NEED SUPPORT...contact your local support group, or set one up yourself!

This list represents a range of support groups for patients and families affected by brain tumours. We thought you'd like to know where they are and how you can contact them. Please note, this list is only as effective as information we've been given at the time of adding it.* 

Sadly, diagnoses of brain tumours are increasing so there is always going to be a need for more support groups. If you have a group but it is not shown in our list, please send your details to info@braintumourresearch.org so we can include it. If you want to get involved and would like to run a group in your area, please contact the Hammerout charity who will be able to provide further guidance and advice.
 

 

Location

Meeting times

More information

Belfast

Ward 4A

Seminar Room

Royal Victoria Hospital

Belfast

Monthly

Second Wednesday of each month except July, August and December.  7.30pm – 9.30 pm

Run by Brainwaves 0289 337 2505

Key co-ordinator: Kate Ferguson

Birmingham

The Health Exchange Meeting Room

Fifth floor  

Birmingham Central Library

Monthly

Third Friday of every month. In 2008 they will meet at 2pm - 4pm and in 2009 they will meet at 10am – 12 noon.  

Contact Ann Atkins on 0121 745 3812 or 0781 841 7601 or email her at

annandstuartatkins@blueyonder.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it

or contact Sue Watson Jones on 0121 608 2741 or email Sue at

paulbwj@blueyonder.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it

Birmingham
John Lewis
Community Hub
2 Station Street
B2 4AU
 

Third Thursday of every month. 10:30-12noon. 

Run by Brain Tumour Support
Contact Sharon Sambrook - 07711 597 167

sharon@braintumoursupport.co.uk

Bristol

Turnberries
Bath Rd
Thornberry
South Gloucestershire
BS35 2BB

 

First Wednesday of month

10:30-12noon. 

Run by Brain Tumour Support
Contact Amanda Love - 07711 597 164

amanda@braintumoursupport.co.uk

Cambridge Regional Brain Tumour Support Group

The Mary Wallace Centre

7 Red Cross Lane

Cambridge

(near Addenbrooke’s Hospital)

Monthly

Meets last Tuesday of each month from 2.30 to 4.30 pm.

For brain tumour patients and carers. Run by Ella Pybus, Brain Tumour UK Trustee. Phone Ella on 01787 374 084

 

www.braintumourukeast.co.uk

Cambridge -The Acoustic Neuroma and Meningioma Network (AMNET)

Addenbrooke’s Hospital

Cambridge

Quarterly meetings

Nov 29 2008

March 28 or April 5 2009

July 11 2009

Nov 28 2009

For patients diagnosed with an acoustic neuroma or vestibular schwannoma brain tumour

www.amnet-charity.org.uk or call Alison Frank on 01953 860692

Cork

Cork University Hospital

 

Contact :

Avril O’Sullivan - Patient Support Services Administrator
Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4
Ph: +353 1 2310533  Fax: +353 1 2310555
Email: aosullivan@irishcancer.ie This e-mail address is being protected from spambots, you need JavaScript enabled to view it
Web: www.cancer.ie 

 

Cornwall
The Liskerrett Community Centre
Varley Lane
Liskeard
Cornwall
PL14 4AP

Bi-monthly - Second Tuesday of month
11:30-1pm

Run by Brain Tumour Support
Contact Julie Liddle - 07711 597 165
julie@braintumoursupport.co.uk

Cornwall
Truro Library
Union Pl
Truro
TR1 1EP

Bi-monthly - Second Tuesday of month
11:30-1pm
Run by Brain Tumour Support
Contact Julie Liddle - 07711 597 165
julie@braintumoursupport.co.uk
Coventry
Social Club
Walsgrave Hospital
Clifford Bridge Road Coventry
Monthly

Open to all patients diagnosed with a brain tumour, and families, friends.
Contact Ian Edwards on
02476 965 326
 

Coventry
Ansty Social Club
CV7 9JD

Third Monday of every month
2:45-4:30pm


Run by Brain Tumour Support and Brainwaves

Contact Louise Tully - 07711 597 168
louise@braintumoursupport.co.uk
 

Devon
FORCE Cancer Charity
Corner House
Barrack Road
Exeter
EX2 5DW
First Friday of every month 
1:30-3pm 
Run by Brain Tumour Support
Contact Julie Liddle - 07711 597 165
julie@braintumoursupport.co.uk

Dorset
The Grove Hotel
2 Grove Road
East Cliff
Bournemouth
BH1 3AU

Bi-monthly - First Tuesday of month
1:30-3pm 

Run by Brain Tumour Support
Contact Penny Spurr - 07711 597 166
penny@braintumoursupport.co.uk

