no other family will have to suffer like his.
Albie Bayliss-Watts was diagnosed with a rare, aggressive brain tumour after having an out-of-the-blue seizure and later starting to vomit in the mornings. Despite emergency surgery and intensive chemotherapy, Albie came to the end of all treatment options. Less than a year after diagnosis, on 28 November 2021, Albie died, aged just two, leaving his parents, Hayley and Lauren, heartbroken.
You can text ALBIE to 70450 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
Alexandra was beautiful and just 24 years old when she passed away in August 2011, having been diagnosed with brain cancer in 2009. Her sisters, Melissa and Rebecca, set up Alexandra’s Angels in her memory to raise as much money as possible for Brain Tumour Research so that another family does not have to go through what they had to.
Andy B Fundraising Group
The Andy B Fundraising Group was set up in memory of Andrew Bath, who lived near Gerrards Cross in Buckinghamshire. Andy was diagnosed with a glioblastoma multiforme (GBM) brain tumour in 2017. He underwent surgery, as well as radiotherapy and chemotherapy,
but sadly passed away just 10 months later, aged 37.
Andy’s parents, Lynn and Alan, and sister, Amy, have set up Andy B to raise money for Brain Tumour Research in his memory and to honour his wish that more research into brain tumours could prevent others from experiencing the devastation that they cause.
Read Andy's story
This Fundraising Group has been set up in memory of loving wife and mother, Rashpal Lotay. Rashpal was diagnosed with an anaplastic oligoastrocytoma brain tumour in 2009 and underwent surgery, radiotherapy and chemotherapy. She fought the tumour for 10 years, radiating energy, always happy, upbeat and smiling. Now her son is focusing on funding research so that other families don’t have to go through what his has.
Tj chose the name Ascension because most of his fundraising events centre around hiking and climbing mountains and because he doesn’t feel his mum has passed away, more that she has ascended and is watching over him.
To donate go to www.justgiving.com/fundraising/tjsascension
Alternatively, you can text ASCENSION to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
Boogie at the Biscuit
Boogie at the Biscuit was set up by Beth Wright in memory of her husband, RAF Wing Commander Kieran O’Sullivan. Kieran was first diagnosed with a grade 2 astrocytoma in 2001 and underwent multiple surgeries, as well as radiotherapy and chemotherapy. Kieran passed away in November 2018, at the age of 44, almost 17 years after he was first diagnosed with a brain tumour and just two months after leaving his beloved career in the RAF.
The name Boogie at the Biscuit comes from a fun-filled event that Beth organised to raise more than £24,000 for Brain Tumour Research in Kieran’s memory. The night saw 270 guests donning their black ties and gowns for an evening of music, an impressive auction and a raffle with a bumper haul of prizes up for grabs. Beth plans to host more Boogie at the Biscuit events to fundraise for Brain Tumour Research in the future.
Brainstorm was set up by Katie Smith and her husband Luke in 2019, following Katie’s diagnosis with a life-limiting oligoastrocytoma. The couple, who live in Stourbridge with their young son Eli, decided to dedicate a year to fundraising and raising awareness of brain tumours, which kill more children and adults under the age of 40 than any other cancer. Katie lives with the knowledge that she may not make it to her 40th birthday and, faced with such devastating news, wants to raise £90,000 for Brain Tumour Research.
You can support Brainstorm through text donate: just text STORM to 70085 to donate £2. Texts cost £2 plus a standard rate message.
Canoeing for a Cure
Canoeing for a Cure was set up after Jim Murray, an officer in the Avon and Somerset Police and a former RAF policeman, was diagnosed with a glioblastoma multiforme, the most aggressive form of brain cancer. Sadly Jim passed away in December 2020, three years after his initial diagnosis.
Established by Wayne Byles, who saw Jim as a father-figure ever since they met when Wayne was a teenager, the Fundraising Group comprises friends and family members, including Jim’s sons Richard, Callum and Simon. As the name suggests, Canoeing for a Cure are focusing their initial efforts on a feat of impressive strength and endurance involving canoes to help find a cure for this devastating disease.
Carol Hayes was diagnosed with a glioblastoma multiforme (GBM) brain tumour in February 2018, which came as a huge shock to someone who was previously fit and well. Carol’s Fund was set up by her children, James and Gemma. They aim to raise £10,000 in 2019 for Brain Tumour Research. So far, the group has raised over £8,000 from a range of activities, including bake sales and keep fit events.
Cat in a HatThis Fundraising Group was set up by her family after Catherine Anderson was diagnosed with a grade 2 brain tumour in August 2014 which quickly progressed to being grade 4 by the end of the same year. The name 'Cat in a Hat' was inspired by the many hats that Cat was given by friends and family, particularly to cover hair loss caused by her treatment. Throughout her brain tumour journey, Cat remained upbeat and incredibly positive, always laughing and joking.
Tragically, it became clear that chemotherapy wasn’t slowing regrowth of the tumour and Cat lost her brave battle on 14th June 2017, aged just 38. Her friends and family, including Cat’s father, Rab, (despite his nursing background) were all shocked to find that brain tumours kill more children and adults under the age of 40 than any other cancer and will continue to raise awareness and funds to help find more effective treatments and ultimately the cure which is so desperately needed.
Read Cat's story.
