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In Our Hearts

Less than 20% of those diagnosed with a brain tumour survive beyond five years

These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.

We thought of you with love today, but that is nothing new.


We thought about you yesterday, and days before that too.


Anon

You are forever in our hearts.

Recently published stories

Debbie Hale

Laura, her partner Kev and daughter Eva, are taking part in a Walk of Hope to help find a cure for the disease which took her Mum, Debbie, at the age of 58. Debbie outlived her prognosis but endured the loss of her only son as she struggled to cope with the physical and mental demands of her own illness. At her Mum’s request, Laura underwent radical surgery because she was genetically predisposed to getting breast cancer and ovarian cancer. The family has been left wondering why treatment options for brain tumours haven’t kept pace with other types of cancer such as those Laura was at risk of.

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Ben Parton

Ben was just 11 when he started to experience symptoms including sickness. A month later he was diagnosed with a glioblastoma multiforme and his devastated mum was told he had less than two years to live. He underwent surgery and treatment, but sadly died just eight months later in December 2019. His twin brother Jack was diagnosed with leukaemia shortly afterwards and is now undergoing treatment.

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Colin Burt

Colin Burt, from Newcastle-Upon-Tyne, was 49 when he died from a brain tumour he had bravely fought for five years. Colin was happily married to Fiona and together they enjoyed a life full of love, travel and music. Colin underwent two brain surgeries and several courses of radiotherapy before his treatment options eventually ran out. He died at home in August 2019, leaving his 43-year-old wife Fiona heartbroken and facing the rest of her life without her ‘soulmate’.

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All stories

Claire Hollister

My darling daughter, Claire, had her life cut short by a brain tumour - the very same disease which had killed my sister, Valerie, 10 years previously.  Claire was just 30 years old when she passed away, just 14 months after diagnosis with a grade IV gliosarcoma.

“It was at this point I realised the “small lump” must be life threatening.  It all felt so unreal - to go from everything being so normal and then there we were looking this deadly disease in the eye.”
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Clive Gathercole

Husband and father of four boys, Clive Gathercole was eventually diagnosed with a glioblastoma brain tumour after suffering months of health problems. He died in August 2012.

“In my anger I thought about complaining about the terrible care we received and the problems with securing a proper diagnosis, but I am not sure looking back at the past negatively is helpful, so instead as a family we are forging ahead with our fundraising plans to fund more research into brain tumours. I would hate to think of other families facing what we have been through, and think the lack of awareness of this disease is a tragedy in its own right.”
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Colin Burt

Colin Burt, from Newcastle-Upon-Tyne, was 49 when he died from a brain tumour he had bravely fought for five years. Colin was happily married to Fiona and together they enjoyed a life full of love, travel and music. Colin underwent two brain surgeries and several courses of radiotherapy before his treatment options eventually ran out. He died at home in August 2019, leaving his 43-year-old wife Fiona heartbroken and facing the rest of her life without her ‘soulmate’.

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Colin Shaw


Passionate flat-green bowler Colin Shaw was 69 years old and 11 years into his retirement when he collapsed unexpectedly.  Initially thinking it was a reaction to malaria tablets taken in preparation for a forthcoming holiday, he and his wife were shocked to learn that he had an aggressive grade 4 glioblastoma multiforme (GBM) brain tumour.

With a second tumour discovered nine months later, Colin lost his fight only 18 months after the first diagnosis, with his family all around him.

“If there is such a thing as a perfect death, Colin had it.  We were all there, me and our three daughters, when he quietly slipped away.”

 
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Collette Drifte

Freelance writer and loving wife Collette had plans for a blissful retirement with her husband of 29 years, Reinhard. However, after being diagnosed with a glioblastoma multiforme in August 2016, her dreams of travelling and relaxing were tragically cut short. She faced her illness with optimism and courage, bringing laughter to all those around her, until she sadly passed away at the age of 65 with her husband at her bedside.

I could see that she was drifting away from us and, as she slipped into a coma, the feeling of powerlessness was overwhelming. I had done all I could to help her. I was woken up by the night nurse who told me Collette was about to die. I’m grateful that this allowed me to be with my wonderful wife for one last time.

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Danny Green

The Danny Green Fund was set up when his parents lost their gorgeous son Danny at the age of 11. Before he was diagnosed with a brain tumour, their beautiful, fun loving and energetic son was a typical 10-year-old in every way, very much living for the moment and enjoying life. Tragically, Danny died just nine months after diagnosis, leaving a void which will never be filled.

“Our hearts are broken and can never be repaired. To lose a child is unbearable and should not happen. Danny is the inspiration for our charity: to raise funds to help children with Posterior Fossa Syndrome, which was Danny’s main battle on a daily basis, to fund research to help find a cure, as well as to raise awareness of this devastating disease to hopefully prevent other children from suffering as Danny did...”

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Danny Horton

My brother, Danny, was a healthy, sporty, fun-loving young man but in 2010 he passed away, aged 36, with an astrocytoma brain tumour.  Just six months later in the same year, my wife, Maddie, lost her father to the same cruel disease.

“Danny passed away nine years after his diagnosis, aged 36
 – yet another tragic example of the stark fact that more children and adults under the age of 40 die of a brain tumour than from any other cancer.  He walked his brain tumour path on his own, living with a gun to his head.  
It makes me think all the more of him.”

 
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Darel Bryan

Darel was 33 years old and in the prime of his life when he was diagnosed with glioblastoma multiforme (GBM) in December 2014. Previously extremely healthy and active, it was a complete shock and devastating to his family and his beloved partner of 12 years, Natalie. Darel bravely fought this aggressive disease for 15 months, but sadly lost his battle on 26th February 2016.

“The clinical nurse specialists at the meeting told us not to look his diagnosis up… I was to discover that GBM is a monster; it is relentless and an utterly cruel disease. It not only robs you of who you are, it robbed Darel and me of our future together.”
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Daryl Owens

Daryl Owens was diagnosed with a grade 3 astrocytoma when he was 34 years old. He always stayed positive, approaching everything with a sense of humour, and his condition at one point stabilised. After two years however, Daryl began to deteriorate and in October 2018, three years since his diagnosis, he passed away with his wife Jude and his parents by his side.

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Dave Holden

We are grateful to Dave who worked with us in September 2015 to share his story here. Sadly, he passed away in February 2019. We remember Dave as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.

Father-of-three Dave Holden is living with a grade 3 astrocytoma brain tumour. It was diagnosed in 2010 after he began to experience difficulty driving. The tumour responded well to 18 months of chemotherapy and radiation but a scan in March 2015 revealed it had returned. Dave continues to work full-time and remains positive about the future.

“I can’t be bothered with the doom and gloom. I have always been quite a positive person and now it is more important than ever. I do have days where I can feel down, but my wife gives me a kick to help me get over it. We have the kids to think about and I need to be here and on good form for as long as I can in order to look after my family.”

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