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National brain tumour research funding needs to increase to £30-35 million a year

Research into psychosocial needs of children and young people with cancer

Leading cancer charities Young Lives vs Cancer, the Children’s Cancer and Leukaemia Group (CCLG), the Ellen MacArthur Cancer Trust and Teenage Cancer Trust are working in partnership to undertake research which will investigate the psychosocial needs of young cancer patients. The research will examine how the current system supports young people, as well as identify gaps which need to be addressed in order to build a better future for children and young people diagnosed with cancer.  

As a part of the Children and Young People Cancer Coalition, Brain Tumour Research welcomes the partnership and will be supporting the upcoming research. 

Hugh Adams, Head of Stakeholder Relations said: “Brain tumours remain the chief cause of cancer deaths in children and young people. We must support research which seeks to improve the quality of life and outcomes of those affected by this terrible disease”.  

Dartington Service Design Lab has been commissioned to undertake the research, which will be experience-led and co-designed by young people, parents of children with cancer and key stakeholders, with Edge Hill University. 

Professor Tim Hobbs, Chief Executive at Dartington Service Design Lab said: "This approach brings together the voices of children, young people and families, new evidence and systems thinking, which will help inform plans about the best roles each organisation can play in the sector- alone and together to help improve outcomes for those they serve.”

The aim of the research is to improve policies and practice around cancer support for the whole cancer journey – from diagnosis, treatment and beyond. The research will be taking place throughout the first half of 2023 with initial findings expected in the autumn. 

Further communications on how to get involved with the research will follow in the spring on Brain Tumour Research website and social media platforms, as well as at Young Lives Vs Cancer. 

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