In Our Hearts
Less than 20% of those diagnosed with a brain tumour survive beyond five years
These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
"We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too."
You are forever in our hearts.
Recently published stories
Steve, a loving dad to seven-year-old Rosie, was multi-talented, being a graphic designer, a drummer in three different bands and a toy photographer. He was diagnosed with a grade 4 gliosarcoma – a rare, fast-growing brain tumour – and passed away, aged 45, less than nine months later, just two weeks after getting married.Read more
Daniel Franklin, a kitchen assistant from Worthing, West Sussex, was diagnosed with a glioblastoma (GBM) in October 2020 after suffering with balance problems and sickness. The location of the tumour on his brain stem rendered it inoperable but he did have radiotherapy. He went on to have chemotherapy, which proved ineffective, and a second round of radiotherapy, which he complemented with holistic treatments. Sadly, from August 2021, his health began to deteriorate and he died at home three months later at the age of 26.Read more
James Lamerton, a teacher from Leigh-on-Sea, Essex, was diagnosed with a brain tumour in his pineal gland in October 2021, later identified as a grade 4 glioblastoma (GBM). He was being treated for sleep apnoea at the time and was taking medication for migraines thought to be connected to the condition. He suffered complications following surgery and died five weeks after his diagnosis, at the age of 40, leaving behind his wife, Myriam and their two-year-old daughter, Layla.Read more
We are grateful to Dixie who worked with us in April 2021 to share his story here. Sadly, he passed away in March 2022 We remember Dixie as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
Dixie had finally found his true soul-mate when he met Jules on the internet in 2005. They had 14 blissfully happy years together before Dixie was diagnosed with a glioblastoma multiforme brain tumour, grade 4 and given 12 to 18 months to live. Faced with a terminal illness, Dixie turned to poetry to express his deepest feelings and to leave a permanent reminder to his beloved wife, step-daughters and grandchildren.Read more
Donna OsbourneDonna was healthy, apart from problems with high blood pressure which she probably inherited from her mother’s side of the family. She had been going to see the GP about it, who thought it might be a thyroid problem.
On New Year’s Eve, 2007, we were with friends and Donna felt faint and dizzy, although she didn’t actually faint. We sat her down and did all the things you do when someone feels faint. There was even a lady on hand at the party who used to be a nurse. We then decided to go home as Donna continued not feeling too good. She woke up fine the next morning.
Duncan ScottDuncan was an extremely intelligent, kind and thoughtful man. He was an avid fan of Formula 1 and Le Mans. In June 2015 he was diagnosed with a grade 4 glioblastoma multiforme. After an 18 month battle, he passed away aged 55. During the last weeks of his life he endured severe mental torture until he was admitted to a hospice where doctors and nurses were able to adjust his medication to prevent him from suffering anymore.
Here is Duncan’s story as told by his sister, Gayle:
“Duncan’s passing has left a huge hole in my life, as well as the many people whose lives he touched. His funeral was extremely well attended with many people voicing how he had “changed their lives for the better”. It seems so unfair that he was taken in his prime with so much joy to have and to give. I miss him dreadfully.” Read more
We are grateful to Duncan who worked with us in October 2019 to share his story here. Sadly, he passed away on 6th April 2021. We remember Duncan as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
Kent-based radio producer Duncan Wallace, originally from Newcastle-upon-Tyne, is happily married with two young children, a great circle of friends and a successful and exciting career in the music industry. But life was turned upside down for Duncan in April 2019 when he was diagnosed with an inoperable, high-grade brain tumour. Having undergone a course of radiotherapy and chemotherapy, Duncan remains positive in spite of his prognosis and recently completed the Great North Run, raising an incredible £22,000 for Brain Tumour Research.Read more
Eddy KirbyWithin a fortnight of walking one of his two beloved daughters down the aisle on her wedding day, Eddy Kirby was suddenly taken ill and after tests he was diagnosed with an aggressive glioblastoma multiforme (GBM) brain tumour. It was inoperable and although he underwent treatment, Eddy’s condition deteriorated rapidly. He passed away, aged 64, on 7th March 2015, his late father’s birthday. In addition to leaving two daughters, Emma and Sarah, Eddy also left a partner Carol and his mother, Marjorie, aged 93. Read more
We are grateful to Edie and her dad Craig, who worked with us in December 2019 to share her story here. Sadly, Edie passed away on 26th January 2021. We remember Edie as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
On 16 November 2019 Edie Jackson’s parents noticed her left eye had started turning inwards and she was developing a squint. Six-year-old Edie, from Waltham Abbey in Essex, also mentioned double vision, so her mum and dad booked an optician’s appointment for 20 November. Just days later, after an urgent referral to hospital, they were told the devastating news that Edie had an aggressive, inoperable brain tumour.Read more
At the age of 38, Edward Morrison was diagnosed with a low-grade ependymoma that appeared to pose little threat. After 10 months of treatment, there were no traces of tumour left and it seemed that Edward had beaten the disease. Sadly, the tumour made an aggressive return and, despite best efforts to treat it, Edward’s life was cruelly taken away from him in January 2018.
“Edward’s stubbornness was extremely frustrating at times, but his sense of humour provided some relief from the hopelessness of the situation. One day I asked him: ‘how are you feeling?’ and he replied: ‘not as bad as the guy who signed off my medical insurance’.” Read more
Elaine Neesam-Smith’s story reminds us just how devastating a brain tumour can be and how desperately a cure must be found. In October 2017, the 52-year old collapsed and was placed in an induced coma. Little did she know, a highly aggressive glioblastoma multiforme (GBM) was the cause. The tumour was inoperable and there were no treatment options. Sadly, the much-loved mum, grandma, wife and friend, died just six months later.
“Now it’s six months on and we’re taking each day as it comes. Kieran, Paul and I are plodding along and supporting each other through our grief. Memories of Mum are everywhere and sometimes it’s a comfort and sometimes it’s too much to bear. Ellie and Heidi miss their grandma so much and they call her their ‘star in the sky’. Mum was such a doting grandma and it breaks my heart that she won’t see them grow up.”
Ellie passed away aged 14 in 2002, just under a year after being diagnosed with a glioblastoma multiforme (GBM). Losing Ellie inspired her mum Wendy to set up a charity in her memory at a time when there were very few brain tumour charities. It was through losing Ellie that Wendy met Sue Farrington Smith, now chief executive of Brain Tumour Research, who was then a trustee of Ali’s Dream, having lost her niece to a brain tumour.Read more
Emma HalsteadMy stylish, creative, determined, positive, intelligent, adored, younger sister was diagnosed with a benign brain tumour in April 2012 when she was aged 19. She underwent a wide-awake craniotomy in November 2012. In July 2015 the tumour became malignant and aggressive and was diagnosed as a glioblastoma multiforme grade 4. Emma underwent chemo and radiotherapy, but nothing could save her. She was admitted to hospital in March 2016, just days after doing a sky dive for Brain Tumour Research. Several weeks later, there came a point when every time Emma moved she had a seizure. On 13th May 2016 she slipped peacefully away, aged just 23.
“Emma truly was an inspiration to us all. When she discovered she was ill, she adopted an attitude of: ‘I’ve got a tumour, but I’m still going to get on with life.’ This positive attitude was to stand her in good stead right up to the end. She was never afraid to ask tough questions and each time she received bad news she would quickly pick herself up and move on. One time she simply said: ‘Ok, pass me the grapes, let’s get on with it’.” Read more