In Our Hearts
Less than 20% of those diagnosed with a brain tumour survive beyond five years
These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too.
You are forever in our hearts.
Recently published stories
Susan was diagnosed with ‘lesions on the brain’ in November 2010 and died just six weeks later, aged 42. As well as being a very special wife, mother-of-two and daughter, Sue was a committed and integral member of her North London, Roman Catholic parish and was always on hand to support, listen and help people in crisis, even when she had problems of her own.
We are grateful to Morgan and his wife Elisha, who worked with us in December 2020 to share his story here. Sadly, Morgan passed away on 10th January 2021. We remember Morgan as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
Morgan was 22, engaged to his childhood sweetheart and a proud dad to one-year-old Riley when he started having seizures and was diagnosed with a glioblastoma multiforme (GBM) brain tumour. He did his best to keep his young family positive whilst going through chemotherapy treatment during the coronavirus pandemic, but then received heart-breaking news that the tumour was continuing to grow and all treatment was being stopped.
Ava BallAva’s mother was alarmed to find a lump on the back of her two-month-old baby’s head, but was told by her GP it was a soft spot. The lump had grown to the size of a tennis ball when Ava finally had an MRI scan, aged seven months. A biopsy determined the lump was a primary malignant melanocytic brain tumour with intra as well as extra-cranial components. After surgery, there was nothing more which could be done to save little Ava and she passed away in her mummy’s arms, aged just eight months.
Brian lived in Gressenhall near Dereham, Norfolk and was a great family man and a wonderful husband. He had three children – Camilla from his first marriage and Rosie and Tom from our marriage. He cared deeply about each one of them and was particularly protective about Camilla who suffered badly with asthma and eczema from an early age. Brian was diagnosed with a rare lymphoma brain tumour and passed away almost a year later, aged 62, on 23rd September 2006.
Here is Brian’s story as told by his wife, Sally…
“Brian knew he was going to die. There were still lots of things he wanted to do, but he was at peace with himself, which was a huge comfort to me. We used to sit together in the garden and he would tell me everything he wanted me to do with the children and his businesses after he had gone. He was an amazing man, even in the last year when he was dying.”
Brain's story was written while he was still with us. Sadly Brian passed away at the end of November 2018. We will update his story fully at a more suitable time. Our deepest condolences go out to his wife Fay and their family at this immeasurably sad time.
Brian Rockell has worked within the healthcare industry for decades, yet when he was diagnosed with a glioblastoma, aged 68, he was shocked by the distressing experience of brain tumour patients. Although facing his own anxieties and challenges, Brian is now determined to campaign for and support others affected by this devastating disease.
“I was transferred to the Royal Sussex County Hospital for surgery…. and it went relatively well. Looking back, the surgery was the easy part. I had no idea then how much support I would need as a patient and how different my life was about to become...”Read more
Carl and his family have been staunch supporters of Brain Tumour Research for many years. Sadly, Carl passed away on 26 March 2019 and we remain enormously grateful for all he helped us to achieve and will continue our fight in his memory.
Manchester pub landlord, Carl Piddington, was fit and healthy with three children, when he discovered one day that he could no longer control his hand. After a massive seizure and subsequent tests, Carl was told that his aggressive brain tumour could end his life within a year. Determined to be a long-term survivor, Carl is now eight years on after diagnosis and facing yet more treatments.
“I know this is terminal. Maybe it will get me, maybe it will be something else, but I’m not going to sit and wait for it. As my dad always used to say, while laying his hands on my shoulders and looking into my eyes: “you are a lion, my son!”
Psychiatric nurse Carol, from Fareham, died just six weeks after her diagnosis with a glioblastoma multiforme (GBM) – a highly aggressive type of tumour – in August 2000. She was 53 and left her two sons Mark and Simon. Now Mark, who studies at Bournemouth University, is determined to help fund the fight into the disease, by taking part in the Brain Tumour Research charity’s Wear A Hat Day with his fellow students.Read more
Caroline CroninMarine biologist Caroline Cronin’s biggest wish after being diagnosed with a terminal brain tumour was to get back to work. There were two things she felt she still wanted to achieve – to get married and have a baby. She defied expectations to achieve both and the family were able to spend precious months at home together before Caroline passed away in October 2013 at the age of 32, leaving her husband Marcus and their six-month-old daughter Florence.
