Together we will find a cure Donate
Together we will find a cure Donate

In Hope

Just 1% of the national research spend has been allocated to this devastating disease

The diagnosis of a brain tumour is devastating, however there is hope. We have been fortunate to meet some very brave people who have survived to tell the tale and who want to share their story to give hope to others.

Recently published stories

Chae Jenkins

After suffering with migraines during his recovery from leg lengthening surgery, in January 2021, Chae from Bude in Cornwall was given a CT scan which showed a lesion on his brain and he was diagnosed with a rare pilocytic astrocytoma. Inoperable due to its location, Chae had a biopsy which showed the tumour, initially thought to be grade 4 was in fact low-grade and he received combined radiotherapy and chemotherapy treatment followed by a gruelling six months of chemotherapy. After having to give up his dream of playing rugby professionally, 22-year-old Chae now relies on the full-time care of his mother, Maggie and is left with limited mobility and sight problems. Chae wants to share his story to help raise awareness of what it’s like to live with a brain tumour to help people understand how they can support a loved one after diagnosis.

Read more

Julie Baker

Julie Baker, 50, from Port Askaig on the Isle of Islay, was fit and very active in her community. The mum-of-three showed no signs of anything untoward, so when she had a seizure in November 2021, it came as a big shock. She was taken to hospital but was sent home after three days. Julie was not feeling right and went to see her GP who sent her to a different hospital for an MRI scan which revealed she had three meningioma brain tumours. In February 2022, Julie underwent surgery to have the largest tumour removed. Since then, she has suffered a number of infections, and she has also had temporary paralysis down her left-hand side.

Read more

Alison Goodrum

Alison was diagnosed with an acoustic neuroma at the age of 44 after suffering with headaches for many years. They gradually became worse until she was also having to cope with blurred vision, vomiting, exhaustion and even pain when walking. Alison’s diagnosis only came about after being sent for an emergency hospital appointment by an optician and her refusing to believe that all was fine after undergoing a range of tests, leading to her having an MRI scan. 

Read more

All stories

Ben Hurd

Ben Hurd is 33 and is living with a grade 4 glioblastoma multiforme brain tumour. He has been told that the coronavirus pandemic means his ongoing chemotherapy and next MRI scan will be delayed and is worried that time is against him.

Read more

Ben Lindon

Ben Lindon was diagnosed with an inoperable aggressive oligodendroglioma brain tumour on March 11, 2008, a week before his 29th birthday. He underwent radiotherapy treatment and 120 cycles of chemotherapy – thought to be a record for a UK patient. Amazingly, having been told that all his treatment would render him infertile, he went on to father two miracle children, Martha and Sid.

Read more

Beth Harris

Mother-of-one Beth Harris was going about her usual weekend routine and had taken part in a parkrun just hours before she started to experience the symptoms of a brain tumour for the first time. After having multiple seizures, she was rushed to hospital and an MRI scan revealed she had a grade 2 or 3 glioma. Beth has been forced to give up her career as a swimming teacher and lifeguard, after suffering side effects from her tumour. She married her long-term partner Cellan in February 2021 and is determined to find a cure for the deadly disease.

Read more

Beth Parker

When Beth Parker, 27, from Liverpool, went into surgery to remove a brainstem tumour, she was told there was a 20% chance she wouldn’t survive. If she did survive, there was a long list of potentially life-changing risks. Thankfully, the operation was a success and she is on the road to recovery after her ordeal. Beth’s diagnosis with a low-grade haemangioblastoma came after years of trying to convince doctors that her symptoms were real and not ‘just a migraine’. She is now keen to share her story and is fundraising for Brain Tumour Research, to help others facing this devastating diagnosis. 

Read more

Bethany Louita

Bethany was just nine when an apparent minor allergy to oranges preceded her shock brain tumour diagnosis. Her Mum, Trish, saw her little girl happily dancing around the kitchen to One Direction before screaming out that her head was on fire and collapsing. Despite the years of surgery, hospital appointments and medications that followed, Bethany is now a bright and positive fourteen-year-old, eager to live her life to the full while knowing that her condition will be life-long.

