In Hope Stories
Just 1% of the national research spend has been allocated to this devastating disease
Aged 30, Dan Braiden, from Cosham, near Portsmouth, had already survived testicular cancer only to be told he had a highly aggressive and incurable brain tumour. The developer at The Insurance Factory, an insurance firm based in Portsmouth, had suffered from a number of symptoms including tingling sensations, before his diagnosis with a glioblastoma multiforme (GBM) in December 2019. Having had surgery and radiotherapy, Dan is trying to stay positive, with the support of his caring parents and loveable dog Winston.
Dan tells his story…
My diagnosis with an aggressive and incurable brain tumour came just 18 months after I was diagnosed with testicular cancer. They say everything happens in threes, but I’m hoping that’s the end of my bad luck.
“It took a long time to get a brain tumour diagnosis, in December 2019, much longer than when I was diagnosed with testicular cancer. So I’m determined to raise awareness of the symptoms to look out for.”
I was 28 when I was diagnosed with testicular cancer, but it was a relatively simple to treat. From my diagnosis, after visiting the GP due to painful symptoms, it took only a week for the cancer to be removed. I had surgery followed by chemotherapy, to mop up any remaining cells, and I never suffered with it again.
My brain tumour diagnosis, however, was a very different story altogether. I feared that I’d been suffering from transient ischaemic attacks (TIAs), sort of “mini strokes”, and described these events to my doctor in Cosham. I was surprised when he put it down to migraines, even after demonstrating what had happened. Over the coming weeks, I found myself going backwards and forwards to the GP, desperate to get a second opinion.
The next symptoms started while I was at work as a developer at The Insurance Factory, an insurance firm based in Portsmouth. I experienced blinding pain in both arms while making a cup of tea, which I then spilt on the floor. I didn’t think too much of it, but my boss was adamant I needed to go back to A&E.
I’d also been experiencing tingling in my left side and feelings of déjà vu, as if I’d already dreamt of events that were happening in my life. It wasn’t until I struggled to walk, dragging my foot along the ground while leaving a hairdressers appointment, when I really started to worry.
“The déjà vu symptoms are really hard to describe, but it felt as if listening to a song, or having a conversation, would trigger memories of what was about to happen in my life. I later found out this was due to the tumour’s location, in my temporal lobe, which affected my memory.”
I felt as if no one was taking me seriously and the doctors didn’t care. Having already been to A&E once, I had to lay it in thick. I had a CT scan and the consultant reassured me that I hadn’t had a stroke. But the relief was short-lived.
“I was shown the scan which revealed a large mass in my temporal lobe. It was a grade 4 glioblastoma multiforme (GBM) – a highly aggressive type of brain tumour.”
There was a huge haemorrhage around the tumour, meaning that while I had been going to work, the gym and carrying on with my life, I’d suffered two massive bleeds on my brain. That explained the symptoms, when I temporarily lost my ability to walk and had tingling sensations in my arms. I couldn’t believe it.
“The news was far worse than my testicular cancer diagnosis, because of the dire statistics of GBM tumours. The average survival time is devastatingly short – just 12-18 months.”
Just days after my diagnosis, I was booked in for surgery at Southampton General Hospital, on 16 December 2019. I couldn’t believe that I would be in and out of hospital in a day, and I wouldn’t have to be admitted for a long period of time. I had a top neurosurgeon and was awake during all of the operation, to ensure no healthy brain tissue was being damaged during the procedure. I labelled objects presented to me on cards, while hearing the drill inside my head. I was a surreal experience.
The next day, it felt as if someone had whacked me round the head with a heavy object, but I was so pleased to be back home. The surgeon cut through my jaw muscle during the operation and I still can’t open my mouth very wide because of the tearing.
Once I had recovered from surgery, I had six weeks of radiotherapy which was tolerable, but I hated being in the hospital waiting room surrounded by much older patients. The treatment caused me to lose my hair, but I’m told that I suit the bald look, so that’s a positive!
My parents, who live in nearby Havant, have been very supportive and are helping me through the difficult times. My dog Winston, an American Bulldog, is fantastic company and the best companion on the worst days. I bought my first house, in Cosham, near Portsmouth, in February 2019, but have decided to stay with my mum and dad for the time being, until I feel much better.
I have an appointment on 1 April to discuss chemotherapy, but I’m worried that my treatment will be impacted by the coronavirus pandemic. I’m also fearful that treatment will cause me to be immunosuppressed and even more vulnerable to the virus.
I’m taking each day as it comes and am trying to stay positive, but it’s becoming increasingly difficult at this very uncertain time.
Brain tumours are indiscriminate; they can affect anyone at any age. What’s more, they kill more children and adults under the age of 40 than any other cancer... yet just 1% of the national spend on cancer research has been allocated to this devastating disease.
Brain Tumour Research is determined to change this.
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