Less than 20% of those diagnosed with a brain tumour survive beyond five years
Mother whose son set up brain tumour charity urges local community to get their Hats on for Brain Tumour Research!
A Blackburn woman, whose son was diagnosed aged 25 with a grade 4 glioblastoma multiforme brain tumour, is inviting local people to help raise funds for scientists working to find a cure for brain tumours.
Mum Sharon Hacking, 54, who lives in Great Harwood, recalled how Jay, now 31 and living in Clitheroe, began to struggle with reading numbers or words and then started having little epileptic fits, but when he went to the GP he was told that he was depressed and recommended to have counselling. It wasn’t until Jay collapsed with what his sister, Jo, a coronary care nurse, believed to be a mini-stroke and was rushed to hospital that his family first knew anything was seriously wrong.
Sharon explained: “The scan revealed a small mass on the brain. It was the last thing I expected – maybe I was being very naïve. We were given the devastating news that Jay would need an operation and that they would keep him in hospital and transfer him to the neurological unit at the Royal Preston Hospital. He had an MRI scan, followed the very next day by brain surgery. A registrar told us to prepare for the worst – Jay had a serious brain tumour.”
Following surgery, and chemotherapy and radiotherapy treatment, which made Jay extremely fatigued, Jay looked around for support groups. Apart from groups for children and old people, there seemed to be nothing appropriate for people like him, so Jay was inspired to set up a charity to support adults between the ages of 18 and 40, leading to the birth of Inbetweenears.
Sharon continues: “Jay is married to a lovely lady called Becky and they have a gorgeous 14-month-old son, who they have named Teddy. The Royal Preston call Jay their little miracle because he was given six months to live yet he is still very much alive more than six years on.”
Inbetweenears is a member charity of pioneering national charity, Brain Tumour Research. On 29th March it will be Brain Tumour Research’s annual Wear A Hat Day.
Sharon explained: ““Every year more than 16,000 people are diagnosed with a brain tumour in the UK, and it is so distressing for the families involved. More research is vital if we are to understand what causes different types of brain tumour, and importantly find a cure for this devastating disease.
“It would be fantastic if as many people as possible could hold Wear A Hat Day events of their own or make a donation to support research – Inbetweenears is funding a researcher at UCLAN within Preston University.
Wear A Hat Day has raised over a million pounds since it was launched by the charity Brain Tumour Research nine years ago and is the culmination of Brain Tumour Awareness Month in March. The big day will see schools, workplaces, families and individuals across the UK fundraising and taking part in fun events to raise awareness of brain tumours and help fund life-saving research.
Brain tumours kill more children and adults under the age of 40 than any other cancer, yet just 1% of the national spend on cancer research has been allocated to this devastating disease.
Among celebrity supporters of this year’s campaign is the businesswoman, model, actress and mum Caprice Bourret who underwent surgery to remove a low-grade brain tumour which was diagnosed nearly a year ago. She continues to be monitored by her medical team.
Caprice said: “I have been so touched by Jay’s story. It’s incredible to hear about the work Inbetweenears is doing. It’s terrible that brain tumours affect so many people. This devastating disease is indiscriminate and can affect anyone at any age.
“I’m proud to be working with this lovely family and so many others to support Wear A Hat Day. I want everyone to get involved! It’s such a fun event and anyone can take part. Let’s all put our hats on and do something positive for Jay and support the fantastic research going on right now. I’m determined to try to make a difference for the 16,000 people diagnosed with a brain tumour each year.”
To get involved, or donate, please visit: www.wearahatday.org
Or text HAT to 70660 to donate £5*
* Texts cost £5 plus network charge. Brain Tumour Research receives 100% of your donation. Obtain the bill payer’s permission. Call 01908 867200 with any queries.
For more information or to support Inbetweenears, go to www.inbetweenears.co.uk or follow us at www.facebook.com/inbetweenears
For further information, please contact:
Liz Fussey at Brain Tumour Research on 07811 068357 Liz@braintumourresearch.org
Notes to Editors
Brain Tumour Research is the only national charity in the UK focused on funding sustainable research to find a cure for brain tumours. We have established a game-changing network of world-class Research Centres of Excellence in the UK. Embracing passionate member charities nationwide, over £6 million was raised towards research and support during 2017.
We are campaigning to see the national spend on research into brain tumours increased to £30 - £35 million a year, in line with breast cancer and leukaemia. The unprecedented success of our 2015 petition led to the 2016 Westminster Hall debate and Brain Tumour Research taking a leading role in the Government’s Task and Finish Working Group convened to tackle the historic underfunding for research with the report published in 2018.
Key statistics on brain tumours:
- Brain tumours kill more children and adults under the age of 40 than any other cancer
- They kill more children than leukaemia
- They kill more men under 45 than prostate cancer
- They kill more women under 35 than breast cancer
- Just 1% of the national spend on cancer research has been allocated to this devastating disease
- In the UK 16,000 people each year are diagnosed with a brain tumour
- Less than 20% of those diagnosed with a brain tumour survive beyond five years compared with an average of 50% across all cancers
- Incidences of, and deaths from, brain tumours are increasing.
Please quote Brain Tumour Research as the source when using this information. Additional facts and statistics are available from our website including our latest Report on National Research Funding. We can also provide case-studies and research expertise for media.