In Our Hearts
Less than 20% of those diagnosed with a brain tumour survive beyond five years
These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too.
You are forever in our hearts.
Recently published stories
Essex mum-of-two Jenny Cooper-Radley was diagnosed with a grade 2 meningioma following a trip to Boots Opticians in Chelmsford in October 2011. Her doctor, whom she had visited around five times in two months, had attributed her ‘feeling a bit hungover’ to possible vertigo, Meniere’s disease or benign paroxysmal positional vertigo (BPPV) and prescribed medication. It was only when the former nursery nurse began experiencing pain in her eyes that she made the opticians appointment which led to the discovery of her tumour. She went on to have a craniotomy but continues to suffer with debilitating facial pains and in July 2020 was told she had developed a new tumour, which is being monitored with regular scans. Now, having recently completed a Couch to 5k, the 49-year-old is training to run the London Marathon.Read more
Father-of-two Stuart Edwards, from Devizes in Wiltshire, complained of ‘aching eyes’ two months prior to his shock diagnosis with a grade 4 glioblastoma multiforme (GBM) in April 2021.
After multiple surgeries, radiotherapy and chemotherapy, Stuart’s body began to grow weak from his treatment and his seizures returned. After an MRI scan confirmed the cancer had spread to his spine, Stuart received palliative care and he died aged 52 on 8 October 2021 in John Radcliffe Hospital in Oxford, with his loving family by his side.Read more
Albie Bayliss-Watts, from Didcot in Oxfordshire, was just two years old when, in November 2021, he died from an aggressive brain tumour he’d been fighting for less than a year. Albie’s death has left his two mums, Lauren and Hayley, completely heart-broken. Having dedicated the last year of their lives to caring for Albie through gruelling surgeries and chemotherapy, they are now trying to deal with their grief by raising awareness and fundraising in his name.Read more
Annie HughesAnnie had severe speech and language difficulties which meant that she had to attend special schools from the age of six. Despite her problems, Annie was a ray of sunshine and made friends wherever she went. On leaving school she found herself a job, met her future husband and started a family. After all the early adversities, it seemed that Annie’s life was to have a fairy tale ending…
“As a family, we are all united in a desire for Annie’s legacy to be that fair amounts of funding are dedicated to research into brain tumours. We want there to be hope, not despair, for other people who learn that a member of their family has been diagnosed with this devastating disease.”
Fitness fanatic Anthony Bowes, from Bolton, was just 28 when he lost his brave battle with an incurable brain tumour.
His diagnosis came in 2016, after suffering a number of seizures. In the months that followed, he underwent two brain surgeries, radiotherapy and chemotherapy, fighting the terrible disease with strength and determination until the end.
For Anthony’s family, the distress of losing their loved one was worsened by what they felt was a lack of appropriate care immediately prior to his death. They have since received an apology from the NHS and an assurance that changes will be made to prevent the same mistakes being repeated.Read more
We are grateful to Aria who worked with us in October 2020 to share his story here. Sadly, he passed away on 8th February 2021. We remember Aria as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
In November 2018, paediatric trainee doctor Aria Nikjooy was diagnosed with a rare brain tumour, sitting in his cerebellum. Aged just 27, he was operated on, treated with radiotherapy and chemotherapy and thankfully the tumour was kept at bay. Then, in March 2020, the same brain tumour came back and he had a second brain surgery. Devastatingly, a second recurrence came in July 2020 resulting in another brain operation and more cancer treatment. As part of his recovery and rehabilitation, Aria turned to writing. This culminated in him writing a children’s fiction book to help to explain the complex issues surrounding illness and cancer to his little boy.Read more
Arthur BoydArthur was a fit and healthy man and a loving husband and father to his three sons. He had a strong Christian faith which was a huge source of comfort and strength not only to him, but his whole family when he was diagnosed with a brain tumour just before Christmas 2015. He died just short of six months later, aged 69.
“I was aware of brain tumours, but had never equated them to brain cancer until Dad was diagnosed. I spent an inordinate amount of time researching treatments such as electric therapy in Germany, as well as immunotherapy trials, but it was soul-destroying not to be able to find anything available to Dad no matter how hard or far we looked.”
Ashley ShameliAshley Shameli was 22 and training to be a solicitor when he was diagnosed with a grade two astrocytoma brain tumour after suffering a massive epileptic seizure. He underwent several operations with the pioneering brain surgeon Henry Marsh and endured gruelling chemotherapy and radiotherapy. He lived for another eight years and died aged 30, leaving his beloved mum Jeanette, his dad, his older sister Shardi and younger brother Shervin.
“When Ashley was born I was six-and-a-half. I remember being so proud to be the big sister of such a beautiful, happy little boy. My other brother, Shervin, was born a year and half later. The three of us were exceptionally close as children and lived together when we moved to London. I will never forget Ashley’s beautiful smile, his cheeky dimple, his twinkling eyes and his kindness. He adored his family and we adored him.”
Father-of-three Asmat Chaudry was diagnosed with a grade 4 glioblastoma multiforme (GBM) in April 2013 after suffering a seizure at home and losing feeling in his left side. He had been experiencing some forgetfulness in the weeks prior but was otherwise a fit and active 74-year-old. He underwent brain surgery and radiotherapy but died 15 months later, during the most sacred days of the Islamic holy month of Ramadan.Read more
Atif was a loving father and husband and at the pinnacle of his career at a prestigious London law firm when he was diagnosed with a glioblastoma multiforme (GBM) brain tumour, dying two years later. Now his wife finds comfort in the fact that Atif has left his legacy in both of their daughters.Read more
Aurora ProvenzanoAurora was just six years old with her whole life ahead of her when she was diagnosed with a brain tumour. She fought a brave battle for three and a half years, but sadly lost the fight, leaving her parents and two sisters, Isabella and Chiara with a huge hole in their family.
Aurora only ever had one fit and that was it - she was otherwise completely healthy. Yet in 2006 we found ourselves at our local hospital where an MRI scan revealed Aurora had a brain tumour. When Aurora was diagnosed it felt like I was having an out of body experience. I was pregnant with my third daughter and it seemed like I was looking down at myself, not knowing what to think.
Ava BallAva’s mother was alarmed to find a lump on the back of her two-month-old baby’s head, but was told by her GP it was a soft spot. The lump had grown to the size of a tennis ball when Ava finally had an MRI scan, aged seven months. A biopsy determined the lump was a primary malignant melanocytic brain tumour with intra as well as extra-cranial components. After surgery, there was nothing more which could be done to save little Ava and she passed away in her mummy’s arms, aged just eight months.
Barry Albin-Dyer OBE
When respected Bermondsey undertaker and family man, Barry Albin-Dyer OBE, started seeing zig zags in front of his eyes, he could not have guessed that a scan would reveal a very aggressive brain tumour near his optical nerve. Determined to survive and be a “Bermondsey boy for years to come”, he underwent gruelling treatments, documented his battle in his blog, and sadly died less than two years later.
“Barry, being Barry, was determined to keep going in to work every day he could. “I’ve got to keep on going,” he would declare, “or I’m a dead man.” Barry had a strong will and a strong Catholic faith, and two those things helped him get through it. He never wanted the cancer to take him over and stop him doing the things he loved. I’ve always thought that was what kept him alive for as long as he was.”Read more