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In Our Hearts

Less than 20% of those diagnosed with a brain tumour survive beyond five years

These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.

We thought of you with love today, but that is nothing new.


We thought about you yesterday, and days before that too.


Anon

You are forever in our hearts.

Recently published stories

Ray Rosenberg

Ray Rosenberg was 48 when he died in 2001 after a six-year battle with an incurable brain tumour. Ray is remembered by all those who knew him as a charismatic, larger-than-life character, dedicated to the Jewish community he was part of in Birmingham. Ray had many great achievements to his name, from a successful career in law to a legacy of community projects in his home city. Ray lives on in his wife Adrienne, his sons Simon, Jeremy and Ben and now his grandchildren five-year-old Ray, three-year-old Gabe and Max, aged one. Read more

Skye Hall

Skye was four-years-old when he started feeling nauseous in the morning and then began vomiting. A month later, after his parents insisted on him being referred to a paediatrician, Skye was diagnosed with a grade 4 medulloblastoma brain tumour. After surgery and treatment following the now withdrawn Milan Protocol, Skye developed radio-chemo neurotoxicity which caused tetraplaegia and eventually tragically led to his death less than a year later.

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Jorja-Rose Dawson

Jorja-Rose was the youngest of six children, adored by her parents and siblings alike. Aged just 15 months, she was diagnosed with a rare and inoperable pineoblastoma brain tumour and underwent chemotherapy and a stem cell transplant which gave her six months of good health. Sadly, Jorja-Rose suffered a relapse and passed away just three months after her parents got married. She was just two years old.

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All stories

Fraser Cullen

Little Fraser Cullen was just three-and-a-half months old when he was diagnosed with an aggressive brain tumour. He underwent surgery and his parents Vicky and Warren had to make the agonising decision whether to put him through gruelling high-dose chemotherapy which might extend his life by just months or opt for palliative care. Fraser himself helped them to make their decision by smiling at his mum as she sat in Fraser's room with the consultant giving them the news. Treatment proceeded giving the family precious time but Fraser passed away a year later.

“At first, we were dismissed as over-anxious, told our baby had a sore throat and sent home. In fact, the situation was so grave that, with or without treatment, the brain tumour meant there was just a five per cent chance that Fraser would live to see his fifth birthday. Chemo could buy us time but not much, as little as a couple of months. As the country celebrated the New Year, we were making the toughest decision any parent could face. It was so, so hard. We didn’t want to put Fraser through chemo that wasn’t going to work but of course we didn’t want to lose him. As the doctors spelt out the options I looked over at Fraser and he smiled back at me. How could I give up on him?”
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Gaye Chaffe

A former officer in the Metropolitan Police, Gaye Chaffe was diagnosed with an oligodendroglioma brain tumour in 1992. Her husband Simon supported her through two craniotomy procedures and subsequent treatment. The tumour spread to her brain stem and she passed away six years later in her husband’s arms, leaving two sons aged eight and three. Read more

Gemma Edgar

We are grateful to Gemma who worked with us in May 2015 to share her story here. Sadly, she passed away on 19th December 2018. We remember Gemma as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.

Gemma, 29, a paediatric nurse at Colchester General Hospital, and a wife and mother, was diagnosed with a malignant brain tumour after just a few days of migraine-type symptoms. Her sons, Noah and Dylan were just eight weeks and two years old at the time. 
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George Michael Harrison

George was diagnosed with a brain tumour at the age of 25. He underwent surgery and married his childhood sweetheart Georgina 13 months later. Sadly his tumour returned five years later. He had radiotherapy and chemotherapy which left him partially paralysed with double vision and memory problems along with other side effects. Together with Georgina, George’s mum Sondra cared for him during his last months. He passed away with them and his sisters by his side in June 2010. Read more

Georgie Beadman

Georgie Beadman wife, mother, daughter, and sister, died seven years after being diagnosed with a low- grade glioma. She was a talented potter who loved music and the arts. In February 2015, Georgie died at the age of 41 leaving a husband and two small children.
                                   
