National brain tumour research funding needs to increase to £35 million a year
Raising awareness in Ben’s memory
A GBM “robbed” Jo and Sam Williams of watching their beloved son, Ben, grow up. He was just six when he died in May 2019, 14 months after he was diagnosed.
In the year that they should have been celebrating Ben’s 10th birthday, his parents are working with Brain Tumour Research to help drive awareness and funding towards research to eventually find a cure for the disease.
Jo, also mum to Lydia, seven, and Reuben, two, said: “Ben was denied his future, a long life. We were robbed of the joy of seeing our beautiful boy grow up because of a disease that is at the moment, ahead of the science. This must change.”
She said: “With the pandemic we have seen what can be achieved when research is prioritised and properly funded. It is not acceptable that so little is spent on brain tumour research when it has the most devastating survival rates. It is time for some hope for those facing GBM, too many lives have already been lost to this horrifying disease, the stories all too often tragically similar.”
Find out more and sign our petition now: www.braintumourresearch.org/petition
- Ben’s story
- Parents robbed of seeing 'beautiful son' grow up on Sky News
- How we are working to find a cure for GBM
If you found this story interesting or helpful, sign up to our weekly e-news and keep up to date with all the latest from Brain Tumour Research.