Sandy Saunders, President of the Board of Trustees, established The Diana Ford Trust in 2002 with other family members following the loss of his daughter Diana at the age of 38, to a grade IV glioblastoma multiforme. Diana's three sons were just seven, five and two. Sandy campaigned tirelessly for the formation of an alliance of brain tumour charities recognising the power of working together. In 2008, The Diana Ford Trust agreed to re-register as Brain Tumour Research and appoint new trustees from the membership. Two of the Diana Ford Trust’s three family trustees resigned to help facilitate the change. The move also allowed Brain Tumour Research to make use of the Diana Ford Trust’s cash deposits to fund the first stage of the new awareness campaign.