In Our Hearts
Less than 20% of those diagnosed with a brain tumour survive beyond five years
These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too.
You are forever in our hearts.
Recently published stories
Rayhan Majid from Airdrie near Glasgow was a fun-loving four-year-old who loved sports and Transformers. When he got headaches and started being sick, his parents Nadia and Sarfraz took him to four different GPs in six weeks, but they all dismissed their concerns. Convinced that something was wrong, Rayhan’s parents took him to hospital where an MRI scan revealed he had a high-grade medulloblastoma brain tumour. Despite undergoing four different surgeries and six weeks of radiotherapy, Rayhan sadly died during his first course of chemotherapy on 7 April 2018 with his adoring parents by his side.Read more
Andrew Mackie from Dinnet in Aberdeenshire, was a fun-loving 44-year-old who loved motorbikes. When he started having seizures in August 1999, his GP thought he may have epilepsy but six months later, when his eyesight started to deteriorate, he had a scan which revealed he had a high-grade astrocytoma brain tumour. The lorry driver and father of two girls underwent radiotherapy, surgery and palliative chemotherapy. He died at home on 21 February 2003, with his adoring family by his side.Read more
Briar Butler from Kendal in Cumbria, was just 30 when, in June 2018, she received the devastating news that she had an incurable brain tumour. Her diagnosis came after years of suffering from debilitating mental health problems. Briar, a trainee accountant and keen pole dancer, underwent surgery to debulk the tumour and several more operations after she developed infections in her skull. The mum-of-one spent the final few months of her life in a care home, which meant she was unable to see her loved ones when restrictions were imposed during the COVID-19 pandemic. Briar died on 17 August 2021, leaving her four sisters, her mum Beverley and her six-year-old Noah devastated.Read more
Gaye ChaffeA former officer in the Metropolitan Police, Gaye Chaffe was diagnosed with an oligodendroglioma brain tumour in 1992. Her husband Simon supported her through two craniotomy procedures and subsequent treatment. The tumour spread to her brain stem and she passed away six years later in her husband’s arms, leaving two sons aged eight and three. Read more
Gemma EdgarWe are grateful to Gemma who worked with us in May 2015 to share her story here. Sadly, she passed away on 19th December 2018. We remember Gemma as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
Gemma, 29, a paediatric nurse at Colchester General Hospital, and a wife and mother, was diagnosed with a malignant brain tumour after just a few days of migraine-type symptoms. Her sons, Noah and Dylan were just eight weeks and two years old at the time. Read more
George Michael HarrisonGeorge was diagnosed with a brain tumour at the age of 25. He underwent surgery and married his childhood sweetheart Georgina 13 months later. Sadly his tumour returned five years later. He had radiotherapy and chemotherapy which left him partially paralysed with double vision and memory problems along with other side effects. Together with Georgina, George’s mum Sondra cared for him during his last months. He passed away with them and his sisters by his side in June 2010. Read more
Georgie BeadmanGeorgie Beadman wife, mother, daughter, and sister, died seven years after being diagnosed with a low- grade glioma. She was a talented potter who loved music and the arts. In February 2015, Georgie died at the age of 41 leaving a husband and two small children.
“It is desperately sad to think that brain tumours kill more children and adults under the age of 40 than any other cancer and I was shocked to learn this area receives just 1% of the national spend on cancer research. A number of the girls who Georgie met during her year as a debutante are now involved in fundraising to support vital research into brain tumours which is wonderful. We were unable to help Georgie but I am sure that we can help others.”
A loving wife, mother and grandmother, Gillian built her life around creating a happy home for her family. She lived in the Trossachs and enjoyed the natural beauty of Scotland where her husband worked as a deerstalker with the Forestry Commission. At first misdiagnosed with multiple sclerosis, her anxious family were finally told she had a tumour of the central nervous system and she passed away six months later at the home she was dedicated to making.
Glendon SnapeWe are grateful to Glendon who worked with us in May 2017 to share his story here. Sadly, he passed away on 12th October 2017. We remember Glendon as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
Glendon Snape was looking forward to starting his honeymoon when he was struck with a terrible headache during the journey. Never setting foot in the hotel, Glendon, 51 from Preston, was instead rushed into hospital by ambulance from the hotel car park. The newly-weds, with four children between them, were devastated to hear that Glendon had a grade four glioblastoma multiforme, with possibly just months to live.
“When the doctors told me I had 14 months to live, my heart just sank and knowing more became an obsession; I just had to try to find a way out of the nightmare... It’s like an addiction but it’s kept me alive.”
Husband, son, father and step-father, Glenn McMahon was diagnosed with an aggressive glioblastoma multiforme stage 4 (GBM) brain tumour after experiencing co-ordination problems on the golf course. He married Wendy in February 2014 and, knowing their time together would be cut short, the couple set about making the most of their lives through travel, socialising and their mutual love of fine food. Glenn died in June 2015 at the age of 53.
“To be told it was a brain tumour was like being hit by a bus. Glenn asked straight away how long he had and was told the short prognosis. We were devastated. We had begun to suspect Glenn might have motor neurone disease and never dreamt it would be a brain tumour. We had both been married before and having found each other now faced our future which was going to be cut short.”Read more
Godfrey ButchersHusband, step-father and grandfather, Godfrey was laid to rest on what would have been his 25th wedding anniversary. His widow Shirley chose music from their marriage ceremony for the funeral which took place near their home on the Isle of Wight. Godfrey was 71 when he passed away just ten weeks after being diagnosed with a glioblastoma multiforme (GBM) brain tumour.
“A proud man, Godfrey didn’t want lots of visitors or people fussing around him. He was thinking of others and wanted to spare them the pain of seeing what was happening to him. Close family came and it was a joy to see the love in his eyes as our granddaughter, who was just a few months old, sat on the bed with him.” Read more
Graham Addison was a larger-than-life character at the heart of a tight-knit family. His brain tumour diagnosis in 2015 was a terrible blow to his wife, five children and nine grandchildren, but the family remained positive as Graham responded well to surgery, radiotherapy and chemotherapy. However, after a second operation Graham deteriorated rapidly and the love and support of his family couldn’t halt the aggressive glioblastoma multiforme (GBM). He passed way in September 2016, aged 66.
“Dad came out of theatre a different man and, for the first time, he was noticeably in decline. He couldn’t remember his own date of birth or even what day of the week it was. He was so brave but I remember once seeing the fear in his eyes when it dawned on him that his brain was failing him. How scary it must have been for him – to go from such a bright and intelligent man to someone who could no long remember how to use his mobile phone.”Read more
Garden designer Guy Farthing had just turned 60 when he was diagnosed with a low-grade brain tumour after suffering stroke-like symptoms. With surgery not an option, Guy underwent radiotherapy and chemotherapy. Sadly, over time the tumour became more aggressive and after nearly 10 years of battling the disease, Guy died in October 2017, leaving wife Jenny, children Kathy and Mark, and granddaughter Immie.
“It wasn’t until a few months later that we received a letter through from Southampton hospital asking him to attend for a pre-assessment. On arrival, we were given a letter which knocked us for six, as it stated that, two days later, Guy would be admitted for a biopsy on his brain tumour. We arranged to speak to the surgeon for clarification as we felt they must have got it wrong or maybe the letter was supposed to be for someone else.” Read more