In Hope
Just 1% of the national research spend has been allocated to this devastating disease
The diagnosis of a brain tumour is devastating, however there is hope. We have been fortunate to meet some very brave people who have survived to tell the tale and who want to share their story to give hope to others.
Recently published stories
Connie Campbell
Keen dancer Connie Campbell was diagnosed with a grade 4 medulloblastoma in September 2022 following a sudden bout of headaches and sickness. The 11-year-old, from South Woodford, East London, underwent surgery and is now on a phase 3 clinical trial for high-risk medulloblastoma patients. She has had induction chemotherapy, 30 sessions of radiotherapy and will soon be starting a six-month course of maintenance chemo.
Giles Rodriguez
At the age of nine Giles, who lives in Gibraltar, was diagnosed with a diffuse astrocytoma after experiencing severe headaches and double vision. Existing medical conditions meant that treatment options for Giles, who is now 15, were restricted. His parents, Lynette and Ruben sought a second and third opinion to give their son the best chance of a future. Eventually he had an operation to remove the three tiny lesions on his brain. The teenager is now monitored with MRI scans to check for any re-growth.
Read moreSally Grainger
It was 2006 and Sally was 40 when she first noticed something could be wrong. It was thought the mum-of-two from Stourbridge in the West Midlands could have an eating disorder after dramatic weight loss. When she began to experience sickness a few months later, a gastroenterologist referred her for a CT scan and what she thought could be a problem with her stomach, turned out to be a tumour on her brain. Sally had surgery to remove a grade 1 astrocytoma in February 2007 and is monitored with an MRI scan every two years. Since her diagnosis, Sally, now 57, is a key figure in the brain tumour community finding a love of cycling which she has used to fundraise for Brain Tumour Research.
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Bethany Louita
Bethany was just nine when an apparent minor allergy to oranges preceded her shock brain tumour diagnosis. Her Mum, Trish, saw her little girl happily dancing around the kitchen to One Direction before screaming out that her head was on fire and collapsing. Despite the years of surgery, hospital appointments and medications that followed, Bethany is now a bright and positive fourteen-year-old, eager to live her life to the full while knowing that her condition will be life-long.
“There’s a lot that I don’t completely understand, some things that I don’t even remember, but I still have to cope with it all anyway. The tumour doesn’t care if I understand or not.”
Read moreBeverley Fielder
Beverley had always been healthy and active until she suddenly started having excruciating headaches and vomiting. She was eventually diagnosed with a low-grade haemangioblastoma and underwent surgery which, happily, was successful in removing the tumour. Now, 10 years on, she feels it is as if the experience never happened.
“I am so thankful I was lucky enough to have the type of brain tumour I had, but I am very conscious that the prognosis for the vast majority of brain tumour patients is not nearly so rosy. I am sharing my story to help raise awareness because I know that much more research needs to happen to find a cure.”
Read moreBill Smith
Grandfather-of-six Bill Smith, from Sheffield, was diagnosed with a brain tumour in April 2021. Having overcome bowel cancer three years prior to his diagnosis, the retired induction hardener initially feared the tumour was high-grade. Luckily, Bill’s tumour was a low-grade meningioma unrelated to his previous cancer. Surgeons were able to remove the tumour during a three-hour operation. He has bounced back to good health and his post-operative scans remain clear.
Read moreBob Picken
Bob shared his story with us in September 2016. Sadly, he passed away on 25th June 2019. We will remember Bob as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.
A successful double bass player, Bob Picken has been a member of Liverpool band Ella Guru, as well as a backing for artists such as Neville Skelly, She Drew The Gun, Bill Ryder-Jones and Marvin Powell.
Diagnosed in 2012 with an anaplastic astrocytoma, whom he affectionately calls “Bieber” in reference to the Canadian singer Justin, Bob has managed to overcome a number of setbacks to carry on with his career, and in his own words “stick two fingers up to cancer”.
“You go through five stages of cancer: denial, anger, bargaining, sadness and eventually acceptance.”
Bobby Humphries
Yardley schoolboy Bobby Humphries was two years old when he was
diagnosed with a large brain tumour. He underwent life-threatening surgery and
chemotherapy when just a toddler. Sadly, Bobby’s tumour recurred and he had to
go through another 18 months of chemotherapy. Now six, Bobby, a keen Birmingham
City Football Club fan, has recently started the new school year and his
parents Georgina and Aaron are taking each day as it comes.
Bradley Price
Bradley was diagnosed with an inoperable brain tumour at the age of three and underwent radiotherapy. Apart from headaches, his life continued as normal until he was 18 and had to be flown home by air ambulance while on holiday for a surgical procedure to help relieve pressure building up in his head. Then at the age of 23, following a massive seizure, he had a 10-hour operation to attempt to remove the ‘inoperable’ brain tumour. Miraculously, the neuro-surgeons succeeded in removing 95% of the tumour. In the years since his surgery, Bradley has worked hard on his rehabilitaton and now, aged 29, can walk almost perfectly, although he is waiting to have Botox to help regain movement in his right hand.
“My neuro-consultant was becoming very concerned, but he still didn’t want to take the risk of trying to remove the tumour, due to its dangerous position and the risks of life-changing consequences. However, one day I had a massive seizure and the doctors were unable to bring me round. The pressure had built up to a dangerously high level which meant there was no option than to operate to relieve the pressure as quickly as possible. I had the emergency procedure and was taken to the High Dependency Unit and put into a coma. Meanwhile, my parents were told that it was now imperative to attempt to remove the ‘inoperable’ tumour once the pressure in my head had been reduced and I had returned to a stable condition.”
Read moreBrian Carrick
After suffering a seizure at his home in Milton Keynes, 54-year-old Brian Carrick underwent surgery to remove a grade two oligodendroglioma, which had been growing unnoticed for at least 10 years. Brian feels tremendously lucky it was discovered at a point where he could benefit from new research and before it became cancerous. Brian is currently undergoing a six-week course of radiotherapy followed by chemotherapy to try and remove a small amount of tumour that was left after surgery.
“I dread to think what could have happened if Emma hadn’t been home that day, or if I was driving at the time of the seizure. I’m very lucky that I’m here and able to tell my story, unlike so many others that have been struck by such a devastating disease like cancer.”
Read moreCameron Ray
Soldier Cameron Ray agreed to his brain surgery being filmed for a BBC documentary because he wanted to raise awareness of the disease and to help reassure others who were coping with the same diagnosis. He hopes to get back to full fitness, complete his training as a medic and resume his career serving his country in the British Army.
Read moreCarlie Buchanan
Mother-of-two, Carlie Buchanan, from Grove in Oxfordshire found a lump on her breast in December 2018, and months later was diagnosed with an aggressive form of breast cancer. Carlie entered 2020 with optimism after undergoing a year of treatment for her breast cancer, however, as 2020 came to an end, she began experiencing new symptoms and in February 2021, Carlie was diagnosed with secondary cancer of the brain. With the support of her family and sister Jasmine, Carlie is determined to raise awareness and fundraise to help find a cure for brain tumours.
Read moreCarly Beasley
Shortly after landing her dream job and marrying her childhood sweetheart, Carly from Chippenham in Wiltshire, suffered a seizure out-of-the-blue. A series of tests and scans revealed the devastating news of a mass on her brain and in January 2018 she had surgery to remove a low-grade oligodendroglioma. Since her diagnosis, Carly has excelled in her career and travelled the world with her husband, Kris. In August 2021, the couple welcomed their first child and in the same month they will celebrate their daughter’s first birthday, Carly is preparing for a second operation to remove regrowth of her tumour.
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