Charlie Charges OnOur first born son Charlie was diagnosed with a glioblastoma multiforme grade IV just weeks after the birth of our third child. It was utterly heart-breaking to hear his prognosis, so in desperation we contacted hospitals around the world to seek second opinions and spoke to leading experts to ask about new treatments but no one could give us a different outcome or offer anything which might help. Charlie passed away aged seven in 2010, eight months after diagnosis.
We have set up Charlie Charges On to keep the memory of our beautiful, so brave son alive and to help find a cure to bring hope to other parents who face the dreadful news that their child has a brain tumour.
Charlie’s AngelsCharlie White was just three years old when he died from a rare but aggressive paediatric brain tumour. There are just a handful of these cases documented worldwide, but this devastating loss has compelled Charlie’s mother Abba and others to create the Fundraising Group in memory of her son. With the help of close friends and family, Charlie’s Angels are now hard at work taking advantage of every opportunity to raise funds in support of the research at our Centre of Excellence in the University of Portsmouth.
Circle of Hope
Circle of Hope was formed to raise awareness in the Yorkshire region of the plight of people suffering with a brain tumour. Founding members: Jim Murphy, Gill Murphy, Sarah Smith & Linda Wood have all been touched by this illness through the loss of family members and some very dear friends. The group, who are intent on seeing a cure for this dreadful illness, chose Brain Tumour Research as their charity over other charities because the funds go directly to research. They hope that by having their own local identity that they will appeal to local businesses and individuals whilst enjoying national impact through being part of Brain Tumour Research.
You can text CIRCLE to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
Dale Barclay Fund
This Fundraising Group was set up by Dale’s wife, Laura, after he passed away nine months after being diagnosed with a glioblastoma (GBM) brain tumour.
A lead vocalist and musician who was well known on the alternative music scene, Dale suffered a number of seizures and an excruciating headache with vomiting prior to diagnosis. He underwent surgery, radiotherapy and chemotherapy and was stable for a few months. When an MRI scan revealed regrowth, Dale was turned down for further surgery on the NHS, but had a craniotomy privately. Tragically he died just a few days after this, aged 32.
Laura, also a musician, was shocked that there was no effective treatment available for Dale. She wants Dale’s legacy to fund research that will help move treatments forward towards extending the life of brain tumour patients and eventually finding a cure.
You can donate via www.justgiving.com/fundraising/thedalebarclayfund or text donate DALE to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
Debbie Coulson Foundation
Debbie was diagnosed with a brain tumour shortly after getting together with her partner, Phil Holding, whom she met at work. After her friends had concerns about her behaviour and two visits to the doctor, Debbie had two strokes and was given the devastating news that she had a glioblastoma multiforme (GBM) brain tumour. She underwent surgery and survived for 13 months. She passed away, aged 58 and just seven weeks before her daughter Vicky’s wedding. Phil and Debbie’s family set up the Foundation.
Erin's AngelErin’s Angel has been set up by Karen Adams in memory of her sister-in-law, Caroline Foster, who sadly passed away on 31st May 2010, eight weeks after being diagnosed with a brain tumour. Caroline left behind her husband Andy and daughter Erin, who was just two and a half years old at the time.
Karen chose the name Erin’s Angel because little Erin knows her mummy is now an angel. She hopes to create greater awareness of brain tumours via the Fundraising Group, as well as raise funds for research while keeping Caroline’s memory alive and positive for Erin.
Read Caroline's story.
Amani Liaquat was diagnosed with a grade 4 glioblastoma (GBM) after collapsing at home on her 22nd birthday in April 2020. COVID-19 restrictions meant that she faced brain surgery and numerous scans with no visitors allowed at her bedside during a 12-day hospital stay. With very limited treatments options in the UK, the family decided to source treatment from Germany. Thanks to the generosity of family, friends and complete strangers, more than £100,000 was raised in just 24 hours to help Amani access a new trial drug. Sadly however, Amani passed away aged 23, less than two years after diagnosis on 21 February 2022.
The family is working with Brain Tumour Research to share Amani’s story, helping to raise awareness and, with Amani, has supported the charity’s #BrainTumourPetition and Stop the Devastation campaigns, as well as undertaking fundraising and campaigning activities. While Amani was still fighting, they set up Fight4Hope to raise funds to support vital research in order to find treatments that will provide hope for patients facing a brain tumour diagnosis. Since her death, her parents and sisters remain committed to continuing Amani’s amazing legacy.
Or text FIGHT4HOPE to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
Fighting for a Cure
Josh, the adored younger brother of sister Kim, passed away aged 29, four years after being diagnosed with a pilocytic astrocytoma brain tumour. Despite two craniotomies and Gamma Knife surgery, nothing could save Josh. The passionate Port Vale and Chelsea FC supporter planned his own funeral at which his beloved dog, Diggs, named after one of Josh’s surgeons, led the procession.
Kim set up Fighting for a Cure as a way of keeping Josh’s memory alive among his friends and family, and particularly for her young son Joey who was very close to his uncle Josh.
Text CURE to 70560 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
Fluffy Cloud and Co.Pete was a loving husband and a proud father of two grown-up daughters – Alice and Emma. A gentle, kind and fun-loving man, he would do anything for “his girls”. Following a series of seizures, a bleed on the brain and subsequent surgery, Peter was diagnosed with a grade 4 glioblastoma multiforme. His wife Jane said: “even though at 60 Pete was very young to die, we were saved from the inevitable slow and agonising process, which sadly so many brain tumour patients have to endure”.