Dorset 
Dorchester
Meeting Room 2
Dorford Centre
Bridport Road
Dorchester
DT1 1RR

Bi-monthly - First Wednesday of month
10:30-12noon

Run by Brain Tumour Support
Contact Penny Spurr - 07711 597 166
penny@braintumoursupport.co.uk
Dublin
St Lukes Hospital Dublin
 
Contact:
Avril O’Sullivan - Patient Support Services Administrator
Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4
Ph: +353 1 2310533  Fax: +353 1 2310555
Email: aosullivan@irishcancer.ie This e-mail address is being protected from spambots, you need JavaScript enabled to view it
Web: www.cancer.ie 

 
Edinburgh
Maggie’s Centre
Western General Hospital
Edinburgh
 
Monthly
First Tuesday at 7pm
No meetings in Jan or Jul
 
Contact Alice MacGregor
0131 334 3609
Galway
University Hospital Galway
 
Contact:
Avril O’Sullivan - Patient Support Services Administrator
Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4
Ph: +353 1 2310533  Fax: +353 1 2310555
Email: aosullivan@irishcancer.ie This e-mail address is being protected from spambots, you need JavaScript enabled to view it
Web: www.cancer.ie
 


 
Glasgow
The PRTC
West Glasgow Carers Centre, Anniesland Cross, 1561 Great Western Road
 
Monthly
Second Monday from 7pm - 9pm
 
Contact Sheena Muir
0141 942 4475

Gloucester
Maggie's Centre
College Baths Road
Cheltenham
GL53 7QB

Second Tuesday of every month
1:30-3pm 

Run by Brain Tumour Support

Contact Louise Tully - 07711 597 168
louise@braintumoursupport.co.uk

Guildford
The Fountain Centre
St Lukes Centre
Royal Surrey Hospital
Egerton Road
Guildford
GU2 7XX
Monthly
Second Tuesday from
12 noon to 3pm
Contact Anne Wittle
01252 834784
Haywards Heath
Sussex Brain Tumour Support Group
Monthly
2nd Tuesday from 7pm to 9pm
 
Please contact either Jill Collins 01444 243492 or Charlotte Tripp 01273 412519 (after 7pm) to confirm your attendance and where to meet.
 

Hereford

St Michael's Hospice

Frome Close

Bartestree

Hereford

HR1 4HA

Monthly 

4th Thursday from 11am-12:30pm

Run by Brain Tumour Support

Contact Amanda Love - 07711 597146

amanda@braintumoursupport.co.uk

Leeds
Crowne Plaza Hotel
Wellington Street
Leeds
LS1 4DL
6:30pm, 1st Thursday in the month Run by Brain Tumour Research and Support across Yorkshire (BTRS) for adult brain tumour patients and carers. Free car parking and refreshments. Contact Sam Wilson on 07539 457239 for more information or www.btrs.org.uk
Leeds
St James Hospital, Leeds
Monthly
1st Tuesday from 6.30pm to 8pm
Run by Neuro Oncology Leeds Teaching Hospitals 01943 870770

Lincolnshire

Lincolnshire Brain Tumour Support Group

Dates vary, check website for details

The group is open to anyone diagnosed with a Primary Brain Tumour either benign or malignant and their partners and carers. Patients should be resident in Lincolnshire and/or treated at United Lincolnshire Hospital Trust (ULHT)

http://lbtsg.co.uk/

Liverpool
Patient Advice and Liaison Service (PALS)
The Walton Neuro Centre
Lower Lane
Liverpool L9 7LJ
0151 5296100
Dates vary, usually quarterly, times between 7pm to 9pm
Contact Tony Murphy, PALS Manager or Maureen Kelly: 0151 298 2999
Maureen@neurosupport.org.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
London
St Thomas Hospital
Richard Dimbleby Centre
Second Floor
Lambeth Palace Road
London
 
Monthly
First Monday 1.30pm – 3 pm
Contact Barbara - 0207 188 5918.
London
The Resource Room
Bloomsbury Healthcare Library
Bonham Carter House
52 Gower St, London
Monthly
First Tuesday every month, 6pm to 8pm.
Support group for low-grade glioma patients, family and friends. Contact Emma Townsley or Orla McKee, Neuro-Oncology Clinical Nurse Specialists, on 0207 3918833
 
