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In Our Hearts

Less than 20% of those diagnosed with a brain tumour survive beyond five years

These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.

"We thought of you with love today, but that is nothing new.

We thought about you yesterday, and days before that too."

Anon

 

You are forever in our hearts.

Recently published stories

Steve Gilmour

Steve, a loving dad to seven-year-old Rosie, was multi-talented, being a graphic designer, a drummer in three different bands and a toy photographer. He was diagnosed with a grade 4 gliosarcoma – a rare, fast-growing brain tumour – and passed away, aged 45, less than nine months later, just two weeks after getting married.

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Daniel Franklin

Daniel Franklin, a kitchen assistant from Worthing, West Sussex, was diagnosed with a glioblastoma (GBM) in October 2020 after suffering with balance problems and sickness. The location of the tumour on his brain stem rendered it inoperable but he did have radiotherapy. He went on to have chemotherapy, which proved ineffective, and a second round of radiotherapy, which he complemented with holistic treatments. Sadly, from August 2021, his health began to deteriorate and he died at home three months later at the age of 26.

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James Lamerton

James Lamerton, a teacher from Leigh-on-Sea, Essex, was diagnosed with a brain tumour in his pineal gland in October 2021, later identified as a grade 4 glioblastoma (GBM). He was being treated for sleep apnoea at the time and was taking medication for migraines thought to be connected to the condition. He suffered complications following surgery and died five weeks after his diagnosis, at the age of 40, leaving behind his wife, Myriam and their two-year-old daughter, Layla. 

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All stories

Amita Charavda

Along with her husband Mahendra, Amita had owned a shop called “Lucky Jewellers” on Belgrave Road – Leicester’s Golden Mile for nearly 40 years.  She was looking forward to enjoying retirement and having more leisure time to spend with family and enjoy lovely holidays.  Tragically, she passed away from a brain tumour, aged 55, just three months after diagnosis.

Here is Amita’s story as told by her daughter, Sneha…

“The speed in which we lost Mum was so shocking.  I couldn’t believe that in this day and age Mum could have something which was incurable.”
 
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Amy Quin

We are grateful to Amy who worked with us in May 2017 to share their story here. Sadly, she passed away in 2019. We remember Amy as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.

Determined mum Amy Quin will mark the first anniversary of her brain tumour diagnosis by skydiving 15,000ft from a plane with her sisters. The trio are raising money for the charity Brain Tumour Research. With a prognosis of five to seven years, Amy is hopeful that research will help to identify new treatments which would mean her tumour is operable giving her precious time with her family including partner Lewis and their four-year-old son Hector.


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Andrea Thursfield

Andrea passed away just nine months after being diagnosed with a grade 4 glioblastoma multiforme (GBM) brain tumour. She was 46. The mother of a teenager and much-loved partner of Nick Butler, she underwent surgery, chemo- and radiotherapy but could not be saved. She and Nick had a short-lived romance as teenagers and then met again by chance 21 years later.

Nick tells Andrea’s story …

I first met Andrea when I was 19. We went out a couple of times but then I went away to work and we lost touch. More than two decades had gone by and we had both had our 40th birthdays by the time we met again by chance in July 2005. We bumped into each other in a pub. I had always hoped that somehow, somewhere, I would see her again but had no idea what she was doing or where she was. It turns out that, unknowingly, we lived very close to each other in Perton, Wolverhampton. She tottered over on her heels and we chatted, it ended up with her inviting me round for a cup of tea and she said: “Don’t cock it up this time!” It seems we both held a candle for each other after all that time. She had a young son, Ryan, from a previous relationship but neither of us had married. Things moved on and we each sold our houses in order to buy a property together to make a home for us and Ryan.
 
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Andrew Atkinson-Whitton

Andrew Atkinson-Whitton loved life. In his 37 years, he touched so many lives with his infectious smile and happy-go lucky nature. Andrew kept smiling even when he was diagnosed with a grade 4 glioblastoma multiforme (GBM) and had to undergo intensive surgery and treatment but the tumour was too aggressive. He died 20 July 2018, just 14 months after diagnosis, leaving his husband Carl, mum Jill and brother Robert.

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Andrew Bath

Aged 36, Andrew was enjoying life and in a job he loved. Tragically he was diagnosed with a glioblastoma multiforme (GBM) brain tumour and passed away just 10 months later, at the age of 37. 

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Andrew Gardner and Patrick Gardner

Jason Rigby, Director of Fundraising and Supporter Care at Brain Tumour Research, has a very personal reason for working to help find a cure for brain tumours. He lost both his brother and his father to the disease. Jason was just a teenager when he lost his sibling and, some 30 years later, his father died having been diagnosed with the same type of aggressive brain tumour.

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Andrew Mackie

Andrew Mackie from Dinnet in Aberdeenshire, was a fun-loving 44-year-old who loved motorbikes. When he started having seizures in August 1999, his GP thought he may have epilepsy but six months later, when his eyesight started to deteriorate, he had a scan which revealed he had a high-grade astrocytoma brain tumour. The lorry driver and father of two girls underwent radiotherapy, surgery and palliative chemotherapy. He died at home on 21 February 2003, with his adoring family by his side.

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Andrew Williams

Andy married his childhood sweetheart and together they had two children and a lovely life. But then Andy started shaking uncontrollably, leading eventually to his diagnosis with an inoperable and incurable DIPG brain tumour, much more common among children. Radiotherapy changed his personality and his marriage broke down. Andy passed away three and a half years after his diagnosis, aged 33.

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Andy Graham

In just 18 months, Andy Graham’s life had changed beyond recognition. The 52-year-old was diagnosed with a low-grade haemangioblastoma and, despite surgery and treatment, he suffered unimaginable trauma and distress as the tumour continued to grow. Leaving behind his wife and two sons, Andy sadly passed away on New Year’s Eve 2017.

“When the operation finally went ahead in August, Andy’s ordeal didn’t stop there. He was in theatre for 11 hours and I received a call from the surgeon saying ‘if I carry on I’m going to kill him.’ They had only touched the tumour and so much blood flowed that they spent hours mopping it up. Andy had psyched himself up for this surgery for so long and it had been a disaster.”

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Andy Watts

Andy Watts was 54 and living in Ipswich, Suffolk, when he was diagnosed with a glioblastoma multiforme (GBM) following surgery which included signing up to take part in a trial of 5-ALA, the “pink drink”. A positive and upbeat person, Andy tried to jolly his family along with jokes. Although his loved ones knew his tumour was incurable and terminal, nothing could prepare them for the fact they lost him just over five months later.

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