Since losing Peter, his wife Jane and his two girls have set up Fluffy Cloud and Co. to support the work of Brain Tumour Research, raising awareness of the disease and ensuring funds for research facilities.
Read Peter's story.
Hazel's LightHazel Thomas was a devoted mother to three much loved children. She passed away in December 2011 at the age of 48, having been diagnosed 13 years earlier with a grade 1 astrocytoma, which tragically had progressed to being a grade IV at the end.
Having realised how far brain tumour research is behind research into other cancers, Hazel's Light has been set up by sisters, Emma and Nia, and brother, Martin, to commemorate their mother and to bring hope to other families who may be touched by brain tumours.
Head 1stHead 1st was set up by Nicole Witts who, having been lucky enough to just survive an undiagnosed big brain tumour, is committed to achieving:
* More fundraising for this devastating disease
She is prepared to jump all hurdles to get there and make people aware of the illness and its awful effects on individuals and families involved.
Read Nicole's story.
In Chris' MemoryIn Chris’ Memory was launched in November 2017 in memory of much-loved husband, father and grandfather Chris Todd. Chris was 63 when he was diagnosed with an aggressive grade four glioblastoma multiforme (GBM) brain tumour. He underwent surgery, radiotherapy and treatment and fought his illness with the support of his family. Sadly, he passed away in November 2016 at the age of 65. Angry at the underfunding for research into the disease and determined to continue the family’s commitment to make a difference, Chris’s daughter Vicky Todd set up In Chris’ Memory as a legacy to her beloved father and aims to raise £5,000 each year.
Read Chris' story.
In for a PennyIn for a Penny was set up after Glenn Karpel lost his beloved wife Penny on 15th September 2017. Penny had originally been diagnosed with a low grade brain tumour in 2009 after suffering a blackout. By October of 2016, Penny was experiencing significant mobility problems. Glenn, along with Penny’s daughters, Claire and Stefanie, looked everywhere to find a way to extend Penny’s life, but in the end they had to accept that there was no more treatment available. Devastatingly Penny slipped into a coma. An agonising 12 days later, still at home and with her family by her side, Penny took her last breath.
Shocked at the lack of options and angry that there seemed to be more investment and research into novel anti-cancer therapies happening in Europe, the United States and in Israel than in the UK, Glenn is passionate that more needs to be done to prevent brain tumour patients deteriorating to the stage when only palliative care and support can be offered and families can only wait for the inevitable to happen. He argues that the cost to society is also significantly more than an upfront investment in stopping the disease at the outset.
Read Penny’s story.
In Kev's Memory
In Kev’s Memory was set up by the family of Kevin O’Mahoney, a construction contractor, drummer and rock music enthusiast from Cannock. Kevin died just a year after his diagnosis with an aggressive brain tumour, aged 53, leaving his wife Annette
and their two daughters Paige and Eve, 22 and 20. After losing Kevin, Annette was appalled to learn that brain tumours kill more children and adults under the age of 40 than any other cancer, yet have historically received just 1% of the national spend on cancer research, and decided to help raise vital funds.
Read Kevin’s story.
You can support In Kev’s Memory through text donate: just text KEV to 70450 to donate £5. Texts cost £5 plus a standard rate message.
Jason Willis Foundation
Jen Willis set up the Jason Willis Foundation after losing her husband to a brain tumour. Jason was diagnosed with a glioblastoma multiforme (GBM) in January 2019. Following brain surgery, radiotherapy and chemotherapy, in January 2020, he received the heart-breaking news that his aggressive tumour had continued to grow. He was cared for at home by his wife throughout the COVID-19 pandemic. Jason died in October 2020, aged 44, leaving Jen and their two young daughters.
Jen has launched the Jason Willis Foundation to keep Jason’s legacy alive. She has vowed to continue fundraising in his honour and in honour of all the families who’ve been touched by this horrific disease to help find better treatment options and a cure for brain tumours.
Leah's Fairy FundLeah’s Fairy Fund was set up by the family of Leah Martin who was diagnosed with a high-grade medulloblastoma at the age of two. Several operations, as well as chemotherapy and radiotherapy, have left Leah with long-term side effects including problems with her speech and mobility.
Mum and Dad, Joanne and Wayne, want better options and outcomes for brain tumour patients and in particular are keen to support the research being funded at Brain Tumour Research’s Centre of Excellence at University of Plymouth.
Read Leah's story.
Lisa's GiftLisa's Gift was set up by family and friends of Lisa Wray née Russell after losing her battle with a brain tumour on the 16th May 2009.
Loubob's LegacyLoubob's Legacy was set up by family and friends of a totally unique young man who passed away at the age of 13, having endured leukaemia, a crushed leg in an accident with a lorry and then secondary brain cancer when it seemed that the doctors had written him off. Throughout his short life, Louis was almost never without a smile or a joke. He kept everyone strong when they were supposed to be keeping him strong. Weeks before his family lost him, his baby brother Jesse was induced so that Louis could get to know him and hold him. Jesse looks a lot like his brother Louis. His mother can't wait to tell Jesse about his amazing big brother.
Read Louis' story.
Lydia Carfrae, aged 35, was diagnosed with a glioblastoma multiforme (GBM) brain tumour in 2018. Lydia was born in Yorkshire but living in Texas at the time.
Loved ones both here in the UK and in America began fundraising for Brain Tumour Research, determined to build a community of supporters and do something positive in the face of adversity.
