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Press release

Less than 20% of those diagnosed with a brain tumour survive beyond five years

Son-in-law honoured at research centre

Son-in-law honoured at research centre

Team members of Astro Brain Tumour Fund, who have all had loved ones affected by brain tumours and raised almost £1 million towards research into the disease, were invited by the Brain Tumour Research charity to visit its Research Centre of Excellence at the University of Plymouth.

Among the Astro Brain Tumour Fund team at Plymouth were Secretary, Christine Forecast, who lives in Sedgeford, Norfolk. It was the diagnosis of her son-in-law, Paul Chamberlain, with a low-grade astrocytoma brain tumour in 2000, aged 30, when her daughter Emma was three months pregnant with their second child, which led to the founding of Astro Brain Tumour Fund, a member charity of Brain Tumour Research.

Sadly Paul’s brain tumour became aggressive and he passed away just five years later, having suffered from a terrible combination of personality changes and physical disabilities due to the progressive nature of this devastating form of cancer.

Astro Brian Tumour Fund raises funds solely for research into adult and paediatric low-grade brain tumours, making it unique in the UK. It also offers support to people around the globe whose lives are touched by this challenging type of brain tumour.

On Wednesday 13th June, Christine, along with five other Trustees, including Treasurer Mary Burton, of Holme-next-the-Sea, who lost her niece to a brain tumour aged just 29, and Mary’s husband, Robbie, whose nephew died from a brain tumour aged 28, were invited by the charity to visit the research centre in Plymouth to see how all money raised contributes towards this vital research. The Astro Brain Tumour Fund team also had the opportunity to place four tiles on the Wall of Hope at the research centre.

The centre, one of four receiving funding from Brain Tumour Research, is focused on research to improve treatments for patients with brain tumours and, ultimately, finding a cure. Each tile laid on the wall represents the £2,740 it costs to fund a day of research.

Led by Prof. Oliver Hanemann, the team at the centre specialises in research into low-grade brain tumours. These tumours are usually slow-growing, but progress to become malignant; there is no cure, and nobody can tell you whether this process will take five, 10 or 20 years.

Mary commented: “Today has been a fantastic opportunity for the Astro Brain Tumour Fund team to see how we are making a difference to researchers.”

Christine added: “The tiles we placed symbolise not only the money we’ve raised for research into low-grade brain tumours, but also commemorate everyone we have lost, and honour everyone living with the serious long-lasting effects caused by this disease and its treatment.”

Brain tumours are indiscriminate; they can affect anyone at any age, yet just 1% of the national spend on cancer research has been allocated to this devastating disease.

Sue Farrington Smith, Chief Executive of the Brain Tumour Research charity, said: “We are very grateful to Christine, Mary and Robbie and everyone at Astro Brain Tumour Fund for supporting research into low-grade brain tumours at our Centre of Excellence. We are really pleased they have been to see the research taking place at the University of Plymouth, and also place tiles on the Wall of Hope. Stories like Paul’s remind us all that we cannot allow this desperate situation to continue.”

To make a donation to Astro Brain Tumour Fund please go to www.astrofund.org.uk


For further information, please contact:
Liz Fussey at Brain Tumour Research on 07811 068357 or Liz@braintumourresearch.org

 

Notes to Editors

Brain Tumour Research is the only national charity in the UK focused on funding sustainable research to find a cure for brain tumours. We have established a game-changing network of world-class Research Centres of Excellence in the UK. Embracing passionate member charities nationwide, over £6 million was raised towards research and support during 2017.

We are campaigning to see the national spend on research into brain tumours increased to £30 - £35 million a year, in line with breast cancer and leukaemia. The unprecedented success of our 2015 petition led to the 2016 Westminster Hall debate and Brain Tumour Research taking a leading role in the Government’s Task and Finish Working Group convened to tackle the historic underfunding for research with the report being published in 2018.

Key statistics on brain tumours:

  • Brain tumours kill more children and adults under the age of 40 than any other cancer
  • They kill more children than leukaemia
  • They kill more men under 45 than prostate cancer
  • They kill more women under 35 than breast cancer
  • Just 1% of the national spend on cancer research has been allocated to this devastating disease
  • In the UK 16,000 people each year are diagnosed with a brain tumour
  • Less than 20% of those diagnosed with a brain tumour survive beyond five years compared with an average of 50% across all cancers
  • Brain tumours are indiscriminate; they can affect anyone at any age
  • Incidences of, and deaths from, brain tumours are increasing.

Please quote Brain Tumour Research as the source when using this information. Additional facts and statistics are available from our website including our latest Report on National Research Funding. We can also provide case-studies and research expertise for media.

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