In Our Hearts
Less than 20% of those diagnosed with a brain tumour survive beyond five years
These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
"We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too."
You are forever in our hearts.
Recently published stories
Steve, a loving dad to seven-year-old Rosie, was multi-talented, being a graphic designer, a drummer in three different bands and a toy photographer. He was diagnosed with a grade 4 gliosarcoma – a rare, fast-growing brain tumour – and passed away, aged 45, less than nine months later, just two weeks after getting married.Read more
Daniel Franklin, a kitchen assistant from Worthing, West Sussex, was diagnosed with a glioblastoma (GBM) in October 2020 after suffering with balance problems and sickness. The location of the tumour on his brain stem rendered it inoperable but he did have radiotherapy. He went on to have chemotherapy, which proved ineffective, and a second round of radiotherapy, which he complemented with holistic treatments. Sadly, from August 2021, his health began to deteriorate and he died at home three months later at the age of 26.Read more
James Lamerton, a teacher from Leigh-on-Sea, Essex, was diagnosed with a brain tumour in his pineal gland in October 2021, later identified as a grade 4 glioblastoma (GBM). He was being treated for sleep apnoea at the time and was taking medication for migraines thought to be connected to the condition. He suffered complications following surgery and died five weeks after his diagnosis, at the age of 40, leaving behind his wife, Myriam and their two-year-old daughter, Layla.Read more
Blaise Nelson was diagnosed with multiple brain tumours in February 2018, at the age of just six. The schoolboy from Didsbury in Greater Manchester underwent major surgery and extensive treatment, including a clinical trial, to try to prolong his life. Tragically, his treatment options eventually ran out and he died at home in October 2019, leaving behind his devastated parents Rachel and Chris and three siblings, including his four-year-old sister, Asha.Read more
Bob shared his story with us in September 2016. Sadly, he passed away on 25th June 2019. We will remember Bob as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
A successful double bass player, Bob Picken has been a member of Liverpool band Ella Guru, as well as a backing for artists such as Neville Skelly, She Drew The Gun, Bill Ryder-Jones and Marvin Powell.
Diagnosed in 2012 with an anaplastic astrocytoma, whom he affectionately calls “Bieber” in reference to the Canadian singer Justin, Bob has managed to overcome a number of setbacks to carry on with his career, and in his own words “stick two fingers up to cancer”.
“You go through five stages of cancer: denial, anger, bargaining, sadness and eventually acceptance.”
Diagnosed with a multifocal grade 4 glioblastoma multiforme (GBM) in December 2018, 71-year-old Bob Witherspoon from Whitley Bay lost his life to this aggressive brain tumour just four months later. At his funeral, rather than flowers, his family requested a collection for Brain Tumour Research. Having raised over £700 to help fund research to prevent other families from going through the pain they have suffered, they now want to raise awareness of this cruel disease, by sharing their heart-breaking experience.Read more
Brian lived in Gressenhall near Dereham, Norfolk and was a great family man and a wonderful husband. He had three children – Camilla from his first marriage and Rosie and Tom from our marriage. He cared deeply about each one of them and was particularly protective about Camilla who suffered badly with asthma and eczema from an early age. Brian was diagnosed with a rare lymphoma brain tumour and passed away almost a year later, aged 62, on 23rd September 2006.
Here is Brian’s story as told by his wife, Sally…
“Brian knew he was going to die. There were still lots of things he wanted to do, but he was at peace with himself, which was a huge comfort to me. We used to sit together in the garden and he would tell me everything he wanted me to do with the children and his businesses after he had gone. He was an amazing man, even in the last year when he was dying.”
Brain's story was written while he was still with us. Sadly Brian passed away at the end of November 2018. We will update his story fully at a more suitable time. Our deepest condolences go out to his wife Fay and their family at this immeasurably sad time.
Brian Rockell has worked within the healthcare industry for decades, yet when he was diagnosed with a glioblastoma, aged 68, he was shocked by the distressing experience of brain tumour patients. Although facing his own anxieties and challenges, Brian is now determined to campaign for and support others affected by this devastating disease.
“I was transferred to the Royal Sussex County Hospital for surgery…. and it went relatively well. Looking back, the surgery was the easy part. I had no idea then how much support I would need as a patient and how different my life was about to become...”Read more
Briar Butler from Kendal in Cumbria, was just 30 when, in June 2018, she received the devastating news that she had an incurable brain tumour. Her diagnosis came after years of suffering from debilitating mental health problems. Briar, a trainee accountant and keen pole dancer, underwent surgery to debulk the tumour and several more operations after she developed infections in her skull. The mum-of-one spent the final few months of her life in a care home, which meant she was unable to see her loved ones when restrictions were imposed during the COVID-19 pandemic. Briar died on 17 August 2021, leaving her four sisters, her mum Beverley and her six-year-old Noah devastated.Read more
Oxfordshire toddler, Callum Elliott was just 20 months when he was diagnosed with an anaplastic ependymoma after a family member noticed a constant tilt of his head. After initially being given medication for wry neck, concerned mum, Zoe Elliott, re-visited the doctors and was referred to the John Radcliffe Hospital where further tests revealed the devastating news of a tumour on Callum’s brain. He had three operations, encountering complications during his diagnosis including a tracheostomy, and recovering from meningitis, staphylococcus aureus and sepsis. After undergoing only five out of 35 rounds of gruelling chemotherapy, and radiotherapy treatment, Callum’s tumour became too aggressive and he died on 9 January 2017, aged four, in a hospice with Zoe by his sideRead more
Carl and his family have been staunch supporters of Brain Tumour Research for many years. Sadly, Carl passed away on 26 March 2019 and we remain enormously grateful for all he helped us to achieve and will continue our fight in his memory.
Manchester pub landlord, Carl Piddington, was fit and healthy with three children, when he discovered one day that he could no longer control his hand. After a massive seizure and subsequent tests, Carl was told that his aggressive brain tumour could end his life within a year. Determined to be a long-term survivor, Carl is now eight years on after diagnosis and facing yet more treatments.
“I know this is terminal. Maybe it will get me, maybe it will be something else, but I’m not going to sit and wait for it. As my dad always used to say, while laying his hands on my shoulders and looking into my eyes: “you are a lion, my son!”
Psychiatric nurse Carol, from Fareham, died just six weeks after her diagnosis with a glioblastoma multiforme (GBM) – a highly aggressive type of tumour – in August 2000. She was 53 and left her two sons Mark and Simon. Now Mark, who studies at Bournemouth University, is determined to help fund the fight into the disease, by taking part in the Brain Tumour Research charity’s Wear A Hat Day with his fellow students.Read more
We are grateful to Carol who worked with us in July 2018 to share her story here. Sadly, she passed away in September 2022. We remember Carol as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
When Carol Hayes was sent to A&E in February 2018, she expected the worst and sadly her fear became reality. It was a brain tumour that had been causing her constant headaches and affecting her vision. The 56-year-old is still trying to come to the terms with her diagnosis but she remains positive as she undergoes six months of chemotherapy.“Shortly after, my worst fears were confirmed: I had a brain tumour. It was like a truck had hit me in the chest but somehow the news just didn’t sink in… Nothing can prepare you to hear that, and even though I’d been worried I had a brain tumour, I couldn’t believe this was happening to me.” Read more