These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too.
You are forever in our hearts.
Recently published stories
We are grateful to Jenny who worked with us in June 2018 to share her story here. Sadly, she passed away in November 2019. We remember Jenny as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
At the age of 59, Jenny Lambert received the news that she had a grade four brain tumour which had probably been growing since her teens. She feared she wouldn’t live to see the birth of her first grandchild but now, 18 months later, Jenny is back on her feet and looking at life from a new, uplifting perspective.
Ollie lived in Aston Clinton near Aylesbury with his mum Jane, dad Peter and younger brother Theo. He was diagnosed aged 10 with a medulloblastoma brain tumour and underwent surgery which left him with posterior fossa syndrome (PFS). Despite lots of treatment, the cancer returned and the family were told that there was nothing further that could be done. Despite going to Germany for pioneering immunotherapy treatment, Ollie passed away, aged 13, in November 2017.Read more
Sean was diagnosed with a glioblastoma multiforme (GBM) brain tumour in August 2016, aged 27. He remained positive throughout three brain surgeries, chemotherapy and radiotherapy, marrying his beloved Laura in June 2018. Tragically, there was nothing which could save him and he passed away in September 2018, aged just 29.Read more
Alexander Paul from South London was 18 when he addressed the 2014 Conservative Party Conference and described his experience of policing policy. At the Conservative Party Conference in 2017 Theresa May informed her party that Alexander had died earlier that year from a brain tumour. Joanna Brown tells the devastating story of her son’s illness, the awful impact on her and the loss to society of a gifted individual who had so much to give.
“It is this sense of crushing loss, this waste of potential, that haunt my days. He did so much but could have done so much more. I did everything I could but I couldn’t save my son and our tragedy is a wider tragedy as society needs people like my son, Alexander.
I am angry and full of what ifs but we have his poetry, his humanity and his spirit as his legacy. We didn’t discuss his mortality, he didn’t leave us letters but he left us his prose and that comforts me. A book of his work was published a year on from his death and he would have been proud of that.”Read more
Our Fundraising Group, Alexandra’s Angels, is inspired by the story of Alexandra Foulis who died at the age of 24. Known to loved ones as Ally, she was a fun, outgoing and confident young woman whose life ended far too soon. She underwent surgery, radiotherapy and chemotherapy to halt a grade 3 astrocytoma but Ally passed away in August 2011. Through Alexandra’s Angels, her sisters Melissa and Rebecca are keeping Ally’s memory alive and funding the fight against brain tumours in her name.
“Not only had the tumour returned but it was back larger than before, now measuring 7cm. What’s worse, it was inoperable because it was too close to the nerves that controlled her breathing and heart-rate. We were all devastated to learn the tumour was now terminal. Ally being Ally, tried to lift the mood, saying: ‘Well, it ain’t over till the fat lady sings, and I ain’t singing yet!’”Read more
Alison PhelanThe year 2000 approached - a new millennium and a new beginning. New years always made me sad, looking back at our happy life wondering what was ahead.
In May I became unsettled but didn’t know why, when my life was so complete. Then I became aware that Alison had developed a subtle incomplete movement in her eye that only a mother would notice. I took her to the doctor who referred me to an optician who said it was common and would correct itself.
Gary and I would talk and talk about it. I knew something was wrong. I went back to the doctor then to another optician. “Please someone listen to me”. I started to make Gary nervous. He knew I knew the children so well.
I went to a third optician - Gary was on a school trip with one of the boys but I went on the spur of the moment. I hated this feeling in my stomach telling me to act and act now!
They did test after test, and then told me to go to A&E with a letter that something was making the muscles in her eye deteriorate. Gary was only 5 minutes away; we dropped the boys off and went to the hospital. They said they couldn’t see anything but told us to go to a leading eye hospital the next day.
Amita CharavdaAlong with her husband Mahendra, Amita had owned a shop called “Lucky Jewellers” on Belgrave Road – Leicester’s Golden Mile for nearly 40 years. She was looking forward to enjoying retirement and having more leisure time to spend with family and enjoy lovely holidays. Tragically, she passed away from a brain tumour, aged 55, just three months after diagnosis.
