These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too.
You are forever in our hearts.
Recently published stories
We are grateful to Jenny who worked with us in June 2018 to share her story here. Sadly, she passed away in November 2019. We remember Jenny as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
At the age of 59, Jenny Lambert received the news that she had a grade four brain tumour which had probably been growing since her teens. She feared she wouldn’t live to see the birth of her first grandchild but now, 18 months later, Jenny is back on her feet and looking at life from a new, uplifting perspective.
Ollie lived in Aston Clinton near Aylesbury with his mum Jane, dad Peter and younger brother Theo. He was diagnosed aged 10 with a medulloblastoma brain tumour and underwent surgery which left him with posterior fossa syndrome (PFS). Despite lots of treatment, the cancer returned and the family were told that there was nothing further that could be done. Despite going to Germany for pioneering immunotherapy treatment, Ollie passed away, aged 13, in November 2017.Read more
Sean was diagnosed with a glioblastoma multiforme (GBM) brain tumour in August 2016, aged 27. He remained positive throughout three brain surgeries, chemotherapy and radiotherapy, marrying his beloved Laura in June 2018. Tragically, there was nothing which could save him and he passed away in September 2018, aged just 29.Read more
The Danny Green Fund was set up when his parents lost their gorgeous son Danny at the age of 11. Before he was diagnosed with a brain tumour, their beautiful, fun loving and energetic son was a typical 10-year-old in every way, very much living for the moment and enjoying life. Tragically, Danny died just nine months after diagnosis, leaving a void which will never be filled.
“Our hearts are broken and can never be repaired. To lose a child is unbearable and should not happen. Danny is the inspiration for our charity: to raise funds to help children with Posterior Fossa Syndrome, which was Danny’s main battle on a daily basis, to fund research to help find a cure, as well as to raise awareness of this devastating disease to hopefully prevent other children from suffering as Danny did...”Read more
Danny HortonMy brother, Danny, was a healthy, sporty, fun-loving young man but in 2010 he passed away, aged 36, with an astrocytoma brain tumour. Just six months later in the same year, my wife, Maddie, lost her father to the same cruel disease.
“Danny passed away nine years after his diagnosis, aged 36
– yet another tragic example of the stark fact that more children and adults under the age of 40 die of a brain tumour than from any other cancer. He walked his brain tumour path on his own, living with a gun to his head.
It makes me think all the more of him.”
Darel BryanDarel was 33 years old and in the prime of his life when he was diagnosed with glioblastoma multiforme (GBM) in December 2014. Previously extremely healthy and active, it was a complete shock and devastating to his family and his beloved partner of 12 years, Natalie. Darel bravely fought this aggressive disease for 15 months, but sadly lost his battle on 26th February 2016.
“The clinical nurse specialists at the meeting told us not to look his diagnosis up… I was to discover that GBM is a monster; it is relentless and an utterly cruel disease. It not only robs you of who you are, it robbed Darel and me of our future together.”
Daryl Owens was diagnosed with a grade 3 astrocytoma when he was 34 years old. He always stayed positive, approaching everything with a sense of humour, and his condition at one point stabilised. After two years however, Daryl began to deteriorate and in October 2018, three years since his diagnosis, he passed away with his wife Jude and his parents by his side.Read more
We are grateful to Dave who worked with us in September 2015 to share his story here. Sadly, he passed away in February 2019. We remember Dave as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
Father-of-three Dave Holden is living with a grade 3 astrocytoma brain tumour. It was diagnosed in 2010 after he began to experience difficulty driving. The tumour responded well to 18 months of chemotherapy and radiation but a scan in March 2015 revealed it had returned. Dave continues to work full-time and remains positive about the future.
“I can’t be bothered with the doom and gloom. I have always been quite a positive person and now it is more important than ever. I do have days where I can feel down, but my wife gives me a kick to help me get over it. We have the kids to think about and I need to be here and on good form for as long as I can in order to look after my family.”
Husband, father, and grandfather, Dave O'Donoghue, was 59 when he was diagnosed with a grade four glioblastoma multiforme brain tumour, after suffering from severe headaches. Though he underwent surgery and radiotherapy, Dave sadly passed away less than four months after diagnosis, missing his milestone 60th birthday by a matter of weeks. This year marks 10 years since his passing.
“After what seemed like hours waiting in silence for the consultant to arrive, he came in and did not delay giving the diagnosis. Dad had a grade four glioblastoma multiforme (GBM), a very aggressive tumour and it was going to end his life within the next three months. We all sat there in shock at the news we had just heard, trying to piece it all together. My mum fled the room in tears while I just sat there in silence with my dad. His only question was if he would make his 60th birthday on the 13th July. The consultant paused, shook his head and said ‘I’m so sorry’.”Read more
David FlockhartProfessor of Medicine, Genetics and Pharmacology and Director of the Institute of Personalised Medicine at Indiana University in the USA, David Flockhart devoted his career to pioneering breakthroughs against cancer.
Having lost his mother and cousin to glioblastoma multiforme (GBM) tumours, it was unfortunate when David found himself battling a GBM, a cancer where he felt that conventional treatment had not changed in 50 years. Knowing that his prognosis was poor, David wanted to communicate his medical knowledge widely, and through his broadcasting work, let others understand what it was like to live with the devastating effects of a brain tumour before he died.
“My brother was convinced that there had to be a genetic link, or at least a predisposition, to brain tumours in our family. Three of them, all in my mother’s blood line, diagnosed with GBM.”
David GrantWe are grateful to David who worked with us in October 2013 to share his story here. Sadly, he passed away. We remember David as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
David Grant was diagnosed with a glioblastoma multiforme grade IV brain tumour in August 2005. He was working as a Senior Project Manager for the Royal Bank of Scotland and married with a two-year-old daughter at the time. David was told he could have just 12 months to live. Fast forward to today: David hasn’t received cancer medication since 2006 and is now watching his daughter growing up. Read more
Husband and father-of-two David was just 39 when he died. He was initially diagnosed with a low-grade oligoastrocytoma brain tumour when his wife was 31 weeks pregnant with their first child. He underwent gruelling chemotherapy and radiotherapy and also had immunotherapy in a bid to arrest the growth of the tumour which over time changed to a grade four glioblastoma. He passed away in November 2016.
“David was dying and there was nothing more which could be done. He had been in 24 hour intensive care and now I was being advised to take him home and care for him myself. How was I to do that? Although he was terminally ill, at 39 David was too young for a nursing home and, ironically, not close enough to death for a hospice.”
David Kingston sadly passed away on Friday 9th November. We will update his story fully at a more suitable time. Our deepest condolences go out to his wife Kim and their family at this very sad time.
Software sales manager David Kingston was diagnosed with a low-grade brain tumour nine years ago. He underwent surgery and follow-up treatment and now faces more chemotherapy after his tumour began to regrow, this time designated as high-grade. He is married with two children and endured the loss of his 20-year-old daughter to the genetic condition cystic fibrosis four years ago.
“This is my life, this is the hand I have been dealt and I have to get on and live it as best I can. I am determined not to let my illness define me or rule my life. My wife has been incredible, having always been by my side. Thanks to her, and the amazing group of friends we have, it is overwhelming to feel their constant love and support. With the introduction of social media, one of the sweetest things is when someone gets in touch after 25 years and wants to know how I am coping.”Read more