National brain tumour research funding needs to increase to £35 million a year
“Stop the Devastation” says patient living on borrowed time
We were proud to launch our hard-hitting Stop the Devastation campaign this week, and have worked closely with brain tumour patients and people who have lost a loved one to share their stories in order to raise awareness of the shocking statistics surrounding the disease.
Among those starring in the campaign is Eddie Ruggiero, who was forging a career as a drag queen when he collapsed and was diagnosed with a high-grade anaplastic astrocytoma brain tumour in 2017. Given a prognosis of three to five years, he now feels he is living on borrowed time. Eddie underwent surgery and follow-up treatment. A life-threatening infection meant the removal of part of his skull. He chose not to continue with chemotherapy.
He said: “The treatment made me so ill and I can’t understand why in this age of modern medicine the treatment options available for people like me – cut it out, poison it, burn it – are so barbaric, more barbaric than the disease itself. I want to have the best quality of life for whatever time I have left. I have been offered reconstructive surgery, but the truth is, at the moment, I would rather live with a big dent in my skull than go through another operation. It’s certainly a talking point and if I can use it to raise awareness of how things are for patients like me that is a positive thing.”
You can help spread the word by joining our #NoMore social media campaign. Click here to find out more.
Please donate today to help Stop the Devastation.
If you found this story interesting or helpful, sign up to our weekly e-news and keep up to date with all the latest from Brain Tumour Research.