Just 1% of the national research spend has been allocated to this devastating disease
The diagnosis of a brain tumour is devastating, however there is hope. We have been fortunate to meet some very brave people who have survived to tell the tale and who want to share their story to give hope to others.
Recently published stories
Carrie-Ann Greenwood, from Holywell in Flintshire, North Wales, was 36 weeks pregnant when a sudden loss of vision on her right side prompted her to visit her optician. She was referred for an MRI scan, which revealed a golf ball-sized tumour on her pituitary gland.
The diagnosis in May 2016 led to an emergency caesarean section to deliver her daughter Cerys, followed by brain surgery just days later.Read more
The eldest of three sisters, Amani Liaquat was diagnosed with an aggressive brain tumour after collapsing at home on her 22nd birthday in April 2020. The coronavirus lockdown meant she had to endure brain surgery and numerous scans with no visitors allowed at her bedside during a 12-day stay in hospital. After standard of care failed to stop the growth of her tumour the family were left in the difficult position of having to source lifesaving treatment from Germany. Thanks to the generosity of family, friends and complete strangers, over £100,000 was quickly raised to help finance this.Read more
Teenager Amber Hanna, from Belfast, suffered from migraines for as long as she could remember. After several years of going back and forth to the doctor to try find the cause, her brain tumour diagnosis eventually came in February 2020, when her tumour burst and she was rushed to hospital having suffered a serious haemorrhage. Amber, 17, went on to have brain surgery to remove the low-grade tumour and is now, finally, on the road to recovery.Read more
Gary RobinsonFather-of-two Gary Robinson marked his 34th birthday in May 2015 by running the Manchester 10K to raise money for Brain Tumour Research. It was the first such event he had taken part in and it came just months after he underwent surgery and radiotherapy to remove an extremely rare and aggressive grade II haemangiopericytoma brain tumour. Read more
Gavin had recently become a father and had been married for just six weeks when he was diagnosed with cancer of the spine which had metastasised to his brain. His new wife and baby daughter had to move temporarily from Cornwall to Bristol to be with him as he underwent surgery and radiotherapy treatment.Read more
Gemma GliddonMother-of-two Gemma Gliddon is awaiting surgery for a schwannoma brain tumour which has regrown after a previous operation. Determined to remain positive, Gemma, 32, is training to become a nurse and is helping to raise awareness and funds for research by taking part Wear A Hat Day 2015 just four days after her latest operation. Read more
For first-time parents Stephanie Day and James Devlin, it was devastating to be told their new-born baby George had a brain tumour. ‘Gorgeous George’ underwent a nine-hour craniotomy when he was just 10 weeks old and is now a healthy and happy little boy. His mum Stephanie, 27, who was shocked that someone so young could be diagnosed with such a serious condition, is keen to raise awareness of the disease.Read more
Gordon was diagnosed with a brain tumour at the age of 32, after first being told he had probably a stroke and then possibly he was HIV positive. He started writing comics to help his friends and family understand cancer and as something cathartic for himself, but is now publishing them, as well as exhibiting the comics to a wider audience. He feels happy and settled, but his seizures are a constant reminder that his life is very uncertain.
“Having a brain tumour has changed the way I live my life. When I am in my happy head, I often think I might not see too many more of these times, so I try to recognise good moments when I am in them and thank people who are there sharing them with me. Compared with so many people I feel very lucky that I got away with it so lightly. I have had no long-term effects from my treatment apart from hair loss, but I have my beard as compensation for that!”Read more
Grace DalyA healthy 15-year-old, Grace found herself with the devastating diagnosis of a brain tumour after a short bout of headaches, dizziness and vomiting.
After undergoing surgery, chemotherapy and radiotherapy to eradicate her medulloblastoma, Grace has now been clear for seven years, and is a nurse, inspired by the amazing care she received during the battle with her tumour.
“It’s a totally devastating thing to lose your hair when you’re 15 when the way you look is so important.” Read more
Grace ThoburnGrace and her husband-to-be bonded over the scars on their skull – she had gone through brain tumour surgery and he had a bone-anchored hearing aid fitted. They are now expecting their second child and, as a patient representative on the Tessa Jowell Brain Cancer Mission, Grace is helping to shape the future for patients. Read more
Gruff CrowtherSchoolboy Gruff Crowther was diagnosed with a brain tumour after minor but repeated difficulties with his eyesight. At the age of seven, he was the youngest patient to attend a reception at Speaker’s House, Westminster, in March 2016 when he joined the charity Brain Tumour Research in calling for more funding for the devastating disease.
“We have been very open with Gruff right from the start, telling him right from day one that he has a tumour and that means a lump of badly behaved cells which are reproducing incorrectly. He is aware that there are different types of brain tumour and different types of cancer. While Gruff’s tumour is low-grade we mustn’t been fooled into thinking that means it is benign – we are aware that the rate of growth can accelerate and things can become problematic. Left untreated, Gruff’s tumour would definitely have caused more problems as it spread. So far, his scans have shown the tumour has reduced in size and, for now, things are looking positive.”