In Wakefield, Lydia’s home town, her family and friends took part in a virtual distance ‘Wakefield to Houston’ fundraising challenge. Led by Lydia’s cousin, Rosie Crawford, they walked, swam, cycled and ran, to complete the 4,735 miles.
The family set up the Fundraising Group Lydia’s Wish in order to further strengthen their amazing fundraising efforts and continue to smash their targets.
Sadly, Lydia died in May 2020, but Lydia’s Wish will continue to raise funds and awareness in memory of this beloved woman.
M & M Adventures
This Fundraising Group was set up in memory of Mark Calaz by his wife Mandy. The two of them met through the Army Cadet Force (ACF) and enjoyed many wonderful adventures together, as well as Mark having responsibility for organising adventurous expeditions for the ACF.
Aged 52, fit and healthy, Mark was suddenly diagnosed with a glioblastoma multiforme (GBM) brain tumour and given the devastating prognosis that he had 18 months to live at best. He and Mandy started fundraising for and campaigning with Brain Tumour Research and, following his death on 4th July 2021, Mandy has decided she wants Mark’s legacy to be finding a cure for this devastating disease.
Read Mark’s story here.
You can support M & M Adventures through text donate: just text MARK to 70085 to donate £5 Brain Tumour Research. Texts cost £5 plus one standard rate message
M.I.N.EHaving suffered with headaches for many years, Mel Hennessy was diagnosed with two meningioma tumours just a few weeks after miraculously giving birth to her daughter Daisy Boo in 2009. Mel has lost the sight in her left eye, but she is just thankful to be alive. She wants to do anything she can to raise awareness and funds for brain tumour research. Her Fundraising Group name M.I.N.E stands for Money Is Needed Every Day.
Read Mel's story.
Maggie Harvey TrustMaggie was a vivacious and loveable person who lived life to the full. Her diagnosis with glioblastoma multiforme in 2010 was an unexpected blow that turned her world upside down. Determined as ever, Maggie focused on fighting this devastating disease and helping others in a similar situation. This determination was been instrumental in the founding of the Maggie Harvey Trust, which has been created to provide much needed funding for research into this form of brain tumour.
Read Maggie's story.
Maggie's MemoryMaggie Davis was living in the United States when she was diagnosed with a massive tumour in her brain, not long after her daughter, Clare, had discovered she was pregnant. Seven months later and two weeks after the birth of Clare’s son, Maggie passed away in the US having only seen her first grandchild, Jackson, over the internet.
Maggie was an amazing lady who now leaves a legacy of inspiration with her daughter Clare alongside three of her close friends, Emma Probyn, Helen Carbutt and Kate McNeill, who are all raising awareness and generating vital funds to support long-term and sustainable research into this devastating disease. In the first year since Maggie’s death, the four women generated enough money to sponsor three days of research at the Brain Tumour Research Centre of Excellence in the University of Portsmouth. In January 2014 they formed Maggie’s Memory and launched with a new target to sponsor five more days and place more tiles on the charity’s Wall of Hope.
Mark “Bomber” Lancaster TrustSheila Lancaster set up the Mark “Bomber” Lancaster Trust with her young sons, Harry and Alex, in memory of her husband and their Daddy, Mark. The “Bomber” nickname came about through sharing a surname with the famous WWII aircraft.
Mark was diagnosed in January 2008 with an anaplastic oligodendroglioma and lost his brave fight against the brain tumour on 16th December 2012, aged 39. Sheila would very much like Harry and Alex to become involved with the Trust and take over when they are older so that they keep alive their daddy’s memory and remember his courageous spirit. Her dream is that the boys will see a cure for brain tumours during their lifetime and will be proud that funds raised for research through their daddy's charitable trust was part of this pioneering breakthrough.
Mark Cogan FoundationThe Mark Cogan Foundation has been set up by Mark's brother, Simon, to raise funds for research and to keep Mark's memory alive, particularly for his two young children. Mark Cogan was an inspirational martial artist and an awesome friend, brother, husband and son, who fought a 16 month battle with a brain tumour and lost.
Read Mark's story.
Naomi's Fight for Life FundNaomi was just four years old in 2007 when she was diagnosed with an ependymoma, an aggressive, cancerous brain tumour. She has undergone three craniotomies, almost 30 long and intensive bouts of chemotherapy and we have endured a number of scares and setbacks, but Naomi is currently stable. We are now six years post diagnosis and five years post treatment - most brain tumour patients die within that timeframe...
"We originally set up Naomi's Fight for Life Fund to help other charities find a cure, as well as provide care and quality of life for those touched by cancer, but have now joined Brain Tumour Research as an Fundraising Group where we can enjoy the security and support of a nationally recognised charity with the use of a range of materials and merchandise, including fundraising packs and t-shirts, as well as the use of a registered charity number which will give us access to Gift Aid, our own logo and PR support."
Read Read Naomi's story.
Neil Taylor was diagnosed with a brain tumour in 2017 and has endured surgery, radiotherapy and a year of chemotherapy. He and his wife, Alex, launched Neil’s Appeal with the aim of raising £10,000. Tagging themselves as #Taylorswarriors, they have already produced a special fundraising calendar and achieved great media coverage in their Manchester community. You can follow and support them on their Facebook page.
Officially Lisa Connell
This Fundraising Group was set up to raise awareness of brain tumours, to improve outcomes for brain tumour patients and, ultimately to help find a cure.
