In Our Hearts
Less than 20% of those diagnosed with a brain tumour survive beyond five years
These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too.
You are forever in our hearts.
Recently published stories
Logan passed away from a DIPG brain tumour 11 months after diagnosis. Shocked to find that any childhood cancer was incurable and at the lack of funding going into research of childhood cancers, his grandmother Fiona is doing everything she can to bring about change, including launching a petition to the Government.
Having finished a highly decorated career in education, Lesley Kirby-Klappholz was looking forward to her retirement. Her professional life had spanned a long but enjoyable 38 years, which included 11 years of headship. However, devastatingly on 31 May 2019, Lesley was diagnosed with a brain tumour out of the blue. Three weeks later the diagnosis was compounded, following a biopsy which distinguished her tumour type as highly aggressive.Read more
Fiona Bingham was just 33 when she passed away at her home in Chesterfield in March 2017. The guidance officer at Chesterfield College left behind her husband, Mark, parents Dodie and John Rutherford and her older brother, Alastair. Fiona, an International Hospitality graduate, was diagnosed in March 2015, following an eye test and subsequent scans. She underwent brain surgery, radiotherapy and chemotherapy to treat the tumour but, sadly, in February 2017, Fiona and her loved ones were given the devastating news that the treatment had stopped working and was being withdrawn.Read more
Becky was just 23 when she was diagnosed with a grade four glioblastoma multiforme (GBM) brain tumour and told she had a year to live. She outlived the prognosis, surviving for nine years, and despite being told her extensive treatment would leave her infertile, gave birth to a “miracle” daughter who was seven when she lost her mum in June 2017.
“Although there was no change in Becky’s tumour for six years its presence was always there, casting a shadow, and it was as if we lived on a knife-edge as we waited anxiously from one scan appointment to the next. Becky was really positive where I was more realistic and ensured her daughter Phoebe was prepared from the beginning for what was likely to happen. Phoebe had always known she was going to lose her mum and we are now her Moma and Popa. She is a delightful child, so much like Becky and it is hard not to cry as she catches me unawares by saying things like how much she misses her mum’s warm hands and I know exactly what she means.”Read more
Ben WhitehouseBen Whitehouse was travelling on a train with his girlfriend Rachel when he suffered a severe seizure. He was taken straight to hospital where he was diagnosed with a high- grade glioblastoma brain tumour. The couple were married in Hampshire in April 2012 and just days after they returned from honeymoon in Cambodia, Ben became ill once more. He passed away three years after his diagnosis. He was 34.
“We had been married for just 15 months when Ben died. I never imagined that after such a short time I would be on my own. In those last few weeks when he was so ill we talked a lot. He deteriorated so fast but I kept talking to him although I don’t know how much he understood or even heard. Life is still hard but at least we had the chance to say goodbye.”
We are grateful to Bernice who worked with us in September 2018 to share her story here. Sadly, she passed away 18th February 2019. We remember Bernice as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
Former headteacher, Bernice McCabe OBE, has instilled one essential piece of advice in her pupils: you have to rewrite the story when life takes an unexpected turn. Little did she know, Bernice would need to apply this lesson in her own life when, at the age of 65, she was diagnosed with a glioblastoma multiforme (GBM). One craniotomy, one surprise proposal, and several courses of treatment later, and Bernice is as resilient and optimistic as can be.
“A CAT scan confirmed I wasn’t suffering from a stroke but something else was happening. I was transferred urgently to Addenbrooke’s Hospital with Rod driving separately behind the ambulance, worrying that I wouldn’t be alive when he met me there.”Read more
Beverly LawrenceLife and soul of the party and adored grandma, Beverly Lawrence, died shortly after her 60th birthday in 2013. It was only two years after she retired and was, almost immediately, diagnosed with a grade four glioblastoma multiforme (GBM). Hayley Costa lost her mum Beverly just five days after she gave birth, horribly reminiscent of Beverly losing her own mother while pregnant with Hayley.
