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Press release

Less than 20% of those diagnosed with a brain tumour survive beyond five years

Friends running for research in memory of young boy lost to a brain tumour

Friends running for research in memory of young boy lost to a brain tumour

A young boy who was lost to a brain tumour, aged 11, inspired two friends and work colleagues to take on the Oxford half marathon to raise funds for research into the disease.

Danny Green of Canvey Island, was diagnosed with a grade 4 medulloblastoma brain tumour in November 2011, aged 10.  He had surgery to remove the tumour, but was left with a condition called Posterior Fossa Syndrome (PFS) which meant he was unable to communicate, move unaided, hold his head up, balance or walk.  

Tragically, despite chemotherapy and radiotherapy, Danny lost his fight for life eight months after diagnosis in July 2012.  Danny was just 11.  His parents, Lisa and Chris Green, set up The Danny Green Fund, a member charity of national charity Brain Tumour Research. 

Lauren Shorter, 28, who lives in Basildon and Jennifer Thorn, 44, who lives in Kelvedon near Colchester, were among thousands of runners taking part in the Oxford half marathon on 8th October. 

The two women, who both work for Vitality, a health and life insurance company in London, have already exceeded their joint target of raising £1,200 for the pioneering charity Brain Tumour Research which funds a network of Centres of Excellence where scientists are focused on improving treatments for patients and finding a cure. Each day of research costs £2,740.

Lauren said: “I didn’t know Danny or his family, but heard his tragic story on the news and was shocked that there was no cure. It inspired me to help fund research into this neglected form of cancer.”

Jenny commented: “I have another reason for supporting Brain Tumour Research – my mum, Lynda Coles, also of Kelvedon, was diagnosed with a brain tumour, but fortunately this turned out to be low-grade.”

Danny’s mother, Lisa said: “Thank you Lauren and Jenny for running in memory of Danny. It is so kind of you. We are sorry to hear that Jenny’s mother has been diagnosed with a brain tumour and hope she makes a good recovery.

“It’s five years since Danny died and it seems so cruel that he is not here to enjoy life as a teenager.  He was enjoying going to school and playing football. If he were still with us, we would have been celebrating his GCSE results this summer.”

“Brain tumours are such a cruel disease and more sustainable research must be carried out if we are to prevent others from suffering as Danny did.”

Danny attended Leigh Beck Primary School where he was doing well and was very happy.

Carol Robertson, Head of Community Fundraising (South) for Brain Tumour Research, said: “We are extremely grateful to Lauren and Jennifer and everyone who has supported the charity in memory of Danny over the years. Sadly, Danny’s family are not alone in their experience. Brain tumours kill more children and adults under the age of 40 than any other cancer yet just 1% of the national spend on cancer research has been allocated to this devastating disease.”

To sponsor Lauren and Jenny and donate to Brain Tumour Research in memory of Danny please go to www.justgiving.com/fundraising/lauren-jenny to support lauren and www.justgiving.com/fundraising/j-thorn to support jenny

 

For further information, please contact:
Liz Fussey at Brain Tumour Research on 07811 068357 or Liz@braintumourresearch.org

 

Notes to Editors

Brain Tumour Research is the only national charity in the UK focused on funding sustainable research to find a cure for brain tumours. We are building a game-changing network of world-class Research Centres of Excellence in the UK. Embracing passionate member charities nationwide, £5.5 million was raised towards research and support during 2016.

We are campaigning to see the national spend on research into brain tumours increased to £30 - £35 million a year, in line with breast cancer and leukaemia. The charity is celebrating a year of high-profile campaigning on this issue following the unprecedented success of its petition in 2016. Following that, Brain Tumour Research is now taking a leading role in the Government’s Task and Finish Working Group convened to tackle the historic underfunding for research.

Key statistics on brain tumours:

  • Brain tumours kill more children and adults under the age of 40 than any other cancer
  • They kill more children than leukaemia
  • They kill more men under 45 than prostate cancer
  • They kill more women under 35 than breast cancer
  • Just 1% of the national spend on cancer research has been allocated to this devastating disease
  • In the UK 16,000 people each year are diagnosed with a brain tumour
  • Less than 20% of those diagnosed with a brain tumour survive beyond five years compared with an average of 50% across all cancers
  • Brain tumours are indiscriminate; they can affect anyone, at any age
  • Incidences of, and deaths from, brain tumours are increasing.

Please quote Brain Tumour Research as the source when using this information. Additional facts and statistics are available from our website including our latest Report on National Research Funding. We can also provide case-studies and research expertise for media.

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