In Our Hearts
Less than 20% of those diagnosed with a brain tumour survive beyond five years
These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
"We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too."
You are forever in our hearts.
Recently published stories
In 2016 mum-of-three Lisa, from Hungerford in Berkshire, suffered a seizure and flu-like symptoms and was initially diagnosed with encephalitis. A follow-up scan six months later, revealed they were actually the symptoms of a brain tumour. The former fashion designer turned teaching assistant began chemotherapy but stopped after suffering badly with the side-effects. She died five years later, in March 2021, aged 50. Throughout her diagnosis Lisa fundraised and campaigned with Brain Tumour Research. Since her death her husband, Simon, and their three children are continuing to support the charity which was close to her heart.Read more
Jacob Henry Sloan Goodall was just four months old when he died from an atypical teratoid rhabdoid tumour (ATRT) in November 2016. Concerns were first raised when Jacob had acid reflux problems, and, after several trips to the GP, Jacob had a scan at hospital which revealed the tumour. Jacob’s mum, Kate, is taking on the 10,000 Steps a Day in February challenge to raise money for Brain Tumour Research.Read more
Alice Rose Johnson
Alice Johnson, of Sheringham in Norfolk, was diagnosed with a high-grade ependymoma, aged three, in September 2001 after experiencing symptoms including tiredness, sensitivity to sounds, headaches and dizziness. She underwent surgery and chemotherapy after which she quickly regained strength and energy. However, over the following 21 years she endured a further five surgeries, chemotherapy and three courses of radiotherapy. Having exhausted all of her treatment options, she died in July 2022 at the age of 24.Read more
Derek Lovatt was a popular Burton Upon Trent photographer whose life was cut short by a brain tumour at the age of 56. Though his death in 2001 left a devastating hole in the hearts of his wife Jennifer and their three children Chris, Ellen and Richard, he created lasting memories for his family to cherish. Ellen, 44, is now taking part in the Brain Tumour Research charity’s On Yer Bike campaign, and through fundraising she ensures her dad’s legacy lives on.Read more
Diana FordIn the beginning Diana only had very vague symptoms like never seeming to have enough sleep, or having a bit of a headache. But as her youngest child, Finlay, was just two years old neither she, nor the family took it seriously. However, around Christmas-time, there were various odd things which didn’t seem to stack up. Diana seemed a bit vague, like she was not really listening, and not always understanding.
Then came a week when Diana felt quite unwell and stayed in bed. On the second day she got up to go to the GP who suggested she go to the hospital for blood tests, which she did with difficulty. By Friday when Diana was leaving cups of tea untouched and complaining she had such a headache, I became really concerned. I called the doctor and insisted he came out to her and I also called her husband, Nick and suggested he came home. I thought Diana was having a mental breakdown or was very ill.
We are grateful to Dixie who worked with us in April 2021 to share his story here. Sadly, he passed away in March 2022 We remember Dixie as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
Dixie had finally found his true soul-mate when he met Jules on the internet in 2005. They had 14 blissfully happy years together before Dixie was diagnosed with a glioblastoma multiforme brain tumour, grade 4 and given 12 to 18 months to live. Faced with a terminal illness, Dixie turned to poetry to express his deepest feelings and to leave a permanent reminder to his beloved wife, step-daughters and grandchildren.Read more
Donna OsbourneDonna was healthy, apart from problems with high blood pressure which she probably inherited from her mother’s side of the family. She had been going to see the GP about it, who thought it might be a thyroid problem.
On New Year’s Eve, 2007, we were with friends and Donna felt faint and dizzy, although she didn’t actually faint. We sat her down and did all the things you do when someone feels faint. There was even a lady on hand at the party who used to be a nurse. We then decided to go home as Donna continued not feeling too good. She woke up fine the next morning.
Duncan ScottDuncan was an extremely intelligent, kind and thoughtful man. He was an avid fan of Formula 1 and Le Mans. In June 2015 he was diagnosed with a grade 4 glioblastoma multiforme. After an 18 month battle, he passed away aged 55. During the last weeks of his life he endured severe mental torture until he was admitted to a hospice where doctors and nurses were able to adjust his medication to prevent him from suffering anymore.
Here is Duncan’s story as told by his sister, Gayle:
“Duncan’s passing has left a huge hole in my life, as well as the many people whose lives he touched. His funeral was extremely well attended with many people voicing how he had “changed their lives for the better”. It seems so unfair that he was taken in his prime with so much joy to have and to give. I miss him dreadfully.” Read more
We are grateful to Duncan who worked with us in October 2019 to share his story here. Sadly, he passed away on 6th April 2021. We remember Duncan as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
Kent-based radio producer Duncan Wallace, originally from Newcastle-upon-Tyne, is happily married with two young children, a great circle of friends and a successful and exciting career in the music industry. But life was turned upside down for Duncan in April 2019 when he was diagnosed with an inoperable, high-grade brain tumour. Having undergone a course of radiotherapy and chemotherapy, Duncan remains positive in spite of his prognosis and recently completed the Great North Run, raising an incredible £22,000 for Brain Tumour Research.Read more
Eddy KirbyWithin a fortnight of walking one of his two beloved daughters down the aisle on her wedding day, Eddy Kirby was suddenly taken ill and after tests he was diagnosed with an aggressive glioblastoma multiforme (GBM) brain tumour. It was inoperable and although he underwent treatment, Eddy’s condition deteriorated rapidly. He passed away, aged 64, on 7th March 2015, his late father’s birthday. In addition to leaving two daughters, Emma and Sarah, Eddy also left a partner Carol and his mother, Marjorie, aged 93. Read more
We are grateful to Edie and her dad Craig, who worked with us in December 2019 to share her story here. Sadly, Edie passed away on 26th January 2021. We remember Edie as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
On 16 November 2019 Edie Jackson’s parents noticed her left eye had started turning inwards and she was developing a squint. Six-year-old Edie, from Waltham Abbey in Essex, also mentioned double vision, so her mum and dad booked an optician’s appointment for 20 November. Just days later, after an urgent referral to hospital, they were told the devastating news that Edie had an aggressive, inoperable brain tumour.Read more
At the age of 38, Edward Morrison was diagnosed with a low-grade ependymoma that appeared to pose little threat. After 10 months of treatment, there were no traces of tumour left and it seemed that Edward had beaten the disease. Sadly, the tumour made an aggressive return and, despite best efforts to treat it, Edward’s life was cruelly taken away from him in January 2018.
“Edward’s stubbornness was extremely frustrating at times, but his sense of humour provided some relief from the hopelessness of the situation. One day I asked him: ‘how are you feeling?’ and he replied: ‘not as bad as the guy who signed off my medical insurance’.” Read more