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In Our Hearts

Less than 20% of those diagnosed with a brain tumour survive beyond five years

These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.

"We thought of you with love today, but that is nothing new.

We thought about you yesterday, and days before that too."

Anon

 

You are forever in our hearts.

Recently published stories

Lisa Flanagan

In 2016 mum-of-three Lisa, from Hungerford in Berkshire, suffered a seizure and flu-like symptoms and was initially diagnosed with encephalitis. A follow-up scan six months later, revealed they were actually the symptoms of a brain tumour. The former fashion designer turned teaching assistant began chemotherapy but stopped after suffering badly with the side-effects. She died five years later, in March 2021, aged 50. Throughout her diagnosis Lisa fundraised and campaigned with Brain Tumour Research. Since her death her husband, Simon, and their three children are continuing to support the charity which was close to her heart.

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Jacob Goodall

Jacob Henry Sloan Goodall was just four months old when he died from an atypical teratoid rhabdoid tumour (ATRT) in November 2016. Concerns were first raised when Jacob had acid reflux problems, and, after several trips to the GP, Jacob had a scan at hospital which revealed the tumour. Jacob’s mum, Kate, is taking on the 10,000 Steps a Day in February challenge to raise money for Brain Tumour Research.

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Alice Rose Johnson

 Alice Johnson, of Sheringham in Norfolk, was diagnosed with a high-grade ependymoma, aged three, in September 2001 after experiencing symptoms including tiredness, sensitivity to sounds, headaches and dizziness. She underwent surgery and chemotherapy after which she quickly regained strength and energy. However, over the following 21 years she endured a further five surgeries, chemotherapy and three courses of radiotherapy. Having exhausted all of her treatment options, she died in July 2022 at the age of 24.

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All stories

Aman Sumal

We are grateful to Aman, and his brother Anoop, who worked with us in October 2021 to share his story here. Sadly, he passed away in December 2021. We remember Aman as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.

Young father Aman Sumal had everything to look forward to when he was diagnosed with a brain tumour after suffering a seizure and headaches in August 2020. Initially, it was thought he had a low-grade tumour and he was given anti-seizure medication and referred for three-monthly scans. However, after having another seizure five months later, an MRI showed areas of concern and he underwent debulking surgery, with COVID-19 restrictions preventing anyone from being by his side. A biopsy of his tumour revealed that it was, in fact, a grade 4 glioblastoma multiforme (GBM) and the 36-year-old, of Ruislip in West London, underwent chemotherapy and intensive radiotherapy while his family privately funded a protocol with a naturopath from Australia. Sadly, Aman has continued to deteriorate and, having now exhausted all his options on the NHS, his family have turned to crowdfunding to raise the money needed to pay for private immunotherapy treatment and specifically-formulated vaccines.

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Amani Liaquat

We are grateful to Amani and her father, Khuram, who worked with us in October 2020 to share her story here. Sadly, she passed away in February 2022. We remember Amani as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.

The eldest of three sisters, Amani Liaquat was diagnosed with an aggressive brain tumour after collapsing at home on her 22nd birthday in April 2020. The coronavirus lockdown meant she had to endure brain surgery and numerous scans with no visitors allowed at her bedside during a 12-day stay in hospital. After standard of care failed to stop the growth of her tumour the family were left in the difficult position of having to source lifesaving treatment from Germany. Thanks to the generosity of family, friends and complete strangers, over £100,000 was quickly raised to help finance this.

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Amita Charavda

Along with her husband Mahendra, Amita had owned a shop called “Lucky Jewellers” on Belgrave Road – Leicester’s Golden Mile for nearly 40 years.  She was looking forward to enjoying retirement and having more leisure time to spend with family and enjoy lovely holidays.  Tragically, she passed away from a brain tumour, aged 55, just three months after diagnosis.

Here is Amita’s story as told by her daughter, Sneha…

“The speed in which we lost Mum was so shocking.  I couldn’t believe that in this day and age Mum could have something which was incurable.”
 