Lisa Connell, who set up the Group, was diagnosed with a meningioma aged 26, after falling pregnant; sadly, she lost the baby. Having undergone Gamma Knife Surgery and some years later, surgery and radiotherapy when the tumour was found to be growing, Lisa now lives with regular painful facial spasms. Lisa was told she couldn’t have children as meningiomas can grow dramatically in pregnant women due to hormonal change, but amazingly she now has a miracle child.
Read Lisa’s story by searching 'Lisa Connell' on our website.Make a donation to Officially Lisa Connell
One for the Road
This Fundraising Group was set up in memory of Charlotte Hobbs who was first diagnosed with a grade 3 anaplastic astrocytoma brain tumour in July 2010. She underwent a craniotomy followed by radiotherapy and subsequently had many years of stable MRI scans. But in October 2020, Charlotte received the devastating news the brain tumour had returned and underwent further surgery, radiotherapy and chemotherapy. Sadly, the cancer spread rapidly in early 2022 and she passed away in March 2022, leaving her husband Dayfdd and two daughters Freya and Catrin heart-broken.
Charlotte actively supported Brain Tumour Research, including taking part in the 100 Star Jumps a Day in November Challenge just four months before she died. She raised thousands to help find a cure and is remembered for her resilience, bravery, selflessness and beautiful smile which made her so inspirational. Now One for the Road is continuing Charlotte’s legacy in the hope that other families may not have to suffer in the future.
You can support One for the Road through text donate: just text Charlotte to 70085 to donate £5. Texts cost £5 plus one standard rate message.
One Pound Warriors
The One Pound Warriors was originally a Facebook group set up by 13-year-old Lillie Cotgrove, asking people to join and donate £1 to raise funds for treatment abroad for her school friend diagnosed with a DIPG brain tumour.
Along with various community fundraising events, One Pound Warriors succeeded in raising the significant sum involved, but tragically Lillie’s friend’s health deteriorated and she passed away before being able to access this treatment.
One Pound Warriors is now focused on raising £1million over the next four years to fund research leading to more effective treatments and ultimately a cure for brain tumours.
You can support the One Pound Warriors through text donate: just text OPW to 70490 to donate £1. Texts cost £1 plus a standard rate message.
Perry’s Legacy was set up by Carly Busby in memory of her father, Perry Brown. Perry was diagnosed with a grade 4 glioblastoma multiforme (GBM) brain tumour and passed away just nine months later in July 2020, aged 60, leaving his wife, Tracey, and children, Carly, Luke and Claire, and four grandchildren.
The family raised more than £4,000 for Brain Tumour Research in funeral donations. They have set up the Perry’s Legacy Fundraising Group to raise vital funds in his name to prevent other families from experiencing the heartache of losing a loved one to a brain tumour.
You can support Perry’s Legacy through text donate: just text PERRY to 70085 to donate £5. Texts cost £5 plus a standard rate message.
Power of DavidPower of David was set up in memory of David Hetherington, a loving husband and dad of two. David was diagnosed with a low-grade oligoastrocytoma, which over time changed to a grade four glioblastoma. He underwent chemotherapy, radiotherapy and immunotherapy to control the tumour but David sadly passed in November 2016 at the age of 39, leaving his wife, Shaz, and two young children Layla and Daniel.
The name, Power of David, was inspired by David’s ability to impact others in a positive way – a quality which Shaz called his ‘superpower’. The group embodies his hope and positivity, keeping David’s memory alive and raising vital funds for research. The London Walk of Hope is organised by Power of David and named David Hetherington Memorial Walk of Hope in his honour.
Read David’s story.
Visit Power of David’s JustGiving page.
Visit Power of David’s Facebook page.
You can support Power of David through text donate: just text POWER to 70490 to donate £5. Texts cost £5 plus a standard rate message.
This Fundraising Group has been set up by Ria Melvin’s family to continue her legacy and to raise vital funds in her name. Raising4Ria will help to keep Ria’s memory alive and help to channel the grief of all who mourn her into something positive to improve the lives of others living with a brain tumour diagnosis. The sloth logo is a tribute to her self-confessed ‘spirit animal’ and favourite colour purple.
Ria was diagnosed with a glioblastoma (GBM) aged 23 in December 2018. She underwent brain surgery twice, chemotherapy, radiotherapy and immunotherapy treatment in Germany, but nothing could save her and she passed away, aged 25, two years and seven months later.
During her brain tumour journey, Ria carried out selfless work, campaigning and raising awareness of brain tumours. She wanted better outcomes for people living with this devastating diagnosis and so do her loved ones who are only too aware of the inequality that a brain tumour patient faces compared with those with other cancers.
Donate via the Fundraising Group’s Just Giving page
You can also support Raising4Ria through text donate: just text RIA to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message
The family of Rayhan, who died aged four, just four months after diagnosis with a medulloblastoma brain tumour, has set up this Fundraising Group. Despite several surgical procedures, and radiotherapy, Rayhan’s tumour continued to grow and he passed away just after beginning chemotherapy treatment.
His parents want Rayhan’s legacy to lead to greater awareness of brain tumours, especially as it took many weeks for doctors to start taking Rayhan’s symptoms seriously. Their dearest hope is that funds raised by Remembering Rayhan for research make a difference and bring about better outcomes for patients diagnosed with brain tumours in the future.
You can support Remembering Rayhan through text donate. Just text RAYHAN to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
Ride4SimonSimon Oldacres was a dedicated family man, wonderful friend and talented engineer. When he was diagnosed with brain cancer in 2013, cycling was his escape. He even rode the 40 mile round trip to many of his appointments.
