In Our Hearts
Less than 20% of those diagnosed with a brain tumour survive beyond five years
These very brave people will remain in our hearts for ever and it is because of them that we are fighting to find a cure so that no other family should have to suffer in the same way.
We thought of you with love today, but that is nothing new.
We thought about you yesterday, and days before that too.
You are forever in our hearts.
Recently published stories
Logan passed away from a DIPG brain tumour 11 months after diagnosis. Shocked to find that any childhood cancer was incurable and at the lack of funding going into research of childhood cancers, his grandmother Fiona is doing everything she can to bring about change, including launching a petition to the Government.
Having finished a highly decorated career in education, Lesley Kirby-Klappholz was looking forward to her retirement. Her professional life had spanned a long but enjoyable 38 years, which included 11 years of headship. However, devastatingly on 31 May 2019, Lesley was diagnosed with a brain tumour out of the blue. Three weeks later the diagnosis was compounded, following a biopsy which distinguished her tumour type as highly aggressive.Read more
Fiona Bingham was just 33 when she passed away at her home in Chesterfield in March 2017. The guidance officer at Chesterfield College left behind her husband, Mark, parents Dodie and John Rutherford and her older brother, Alastair. Fiona, an International Hospitality graduate, was diagnosed in March 2015, following an eye test and subsequent scans. She underwent brain surgery, radiotherapy and chemotherapy to treat the tumour but, sadly, in February 2017, Fiona and her loved ones were given the devastating news that the treatment had stopped working and was being withdrawn.Read more
Husband, son, father and step-father, Glenn McMahon was diagnosed with an aggressive glioblastoma multiforme stage 4 (GBM) brain tumour after experiencing co-ordination problems on the golf course. He married Wendy in February 2014 and, knowing their time together would be cut short, the couple set about making the most of their lives through travel, socialising and their mutual love of fine food. Glenn died in June 2015 at the age of 53.
“To be told it was a brain tumour was like being hit by a bus. Glenn asked straight away how long he had and was told the short prognosis. We were devastated. We had begun to suspect Glenn might have motor neurone disease and never dreamt it would be a brain tumour. We had both been married before and having found each other now faced our future which was going to be cut short.”Read more
Godfrey ButchersHusband, step-father and grandfather, Godfrey was laid to rest on what would have been his 25th wedding anniversary. His widow Shirley chose music from their marriage ceremony for the funeral which took place near their home on the Isle of Wight. Godfrey was 71 when he passed away just ten weeks after being diagnosed with a glioblastoma multiforme (GBM) brain tumour.
“A proud man, Godfrey didn’t want lots of visitors or people fussing around him. He was thinking of others and wanted to spare them the pain of seeing what was happening to him. Close family came and it was a joy to see the love in his eyes as our granddaughter, who was just a few months old, sat on the bed with him.” Read more
Graham Addison was a larger-than-life character at the heart of a tight-knit family. His brain tumour diagnosis in 2015 was a terrible blow to his wife, five children and nine grandchildren, but the family remained positive as Graham responded well to surgery, radiotherapy and chemotherapy. However, after a second operation Graham deteriorated rapidly and the love and support of his family couldn’t halt the aggressive glioblastoma multiforme (GBM). He passed way in September 2016, aged 66.
“Dad came out of theatre a different man and, for the first time, he was noticeably in decline. He couldn’t remember his own date of birth or even what day of the week it was. He was so brave but I remember once seeing the fear in his eyes when it dawned on him that his brain was failing him. How scary it must have been for him – to go from such a bright and intelligent man to someone who could no long remember how to use his mobile phone.”Read more
Garden designer Guy Farthing had just turned 60 when he was diagnosed with a low-grade brain tumour after suffering stroke-like symptoms. With surgery not an option, Guy underwent radiotherapy and chemotherapy. Sadly, over time the tumour became more aggressive and after nearly 10 years of battling the disease, Guy died in October 2017, leaving wife Jenny, children Kathy and Mark, and granddaughter Immie.
“It wasn’t until a few months later that we received a letter through from Southampton hospital asking him to attend for a pre-assessment. On arrival, we were given a letter which knocked us for six, as it stated that, two days later, Guy would be admitted for a biopsy on his brain tumour. We arranged to speak to the surgeon for clarification as we felt they must have got it wrong or maybe the letter was supposed to be for someone else.” Read more
Helen worked with us in December 2015 to share her story here. Sadly, she passed away on 18th June 2019. We will remember Helen as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
New mum, Helen Legh, a BBC radio presenter, feared her baby daughter Matilda wouldn’t survive. Now five, Matilda is thriving, but Helen faces the grim reality that she won’t see her daughter grow up and is making the most of whatever time they have left together. She is also creating a treasure chest of precious mementoes for Matilda to cherish when she is gone.
“Even my worst fears hadn’t prepared me for this. I immediately thought of my Matilda, then just four years old, who had only recently started at school. How long was she going to have a Mummy? I was so sad to think how I was never going to see her grow up, or get married, how I was never going to be a Granny. And more to the point, how were she and her Daddy going to cope when I died?”
Paul and Helen never anticipated that their wonderful family life with their much-wanted daughter Matilda would come crashing down with Helen’s diagnosis with an aggressive brain tumour. In the four and a half years she survived with a glioblastoma multiforme, Helen underwent surgery four times as well as chemotherapy and radiotherapy treatment.Read more
Holly Atkins Fooks
Holly was just 11 when she passed away in September 2017, less than two years after being diagnosed with a highly aggressive brain tumour for which there is no cure. She endured two brain surgeries; chemotherapy and radiotherapy, the maximum amount a child could be given. Her family was devastated when, despite treatment, the brain tumour grew back leaving Holly disabled and bed-bound.
“Holly always wanted to live in a camper van; she loved them, and so she travelled to the crematorium in a specially-converted camper van with pink streamers waving from the roof corners. We all wore something pink in her honour. Her casket was pink with rainbows and her floral tributes included a unicorn head. She went with her faithful Dolly and Doggy and we all sprinkled fairy dust over her casket as we said goodbye. We think she is out there somewhere in a special place, chasing unicorns and rainbows, riding ponies and making fun of us when we do silly things – just as she used to do. We will never forget her.”Read more
Holly had a headache which wouldn't go away. An MRI scan revealed a brain tumour in a very inaccessible place. Now she is a teenager trying to live a normal life in between 3 monthly scans.
We are grateful to Holly who worked with us in February 2010 to share her story here. Sadly, she passed away on 18th December 2017. We remember Holly as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. She will be forever in our hearts.
Hugh WalkerHugh was 46 when he passed away on the 25th September 2013, just four months after diagnosis. We had been together for 20 years and married for 14 of them. Between us we had twins – George and Jasmine who were just eight years old at the time, while Hugh also had two grown up children – Joshua and Naomi from a previous relationship. We were all very close and remain so.
“During the four months Hugh survived following his diagnosis, he was a pillar of strength. He knew he was dying, yet he spent lots of time with me talking and passing on his strength. He told me his goals and what he wanted me to do with the children and for myself. He asked that he be cremated and buried under the apple tree in the garden and that a friend of his should make a bench so that we could sit there and be with him.”