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In Our Hearts

Less than 20% of those diagnosed with a brain tumour survive beyond five years

These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.

We thought of you with love today, but that is nothing new.


We thought about you yesterday, and days before that too.


Anon

You are forever in our hearts.

Recently published stories

Ava Ball

Ava’s mother was alarmed to find a lump on the back of her two-month-old baby’s head, but was told by her GP it was a soft spot. The lump had grown to the size of a tennis ball when Ava finally had an MRI scan, aged seven months. A biopsy determined the lump was a primary malignant melanocytic brain tumour with intra as well as extra-cranial components. After surgery, there was nothing more which could be done to save little Ava and she passed away in her mummy’s arms, aged just eight months.

 

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Andrew Williams

Andy married his childhood sweetheart and together they had two children and a lovely life. But then Andy started shaking uncontrollably, leading eventually to his diagnosis with an inoperable and incurable DIPG brain tumour, much more common among children. Radiotherapy changed his personality and his marriage broke down. Andy passed away three and a half years after his diagnosis, aged 33.

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Sue Davies

Sue’s career took her from shorthand typist to HR director. She found her soul-mate in Mark who also loved the great outdoors and together they had a wonderful son, but Sue was diagnosed with an aggressive brain tumour which killed her just 15 months later aged 55. Six months after Sue’s diagnosis, Mark was diagnosed with blood cancer.

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All stories

Andy Watts

Andy Watts was 54 and living in Ipswich, Suffolk, when he was diagnosed with a glioblastoma multiforme (GBM) following surgery which included signing up to take part in a trial of 5-ALA, the “pink drink”. A positive and upbeat person, Andy tried to jolly his family along with jokes. Although his loved ones knew his tumour was incurable and terminal, nothing could prepare them for the fact they lost him just over five months later.

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Angus Anthony

In 2008, Angus was working as a police officer at Scotland Yard.  He walked into a post at the railway station and afterwards had a severe headache which progressively got worse.  We suspected a haematoma and were referred for a scan at our local hospital.  In fact, the news was much worse – it revealed that Angus had a brain tumour.  Angus was only 41, a husband and father of two young children.

Since the initial diagnosis, we also had to come to terms with the fact that Angus had a very rare and very aggressive cerebral lymphoma brain tumour.  There are only about seven cases across the UK and 30-35 in the whole of Europe.  Almost nothing is known about cerebral lymphomas because they are so rare - so there has been no research into how to treat them.  Angus was offered drugs which had not been previously tested.

 
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Anna Olivia Hughes

Anna was diagnosed with a brain tumour in February 2005 and following a 7-hour operation to remove it she underwent an intensive chemotherapy programme at Addenbrooke's Hospital in Cambridge. For 15 months she spent every other week in hospital but sadly, like the majority of children diagnosed with brain tumours, Anna lost her battle and passed away aged 3 years 8 months.


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Anna Swabey


Diagnosed with a brain tumour at the age of 23, Anna Swabey was intitally given just months to live. Under the care of neurosurgeon Kevin O’Neill, who leads the Brain Tumour Research Centre of Excellence at Imperial College, London, Anna had surgery and treatment. She also got engaged and shared her experiences through her blog Inside My Head. Anna passed away on 16th September 2016, the day before she was due to marry.


“I am fortunate in that I don’t feel my illness dictates my life and while I am most definitely the same person, I even feel as if I am a better person for it. I know this may sound odd but my diagnosis has made me view my life differently and the way I am choosing to live now leaves me feeling fulfilled. I love knowing that I can make a difference, and, potentially help others.”
 
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Annie Hughes

Annie had severe speech and language difficulties which meant that she had to attend special schools from the age of six.  Despite her problems, Annie was a ray of sunshine and made friends wherever she went.  On leaving school she found herself a job, met her future husband and started a family.  After all the early adversities, it seemed that Annie’s life was to have a fairy tale ending…

“As a family, we are all united in a desire for Annie’s legacy to be that fair amounts of funding are dedicated to research into brain tumours.  We want there to be hope, not despair, for other people who learn that a member of their family has been diagnosed with this devastating disease.”
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Anthony Bowes

Fitness fanatic Anthony Bowes, from Bolton, was just 28 when he lost his brave battle with an incurable brain tumour.

His diagnosis came in 2016, after suffering a number of seizures. In the months that followed, he underwent two brain surgeries, radiotherapy and chemotherapy, fighting the terrible disease with strength and determination until the end.

For Anthony’s family, the distress of losing their loved one was worsened by what they felt was a lack of appropriate care immediately prior to his death. They have since received an apology from the NHS and an assurance that changes will be made to prevent the same mistakes being repeated.

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Arthur Boyd

Arthur was a fit and healthy man and a loving husband and father to his three sons.  He had a strong Christian faith which was a huge source of comfort and strength not only to him, but his whole family when he was diagnosed with a brain tumour just before Christmas 2015.  He died just short of six months later, aged 69.

“I was aware of brain tumours, but had never equated them to brain cancer until Dad was diagnosed.  I spent an inordinate amount of time researching treatments such as electric therapy in Germany, as well as immunotherapy trials, but it was soul-destroying not to be able to find anything available to Dad no matter how hard or far we looked.”
 
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Ashley Shameli

Ashley Shameli was 22 and training to be a solicitor when he was diagnosed with a grade two astrocytoma brain tumour after suffering a massive epileptic seizure. He underwent several operations with the pioneering brain surgeon Henry Marsh and endured gruelling chemotherapy and radiotherapy. He lived for another eight years and died aged 30, leaving his beloved mum Jeanette, his dad, his older sister Shardi and younger brother Shervin.

“When Ashley was born I was six-and-a-half. I remember being so proud to be the big sister of such a beautiful, happy little boy. My other brother, Shervin, was born a year and half later. The three of us were exceptionally close as children and lived together when we moved to London. I will never forget Ashley’s beautiful smile, his cheeky dimple, his twinkling eyes and his kindness. He adored his family and we adored him.”
 
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Aurora Provenzano

Aurora was just six years old with her whole life ahead of her when she was diagnosed with a brain tumour.  She fought a brave battle for three and a half years, but sadly lost the fight, leaving her parents and two sisters, Isabella and Chiara with a huge hole in their family.  

Aurora only ever had one fit and that was it - she was otherwise completely healthy.  Yet in 2006 we found ourselves at our local hospital where an MRI scan revealed Aurora had a brain tumour.  When  Aurora was diagnosed it felt like I was having an out of body experience.  I was pregnant with my third daughter and it seemed like I was looking down at myself, not knowing what to think.
 
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Ava Ball

Ava’s mother was alarmed to find a lump on the back of her two-month-old baby’s head, but was told by her GP it was a soft spot. The lump had grown to the size of a tennis ball when Ava finally had an MRI scan, aged seven months. A biopsy determined the lump was a primary malignant melanocytic brain tumour with intra as well as extra-cranial components. After surgery, there was nothing more which could be done to save little Ava and she passed away in her mummy’s arms, aged just eight months.

 

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