There’s a lot that I don’t completely understand, some things that I don’t even remember, but I still have to cope with it all anyway. The tumour doesn’t care if I understand or not.”

Read more

Beverley Fielder

Beverley had always been healthy and active until she suddenly started having excruciating headaches and vomiting. She was eventually diagnosed with a low-grade haemangioblastoma and underwent surgery which, happily, was successful in removing the tumour. Now, 10 years on, she feels it is as if the experience never happened.

“I am so thankful I was lucky enough to have the type of brain tumour I had, but I am very conscious that the prognosis for the vast majority of brain tumour patients is not nearly so rosy. I am sharing my story to help raise awareness because I know that much more research needs to happen to find a cure.”

Read more

Bill Smith

Grandfather-of-six Bill Smith, from Sheffield, was diagnosed with a brain tumour in April 2021. Having overcome bowel cancer three years prior to his diagnosis, the retired induction hardener initially feared the tumour was high-grade. Luckily, Bill’s tumour was a low-grade meningioma unrelated to his previous cancer. Surgeons were able to remove the tumour during a three-hour operation. He has bounced back to good health and his post-operative scans remain clear.

Read more

Bob Picken

Bob shared his story with us in September 2016. Sadly, he passed away on 25th June 2019. We will remember Bob as we continue our work to raise awareness of this devastating disease and to fund research to help find a cure. He will be forever in our hearts.

A successful double bass player, Bob Picken has been a member of Liverpool band Ella Guru, as well as a backing for artists such as Neville Skelly, She Drew The Gun, Bill Ryder-Jones and Marvin Powell.

Diagnosed in 2012 with an anaplastic astrocytoma, whom he affectionately calls “Bieber” in reference to the Canadian singer Justin, Bob has managed to overcome a number of setbacks to carry on with his career, and in his own words “stick two fingers up to cancer”.

“You go through five stages of cancer: denial, anger, bargaining, sadness and eventually acceptance.”

Read more

Bobby Humphries

Yardley schoolboy Bobby Humphries was two years old when he was diagnosed with a large brain tumour. He underwent life-threatening surgery and chemotherapy when just a toddler. Sadly, Bobby’s tumour recurred and he had to go through another 18 months of chemotherapy. Now six, Bobby, a keen Birmingham City Football Club fan, has recently started the new school year and his parents Georgina and Aaron are taking each day as it comes.

Read more

Bradley Price

Bradley was diagnosed with an inoperable brain tumour at the age of three and underwent radiotherapy. Apart from headaches, his life continued as normal until he was 18 and had to be flown home by air ambulance while on holiday for a surgical procedure to help relieve pressure building up in his head. Then at the age of 23, following a massive seizure, he had a 10-hour operation to attempt to remove the ‘inoperable’ brain tumour. Miraculously, the neuro-surgeons succeeded in removing 95% of the tumour. In the years since his surgery, Bradley has worked hard on his rehabilitaton and now, aged 29, can walk almost perfectly, although he is waiting to have Botox to help regain movement in his right hand. 

“My neuro-consultant was becoming very concerned, but he still didn’t want to take the risk of trying to remove the tumour, due to its dangerous position and the risks of life-changing consequences. However, one day I had a massive seizure and the doctors were unable to bring me round. The pressure had built up to a dangerously high level which meant there was no option than to operate to relieve the pressure as quickly as possible. I had the emergency procedure and was taken to the High Dependency Unit and put into a coma. Meanwhile, my parents were told that it was now imperative to attempt to remove the ‘inoperable’ tumour once the pressure in my head had been reduced and I had returned to a stable condition.”

Read more

Donate today

Help us build the UK's largest network of experts in sustainable brain tumour research and campaign for more investment nationally. Together we will find a cure.

£10
£25
£50
£100