Less than 20% of those diagnosed with a brain tumour survive beyond five years
Siblings get their hats on for starring role inBrain Tumour Research campaign
Siblings whose grandfather died of a brain tumour are starring in a marketing campaign which will raise funds to help find a cure for the disease.
Rafi and Siena Guglia, aged six and eight, are featuring in this year’s national Wear A Hat Day campaign by the Brain Tumour Research charity.
The Lapworth pair are among a handful of children who were invited to take part and their images will be seen across the country as the campaign is launched ready for Brain Tumour Awareness month in March. Like Rafi and Siena, all the children have either been bereaved by a brain tumour, are living with a brain tumour or have a close family member who has been diagnosed.
The kids are donning their best headwear from beanies to cowboy hats, trilbies to Panamas, baseball caps to novelty headpieces, and are asking others to join them for Wear A Hat Day 2019, the UK’s premier brain tumour awareness event. This year, it takes place on Friday 29 March and is expected to smash all records as it marks its 10th year.
Siena and Rafi lost their grandad, Maurizio Guglia, known as Nonno, to a brain tumour. Maurizio, of Sicily, was diagnosed with a glioblastoma multiforme (GBM) – a highly aggressive type of tumour – in July 2017. Despite enduring surgery, chemotherapy and radiotherapy, he died just 14 months later.
Maurizio’s son James Guglia, dad to the siblings, said: “I’m so proud of Siena and Rafi for being part of the Wear A Hat Day campaign. It means so much to my family and me to help contribute towards a cure, so it’s an honour to have them take part. They had such a fun time at the photoshoot too and it will be a lovely memento for them to look back on.”
Wear A Hat Day also has the backing of supermodel, businesswoman and brain tumour survivor Caprice who underwent surgery to remove a meningioma brain tumour two years ago. A patron of Brain Tumour Research, Caprice plays a key role in raising awareness of the disease and campaigning for the government and the larger cancer charities to increase national investment in research. Also supporting this year’s fundraiser is Strictly Come Dancing finalist Debbie McGee who lost her superstar magician husband Paul Daniels to the disease three years ago.
Corporate supporters already signed up for the fundraiser include Specsavers, Hobbycraft, and Venture Studios – the latter worked with families across the UK who have been affected by brain tumours to create the stunning portraits used in the campaign.
Also taking part will be hundreds of schools, workplaces, and individuals who will don their hat of choice and hold a whole host of hat-themed fundraising events in support of Brain Tumour Research.
Sue Farrington Smith, Chief Executive of Brain Tumour Research, said: “We are extremely grateful to the Guglia family for helping us to launch Wear A Hat Day 2019. I know that people will be both distressed and inspired to hear the stories of all of these families who, like my own, know the pain of a brain tumour diagnosis.
“We are entirely committed to easing this pain by improving treatment options for patients and, ultimately, finding a cure. Brain tumours kill more children and adults under the age of 40 than any other cancer yet, historically, just 1% of the national spend on cancer research has been allocated to this devastating disease; Brain Tumour Research is proud to be changing this.
“The sad truth is that brain tumours are indiscriminate and can affect anyone at any age and this means the impact on families is enormous. Too many children are losing siblings, parents and grandparents, too many parents are enduring the agony of their child’s diagnosis, and society as a whole continues to bear the burden of increased costs through the NHS, lost taxes, and demands on the benefits system.”
Wear A Hat Day has raised over a million pounds since Brain Tumour Research was launched 10 years ago and is the culmination of Brain Tumour Awareness Month in March. The big day will see schools, workplaces, families and individuals across the UK fundraising and taking part in fun events to raise awareness of brain tumours and help fund life-saving research.
Funds raised will develop the charity’s network of world-class brain tumour research centres in the UK where scientists are focused on improving outcomes for patients and, ultimately, finding a cure.
To get involved, or donate, please visit: www.wearahatday.org
Or text HAT to 70660 to donate £5*
* Texts cost £5 plus network charge. Brain Tumour Research receives 100% of your donation. Obtain the bill payer’s permission. Call 01908 867200 with any queries.
For further information, please contact:
Annie Slinn at Brain Tumour Research on 01908 867221 or 07592 502708 or firstname.lastname@example.org.
Notes to Editors
Brain Tumour Research is the only national charity in the UK dedicated to raising funds for continuous and sustainable scientific research into brain tumours, and we are a leading voice calling for greater support and action for research into what scientists are calling the last battleground against cancer.
We are building a network of experts in sustainable research at dedicated Centres of Excellence whilst influencing the Government and larger cancer charities to invest more nationally.
We welcome recent funding announcements for research into brain tumours from the UK Government and Cancer Research UK – £65 million pledged over the next five years. However, this potential funding of £13 million a year comes with a catch – money will only be granted to quality research proposals and, due to the historic lack of investment, there may not be enough of these applications that qualify for grants from this pot.
We want research funding parity with breast cancer and leukaemia. We are calling for a £30-35 million investment every year for research into brain tumours in order to fund the ground-breaking research needed to accelerate the translation from laboratory discoveries into clinical trials and fast-track new therapies for this devastating disease.
The Brain Tumour Research charity is a powerful campaigning organisation and represents the voice of the brain tumour community across the UK. We helped establish and provide the ongoing Secretariat for the All Party Parliamentary Group for Brain Tumours (APPGBT) which published its report Brain Tumours A cost too much to bear? in 2018. Led by the charity, the report examines the economic and social impacts of a brain tumour diagnosis. We are also a strategic programme lead on the Tessa Jowell Brain Cancer Mission, exploring the financial impact of brain tumours.
Key statistics on brain tumours:
- Brain tumours are indiscriminate; they can affect anyone at any age
- Brain tumours kill more children and adults under the age of 40 than any other cancer
- Historically, just 1% of the national spend on cancer research has been allocated to brain tumours
- In the UK, 16,000 people each year are diagnosed with a brain tumour
- Brain tumours kill more children than leukaemia
- Brain tumours kill more men under 45 than prostate cancer
- Brain tumours kill more women under 35 than breast cancer
- Less than 20% of those diagnosed with a brain tumour survive beyond five years compared with an average of 50% across all cancers
Please quote Brain Tumour Research as the source when using this information. Additional facts and statistics are available from our website. We can also provide case studies and research expertise for the media.