These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too.
You are forever in our hearts.
Recently published stories
We are grateful to Jenny who worked with us in June 2018 to share her story here. Sadly, she passed away in November 2019. We remember Jenny as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
At the age of 59, Jenny Lambert received the news that she had a grade four brain tumour which had probably been growing since her teens. She feared she wouldn’t live to see the birth of her first grandchild but now, 18 months later, Jenny is back on her feet and looking at life from a new, uplifting perspective.
Ollie lived in Aston Clinton near Aylesbury with his mum Jane, dad Peter and younger brother Theo. He was diagnosed aged 10 with a medulloblastoma brain tumour and underwent surgery which left him with posterior fossa syndrome (PFS). Despite lots of treatment, the cancer returned and the family were told that there was nothing further that could be done. Despite going to Germany for pioneering immunotherapy treatment, Ollie passed away, aged 13, in November 2017.Read more
Sean was diagnosed with a glioblastoma multiforme (GBM) brain tumour in August 2016, aged 27. He remained positive throughout three brain surgeries, chemotherapy and radiotherapy, marrying his beloved Laura in June 2018. Tragically, there was nothing which could save him and he passed away in September 2018, aged just 29.Read more
David LeatherbarrowDave was just 34 and with two daughters aged five and two when he died from an aggressive glioblastoma multiforme (GBM) in January 2015. Previously fit and healthy, his wife Diane felt he was taken away from them bit by bit as radiotherapy and chemotherapy changed him physically and mentally.
“Jessica was just a baby but it was so hard for Charlie and I tried to explain that daddy’s medicine was to blame. It got to the stage where not only was he behaving like someone else, he looked like someone else too. Dave was a big man, 6ft 1ins tall and toned. During his treatment he put on around five stones in weight and ballooned to around 19 stones. He needed all new clothes and even then wasn’t comfortable in anything. Despite this, he was still the person I loved more than anything and it was so hard to see him struggle with the physical and mental changes when, other than be there when he needed me, there was nothing more I could do.”
Dean WoodDean was a healthy man who worked hard (up to 60 hours per week) as a builder, and then enjoyed a drink and playing pranks. He loved his family and was very loyal to his friends – he had the same best friend since the age of seven. When Dean was 27 he was diagnosed with a glioblastoma multiforme grade IV which he fought with so much courage and his indomitable sense of humour; nevertheless he was cruelly taken from us just seven months later.
“Dean will always remain in our thoughts and in our lives and we talk about him daily. We don’t want to shy away from the scary parts of this illness; we want everybody to see how brave Dean was. We, as a family, promise to continue the fight against brain tumours in his honour.”
Debbie was diagnosed with an aggressive glioblastoma (GBM) brain tumour just a short while after getting together with her partner Phil Holding, who she met at work. Having private health cover, Debbie underwent surgery and was treated at Harley Street Clinic, but survived just 13 months after diagnosis, passing away seven weeks before her daughter Vicky’s wedding, which she had been so involved in planning.
“Straightaway, I knew what was coming; I recognised the signs from when I lost my mum nine years previously. I checked with a nurse and she confirmed the worst. At 7am I called Debbie’s family and by 9am her brothers and sisters, her son, and mum and dad had all arrived. At midday on 21 July 2018, Debbie passed away, aged 58, with all of us by her side. Sadly, her daughter, who had been away on her ‘hen’ weekend arrived an hour too late.”Read more
Derek Lovatt was a popular Burton Upon Trent photographer whose life was cut short by a brain tumour at the age of 56. Though his death in 2001 left a devastating hole in the hearts of his wife Jennifer and their three children Chris, Ellen and Richard, he created lasting memories for his family to cherish. Ellen, 44, is now taking part in the Brain Tumour Research charity’s On Yer Bike campaign, and through fundraising she ensures her dad’s legacy lives on.Read more
Diana FordIn the beginning Diana only had very vague symptoms like never seeming to have enough sleep, or having a bit of a headache. But as her youngest child, Finlay, was just two years old neither she, nor the family took it seriously. However, around Christmas-time, there were various odd things which didn’t seem to stack up. Diana seemed a bit vague, like she was not really listening, and not always understanding.
Then came a week when Diana felt quite unwell and stayed in bed. On the second day she got up to go to the GP who suggested she go to the hospital for blood tests, which she did with difficulty. By Friday when Diana was leaving cups of tea untouched and complaining she had such a headache, I became really concerned. I called the doctor and insisted he came out to her and I also called her husband, Nick and suggested he came home. I thought Diana was having a mental breakdown or was very ill.
Donna OsbourneDonna was healthy, apart from problems with high blood pressure which she probably inherited from her mother’s side of the family. She had been going to see the GP about it, who thought it might be a thyroid problem.
On New Year’s Eve, 2007, we were with friends and Donna felt faint and dizzy, although she didn’t actually faint. We sat her down and did all the things you do when someone feels faint. There was even a lady on hand at the party who used to be a nurse. We then decided to go home as Donna continued not feeling too good. She woke up fine the next morning.
Duncan ScottDuncan was an extremely intelligent, kind and thoughtful man. He was an avid fan of Formula 1 and Le Mans. In June 2015 he was diagnosed with a grade 4 glioblastoma multiforme. After an 18 month battle, he passed away aged 55. During the last weeks of his life he endured severe mental torture until he was admitted to a hospice where doctors and nurses were able to adjust his medication to prevent him from suffering anymore.
Here is Duncan’s story as told by his sister, Gayle:
“Duncan’s passing has left a huge hole in my life, as well as the many people whose lives he touched. His funeral was extremely well attended with many people voicing how he had “changed their lives for the better”. It seems so unfair that he was taken in his prime with so much joy to have and to give. I miss him dreadfully.” Read more
Eddy KirbyWithin a fortnight of walking one of his two beloved daughters down the aisle on her wedding day, Eddy Kirby was suddenly taken ill and after tests he was diagnosed with an aggressive glioblastoma multiforme (GBM) brain tumour. It was inoperable and although he underwent treatment, Eddy’s condition deteriorated rapidly. He passed away, aged 64, on 7th March 2015, his late father’s birthday. In addition to leaving two daughters, Emma and Sarah, Eddy also left a partner Carol and his mother, Marjorie, aged 93. Read more
At the age of 38, Edward Morrison was diagnosed with a low-grade ependymoma that appeared to pose little threat. After 10 months of treatment, there were no traces of tumour left and it seemed that Edward had beaten the disease. Sadly, the tumour made an aggressive return and, despite best efforts to treat it, Edward’s life was cruelly taken away from him in January 2018.
“Edward’s stubbornness was extremely frustrating at times, but his sense of humour provided some relief from the hopelessness of the situation. One day I asked him: ‘how are you feeling?’ and he replied: ‘not as bad as the guy who signed off my medical insurance’.” Read more