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Amy Quin

We are grateful to Amy who worked with us in May 2017 to share their story here. Sadly, she passed away in 2019. We remember Amy as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.

Determined mum Amy Quin will mark the first anniversary of her brain tumour diagnosis by skydiving 15,000ft from a plane with her sisters. The trio are raising money for the charity Brain Tumour Research. With a prognosis of five to seven years, Amy is hopeful that research will help to identify new treatments which would mean her tumour is operable giving her precious time with her family including partner Lewis and their four-year-old son Hector.


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Andi Peel

We are grateful to Andi, and his aunt Deb, who worked with us in February 2022 to share his story here. Sadly, he passed away in January 2023. We remember Andi as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.

Fit and healthy Andi Peel, 30, from Groby in Leicestershire, started getting headaches in August 2019. His GP said he had migraines but then Andi had an episode of confusion and a panic attack, and he couldn’t remember anything. He went to hospital but was told that it was just stress. In January 2020, Andi’s headaches became so severe that he returned to hospital and had an MRI scan which revealed he had a glioblastoma multiforme (GBM) brain tumour. The tumour was removed, and Andi underwent radiotherapy and chemotherapy, but he has been told there is no other treatment available for him. He is now totally blind.

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Andrea Thursfield

Andrea passed away just nine months after being diagnosed with a grade 4 glioblastoma multiforme (GBM) brain tumour. She was 46. The mother of a teenager and much-loved partner of Nick Butler, she underwent surgery, chemo- and radiotherapy but could not be saved. She and Nick had a short-lived romance as teenagers and then met again by chance 21 years later.

Nick tells Andrea’s story …

I first met Andrea when I was 19. We went out a couple of times but then I went away to work and we lost touch. More than two decades had gone by and we had both had our 40th birthdays by the time we met again by chance in July 2005. We bumped into each other in a pub. I had always hoped that somehow, somewhere, I would see her again but had no idea what she was doing or where she was. It turns out that, unknowingly, we lived very close to each other in Perton, Wolverhampton. She tottered over on her heels and we chatted, it ended up with her inviting me round for a cup of tea and she said: “Don’t cock it up this time!” It seems we both held a candle for each other after all that time. She had a young son, Ryan, from a previous relationship but neither of us had married. Things moved on and we each sold our houses in order to buy a property together to make a home for us and Ryan.
 
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Andrew Atkinson-Whitton

Andrew Atkinson-Whitton loved life. In his 37 years, he touched so many lives with his infectious smile and happy-go lucky nature. Andrew kept smiling even when he was diagnosed with a grade 4 glioblastoma multiforme (GBM) and had to undergo intensive surgery and treatment but the tumour was too aggressive. He died 20 July 2018, just 14 months after diagnosis, leaving his husband Carl, mum Jill and brother Robert.

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Andrew Bath

Aged 36, Andrew was enjoying life and in a job he loved. Tragically he was diagnosed with a glioblastoma multiforme (GBM) brain tumour and passed away just 10 months later, at the age of 37. 

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Andrew Gardner and Patrick Gardner

Jason Rigby, Director of Fundraising and Supporter Care at Brain Tumour Research, has a very personal reason for working to help find a cure for brain tumours. He lost both his brother and his father to the disease. Jason was just a teenager when he lost his sibling and, some 30 years later, his father died having been diagnosed with the same type of aggressive brain tumour.

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Andrew Mackie

Andrew Mackie from Dinnet in Aberdeenshire, was a fun-loving 44-year-old who loved motorbikes. When he started having seizures in August 1999, his GP thought he may have epilepsy but six months later, when his eyesight started to deteriorate, he had a scan which revealed he had a high-grade astrocytoma brain tumour. The lorry driver and father of two girls underwent radiotherapy, surgery and palliative chemotherapy. He died at home on 21 February 2003, with his adoring family by his side.

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