Simon died at the end of 2016, and in 2017, Ride4Simon was set up to cycle in his memory to help fund a cure for this devastating disease. In 2017 a group of friends and family rode from Simon’s home town in Solihull to Chippenham, where he had lived for over a decade with his wife Sophie and young children, Joseph and Esther. The Fundraising Group plans to organise annual Ride4Simon cycling events.
Visit Ride4Simon's JustGiving page.
Robin Menary FoundationThe Robin Menary Foundation was set up by Nikki Boyd (Robin's sister), their mother, Paddy Menary, and their uncle, Terry Collins, following Robin's death, in August 2011, leaving his wife, Catherine, and whole family devastated. When Robin was diagnosed with a grade 4 glioblastoma multiforme he was a strong, healthy, happy and very sporty 36 year old, looking forward to the birth of much longed for twins. He died just 17 months later when his beautiful babies, Rory and Rachel, were just 15 months old.
It was always Robin’s intention to raise funds for brain tumour research when he was well again and his family are determined to do this in his memory. It is this which keeps them strong despite the unbearable grief. It is their dearest wish that someday someone diagnosed with this type of tumour will be told they can be cured.
Read Robin's story.
Robyn’s NestRyan Crispin and partner, Alexandra Parr, set up Robyn’s Nest following their 18-month-old daughter’s diagnosis with a brain tumour in December 2016. Despite the tumour being inoperable, Robyn has grown into a beautiful young girl and her health is currently stable. Ryan and Alex’s Group has been actively fundraising for us – placing collection boxes in the community, abseiling down the fearfully high Spinnaker Tower and organising an epic trek ‘from sofa to summit’ up Ben Nevis! You can still donate to celebrate their achievements.
Sophie's WishSophie's Wish was set up by the family and friends of Sophie Burchill, who was diagnosed with an aggressive ependymoma at the age of just 11 months. Sophie underwent emergency surgery to remove the tumour, followed by 16 months of chemotherapy. Whilst in and out of hospital the family witnessed many other children with brain tumours, some who were worse affected than Sophie, others who passed away.
All those involved in the Fundraising Group have been shocked to discover that diagnosis and survival rates have not moved on for at least 30 years and hope that Sophie's Wish will help to redress the balance in brain tumour research funding so that better treatments and ultimately a cure can be found.
Stronger Together for Nicola
This Fundraising Group has been set up by Alan Robinson after he lost his primary school teacher wife Nicola, mum to two young children, in October 2021. Nicola was just 35 years old. A diagnosis with a diffuse astrocytoma came about after she experienced headaches and dizzy spells. She underwent two seven-hour craniotomies at the Royal Victoria Hospital in Belfast, followed by six weeks of radiotherapy and eight months of chemotherapy. The tumour was found to be growing again after Nicola had a seizure in the summer of 2020 and she went back on chemotherapy, but nothing could save her.
Alan hopes that Stronger Together for Nicola will help bring about better outcomes for brain tumour patients and kicked off the Fundraising Group’s activities with a challenge for him and a group of friends and family to run seven half-marathons and a full marathon in 2022.
Read Nicola’s story
You can text NICOLA to 70580 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
Taylan's ProjectTaylan Andrew Rawlinson was our beautiful seven year old boy who was sadly taken away from us on 19th August 2009. He was diagnosed with a very rare incurable and inoperable brain tumour located in the brain stem called Diffuse Intrinsic Pontine Glioma (DIPG) on 24th October 2008.
"It was so frustrating over the 10 months after Taylan was diagnosed that no one was able to give us any answers or provide that breakthrough we so desperately needed. The price we had to pay was losing our beautiful and precious baby boy. We will never go back to being a `normal'' family again as Taylan is no longer with us. We miss him so much and the pain will never go away - nor will he ever be forgotten. But we feel we cannot allow this to continue and if one day an answer or cure is found, whilst it will be too late for us it may be just in time for another family. We need to start somewhere. So with the help of friends and family we founded Taylan's Project in January 2010."
Read Taylan's story.
Team Hopkins – Winning for Did
This Fundraising Group has been set up by the family of David Hopkins (aka Did) in his memory. Did was diagnosed with a glioblastoma (GBM) in September 2020 after two weeks of symptoms which included a flicker in his eye and a dull feeling in his head.
Did underwent the standard NHS treatment of surgery, radiotherapy and chemotherapy, but also through crowdfunding accessed pioneering treatment in Germany. Sadly nothing could save him and Did passed away 14 months later on 6 November 2021.
His wife Nicki had already become an active campaigner for greater investment into research, engaging support from her local MP Holly Mumby-Croft. Team Hopkins, including Did’s daughter Lydia who is an ambassador, intends to continue to campaign and raise awareness and funds to find a cure.
To make a donation text DID to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
Annabelle Porter set up Team Jeffery in memory of two of her uncles, both lost to brain tumours – Richard Jeffery in 1991 and his brother, Michael, in 2017. The family are keen to do whatever they can to support us and contribute to our valuable work. Team Jeffery got together for the Great North Run in September and raised a spectacular £3,500. You can help Team Jeffery raise even more on their JustGiving Page.