London
London Friend
86 Caledonian Road
LONDON
N1 9DN
 
Monthly
First Monday of the month 7pm to 9pm.
GMAC: offering emotional support and information for gay/bisexual men affected by cancer.
Run by Jose Veiga, Chair, London Friend, a charity supporting the LGBT community
020 78331674
Norwich
The Big C Cancer Centre (entrance of Norfolk & Norwich Uni Hosp)
Monthly
First Wednesday each month from 2pm to 4pm
Run by Brain Tumour UK Trustee, Ella Pybus.
Contact Ella on 01787 374 084
Oxford
5 Abingdon Road
Didcot
OX11 9Bl
 
Quarterly meetings for children with a brain or spinal tumour and their families.  (Information day, Fun Day, Pantomine, Adolescent weekend)
Run by Friends of Oscar
Call Carol on 01235 816310
Shrewsbury
Radbrook Community Centre, Bank Farm Road, Radbrook Green, Shrewsbury
SY3 6DZ
Monthly
Second Friday each month at 1pm.
 
Self-help group for patients, relatives and carers, providing hope and inspiration to local people who are touched by brain tumours.
Contact Roderick Marsden on 0800 988 2628
 
 
 

Shrewsbury

Hamar Centre Royal Shrewsbury Hospital North

Mytton Oak Rd,
Shrewsbury

SY3 8XQ

Quarterly

11am-12:30pm

Run by Brain Tumour Support and The Brain Tumour Charity 

Contact Christine Bettson - 07711 597169

christine@braintumoursupport.co.uk

Somerset

Somerset Sight

Northfield House

51 Staplegrove Road

Taunton

TA1 1DG

Monthly

Every 3rd Tuesday 10:30am to 12pm

Run by Brain Tumour Support

Contact Amanda Love - 07711 597164

amanda@braintumoursupport.co.uk

Southampton
The Macmillan Centre
Southampton General Hospital
Tremona Road
Southampton
Monthly
Second Wednesday of month(Except August) 
1:30 to 3pm

 

Run by Brain Tumour Support

Contact Penny Spurr - 07711 597 166

penny@braintumoursupport.co.uk

 

Staffordshire

The Carer's Centre

North Staffs Carer's Association

1 Duke Street

Fenton

Stoke on Trent

ST4 3NR

Monthly

Every 3rd Thursday from 1:30 - 3:30pm

Run by Brain Tumour Support

Contact Christine Bettson - 07711 597 169

christine@braintumoursupport.co.uk

Sutton, Surrey
Royal Marsden NHS Trust
Downs Road
Sutton
Carers’ group and
Patients’ group meet at Richard Wells Rehab Centre
Monthly
Third Thursday at 7.30pm to 9pm.
 
Two support groups: one for carers and one for those diagnosed with a brain tumour
For information, contact Helen White on 020 8661 3038  or Helen.white@rmh.nhs.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
 
 
 
Tamworth,
Coton Centre
Comberford Road
Tamworth
B79 9AA
 
Monthly
First Monday of every month from 11am to 1pm.
The meetings will be confidential and parents can share their stories, talk and listen to each other, and support one another.
 
Poppy Fields Special Mummies and Daddies.   Call Lisa Guilder on 07830 302622 or email lisa.guilder@homecall.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it .
The meetings will be confidential and parents can share their stories, talk and listen to each other, and support one another.
 

Walsall

Aldridge Social Club

High Street

Aldridge

Walsall

WS9 8LZ

Monthly

Last Thursday of each month

7-8:30pm

Run by Brain Tumour Support

Contact Sharon Sambrook - 07711 597167

sharon@braintumoursupport.co.uk

Wolverhampton

Light House Coffee Shop

The Chubb Building

Fryer Street

Wolverhampton

WV1 1HT

 

Monthly

2nd Thursday 1-2:30pm

Run by Brain Tumour Support

Contact Sharon Sambrook - 07711 597167

sharon@braintumoursupport.co.uk

Worcestershire
Worcester,
WR5 2LG
 
 
Twice annually
Run by Brain Tumour Support
Contact Louise Tully - 07711 597168
 


 

Other helpful organisations where you can receive specific support

Low-grade gliomas
Astro Fund raises money for research into low-grade gliomas and provides support to everyone whose lives are touched by this tumour type through their online support group.  For general enquiries telephone: 01485 572767 www.astrofund.org.uk

Meningioma UK
Offers support and information to anyone who has this kind of primary brain and spine tumour, and raises awareness of its often life-changing effects. www.meningiomauk.org

Pituitary Tumours
Over 40 support groups across the UK run by the Pituitary Foundation www.pituitary.org.uk

*We do not take responsibilty for checking the ongoing accuracy of information provided on this page.  


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