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Together we will find a cure Donate

In Hope

Just 1% of the national research spend has been allocated to this devastating disease

The diagnosis of a brain tumour is devastating, however there is hope. We have been fortunate to meet some very brave people who have survived to tell the tale and who want to share their story to give hope to others.

Recently published stories

Phoebe Frances Brown

In 2018, actor Phoebe Frances Brown was diagnosed with an incurable tumour in the area of her brain that controls speech, language and memory. The 28-year-old from Nottinghamshire originally thought her symptoms, which included headaches and tiredness, were caused by a busy stint performing at the Edinburgh Fringe Festival. However, when her symptoms progressed, she was given an MRI scan, which revealed a large tumour on the left side of her brain. Despite going through surgery, radiotherapy and chemotherapy, Phoebe has continued to forge a successful career on the stage. She is about to star in her own one-woman show, which tells the story of finding herself in the bleakest of times and of discovering gladness in the saddest of moments. 

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Harry Crick

Toddler Harry Crick, from Elmswell in Suffolk, was diagnosed with a rare brain tumour in December 2020, after he became unwell with a cold and was unsteady on his feet. His tumour is classified as grade 4, meaning that it is very aggressive, with a devastating prognosis of just 12 months. The inspiring two-year-old has undergone two brain surgeries and gruelling chemotherapy in an attempt to keep the tumour at bay. More recently, Harry and his family travelled to Essen in Germany, where the brave tot received proton beam therapy, to try to give him the best possible chance of survival.

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Nayfil Hussein

Digital product owner Nayfil Hussein, from West London, has suffered from bad headaches since her teens. The 32-year-old, who grew up in Luton, Bedfordshire, always thought they were related to her menstrual cycle. It was only after Nayfil became very unwell during a trip to Greece in 2019 that she knew something much more serious was wrong. Eventually, she was diagnosed with a medulloblastoma tumour, which has been treated with gruelling surgery, radiotherapy and chemotherapy. After experiencing punishing side effects from her treatment regime, Nayfil is finally feeling stronger and healthier and is now planning to do a charity walk to raise money for Brain Tumour Research.  

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All stories

Francoise Shelton

Francoise was 47 when she was diagnosed with a brain tumour.  She and her family had noticed some big personality changes prior to her falling unconscious. Francoise owes her recovery to the care and support she received from her children who were 20, 18 and 15 years old at the time.  Read more

Freya Bevan

Eight-year-old Freya Bevan, from Neath in Wales, was diagnosed with an aggressive brain tumour at just 20 months old. Following surgeries and chemotherapy, a huge fundraising effort then helped Freya to get specialist treatment in Oklahoma in the United States. Six years of stable scans followed but devastatingly, in October 2020, a new tumour growth was detected. The family has since returned to America, where Freya is having more privately-funded treatment, in a bid to save her life.  

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Freyja Hanstein

Freyja Hanstein was enveloped by grief after losing her husband to abdominal cancer just a month after they were married. Within a year she was fighting her own battle with the disease and underwent surgery to remove a brain tumour. She has now developed the app WholesomeWorld bringing together scientific and lifestyle information designed for patients and those supporting them through treatment.

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Gary Fordham

Single dad Gary Fordham, 43, was diagnosed with a golf ball-sized brain tumour after passing out at the wheel of his van on the M6 motorway. It happened on New Year’s Eve 2018, when he suffered a seizure on his way home to Bradford after visiting his parents in Swindon for Christmas. Gary was in the van with his dog, a ‘shug’ called Buster, and his 11-year-old son Hayden. All three miraculously survived. Since the near-fatal accident, Gary has gone on to have an awake craniotomy to remove the tumour. He is now waiting to have a titanium plate fitted to replace part of his skull, since he developed an infection following his brain surgery. 

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Gary Nelson

Gary Nelson, from Chester, is in the throes of battling his third brain tumour and is undergoing six months of chemotherapy to try to control the disease. The dad-of-one’s brain tumour journey began in 1985 when, at the age of seven, he was diagnosed with a low-grade tumour, which was successfully treated with neurosurgery and a gruelling course of radiotherapy. Having already overcome the most unimaginable hurdles, Gary and his wife Amy continue to stay brave and positive, as they turn to fundraising to give them a positive focus and to fight for other sufferers and their loved ones.

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Gary Robinson

Father-of-two Gary Robinson marked his 34th birthday in May 2015 by running the Manchester 10K to raise money for Brain Tumour Research. It was the first such event he had taken part in and it came just months after he underwent surgery and radiotherapy to remove an extremely rare and aggressive grade II haemangiopericytoma brain tumour. Read more

Gavin Hawke

Gavin had recently become a father and had been married for just six weeks when he was diagnosed with cancer of the spine which had metastasised to his brain. His new wife and baby daughter had to move temporarily from Cornwall to Bristol to be with him as he underwent surgery and radiotherapy treatment.

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Gaynor Farrington

When 58-year-old Gaynor Farrington, from Liverpool, started suffering from cramps and pain in her neck and shoulders, she never suspected she had symptoms of a brain tumour. It was only after a terrifying seizure at work that she discovered she had a meningioma. Her tumour was low-grade and operable but following surgery, Gaynor contracted a bone flap infection and had to have part of her skull removed. She is now awaiting a further operation to replace the missing bone flap. In spite of her ordeal, Gaynor says she feels extremely lucky and has a new-found appreciation for life. 

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Gemma Gliddon

Mother-of-two Gemma Gliddon is awaiting surgery for a schwannoma brain tumour which has regrown after a previous operation. Determined to remain positive, Gemma, 32, is training to become a nurse and is helping to raise awareness and funds for research by taking part Wear A Hat Day 2015 just four days after her latest operation. Read more

George Devlin

For first-time parents Stephanie Day and James Devlin, it was devastating to be told their new-born baby George had a brain tumour. ‘Gorgeous George’ underwent a nine-hour craniotomy when he was just 10 weeks old and is now a healthy and happy little boy. His mum Stephanie, 27, who was shocked that someone so young could be diagnosed with such a serious condition, is keen to raise awareness of the disease.

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