You can support Team Jeffery through text donate: just text JEFFERY to 70085 to donate £2. Texts cost £2 plus a standard rate message.
the dandy trustThe dandy trust has been set up in memory of beloved husband and father, Mike Dandy, who lost his fight with a brain tumour at the age of 56 in April 2011. As well as raising funds for Brain Tumour Research, the mission of the dandy trust is to strive for early diagnosis through better education of, in particular, GPs. So often early warning signs for brain tumours are missed meaning patients are not referred at the earliest possible opportunity.
Read Mike's story.
The Darel Bryan Foundation
Darel was 33 years old and in the prime of his life when, in December 2014, he was diagnosed with a glioblastoma multiforme (GBM) Extremely healthy and active his diagnosis was a devastating shock to his family and to his beloved partner of 12 years, Natalie. Darel bravely fought this aggressive disease for 15 months but sadly lost his battle on 26th February 2016.
Now Natalie has set up the Darel Bryan Foundation in his memory to raise greater awareness as well as funds for vit al research. Her heart-felt wish is that one day Darel’s legacy will have led to far better outcomes for patients diagnosed with aggressive tumours like GBMs.
Read Darel's story.
You can support The Darel Bryan Foundation through text donate: just text DAREL to 70085 to donate £5. Texts cost £5 plus a standard rate message.
The Diana Ford TrustThe Diana Ford Trust was established as a charity to fund brain tumour research by Sandy and Rosemary Saunders, in memory of their daughter Diana who died from a brain tumour in 2002. They re-registered as Brain Tumour Research in 2008, using their cash deposits to provide seed-funding the first stage of a new national brain tumour research funding and awareness campaign led by Brain Tumour Research. Sandy and Rosemary continue to support our mission as one of our amazing Fundraising Groups, fundraising to purchase equipment and researchers at our Centres of Excellence to help understand the cause of and find treatments for all forms of brain tumours.
Read Diana's story.
The Diane Wright TrustThe Diane Wright Trust was created in June 2012 by her two sons, Matthew and Adam, following the loss of their beloved Mum & best friend suddenly to a brain tumour on the 9th March 2012, aged only 59 years. The trust has been set up to follow on the good work that their Mum did throughout her life and to stop other families from having to experience what they have been through. Diane touched the hearts of everyone she met and the trust will enable her to carry on doing this. She was the type of person that would always help others even when she was unwell herself and is why her sons want to carry on helping others in Diane’s name.
Read Diane's story.
The Free Bird TrustDean was a healthy man who loved his family and was very loyal to his friends – he had the same best friend since the age of seven. When Dean was 27 he was diagnosed with a glioblastoma multiforme grade 4 which he fought with so much courage and his indomitable sense of humour; nevertheless he was cruelly taken from us just seven months later.
Dean will always remain in our thoughts and in our lives and we talk about him daily. We, as a family, promise to continue the fight against brain tumours in his honour. We want to know why so many people die very quickly from this aggressive form of brain cancer? We hope that the funds raised by the Free Bird Trust in Dean’s memory will make a difference and help find answers to many questions – so little is known about brain tumours.
Read Dean's story.
The Glenn McMahon Foundation
Husband, son, father and step-father, Glenn McMahon was diagnosed with an aggressive glioblastoma multiforme grade 4 brain tumour after experiencing co-ordination problems on the golf course. He married Wendy in February 2014 and, knowing their time together would be cut short, the couple set about making the most of their lives through travel, socialising and their mutual love of fine food. Glenn died in June 2015 at the age of 53.
Wendy established The Glenn McMahon Foundation in 2015 to raise funds and awareness for Brain Tumour Research in memory of her beloved husband.
Read Glenn's story.
The Ian Meek FundIan Meek was an extraordinary man, living for 15 years with a low-grade brain tumour before it became aggressive and took his life aged 42. Just before he died, Ian was thrilled to know that he had smashed his target and had raised over £105k for research into brain tumours. He was a truly amazing man who, after just one conversation with a stranger, was certain to be a friend for life. Ian’s lasting message: “When diagnosed with cancer, don’t think about the things you can’t do, dream and do the things you can.”
The Lorn's LegacyLorna Atkinson, an adored mother and grandmother and partner to Harry, lost her life to a glioblastoma multiforme grade 4 just 18 months after diagnosis. She was an outgoing, healthy lady of 68 who enjoyed playing badminton, going to Zumba and Boxerfit classes and spending time with her family, but the brain tumour changed everything about Lorna; her personality, her appearance and behaviour so that she was barely recognisable.
Inspired to fight to make a difference for future brain tumour patients, Lorna’s two daughters, Lisa and Louise have set up The Lorn’s Legacy to raise funds for vital research.
Read Lorna's story.
The Micky Deans TrustMick was a wonderful husband to Louise and father to his two children, Lily and Harry. He was diagnosed with a grade 4 glioblastoma multiforme in December 2014 after suffering a couple of big seizures. While the tumour remained stable for some months following chemotherapy and radiotherapy treatment, tragically Mick suffered a bleed on the brain. He passed away soon after surgery in August 2016 leaving his family and close friends, known as The Lads, heart-broken. They have since set up The Micky Deans Trust to raise vital funds for research for a cure, sadly too late for Mick, and to ensure that Mick’s name is never forgotten.
Read Mick's story.
The Nick Cotton FoundationNick was just 30 years old and recently married when he passed away less than 10 months after being diagnosed with an anaplastic oligodendroglioma brain tumour. Throughout his treatment he remained the intelligent and witty man we all knew him to be, putting other people first and making sure they were okay. Nick wanted to help others suffering from the same condition which took him from his family and loving wife, Rachael Cotton.
