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Together we will find a cure Donate

In Hope

Just 1% of the national research spend has been allocated to this devastating disease

The diagnosis of a brain tumour is devastating, however there is hope. We have been fortunate to meet some very brave people who have survived to tell the tale and who want to share their story to give hope to others.

Recently published stories

Chae Jenkins

After suffering with migraines during his recovery from leg lengthening surgery, in January 2021, Chae from Bude in Cornwall was given a CT scan which showed a lesion on his brain and he was diagnosed with a rare pilocytic astrocytoma. Inoperable due to its location, Chae had a biopsy which showed the tumour, initially thought to be grade 4 was in fact low-grade and he received combined radiotherapy and chemotherapy treatment followed by a gruelling six months of chemotherapy. After having to give up his dream of playing rugby professionally, 22-year-old Chae now relies on the full-time care of his mother, Maggie and is left with limited mobility and sight problems. Chae wants to share his story to help raise awareness of what it’s like to live with a brain tumour to help people understand how they can support a loved one after diagnosis.

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Julie Baker

Julie Baker, 50, from Port Askaig on the Isle of Islay, was fit and very active in her community. The mum-of-three showed no signs of anything untoward, so when she had a seizure in November 2021, it came as a big shock. She was taken to hospital but was sent home after three days. Julie was not feeling right and went to see her GP who sent her to a different hospital for an MRI scan which revealed she had three meningioma brain tumours. In February 2022, Julie underwent surgery to have the largest tumour removed. Since then, she has suffered a number of infections, and she has also had temporary paralysis down her left-hand side.

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Alison Goodrum

Alison was diagnosed with an acoustic neuroma at the age of 44 after suffering with headaches for many years. They gradually became worse until she was also having to cope with blurred vision, vomiting, exhaustion and even pain when walking. Alison’s diagnosis only came about after being sent for an emergency hospital appointment by an optician and her refusing to believe that all was fine after undergoing a range of tests, leading to her having an MRI scan. 

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All stories

Freyja Hanstein

Freyja Hanstein was enveloped by grief after losing her husband to abdominal cancer just a month after they were married. Within a year she was fighting her own battle with the disease and underwent surgery to remove a brain tumour. She has now developed the app WholesomeWorld bringing together scientific and lifestyle information designed for patients and those supporting them through treatment.

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Gary Fordham

Single dad Gary Fordham, 43, was diagnosed with a golf ball-sized brain tumour after passing out at the wheel of his van on the M6 motorway. It happened on New Year’s Eve 2018, when he suffered a seizure on his way home to Bradford after visiting his parents in Swindon for Christmas. Gary was in the van with his dog, a ‘shug’ called Buster, and his 11-year-old son Hayden. All three miraculously survived. Since the near-fatal accident, Gary has gone on to have an awake craniotomy to remove the tumour. He is now waiting to have a titanium plate fitted to replace part of his skull, since he developed an infection following his brain surgery. 

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Gary Robinson

Father-of-two Gary Robinson marked his 34th birthday in May 2015 by running the Manchester 10K to raise money for Brain Tumour Research. It was the first such event he had taken part in and it came just months after he underwent surgery and radiotherapy to remove an extremely rare and aggressive grade II haemangiopericytoma brain tumour. Read more

Gavin Hawke

Gavin had recently become a father and had been married for just six weeks when he was diagnosed with cancer of the spine which had metastasised to his brain. His new wife and baby daughter had to move temporarily from Cornwall to Bristol to be with him as he underwent surgery and radiotherapy treatment.

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Gaynor Farrington

When 58-year-old Gaynor Farrington, from Liverpool, started suffering from cramps and pain in her neck and shoulders, she never suspected she had symptoms of a brain tumour. It was only after a terrifying seizure at work that she discovered she had a meningioma. Her tumour was low-grade and operable but following surgery, Gaynor contracted a bone flap infection and had to have part of her skull removed. She is now awaiting a further operation to replace the missing bone flap. In spite of her ordeal, Gaynor says she feels extremely lucky and has a new-found appreciation for life. 

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Gemma Gliddon

Mother-of-two Gemma Gliddon is awaiting surgery for a schwannoma brain tumour which has regrown after a previous operation. Determined to remain positive, Gemma, 32, is training to become a nurse and is helping to raise awareness and funds for research by taking part Wear A Hat Day 2015 just four days after her latest operation. Read more

George Devlin

For first-time parents Stephanie Day and James Devlin, it was devastating to be told their new-born baby George had a brain tumour. ‘Gorgeous George’ underwent a nine-hour craniotomy when he was just 10 weeks old and is now a healthy and happy little boy. His mum Stephanie, 27, who was shocked that someone so young could be diagnosed with such a serious condition, is keen to raise awareness of the disease.

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George Stocker

In April 2008 George became ill and was diagnosed with a brain tumour. George underwent over 80 weeks of treatment including multiple operations, chemotherapy and radiotherapy. George and his family started fundraising in August 2008 and have raised over £32,000. Read more

Gill Edwards

Gill Edwards discovered she had a meningioma after collapsing whilst out dog walking near her then home in Brentwood, Essex, in February 2013. She was 44 years old and had been experiencing tiredness, which she had attributed to myalgic encephalomyelitis (ME), a condition she was diagnosed with in her 20s, as well as headaches and dizziness. She underwent a craniotomy and a year later radically transformed her life to create the idyllic one she had always dreamed of having, giving up her busy job as a business consultant to set up a candle-making company and moving from the edge of London to the peaceful Suffolk village of Brome.

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Gillian Wilson

Gillian Wilson, 51, from Glasgow, had been suffering from strong headaches and dizziness, and was becoming forgetful at times. Her GP said it was migraines and stress, but in May 2010 Gillian complained of an unbearable pain in her head. An eye test revealed a mass behind her pituitary gland, which turned out to be a craniopharyngioma brain tumour. In June 2010, she had the tumour removed but it grew back in September that year. Gillian needed to have a shunt inserted to drain excess fluid but, because of complications, she has had to undergo a further 17 brain operations. It has left her with a number of serious health matters, including two types of diabetes.

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