In Our Hearts
Less than 20% of those diagnosed with a brain tumour survive beyond five years
These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too.
You are forever in our hearts.
Recently published stories
Ray RosenbergRay Rosenberg was 48 when he died in 2001 after a six-year battle with an incurable brain tumour. Ray is remembered by all those who knew him as a charismatic, larger-than-life character, dedicated to the Jewish community he was part of in Birmingham. Ray had many great achievements to his name, from a successful career in law to a legacy of community projects in his home city. Ray lives on in his wife Adrienne, his sons Simon, Jeremy and Ben and now his grandchildren five-year-old Ray, three-year-old Gabe and Max, aged one. Read more
Skye was four-years-old when he started feeling nauseous in the morning and then began vomiting. A month later, after his parents insisted on him being referred to a paediatrician, Skye was diagnosed with a grade 4 medulloblastoma brain tumour. After surgery and treatment following the now withdrawn Milan Protocol, Skye developed radio-chemo neurotoxicity which caused tetraplaegia and eventually tragically led to his death less than a year later.Read more
Jorja-Rose was the youngest of six children, adored by her parents and siblings alike. Aged just 15 months, she was diagnosed with a rare and inoperable pineoblastoma brain tumour and underwent chemotherapy and a stem cell transplant which gave her six months of good health. Sadly, Jorja-Rose suffered a relapse and passed away just three months after her parents got married. She was just two years old.Read more
Ieuan JonesBased in Dubai with his wife, Kelly, and a successful trainer for Emirates airline, Ieuan displayed very uncommon symptoms ahead of the discovery of his tumour.
With the devastating news that he had an aggressive GBM, Ieuan and his family relocated back to Wales, and he lost his fight less than two years later.
“That Christmas, I bought Ieu a star. We named it “Daddy’s Star” and we told Sienna that when he was no longer around, she could look up in the sky and the brightest star would be the one he was sitting on.” Read more
Diagnosed with a brain tumour at just 14 months, Isabella defied the odds to outlive her prognosis before she passed away aged five, at home in her mother’s arms, with her three doting sisters kissing her goodbye. Despite her illness, Isabella remained a happy child who loved to sing and dance, to play with her dolls and feel the wind in her hair. She went to school whenever she could and is much missed by so many.
“It was very touching that, as the funeral procession passed school, the teachers were standing by the fence and her classmates were in the playground, calling out ‘Here’s Isabella’ and waving. I don’t feel angry about what happened but I do feel a great sense of sadness that Isabella didn’t get the chance to grow up. I will be forever grateful for the doctor’s honesty which allowed me to accept that, sometimes you have to settle for quality of life rather than quantity, and this allowed me to ensure we gave her the best life possible.”Read more
Jack D'LimaJack was only a toddler when he was diagnosed with a brain tumour but, despite battling for his life for more than eight years, he lost the fight. His parents feel consumed and suffocated by the emptiness they are left with, but they have to pick up the shattered pieces and rebuild their lives for the sake of their other two sons. Read more
Jacob James-PryceBaby Jacob was born on 29th November 2014, a second child for Julie and Andy and a beloved brother to Jessica who was just two. Initially diagnosed with a respiratory infection, Jacob’s condition deteriorated and he was admitted to hospital where an aggressive glioblastoma brain tumour was discovered. He underwent surgery but died two days later. He was just three months old.
“To lose a child is the worst possible thing and I wouldn’t wish it on anyone. We talk about Jacob every day, Jessica says good morning and goodnight to him and chats about him as she rides her bike, imagining he would be doing the same thing. We knew nothing about brain tumours before this happened. Now they are a part of our lives. It doesn’t make sense to think that brain tumours kill more children and adults under 40 than any other cancer yet just 1% of the national spend on cancer research is allocated to this devastating disease. Jacob had his whole life ahead of him. If anything good is to come out of this it will be that more money will be invested in research.” Read more
Inspirational friend, son and hero Corporal James Campling was diagnosed with a brain tumour in June 2016. Despite this diagnosis, James, along with family, friends and comrades, was able to raise over £30,000 for Brain Tumour Research.
This continued James’ life-long devotion to those in need, whether through his career as a Royal Air Force Aeromedical Evacuation Specialist or his charitable work for a range of good causes, from educating children in Malawi to fundraising for The Blue Cross.
James passed away on 10th April 2018 and was honoured with a military funeral.Read more
James just wanted to carry on as normal after he was diagnosed with a brain tumour. He endured surgery, chemotherapy and radiotherapy, but still managed to make his 4am shifts at work, providing for his wife Samantha and their two young children. James saw his favourite band Guns N’ Roses just a short time after leaving hospital in 2017. He suffered dreadful personality changes at the hands of his tumour together with memory and speech difficulties. He will always be remembered as a gentle giant and a loving dad.
“The doctors reassured us that James’ tumour wasn’t aggressive, and there was no immediate rush to operate, but deep down I feared that it would never be cured and we could one day lose him. I was angry at myself for not recognising the signs. The headaches, sickness, the personality changes; all that time we never imagined that James had a brain tumour.”Read more
Jane Packer was busy revolutionising the world of floristry and raising a family when she was diagnosed with an aggressive brain tumour that turned out to be a glioblastoma grade 4. Following gruelling treatment, Jane was able to return to work and live a normal life until a stroke six years later heralded the return of the tumour. After she passed away in 2011, her husband, Gary Wallis, set up the Jane Packer Foundation in her memory.
“During the years of her illness, we busily researched the treatment options available and were shocked to find out that brain tumour research was so seriously underfunded in the UK.”Read more
Janet CoplandWhen charity volunteer Janet Copland, 74, started getting confused and forgetful over Christmas 2013, her husband and two daughters initially thought it was dementia. The family were devastated to be told that her symptoms were actually caused by an aggressive brain tumour that required urgent surgery. Janet’s early optimism was later dimmed by radiotherapy and rapid decline. She died just eight months later.
“We lost my mother in eight months but the tumour took hold before any of us were aware what was happening. Life can change at any moment.”Read more
Wife, mother and grandmother Janet Disney passed away just weeks after being diagnosed with a primary malignant brain tumour. She had lived her whole life in Wellington, Somerset, and was married to Steve for 36 years. The couple were members of the United Reformed Church and Janet, a keen baker who loved her holidays, was 74 when she died in June 2015.
“We had to wait for the scan results. We told the consultant we were due to go away for a few days to our caravan and it was agreed we should still go. As it happened, we were on our way to Dorset when the call came. It was devastating and I was in tears as I was told that Janet had an inoperable brain tumour on the left hand side and that, eventually, her right side would diminish. In fact, her whole body was affected for the last six weeks or so of her life. She relied on me completely for the last month and, as any husband would, I did everything for her.”
Janette "Jay" SherrellJay Sherrell passed away in May 2015, a little over three years after being diagnosed with a grade 4 glioblastoma multiforme. She was 43 and left two young children, an identical twin sister, an older brother and sister plus her mum.
“Although we had known for some time that this moment was coming, I was still extremely shocked when Jay died and, to start with, didn’t really cope at all. I truly felt as if I had lost my shadow. It was as if someone had cut off my arm. I still dream about her a lot and have flashbacks of the times that we were teenagers doing silly things. I talk to her all the time as if she is still here with me. Of course I miss her like mad but I see her every day when I look in the mirror.” Read more