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In Hope

Just 1% of the national research spend has been allocated to this devastating disease

The diagnosis of a brain tumour is devastating, however there is hope. We have been fortunate to meet some very brave people who have survived to tell the tale and who want to share their story to give hope to others.

Recently published stories

Hilary Kingsley

Hilary Kingsley, 77, from Wimbledon, was diagnosed with a brain tumour in 2016 after experiencing symptoms which were initially put down to low blood pressure. She underwent surgery, followed by radiotherapy and now lives with the effects of her treatment. She is sharing her story of hope to show that there can be life after a brain tumour diagnosis.

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Paul Potter

Freelance marine consultant and Master Mariner Paul Potter, from Pembrokeshire in Wales, was diagnosed with a brain tumour in 2012, when he was about to have treatment for prostate cancer. The low-grade meningioma wasn’t related to his cancer but it needed to be dealt with quickly, so his prostate treatment was put on hold while he underwent a craniotomy to remove the brain tumour. A keen cyclist, 65-year-old Paul is now fully recovered and is fundraising to help find a cure for the disease, with a cycling challenge he hopes will also spark conversations about brain tumours. 

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Catherine Heald

It took four months of headaches gradually getting worse before Catherine was finally diagnosed. One day she had such blinding pain on the left side of her head that her husband called an ambulance and she was taken to A&E. Catherine was given a CT scan, leading to the discovery that she had a brain tumour, which later turned out to be a glioblastoma multiforme (GBM).

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All stories

George Stocker

In April 2008 George became ill and was diagnosed with a brain tumour. George underwent over 80 weeks of treatment including multiple operations, chemotherapy and radiotherapy. George and his family started fundraising in August 2008 and have raised over £32,000. Read more

Gordon Shaw

Gordon was diagnosed with a brain tumour at the age of 32, after first being told he had probably a stroke and then possibly he was HIV positive. He started writing comics to help his friends and family understand cancer and as something cathartic for himself, but is now publishing them, as well as exhibiting the comics to a wider audience. He feels happy and settled, but his seizures are a constant reminder that his life is very uncertain.

“Having a brain tumour has changed the way I live my life. When I am in my happy head, I often think I might not see too many more of these times, so I try to recognise good moments when I am in them and thank people who are there sharing them with me. Compared with so many people I feel very lucky that I got away with it so lightly. I have had no long-term effects from my treatment apart from hair loss, but I have my beard as compensation for that!”

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Grace Daly

A healthy 15-year-old, Grace found herself with the devastating diagnosis of a brain tumour after a short bout of headaches, dizziness and vomiting.

After undergoing surgery, chemotherapy and radiotherapy to eradicate her medulloblastoma, Grace has now been clear for seven years, and is a nurse, inspired by the amazing care she received during the battle with her tumour.

“It’s a totally devastating thing to lose your hair when you’re 15 when the way you look is so important.”
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Grace Thoburn

Grace and her husband-to-be bonded over the scars on their skull – she had gone through brain tumour surgery and he had a bone-anchored hearing aid fitted. They are now expecting their second child and, as a patient representative on the Tessa Jowell Brain Cancer Mission, Grace is helping to shape the future for patients.  Read more

Graham Wood

Pevensey dad Graham Wood, 35, was diagnosed with a grade 3 anaplastic astrocytoma five years ago. Having outlived his bleak prognosis of just three years, he is determined to make the most of every day with his wife Amber and their five-year-old son Reuben.

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Gruff Crowther

Schoolboy Gruff Crowther was diagnosed with a brain tumour after minor but repeated difficulties with his eyesight. At the age of seven, he was the youngest patient to attend a reception at Speaker’s House, Westminster, in March 2016 when he joined the charity Brain Tumour Research in calling for more funding for the devastating disease. 

“We have been very open with Gruff right from the start, telling him right from day one that he has a tumour and that means a lump of badly behaved cells which are reproducing incorrectly. He is aware that there are different types of brain tumour and different types of cancer. While Gruff’s tumour is low-grade we mustn’t been fooled into thinking that means it is benign – we are aware that the rate of growth can accelerate and things can become problematic. Left untreated, Gruff’s tumour would definitely have caused more problems as it spread. So far, his scans have shown the tumour has reduced in size and, for now, things are looking positive.”
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Harry Mockett

Musician Harry Mockett, 20, from Northampton, was diagnosed with a craniopharyngioma in May 2018, after suffering from vision problems. The tumour damaged Harry’s pituitary gland and he developed life-threatening complications from the surgery he needed to save his life. Thankfully, with the support of parents Sue and Ian, and sister Rosie, Harry is now doing well and is looking forward to releasing his debut EP ‘H.I.M.’ in June 2019. Read more

Heather Turner

Heather was 24 when she was diagnosed with an acoustic neuroma, a low-grade brain tumour which caused partial hearing loss. The only treatment option was surgery but complications caused nerve damage leading to life-long difficulties including facial palsy and the loss of sight in one eye.  

 “It took me ten years to recover from the damage caused by surgery to remove my brain tumour. There have been times when I’ve wondered if life was still worth living. Although I have lost count of the number of operations I have had to make me look ‘normal’, I now feel as if the worst thing that ever happened to me has changed my life for the better.”
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Hilary Kingsley

Hilary Kingsley, 77, from Wimbledon, was diagnosed with a brain tumour in 2016 after experiencing symptoms which were initially put down to low blood pressure. She underwent surgery, followed by radiotherapy and now lives with the effects of her treatment. She is sharing her story of hope to show that there can be life after a brain tumour diagnosis.

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Holly Dooley

Professional dancer Holly Dooley began experiencing mild seizures whilst on a tour of Russia. Having recently got married and looking forward to starting a family, her world was thrown into turmoil as it became clear from an MRI scan, that the seizures were caused by a tumour on the front right temporal lobe of the brain. Having endured numerous operations and radiotherapy over the last four years, Holly remains determined to stay positive and enjoy her life.

“It was time for my career as a professional dancer to end.  I have achieved some amazing things over the years but having to close the curtain on the job I loved was heart-breaking.”

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