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In Hope

Just 1% of the national research spend has been allocated to this devastating disease

The diagnosis of a brain tumour is devastating, however there is hope. We have been fortunate to meet some very brave people who have survived to tell the tale and who want to share their story to give hope to others.

Recently published stories

Stu Farrimond

Hospital doctor Stu Farrimond from Trowbridge had to give up his career in medicine after being diagnosed with a brain tumour. The diagnosis came about by chance after he was being tested for a hormone imbalance in 2008. He underwent surgery but in 2019 the tumour returned and he was diagnosed with a grade 3 anaplastic astrocytoma. A third operation was followed by radiotherapy and chemotherapy. Over the last 15 years, Stu, now 41, has retrained as a teacher and has made a career as a science author working across various TV channels and working for the International Brain Tumour Alliance (IBTA). 

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Emma Taylor

Private dental hygienist Emma Taylor was 34-weeks weeks pregnant when she was rushed into hospital suffering from a catastrophic brain bleed. It was later revealed this had been caused by a brain tumour growing at the base of her skull. The 33-year-old, of Chelmsford, Essex, was put in an induced coma before giving birth to her baby by emergency caesarean. She remained unconscious for weeks and is still unable to talk but communicates using head and hand movements, as well as via a computerised device. To progress her recovery, her partner has set up a GoFundMe page to help fund a bespoke rehabilitation programme.

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Simon Penwright

Operations director Simon Penwright was diagnosed with a multifocal glioblastoma (GBM) after waking with a severe headache and a foul but inexplicable taste and smell in January. The 52-year-old, who works for a manufacturing machinery company and lives in Stewkley, Buckinghamshire, has been given a prognosis of just 12 months. He underwent surgery in February followed by three weeks of high dose radiotherapy and chemotherapy. He is currently undergoing further chemo, having just completed his second round of temozolomide.

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All stories

Claire Messer

For hairstylist Claire Messer, the last thing she could have imagined was causing her hearing loss was a large brain tumour. After being diagnosed in 2015, Claire’s meningioma was successfully treated with gamma knife radiotherapy and now she is eagerly awaiting the birth of her first grandchild. She has also fundraised with her husband, Rod, and two daughters, Chloe and Celine, raising over £4,000 for the Brain Tumour Research charity.

“I was in utter disbelief. I shed tears out of anger and thought ‘I’m too young for this’. My diagnosis was a short, sharp shock that made me think about my own mortality. It was the moment I realised I wasn’t indestructible. I’m so grateful to have had such excellent treatment and because of this I’m determined to help others in a similar situation.

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Claire Whittle

Claire, a French teacher at Stanton School in Milton Keynes, was diagnosed with a grade 2/3 astrocytoma in 2011, aged 51. She made a decision at the time that she wouldn’t be a victim and that she would live to be a grandmother. Nearly five years on she feels so blessed to still be here.

“I was given the news by a hard-nosed clinical nurse specialist because my neurosurgeon was called away on an emergency.  She walked in with a big white envelope and bluntly stated: “I know all about it.  There is no cure… but the good news is that you can have a bus pass.”
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Cliff Comber

Former Royal Air Force (RAF) serviceman Cliff Comber, 63, enjoyed a 27-year career in the military before he left the forces as a Chief Technician (Chf Tech) in January 2003 and took up a civilian position with South Yorkshire Police. The grandfather, from Thurcroft near Rotherham, maintained his fitness after leaving the RAF, running eight miles a day to and from work and regularly taking part in numerous marathons, half marathons and running events. His world came crashing down, however, in November 2021, when he was diagnosed with an aggressive brain tumour. Cliff, an avid Crystal Palace FC fan, is currently on chemotherapy treatment and is coping well, while his family, including his wife Carol, tries to come to terms with the devastating diagnosis. 

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Clive Hawes

Clive Hawes, of Pitsford in Northamptonshire, was diagnosed with a meningioma in November 2021 after suffering a seizure during which he stopped breathing. A biopsy revealed it was low-grade and he underwent a craniotomy on New Year’s Eve, after which he opted to treat the residual tumour with holistic treatments rather than radiotherapy. It was during a follow-up MRI scan this October the 69-year-old discovered he had another tumour, a glioblastoma (GBM). He has now undergone an awake craniotomy and will soon be starting chemotherapy and radiotherapy.

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Colin Newton

Colin Newton was diagnosed with an inoperable grade 2 astrocytoma in June 2018 after suffering with severe weakness in his right leg. The 41-year-old warehouse operative, from Burgess Hill, West Sussex, had two rounds of chemotherapy and six weeks of radiotherapy after which he suffered a seizure. He now takes anti-seizure medication and is being monitored with regular scans.

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Connie Campbell

Keen dancer Connie Campbell was diagnosed with a grade 4 medulloblastoma in September 2022 following a sudden bout of headaches and sickness. The 11-year-old, from South Woodford, East London, underwent surgery and is now on a phase 3 clinical trial for high-risk medulloblastoma patients. She has had induction chemotherapy, 30 sessions of radiotherapy and will soon be starting a six-month course of maintenance chemo. 

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Corin Snell

Corin Snell, of Ixworth in Suffolk, is now registered blind having been diagnosed with a low-grade meningioma in February 2014. She had been experiencing persistent headaches and painful, weeping eyes for months but it was only after a visit to Specsavers opticians that the pressure on her optic nerve was detected and she was advised to go to the hospital. She has undergone two craniotomies, one in April 2014 and the other in November 2018, as well as a separate operation to have a shunt fitted. In February 2021 a routine check-up showed further growth and she was referred for six weeks of radiotherapy, the start of which was delayed so she could finally marry her fiancé in a ceremony that was postponed four times because of the COVID-19 pandemic. 

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Damon Bowles

It's been just over a year since 49-year-old dad-of-two, Damon Bowles, received treatment for a low-grade acoustic neuroma brain tumour. It's a non-cancerous growth that presses on the nerves leading from the inner ear to the brain and can affect your hearing and balance. 

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Dan Braiden

Aged 30, Dan Braiden, from Cosham, near Portsmouth, had already survived testicular cancer only to be told he had a highly aggressive and incurable brain tumour. The developer at The Insurance Factory, an insurance firm based in Portsmouth, had suffered from a number of symptoms including tingling sensations, before his diagnosis with a glioblastoma multiforme (GBM) in December 2019. Having had surgery and radiotherapy, Dan is trying to stay positive, with the support of his caring parents and loveable dog Winston.

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Dan Horrocks

Dan was at university when he started to suffer from crippling headaches which led to his eventual diagnosis with a grade 3 ependymoma brain tumour. Ten years on, he has had surgery three times and undergone radiotherapy. Although he lives with the knowledge that his tumour could return, he is optimistic about the future, having just moved into a new flat with his wife and working as a parliamentary researcher at Westminster.

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