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Our Member Charities
16,000 people diagnosed with a brain tumour every year
Raising vital awareness and funds for research as well as providing information and support
In 2004, an informal partnership of a number of UK brain tumour charities came together under the banner of the United Brain Tumour Campaign. These charities worked together raising awareness and to achieve a common goal to raise funds for research into the prevention and treatment of brain tumours, as well as ultimately finding a cure.
Each of the members was galvanised into action as a result of personal involvement with brain tumours, having realised that there is relatively little being done to support brain tumour patients or carers, or towards funding research into finding a cure, compared to other more high-profile cancers.
Today, Brain Tumour Research still supports and is supported by numerous official Member Charities from across the UK that are united with us under our national banner. We embrace these collaborations and welcome any and all new Member Charities.
Our collective voice carries greater weight in media coverage and adds weight to our political campaigning action. Our Member Charities are helping us build a game-changing network of world-class Research Centres of Excellence in the UK.
The Jorja-Rose Foundation
The Jorja-Rose Foundation was set up in 2018 by mum Carla Dawson after she and her husband Lee lost their two-year-old daughter Jorja-Rose in October 2017 to a rare pineoblastoma brain tumour, 18 months after diagnosis.
The charity aims to raise awareness and is funding research into childhood brain tumours. It is also fundraising to help Queen’s Medical Centre in Nottingham purchase an intraoperative magnetic resonance imaging (iMRI) scanner to help guide neuro-surgeons locate abnormalities within the brain or distinguish abnormal brain tissue from normal brain tissue. Jorja-Rose’s parents believe that the presence of an iMRI scanner could have saved their daughter’s life. The foundation also supports families who have a child being treated on either of the paediatric neurology and oncology wards at Queen’s where Jorja-Rose was herself cared for.
Carla Dawson - 07525 410023 Email: thejorjarosefoundation@gmail.com