“The few times that Caroline allowed anyone to see her upset about her condition was when she worried about how her illness affected others. We both desperately wanted to be married and felt blessed to have a baby together. The grieving process takes a long time but knowing Caroline was able to do the two things she most wanted makes it a bit easier. We had been through so many very difficult times together and, when Caroline died, I was just grateful that it was as she had wished. I held her hand as she passed away at home. The first thing I did was to hold Florence and, in a way, it meant I didn’t feel as if I had lost Caroline completely as I had our baby.”
Caroline FosterCaroline was initially diagnosed as having depression (which was something she had suffered before) and then a breakdown. Her husband, Andy, first noticed something wrong after Christmas when Caroline just didn’t seem herself, wasn’t focusing on things and wasn’t caring for herself.
By the time Caroline became incontinent, she was assessed by health workers and was admitted to a psychiatric hospital, where she spent a week before having to leave as the hospital couldn’t provide the level of care she needed - by then she was unable to do anything for herself and even had to be moved with the use of hoists. There had been no improvement in Caroline’s condition, even with medication and therapy.
In August 2014, a CT scan revealed that Cat, aged 36 and the mother of Robert, 15, had a brain tumour. Following surgery and a biopsy, the devastating news came back that the tumour was in fact cancerous – suggestive of a metastatic spread, but, on a positive note, was a grade 2, slow-growing type of tumour. Just a few short months later, with Cat experiencing headaches again, further surgery revealed the earth-shattering reality that the tumour had progressed from grade 2 to grade 4. Cat’s family and friends all rallied round to help and to fundraise, resulting in the setting up of a fundraising group called Cat in a Hat. Tragically, by the spring of 2017, Cat was no longer responding to any treatments available. She passed away on 14th June that year.
“I started to think Cat would beat the brain tumour or, if not, at least keep it at bay for many years due to her strength and positive attitude. I even found that Cat’s brain tumour wasn’t always the last thing I thought about at night or the first thing I thought about when I awoke.”Read more
Charlie Carter-BatesCharlie was six years old when he was finally diagnosed with a GBM4 brain tumour after months of “migraines” accompanied sometimes with projectile vomiting and instances of eye pain. His parents were told that his chance of survival was 25%, although they later found out that it was a lot less.
“The day of the scan was the day our lives changed forever and was the worst day of our lives so far… I remember the feeling of utter despair. I can’t even explain the feeling – it was the most horrendous pain.”
Charlotte Barber defied the odds, living for 29 years after her brain tumour diagnosis when she had been given a 30% chance of surviving past the age of 13. She underwent treatment, which was cutting-edge for its time, at Addenbrooke’s Hospital in the late 80s, paving the way for future patients, and was part of the Childhood Cancer Survivor Study. Despite overcoming many hurdles and learning to live with the debilitating side effects of the disease, Charlotte sadly died on 17th May 2018 at the age of 37. Her mum Julie reflects on Charlotte’s journey and her desire to contribute to research in Charlotte’s memory.
“Her consultant has since told us that Charlotte was a pathfinder and a hero, and those undergoing treatment today owed her a great deal. She was a hero and my heart burst with pride to hear someone else say it. Her childhood was taken away from her by this cruel disease but she never once complained and that smile never faltered.”Read more
Christine Scott was diagnosed with a low-grade oligodendroglioma in 2011. Her prognosis was good and, despite epilepsy, she continued with a normal life – even continuing to ride her beloved horses. After five years however, the tumour became aggressive and even though she underwent surgery and treatment, Christine deteriorated. She died in 2018, aged 58, leaving her husband, five children, a granddaughter of less than one year, two horses and a dog.
“Over the course of the year, she went from walking normally to relying on a walking stick to a Zimmer frame to a wheelchair. Determined as ever, Christine had kept trying to ride throughout all of this – even if it was just sitting on the horses while being led around a paddock – but in summer 2017 she had to stop. Although she dealt with her illness fairly well, not being able to ride was extremely difficult for her.”Read more