“She was away with the fairies a lot of the time. We were living some kind of black comedy. I remember her handing me imaginary tissues and I would have to take them. The next moment, she would snap back to herself, sobbing: “Look what’s happened to me!””
Bill FoulkesBill grew up on the Hamble River in the family boatyard, so it was hardly surprising he had a passion for the River, nor that boats were in his blood. He started a chandlery business called Aladdin’s Cave on the Hamble over 40 years ago and ended up owning all the chandleries on the River.
Later in life he discovered golf and it became a great source of enjoyment for him. He organised a Golf Day each year for the Marine trade, which we revived last year after a two year absence.
Bob shared his story with us in September 2016. Sadly, he passed away on 25th June 2019. We will remember Bob as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
A successful double bass player, Bob Picken has been a member of Liverpool band Ella Guru, as well as a backing for artists such as Neville Skelly, She Drew The Gun, Bill Ryder-Jones and Marvin Powell.
Diagnosed in 2012 with an anaplastic astrocytoma, whom he affectionately calls “Bieber” in reference to the Canadian singer Justin, Bob has managed to overcome a number of setbacks to carry on with his career, and in his own words “stick two fingers up to cancer”.
“You go through five stages of cancer: denial, anger, bargaining, sadness and eventually acceptance.”
Diagnosed with a multifocal grade 4 glioblastoma multiforme (GBM) in December 2018, 71-year-old Bob Witherspoon from Whitley Bay lost his life to this aggressive brain tumour just four months later. At his funeral, rather than flowers, his family requested a collection for Brain Tumour Research. Having raised over £700 to help fund research to prevent other families from going through the pain they have suffered, they now want to raise awareness of this cruel disease, by sharing their heart-breaking experience.Read more
Brian lived in Gressenhall near Dereham, Norfolk and was a great family man and a wonderful husband. He had three children – Camilla from his first marriage and Rosie and Tom from our marriage. He cared deeply about each one of them and was particularly protective about Camilla who suffered badly with asthma and eczema from an early age. Brian was diagnosed with a rare lymphoma brain tumour and passed away almost a year later, aged 62, on 23rd September 2006.
Here is Brian’s story as told by his wife, Sally…
“Brian knew he was going to die. There were still lots of things he wanted to do, but he was at peace with himself, which was a huge comfort to me. We used to sit together in the garden and he would tell me everything he wanted me to do with the children and his businesses after he had gone. He was an amazing man, even in the last year when he was dying.”
Brain's story was written while he was still with us. Sadly Brian passed away at the end of November 2018. We will update his story fully at a more suitable time. Our deepest condolences go out to his wife Fay and their family at this immeasurably sad time.
Brian Rockell has worked within the healthcare industry for decades, yet when he was diagnosed with a glioblastoma, aged 68, he was shocked by the distressing experience of brain tumour patients. Although facing his own anxieties and challenges, Brian is now determined to campaign for and support others affected by this devastating disease.
“I was transferred to the Royal Sussex County Hospital for surgery…. and it went relatively well. Looking back, the surgery was the easy part. I had no idea then how much support I would need as a patient and how different my life was about to become...”Read more
Carl and his family have been staunch supporters of Brain Tumour Research for many years. Sadly, Carl passed away on 26 March 2019 and we remain enormously grateful for all he helped us to achieve and will continue our fight in his memory.
Manchester pub landlord, Carl Piddington, was fit and healthy with three children, when he discovered one day that he could no longer control his hand. After a massive seizure and subsequent tests, Carl was told that his aggressive brain tumour could end his life within a year. Determined to be a long-term survivor, Carl is now eight years on after diagnosis and facing yet more treatments.
“I know this is terminal. Maybe it will get me, maybe it will be something else, but I’m not going to sit and wait for it. As my dad always used to say, while laying his hands on my shoulders and looking into my eyes: “you are a lion, my son!”