Here is Amita’s story as told by her daughter, Sneha…
“The speed in which we lost Mum was so shocking. I couldn’t believe that in this day and age Mum could have something which was incurable.”
Andrea ThursfieldAndrea passed away just nine months after being diagnosed with a grade 4 glioblastoma multiforme (GBM) brain tumour. She was 46. The mother of a teenager and much-loved partner of Nick Butler, she underwent surgery, chemo- and radiotherapy but could not be saved. She and Nick had a short-lived romance as teenagers and then met again by chance 21 years later.
Nick tells Andrea’s story …
I first met Andrea when I was 19. We went out a couple of times but then I went away to work and we lost touch. More than two decades had gone by and we had both had our 40th birthdays by the time we met again by chance in July 2005. We bumped into each other in a pub. I had always hoped that somehow, somewhere, I would see her again but had no idea what she was doing or where she was. It turns out that, unknowingly, we lived very close to each other in Perton, Wolverhampton. She tottered over on her heels and we chatted, it ended up with her inviting me round for a cup of tea and she said: “Don’t cock it up this time!” It seems we both held a candle for each other after all that time. She had a young son, Ryan, from a previous relationship but neither of us had married. Things moved on and we each sold our houses in order to buy a property together to make a home for us and Ryan.
Andrew Atkinson-Whitton loved life. In his 37 years, he touched so many lives with his infectious smile and happy-go lucky nature. Andrew kept smiling even when he was diagnosed with a grade 4 glioblastoma multiforme (GBM) and had to undergo intensive surgery and treatment but the tumour was too aggressive. He died 20 July 2018, just 14 months after diagnosis, leaving his husband Carl, mum Jill and brother Robert.Read more
In just 18 months, Andy Graham’s life had changed beyond recognition. The 52-year-old was diagnosed with a low-grade haemangioblastoma and, despite surgery and treatment, he suffered unimaginable trauma and distress as the tumour continued to grow. Leaving behind his wife and two sons, Andy sadly passed away on New Year’s Eve 2017.
“When the operation finally went ahead in August, Andy’s ordeal didn’t stop there. He was in theatre for 11 hours and I received a call from the surgeon saying ‘if I carry on I’m going to kill him.’ They had only touched the tumour and so much blood flowed that they spent hours mopping it up. Andy had psyched himself up for this surgery for so long and it had been a disaster.”Read more
Andy Watts was 54 and living in Ipswich, Suffolk, when he was diagnosed with a glioblastoma multiforme (GBM) following surgery which included signing up to take part in a trial of 5-ALA, the “pink drink”. A positive and upbeat person, Andy tried to jolly his family along with jokes. Although his loved ones knew his tumour was incurable and terminal, nothing could prepare them for the fact they lost him just over five months later.Read more
Angus AnthonyIn 2008, Angus was working as a police officer at Scotland Yard. He walked into a post at the railway station and afterwards had a severe headache which progressively got worse. We suspected a haematoma and were referred for a scan at our local hospital. In fact, the news was much worse – it revealed that Angus had a brain tumour. Angus was only 41, a husband and father of two young children.
Since the initial diagnosis, we also had to come to terms with the fact that Angus had a very rare and very aggressive cerebral lymphoma brain tumour. There are only about seven cases across the UK and 30-35 in the whole of Europe. Almost nothing is known about cerebral lymphomas because they are so rare - so there has been no research into how to treat them. Angus was offered drugs which had not been previously tested.
Anna Olivia HughesAnna was diagnosed with a brain tumour in February 2005 and following a 7-hour operation to remove it she underwent an intensive chemotherapy programme at Addenbrooke's Hospital in Cambridge. For 15 months she spent every other week in hospital but sadly, like the majority of children diagnosed with brain tumours, Anna lost her battle and passed away aged 3 years 8 months.