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APPGBT Inquiry 2018 - Guidance for specialist submissions

Brain tumours kill more children and adults under the age of 40 than any other cancer

Guidance for Specialist Submissions

The APPG on Brain Tumours (APPGBT) has launched its first-ever inquiry, entitled ‘Inquiry into the economic and social impacts of brain tumours’. 

Exploring the true cost of brain tumours in the UK, for patients and their families and on the NHS, the APPGBT wants to shine a light on these costs, both economic and social, which have not yet been fully set out in relation to brain tumours.

As part of the Inquiry, the APPGBT panel would like to hear from healthcare professionals, scientists, third sector organisations, public bodies and industry representatives on services (including healthcare) and support provided to brain tumour patients. Details on the economic provision of these services, for the ‘average’ brain tumour patient as well as the gross impact of current service specifications and support delivery, would be welcomed in submissions.

Services can include those provided by NHS CCGs, specialised commissioning, local government, employment and welfare support, education and other services that cater to brain tumour patients and their families. 

Those responsible for providing community support services, holistic care, the travel industry, insurance services, medical research and life sciences are also invited to submit a written response on the implications and economic benefits surrounding brain tumour patients.

Read the Inquiry's Terms of Reference

Submissions should be sent via email with the subject “APPGBT Inquiry” to

Submissions should adhere to the following guidelines:

• A single document using Microsoft Word
• 2,000-word limit
• Start with a short summary in bullet points
• Use footnotes rather than endnotes

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