“It is desperately sad to think that brain tumours kill more children and adults under the age of 40 than any other cancer and I was shocked to learn this area receives just 1% of the national spend on cancer research. A number of the girls who Georgie met during her year as a debutante are now involved in fundraising to support vital research into brain tumours which is wonderful. We were unable to help Georgie but I am sure that we can help others.”

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Gillian Fenton

A loving wife, mother and grandmother, Gillian built her life around creating a happy home for her family. She lived in the Trossachs and enjoyed the natural beauty of Scotland where her husband worked as a deerstalker with the Forestry Commission. At first misdiagnosed with multiple sclerosis, her anxious family were finally told she had a tumour of the central nervous system and she passed away six months later at the home she was dedicated to making.
 

“I miss my mum every day. I miss being able to talk to her, I went to her about everything and find myself reflecting on what she would have said about things. Sometimes I have very vivid dreams where we have conversations and I wake up feeling as if we really have spoken. It is only now I am able to talk about my mum openly and remember her without the fog of bereavement. I know only too well how little is known about the effects of cancer on the brain. Research is the only way we are going to make a difference and prevent other families suffering as we have done.”
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Glendon Snape

We are grateful to Glendon who worked with us in May 2017 to share his story here. Sadly, he passed away on 12th October 2017. We remember Glendon as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.

Glendon Snape was looking forward to starting his honeymoon when he was struck with a terrible headache during the journey. Never setting foot in the hotel, Glendon, 51 from Preston, was instead rushed into hospital by ambulance from the hotel car park. The newly-weds, with four children between them, were devastated to hear that Glendon had a grade four glioblastoma multiforme, with possibly just months to live.


“When the doctors told me I had 14 months to live, my heart just sank and knowing more became an obsession; I just had to try to find a way out of the nightmare... It’s like an addiction but it’s kept me alive.” 

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Glenn McMahon

Husband, son, father and step-father, Glenn McMahon was diagnosed with an aggressive glioblastoma multiforme stage 4 (GBM) brain tumour after experiencing co-ordination problems on the golf course. He married Wendy in February 2014 and, knowing their time together would be cut short, the couple set about making the most of their lives through travel, socialising and their mutual love of fine food. Glenn died in June 2015 at the age of 53.

“To be told it was a brain tumour was like being hit by a bus. Glenn asked straight away how long he had and was told the short prognosis. We were devastated. We had begun to suspect Glenn might have motor neurone disease and never dreamt it would be a brain tumour. We had both been married before and having found each other now faced our future which was going to be cut short.”

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Godfrey Butchers

Husband, step-father and grandfather, Godfrey was laid to rest on what would have been his 25th wedding anniversary. His widow Shirley chose music from their marriage ceremony for the funeral which took place near their home on the Isle of Wight. Godfrey was 71 when he passed away just ten weeks after being diagnosed with a glioblastoma multiforme (GBM) brain tumour. 

“A proud man, Godfrey didn’t want lots of visitors or people fussing around him. He was thinking of others and wanted to spare them the pain of seeing what was happening to him. Close family came and it was a joy to see the love in his eyes as our granddaughter, who was just a few months old, sat on the bed with him.”
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Graham Addison

Graham Addison was a larger-than-life character at the heart of a tight-knit family. His brain tumour diagnosis in 2015 was a terrible blow to his wife, five children and nine grandchildren, but the family remained positive as Graham responded well to surgery, radiotherapy and chemotherapy. However, after a second operation Graham deteriorated rapidly and the love and support of his family couldn’t halt the aggressive glioblastoma multiforme (GBM). He passed way in September 2016, aged 66.

“Dad came out of theatre a different man and, for the first time, he was noticeably in decline. He couldn’t remember his own date of birth or even what day of the week it was. He was so brave but I remember once seeing the fear in his eyes when it dawned on him that his brain was failing him. How scary it must have been for him – to go from such a bright and intelligent man to someone who could no long remember how to use his mobile phone.”

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