Raising vital awareness and funds for research as well as providing information and support

In 2004, an informal partnership of a number of UK brain tumour charities came together under the banner of the United Brain Tumour Campaign. These charities worked together raising awareness and to achieve a common goal to raise funds for research into the prevention and treatment of brain tumours, as well as ultimately finding a cure.

Each of the members was galvanised into action as a result of personal involvement with brain tumours, having realised that there is relatively little being done to support brain tumour patients or carers, or towards funding research into finding a cure, compared to other more high-profile cancers.

Today, Brain Tumour Research still supports and is supported by numerous official Member Charities from across the UK that are united with us under our national banner. We embrace these collaborations and welcome any and all new members.

Our collective voice carries greater weight in media coverage and adds weight to our political campaigning action. Our members are helping us build a game-changing network of world-class Research Centres of Excellence in the UK.

Ali’s Dream


Set up in 2001 following the death of Alison Phelan from a brain tumour 3 weeks before her eighth birthday, Ali’s Dream raises funds for research into childhood brain tumours.

Sue Farrington Smith – 01296 730230  Email: sue@alisdream.org.uk

Anna's Hope


Assist in the rehabilitation of children and young people who have suffered from a brain tumour or who have had brain surgery and support the funding of research into the causes, treatment and cure of childhood brain tumours.

Robert and Carole Hughes - 01780 740492  Email: admin@annashope.co.uk

Astro Brain Tumour Fund


The mission of Astro Brain Tumour Fund is to fund low-grade glioma research projects and to provide a focus for the low-grade glioma community by offering a source of information, inspiration, connections and hope.

Katie Sheen - 01485 525279  Email: info@astrofund.org.uk


Brain & Spine Foundation


Brain & Spine Foundation is a UK wide charity providing support and information on the full range of neurological conditions to patients, carers and health professionals. 

Helpline - 0808 808 1000 Office - 020 7793 5900
Email: info@brainandspine.org.uk

Brain Tumour Research Campaign


Acts in association with the Way Ahead charity to raise public awareness and fund research into brain tumours at Charing Cross Hospital.

Wendy Fulcher - 020 8601 2402   Email: wendy@wayahead-btrc.org

Brainstrust Member Charity Research Support Hub Funding The Fight Closer To A Curebrainstrust


Explores brain tumour treatment worldwide and supports patients and their
                                                        families at the point of diagnosis, brainstrust is dedicated to
                                                        improving proactive care for brain tumour sufferers.

                                                        Helen Bulbeck - 01983 292405  Email: hq@brainstrust.org.uk

Brainwaves Northern Iresland Member Charity Brain Tumour Research Brainwaves NI


A Northern Ireland-based support group for brain tumour sufferers, children and adults, their families and their carers.

                                                       Kate Ferguson - 028 9337 2505  Email: brainwavesni@hotmail.com

Charlie's Challenge

Raises money to finance research into children’s brain tumours.
Nigel Boutwood - 01825 872508  Email: charity@charlieschallenge.com

Children’s Brain Tumour Foundation


The charity has been set up by Parents, Doctors and Researchers to raise awareness and fund research into childhood brain tumours.

Cheryl Davis - Telephone: 01869 242618 Email:  cheryl@cbtf.org.uk

Children's Brain Tumour Research Centre

CBTRC brings together a multi-disciplinary team of leading healthcare professionals and researchers - all committed to improving our understanding of childhood brain tumours.
Emma Roberts - 0115 951 3724  Email: emma.pearson@nottingham.ac.uk

                                     The Danny Green Fund


The Danny Green Fund was set up when his parents lost their gorgeous son Danny at the age of 11. Before he was diagnosed with a brain tumour, their beautiful, fun loving and energetic son was a typical 10 year old in every way, very much living for the moment and enjoying life. Danny went from being a healthy, lively child to needing intensive and prolonged rehabilitation to enable him to even speak and walk again following surgery to remove the tumour. Tragically they still lost him leaving a void which will never be filled.

The Danny Green Fund helps children under the age of 16 suffering from the symptoms of Posterior Fossa Syndrome as the result of a brain tumour and also provides funding for the development of research into the prevention, treatment and cure of children’s brain tumours.

Ellie Savage Memorial Trust

Helping families living in East Anglia who have a child with cancer or a brain tumour by providing financial support and information, as well as funding research into brain tumours.
Wendy Savage - 01502 539509 



This is a charity for young adults with brain tumours / brain cancer and provides not only support, but a thriving and interactive social community.

Jay Lynchehaun 01254 884272 / 07714 626662  Email: jay@inbetweenears.co.uk


In Sue's Name


In Sue’s Name was set up in honour and remembrance of a very special wife, mother and daughter, Sue Blasotta, who was diagnosed with lesions on the brain in November 2010 and died just six weeks later, aged 42. Sue was a committed and integral member of her North London Roman Catholic parish and was always on hand to support, listen and help people in crisis, even when she had problems of her own.

In Sue’s Name also honours and remembers other members of St Monica’s parish in Palmers Green who were also lost to brain tumours around the same time as Susan – five other families lost loved ones between the years of 2008 and 2012.

The primary aims of the charity are to raise awareness of brain cancer, the leading cause of cancer-related deaths in the UK among children and adult patients under the age of 40; to support clinical research into brain cancers; and to offer a forum of support to brain cancer patients and their families. In Sue’s Name has set a target to raise £1 million by 2027 to provide crucial research funds to support Brain Tumour Research’s Centre of Excellence at Queen Mary University of London. Read Sue's story here...

The Jane Packer Foundation


The Jane Packer Foundation will help to establish a research facility in the UK that focuses on the long term study of high grade glioma (GBM4), with the ultimate aim of finding a cure. Gary Wallis - 020 7935 0787                                                                                       Email: office@thejanepackerfoundation.com

Levi's Star Children's Brain Tumour Charity

Support children with brain tumours.  It is also our wish to raise awareness about the symptoms of brain tumours, a truly devastating disease and support established research projects.
Vicky Ringer - 07971 932610  Email: levisstar@btinternet.com

The Lisa Wiles Red Wellies Brain Tumour Support Fund


Set up in 2012 in memory of Lisa Wiles. Red Wellies is dedicated to raising funds for the continuing research of Glioblastoma Multiforme (GBM), so that they can find a reason for why it took her and to stop other families suffering.

Mervyn Wiles - 01553 841015 Email: lw.rwellies@yahoo.com

The PPR Foundation

Are committed to raise £1 million by 2015 to fund brain tumour research, they will support various research projects aimed at possible causes, cures, treatments or effects thereof.
Pamela Roberts - 01423 873412  Email: pam@thepprfoundation.com

Send A Message (SAM)

Sam always loved getting presents. Before Sam passed away his father asked him what he would like us to do for other sick children - "give them presents". Send A Message has been set up to carry out Sam’s wishes and to raise awareness of paediatric brain tumours which can assist in easy diagnosis.


Thorne Mason Trust

Help people in Pembrokeshire who are in any way affected by cancer and fund research into glioblastoma multiforme brain tumours.
Debi Mason - 01437 766011  Email: thornemasontrust@googlemail.com

Brain Tumour Research was founded by The Diana Ford Trust, a charity which re-registered as Brain Tumour Research in 2008. Created by Sandy and Rosemary Saunders in memory of their daughter Diana, they continue to support our mission as one of our amazing Umbrella Fundraising Groups.

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