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Together we will find a cure Donate

In Hope

Just 1% of the national research spend has been allocated to this devastating disease

The diagnosis of a brain tumour is devastating, however there is hope. We have been fortunate to meet some very brave people who have survived to tell the tale and who want to share their story to give hope to others.

Andrew Crowe

Andrew Crowe is in his early 40s and lives in Swindon. He has a brain tumour and has been through numerous operations and is trying hard to regain his normal life.
I’m doing OK - I feel better than I did this time last year and that was better than 2007.  I’m improving all the time.

So much has happened to me, but, in a strange way, I can say that, after all I’ve been through I now feel I have hope.

I first had symptoms in 2001 – excruciating headaches which were variously diagnosed as migraines or depression.  After many operations I’m doing OK for now, although I do have problems with my vision. I suffer from blind spots, speech issues and short term memory loss.

I knew nothing about brain tumours before.  I never had any contact with anyone who had one.  How that has changed!

When I was diagnosed I did look on the internet to satisfy my own curiosity rather than to gain knowledge.  I’m very matter of fact, and the fact is I have a brain tumour and I decided to go along with all the experts.

I’m now back at work, even though at one time my neuro-surgeon thought it was very unlikely I would ever be able to return and it is nice.  I have never been away really - I have always popped in to keep in contact with everyone. Going back to work proved more difficult than I thought.  There was lots of red tape and I’m a lot slower than I used to be.

I first found out about the brain tumour when I was shown a scan and the bits that could be operated on were pointed out and also those bad bits that couldn’t.  I simply thought ‘I don’t want to be here.  I don’t want to see this’.

Brain tumours are so complicated and the numbers of people that have them are increasing.  It is terrible and it is quite mind-boggling.

I don’t know what to try next.  I have had help and guidance from Brainstrust and I’ve had around 30 procedures.  I’ve tried all I can.

All these charities are of a similar nature so they should join together and pool their expertise and ideas.  It is great for all these charities to come together -they can share their ideas, and one idea will spark off another idea.  Let’s hope between them they get there.

Andrew Crowe - April 2009
Andrew Crowe

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