Rachael has now helped to set up The Nick Cotton Foundation to raise money for Brain Tumour Research to help others suffering from this devastating disease. We often hear about all the wonderful advances in treatments for so many different illnesses, including other cancers, but Nick’s brain tumour journey highlighted the desperate need for more effective treatments and ultimately a cure to bring hope to the thousands of people diagnosed with a brain tumour every year.
Read Nick's story.
The Paula Coates Fund
This Fundraising Group was set up by Ray after his daughter-in-law Paula was diagnosed with an incurable glioblastoma (GBM) brain tumour, aged 47, in early 2021, following excruciating headaches and vomiting.
Paula had always lived healthily and enjoyed long-distance running, including notching up more than 10 marathons. She underwent surgery, radiotherapy and chemotherapy treatment, but the tumour was found to be growing again just a year later and Paula went back on chemo and had to give up running altogether.
Tragically, Paula passed away in October 2022, leaving her husband Rob and 22-year-old daughter Lucy.
Paula’s family want to help fund research to find a cure for all types of brain tumour to bring hope to patients diagnosed with this devastating disease.
Text PAULA to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.
The Song for Sue Foundation
The Song for Sue Foundation was set up by the family of Sue Thomas after she died aged 57 in December 2015. She was diagnosed with a low-grade brain tumour in July 2013. A year later it was found that the tumour had upgraded to a grade 4 glioblastoma multiforme and despite chemotherapy and radiotherapy treatment, nothing could save Sue.
Her husband, David, and their three grown-up children are convinced that there is a cure out there and that one day it will be found, although sadly it is already too late for Sue. They hope that through raising funds for vital research, The Song for Sue Foundation can play a part in finding this cure as a wonderful legacy to Sue who was such an inspirational wife, mother and grandmother, as well as an amazing career woman and committed Christian, and who served God, her family and her friends until her dying day.
Read Sue's story.
The Twelfth ManInspired by Angus Anthony's brave battle with an inoperable brain tumour, close friends and family have set up the Twelfth Man Fundraising Group to raise funds for Brain Tumour Research.
Before he passed away in June 2011, Angus, along with his wife Cary, gave a tremendous amount of input into setting up the group, particularly with the choice of logo to reflect Angus's two favourite sports – cricket and hockey.
Read Angus' story.
The Wake Fundraising Group
The Wake Fundraising Group was set up by the friends and family of Jonathan Wake. Jonathan was diagnosed with a brain tumour in November 2019, after he collapsed at home and underwent emergency surgery. He was awaiting immunotherapy treatment when a scan revealed more tumours had grown. Jonathan passed away in March 2020, just three months after his diagnosis.
In June 2020, friends and family organised a 4.4.48 challenge which raised more £21,250 for Brain Tumour Research. The Wake Fundraising Group plans to take part in a number of sporting challenges and continue to grow its 4.4.48 event, turning Jonathan’s sporting passion into funds to help find a cure for this devastating disease.
Thomas MacIntyre-Valentine Memorial Fund
Thomas MacIntyre-Valentine was diagnosed with an inoperable brainstem glioma in 2012. Following his diagnosis, he was treated with radiotherapy and chemotherapy and put on steroids. He lived with the tumour for eight years, but in February 2020, it started to spread and he declined quickly. Thomas passed away in June 2020, aged 30.
A year on from her tragic loss, Thomas’ wife Sheira has set up The Thomas MacIntyre-Valentine Memorial Fund to continue his legacy. The Fundraising Group will ensure his memory lives on, whilst raising money and awareness to help find a cure for this devastating disease.
Trevor&FriendsTrevor&Friends is the unique project of a group of school friends who were devastated to discover that their friend was diagnosed with a brain tumour. The tumour was nicknamed ‘Trevor’ and their mission became to banish him once and for all.
The girls were at universities across the country when their friend became ill but were united in shock after learning about the distinct lack of awareness and funding for brain tumour research.
Trevor&Friends want to initiate something positive to reflect the journey they have shared. They aim to inform as many people as possible about the issues surrounding brain tumours and also to raise money for world-class research at our Centres of Excellence.
What Would Ashley Do?Having battled and overcome melanoma and breast cancer, Ashley Gemmell was diagnosed with a brain tumour in May 2018 and devastatingly passed away three months later, aged just 47. Ashley’s family, friends and colleagues were determined to act in her memory and decided to help fund our vital research. Ashley’s sister, Tracey Gemmell, and friend, Karen Taylor, formed the Group, What Would Ashley Do? From this recent start, they have already raised over £1,500 with generous support from their Glasgow community and beyond. You can follow and support them on Facebook.
Zara’s Appeal for a Cure
Zara Taylor was just 30 when she was diagnosed with a grade 4 glioblastoma multiforme (GBM) in January 2021. She underwent life-saving surgery, followed by radiotherapy and chemotherapy, and pursued privately-funded treatment alongside her standard of care NHS treatment.
Since her diagnosis, Zara has taken part in a number of fundraising challenges for Brain Tumour Research, including our Walk of Hope, Cycle 274 Miles in August and Jog 26 Miles in May Challenge. She has set up the Zara’s Appeal for a Cure Fundraising Group with the hope that it will bring family, friends and colleagues together to raise vital funds and awareness to help stop the devastation of brain tumours.
You can text ZARA to 70085 to donate £5 to Brain Tumour Research. Texts cost £5 plus one standard rate message.