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Press release

Less than 20% of those diagnosed with a brain tumour survive beyond five years

Bereaved mother and daughter’s Great North Run success

Bereaved mother and daughter’s Great North Run success

A mother and daughter bereaved by a brain tumour have completed the Great North Run to help fund research into the disease.

Jenna Pooley Pears, a primary school teacher from Workington, Cumbria, was running to raise money for the Brain Tumour Research charity after the death of her dad, Tom Pooley. Jenna, aged 31, was joined by her mum, Margaret Pooley, 59. They were motivated by the fact that brain tumours kill more children and adults under the age of 40 than any other cancer, yet just 1% of the national spend on cancer research has been allocated to this devastating disease.

After a series of seizures and inconclusive MRI scans, Tom was diagnosed with a grade 4 gliosarcoma – a highly aggressive type of tumour – in November 2016. Tom, a businessman from Cumbria, had chemotherapy and radiotherapy but died in July 2017, just seven months after his diagnosis, aged 70.

Jenna said: “The Great North Run had such a wonderful atmosphere and, although it was very hot, it was such a great experience. It’s been fantastic to see how much sponsorship and support we have had. I’m so proud of us and to cross the finish line, in light of everything we’ve gone through, was very emotional.”

“Dad’s illness was shocking for us all and it has opened my eyes to the devastating impact this disease can have. I’m honoured to have raised awareness for research into brain tumours and I hope to have inspired others to fundraise for this worthy cause too.”

Jenna and Margaret were among thousands of runners taking part in the annual Great North Run, the world’s biggest half marathon. This year’s event took place on 9th September, with runners taking their marks in Newcastle city centre before setting off on the 13.1 mile course and finishing at the coast in South Shields. They were also joined by friends Leoni Smith and Laura Main, both 31, and Margaret’s sister Sandra Sedgewick, 51.

A team of 42 were taking part and raising money for Brain Tumour Research which funds dedicated UK Centres of Excellence where scientists are focused on improving outcomes for patients and, ultimately, finding a cure.

Carol Robertson, Head of Community Fundraising for Brain Tumour Research, said: “We are extremely grateful for Jenna and Margaret’s support and congratulate them for completing the event. Tom’s story reminds us all that less than 20% of those diagnosed with a brain tumour survive beyond five years compared with an average of 50% across all cancers. We cannot allow this situation to continue.”

To sponsor Jenna and Margaret please go to https://bit.ly/2OR0C9L

 

For further information, please contact:
Annie Slinn at the Brain Tumour Research charity on 01908 867239 or 07591 206545 or annie.slinn@braintumourresearch.org.

 

Notes to Editors

Brain Tumour Research is the only national charity in the UK dedicated to raising funds for continuous and sustainable scientific research into brain tumours, and we are a leading voice calling for greater support and action for research into what scientists are calling the last battleground against cancer.

We are building a network of experts in sustainable research at dedicated Centres of Excellence whilst influencing the Government and larger cancer charities to invest more nationally.

We welcome recent funding announcements for research into brain tumours from the UK Government and Cancer Research UK – £65 million pledged over the next five years. However, this potential funding of £13 million a year comes with a catch – money will only be granted to quality research proposals and, due to the historic lack of investment, there may not be enough of these applications that qualify for grants from this pot.

We want research funding parity with breast cancer and leukaemia. We are calling for a £30-35 million investment every year for research into brain tumours in order to fund the basic research groundwork needed to accelerate the translation from laboratory discoveries into clinical trials and fast-track new therapies for this devastating disease.

The Brain Tumour Research charity is a powerful campaigning organisation and represents the voice of the brain tumour community across the UK. We helped establish and provide the ongoing Secretariat for the All Party Parliamentary Group for Brain Tumours (APPGBT). We are supporting the crucial APPGBT 2018 Inquiry into the economic and social impacts of brain tumours and will publish their report in the autumn. We are also a key influencer in the development strategy for the Tessa Jowell Brain Cancer Mission. 

Key statistics on brain tumours:

  • Brain tumours are indiscriminate; they can affect anyone at any age
  • Brain tumours kill more children and adults under the age of 40 than any other cancer
  • Just 1% of the national spend on cancer research has been allocated to brain tumours
  • In the UK, 16,000 people each year are diagnosed with a brain tumour
  • Brain tumours kill more children than leukaemia
  • Brain tumours kill more men under 45 than prostate cancer
  • Brain tumours kill more women under 35 than breast cancer
  • Less than 20% of those diagnosed with a brain tumour survive beyond five years compared with an average of 50% across all cancers

Please quote Brain Tumour Research as the source when using this information. Additional facts and statistics are available from our website. We can also provide case studies and research expertise for the media.

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