In Hope

Bethan from Cardiff says she owes her life to her mental health nurse who encouraged her to get a scan. Doctors initially thought the 36-year-old, mother-of-two could be suffering from post-natal depression. When her behaviour became erratic, she was admitted to a psychiatric facility for four months. Her symptoms continued and became physically noticeable as she developed facial palsy. In 2011, weeks after she was discharged and two years after her symptoms began, Bethan had a CT scan and she was told she had an acoustic neuroma brain tumour.

A decade after her diagnosis, Bethan has continued to navigate motherhood whilst training to be a barrister, and living with the side effects of a brain tumour.

Bethany was just nine when an apparent minor allergy to oranges preceded her shock brain tumour diagnosis. Her Mum, Trish, saw her little girl happily dancing around the kitchen to One Direction before screaming out that her head was on fire and collapsing. Despite the years of surgery, hospital appointments and medications that followed, Bethany is now a bright and positive fourteen-year-old, eager to live her life to the full while knowing that her condition will be life-long.

“There’s a lot that I don’t completely understand, some things that I don’t even remember, but I still have to cope with it all anyway. The tumour doesn’t care if I understand or not.”

Beverley had always been healthy and active until she suddenly started having excruciating headaches and vomiting. She was eventually diagnosed with a low-grade haemangioblastoma and underwent surgery which, happily, was successful in removing the tumour. Now, 10 years on, she feels it is as if the experience never happened.

“I am so thankful I was lucky enough to have the type of brain tumour I had, but I am very conscious that the prognosis for the vast majority of brain tumour patients is not nearly so rosy. I am sharing my story to help raise awareness because I know that much more research needs to happen to find a cure.”

Grandfather-of-six Bill Smith, from Sheffield, was diagnosed with a brain tumour in April 2021. Having overcome bowel cancer three years prior to his diagnosis, the retired induction hardener initially feared the tumour was high-grade. Luckily, Bill’s tumour was a low-grade meningioma unrelated to his previous cancer. Surgeons were able to remove the tumour during a three-hour operation. He has bounced back to good health and his post-operative scans remain clear.

Bob shared his story with us in September 2016. Sadly, he passed away on 25th June 2019. We will remember Bob as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.

A successful double bass player, Bob Picken has been a member of Liverpool band Ella Guru, as well as a backing for artists such as Neville Skelly, She Drew The Gun, Bill Ryder-Jones and Marvin Powell.

Diagnosed in 2012 with an anaplastic astrocytoma, whom he affectionately calls “Bieber” in reference to the Canadian singer Justin, Bob has managed to overcome a number of setbacks to carry on with his career, and in his own words “stick two fingers up to cancer”.

“You go through five stages of cancer: denial, anger, bargaining, sadness and eventually acceptance.”

Yardley schoolboy Bobby Humphries was two years old when he was diagnosed with a large brain tumour. He underwent life-threatening surgery and chemotherapy when just a toddler. Sadly, Bobby’s tumour recurred and he had to go through another 18 months of chemotherapy. Now six, Bobby, a keen Birmingham City Football Club fan, has recently started the new school year and his parents Georgina and Aaron are taking each day as it comes.

Bradley was diagnosed with an inoperable brain tumour at the age of three and underwent radiotherapy. Apart from headaches, his life continued as normal until he was 18 and had to be flown home by air ambulance while on holiday for a surgical procedure to help relieve pressure building up in his head. Then at the age of 23, following a massive seizure, he had a 10-hour operation to attempt to remove the ‘inoperable’ brain tumour. Miraculously, the neuro-surgeons succeeded in removing 95% of the tumour. In the years since his surgery, Bradley has worked hard on his rehabilitaton and now, aged 29, can walk almost perfectly, although he is waiting to have Botox to help regain movement in his right hand. 

“My neuro-consultant was becoming very concerned, but he still didn’t want to take the risk of trying to remove the tumour, due to its dangerous position and the risks of life-changing consequences. However, one day I had a massive seizure and the doctors were unable to bring me round. The pressure had built up to a dangerously high level which meant there was no option than to operate to relieve the pressure as quickly as possible. I had the emergency procedure and was taken to the High Dependency Unit and put into a coma. Meanwhile, my parents were told that it was now imperative to attempt to remove the ‘inoperable’ tumour once the pressure in my head had been reduced and I had returned to a stable condition.”

After suffering a seizure at his home in Milton Keynes in 2016, Brian Carrick, then 54, underwent a craniotomy to remove a grade two oligodendroglioma, which had been growing unnoticed for at least 10 years. He thought that he would be fine after surgery and treatment, never realising the cumulative effect of radiotherapy, but the reality is that today Brian can no longer work, and regularly feels overwhelmed and completely exhausted.

Soldier Cameron Ray agreed to his brain surgery being filmed for a BBC documentary because he wanted to raise awareness of the disease and to help reassure others who were coping with the same diagnosis. He hopes to get back to full fitness, complete his training as a medic and resume his career serving his country in the British Army.

Mother-of-two, Carlie Buchanan, from Grove in Oxfordshire found a lump on her breast in December 2018, and months later was diagnosed with an aggressive form of breast cancer. Carlie entered 2020 with optimism after undergoing a year of treatment for her breast cancer, however, as 2020 came to an end, she began experiencing new symptoms and in February 2021, Carlie was diagnosed with secondary cancer of the brain. With the support of her family and sister Jasmine, Carlie is determined to raise awareness and fundraise to help find a cure for brain tumours.