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In Our Hearts

Less than 20% of those diagnosed with a brain tumour survive beyond five years

These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.

"We thought of you with love today, but that is nothing new.

We thought about you yesterday, and days before that too."

Anon

 

You are forever in our hearts.

Recently published stories

Ainars Trojanovskis

Ainars Trojanovskis from Newcastle upon Tyne was a fit and healthy dad to Daniel, 15, and Oliver, 10. Towards the end of 2020, he started to experience phantom smells and had problems with short term memory. In January 2021, he suffered a seizure while at work and was taken to hospital. He had a CT scan and an MRI scan which revealed a lesion on his brain. He was told it was likely to be a low-grade glioma but after his operation in April, a biopsy revealed he had an astrocytoma. Ainars underwent chemotherapy and radiotherapy, but a scan showed the tumour had spread to his spine. He died on 23 October 2021 with his loving family by his side.

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Steve Gilmour

Steve, a loving dad to seven-year-old Rosie, was multi-talented, being a graphic designer, a drummer in three different bands and a toy photographer. He was diagnosed with a grade 4 gliosarcoma – a rare, fast-growing brain tumour – and passed away, aged 45, less than nine months later, just two weeks after getting married.

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Daniel Franklin

Daniel Franklin, a kitchen assistant from Worthing, West Sussex, was diagnosed with a glioblastoma (GBM) in October 2020 after suffering with balance problems and sickness. The location of the tumour on his brain stem rendered it inoperable but he did have radiotherapy. He went on to have chemotherapy, which proved ineffective, and a second round of radiotherapy, which he complemented with holistic treatments. Sadly, from August 2021, his health began to deteriorate and he died at home three months later at the age of 26.

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All stories

Carol Hayes

We are grateful to Carol who worked with us in July 2018 to share her story here. Sadly, she passed away in September 2022. We remember Carol as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.

When Carol Hayes was sent to A&E in February 2018, she expected the worst and sadly her fear became reality. It was a brain tumour that had been causing her constant headaches and affecting her vision. The 56-year-old is still trying to come to the terms with her diagnosis but she remains positive as she undergoes six months of chemotherapy.

“Shortly after, my worst fears were confirmed: I had a brain tumour. It was like a truck had hit me in the chest but somehow the news just didn’t sink in… Nothing can prepare you to hear that, and even though I’d been worried I had a brain tumour, I couldn’t believe this was happening to me.”
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Caroline Cronin

Marine biologist Caroline Cronin’s biggest wish after being diagnosed with a terminal brain tumour was to get back to work. There were two things she felt she still wanted to achieve – to get married and have a baby. She defied expectations to achieve both and the family were able to spend precious months at home together before Caroline passed away in October 2013 at the age of 32, leaving her husband Marcus and their six-month-old daughter Florence.
  
“The few times that Caroline allowed anyone to see her upset about her condition was when she worried about how her illness affected others. We both desperately wanted to be married and felt blessed to have a baby together. The grieving process takes a long time but knowing Caroline was able to do the two things she most wanted makes it a bit easier. We had been through so many very difficult times together and, when Caroline died, I was just grateful that it was as she had wished. I held her hand as she passed away at home. The first thing I did was to hold Florence and, in a way, it meant I didn’t feel as if I had lost Caroline completely as I had our baby.”
 
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Caroline Foster

Caroline was initially diagnosed as having depression (which was something she had suffered before) and then a breakdown.  Her husband, Andy, first noticed something wrong after Christmas when Caroline just didn’t seem herself, wasn’t focusing on things and wasn’t caring for herself.  

By the time Caroline became incontinent, she was assessed by health workers and was admitted to a psychiatric hospital, where she spent a week before having to leave as the hospital couldn’t provide the level of care she needed - by then she was unable to do anything for herself and even had to be moved with the use of hoists.  There had been no improvement in Caroline’s condition, even with medication and therapy.  
 
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Cat Anderson

In August 2014, a CT scan revealed that Cat, aged 36 and the mother of Robert, 15, had a brain tumour. Following surgery and a biopsy, the devastating news came back that the tumour was in fact cancerous – suggestive of a metastatic spread, but, on a positive note, was a grade 2, slow-growing type of tumour. Just a few short months later, with Cat experiencing headaches again, further surgery revealed the earth-shattering reality that the tumour had progressed from grade 2 to grade 4. Cat’s family and friends all rallied round to help and to fundraise, resulting in the setting up of a fundraising group called Cat in a Hat. Tragically, by the spring of 2017, Cat was no longer responding to any treatments available. She passed away on 14th June that year.

“I started to think Cat would beat the brain tumour or, if not, at least keep it at bay for many years due to her strength and positive attitude. I even found that Cat’s brain tumour wasn’t always the last thing I thought about at night or the first thing I thought about when I awoke.”

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Charlie Carter-Bates

Charlie was six years old when he was finally diagnosed with a GBM4 brain tumour after months of “migraines” accompanied sometimes with projectile vomiting and instances of eye pain.  His parents were told that his chance of survival was 25%, although they later found out that it was a lot less.

“The day of the scan was the day our lives changed forever and was the worst day of our lives so far…   I remember the feeling of utter despair.  I can’t even explain the feeling – it was the most horrendous pain.”
 
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Charlotte Barber

Charlotte Barber defied the odds, living for 29 years after her brain tumour diagnosis when she had been given a 30% chance of surviving past the age of 13. She underwent treatment, which was cutting-edge for its time, at Addenbrooke’s Hospital in the late 80s, paving the way for future patients, and was part of the Childhood Cancer Survivor Study. Despite overcoming many hurdles and learning to live with the debilitating side effects of the disease, Charlotte sadly died on 17th May 2018 at the age of 37. Her mum Julie reflects on Charlotte’s journey and her desire to contribute to research in Charlotte’s memory.

“Her consultant has since told us that Charlotte was a pathfinder and a hero, and those undergoing treatment today owed her a great deal. She was a hero and my heart burst with pride to hear someone else say it. Her childhood was taken away from her by this cruel disease but she never once complained and that smile never faltered.”

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Charlotte Hobbs

We are grateful to Charlotte who worked with us in November 2021 to share her story here. Sadly, she passed away in March 2022. We remember Charlotte as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.

Mother-of-two Charlotte Hobbs, from Penarth in the Vale of Glamorgan, was first diagnosed with a brain tumour in July 2010 after originally being misdiagnosed with back spasms. Six weeks of radiotherapy followed an awake craniotomy and the results of her biopsy confirmed Charlotte had a grade 3 anaplastic astrocytoma. Charlotte finished treatment in 2011 and was given six-monthly, then yearly scans to monitor any changes. Then, in October 2020 she received the devastating news the brain tumour had returned and she is currently receiving chemotherapy, following her relapse.

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Chloe Clayton

Chloe from Worcestershire died exactly a year after she was diagnosed with a rare grade 4 brain tumour. She began to experience painful headaches and after trips back and forth to the GP, she was finally referred for an MRI scan which revealed devastating news of a mass on her brain. Months of radiotherapy couldn’t compete with the aggressiveness of the tumour and the cancer spread and Chloe died on 15 September 2016 at the age of 19, surrounded by her family. Six years after her death, her brother, Jordan is fundraising to help fund the fight and find a cure for the deadly disease.

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Christine Scott

Christine Scott was diagnosed with a low-grade oligodendroglioma in 2011. Her prognosis was good and, despite epilepsy, she continued with a normal life – even continuing to ride her beloved horses. After five years however, the tumour became aggressive and even though she underwent surgery and treatment, Christine deteriorated. She died in 2018, aged 58, leaving her husband, five children, a granddaughter of less than one year, two horses and a dog.

“Over the course of the year, she went from walking normally to relying on a walking stick to a Zimmer frame to a wheelchair. Determined as ever, Christine had kept trying to ride throughout all of this – even if it was just sitting on the horses while being led around a paddock – but in summer 2017 she had to stop. Although she dealt with her illness fairly well, not being able to ride was extremely difficult for her.”

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Christopher Todd

Husband, father, and grandfather, Christopher Todd was 63 when he was diagnosed with an aggressive grade 4 glioblastoma multiforme brain tumour after suffering violent headaches and stroke-like symptoms. As he underwent surgery, radiotherapy and chemotherapy his daughter Vicky set about raising funding for research to help get him better. With the support of his family, Christopher fought his illness but passed away in hospital in November 2016 at the age of 65.

“When dad was diagnosed I just couldn’t understand how this could happen. How can so many people have brain tumours yet so little be known? I was flabbergasted to learn that brain tumours kill more children and adults under the age of 40 than any other cancer yet receive so little funding. How can it be right that just 1% of the national spend on cancer research is allocated to this devastating disease? I cannot sit by and let this happen so I set about fundraising for Brain Tumour Research to help my dad get better.”
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