UMBRELLA GROUPS... joining the fight against brain tumours, fundraising for brain tumour research

Brain Tumour Research relies on the support of so many inspirational people, many of whom have been affected either personally by a brain tumour or who have witnessed the pain and suffering of someone close to them. These wonderful people have set up their own fundraising groups under our umbrella in order to raise desperately needed funds for brain tumour research.

By joining the Brain Tumour Research family, all our Umbrella Groups enjoy the security and support of a nationally recognised charity with the use of a range of materials and merchandise - including fundraising packs and T-shirts - as well as marketing, PR and fundraising support, and great campaign ideas.

If you want to help by setting up your own Umbrella Group, please do not hesitate to contact the team on 01296 733011 or by email.

4 Aurora

4 Aurora has been set up by Margherita and Francesco Provenzano to raise much needed funds for research into this devastating disease. They named the group in memory of their beautiful daughter. Aurora was just 6 years old with her whole life ahead of her when she was diagnosed with a brain tumour. She fought a brave battle for three and a half years, but sadly lost the fight and left her parents and two sisters, Isabella and Chiara with a huge hole in their family.

Her parents wanted to do something to help because they know that right now another family somewhere is getting the news that their loved one has a brain tumour. They also want to raise awareness of brain tumours and let people know how shocking it is that only 1% of national cancer research spending is on brain tumours. When Aurora was in hospital, Margherita, Aurora's mother, actually remembers thinking, "why couldn't she have had leukaemia?" as she would then have stood a good chance of surviving. Read Aurora's Story...



Aaron's Legacy of Hope

Linda Irvine has set up Aaron's Legacy of Hope in memory of her son Aaron. Aaron was first diagnosed with a brain tumour at the age of two and a half, but not without his mother having to fight for six months to get doctors to take his symptoms seriously.  The operation and subsequent radiotherapy left him with lots of physical and educational disabilities, but he got on with life and never complained.  At the age of 29 his tumour came back – his mother had to fight to get any support for him.  Aaron passed away five months later in 2011. Read Aaron's story.

 

 



Aladdin's Lamp Fund

Sandy Foulkes set up Aladdin’s Lamp Fund in memory of beloved husband and father, Bill.  Bill passed away in April 2010, thirteen months after his diagnosis with a glioblastoma multiforme.   He was passionate about golf and boats and the owner of a yacht chandler’s called Aladdin’s Cave, hence the inspiration for the name of the umbrella group.  Sandy was introduced to Prof Geoff Pilkington, who heads up research at the Brain Tumour Research centre of excellence in Portsmouth, through a mutual scientist friend and now helps Geoff out with administrative duties, as well as undertaking fundraising for Brain Tumour Research. Read Bill's story.



Alexandra's Angels

Alexandra was beautiful and just 24 years old when she passed away in August 2011, having been diagnosed with brain cancer in 2009.  Her sisters, Melissa and Rebecca, set up Alexandra’s Angels in her memory to raise as much money as possible for Brain Tumour Research so that another family does not have to go through what they had to.



Charlie Charges On

Our first born son Charlie was diagnosed with a glioblastoma multiforme grade IV just weeks after the birth of our third child. It was utterly heart-breaking to hear his prognosis, so in desperation we contacted hospitals around the world to seek second opinions and spoke to leading experts to ask about new treatments but no one could give us a different outcome or offer anything which might help. Charlie passed away aged seven in 2010, eight months after diagnosis.

We have set up Charlie Charges On to keep the memory of our beautiful, so brave son alive and to help find a cure to bring hope to other parents who face the dreadful news that their child has a brain tumour. 

 



Charlie’s Angels

Charlie White was just three years old when he died from a rare but aggressive paediatric brain tumour. There are just a handful of these cases documented worldwide, but this devastating loss has compelled Charlie’s mother Abba and others to create the fundraising group in memory of her son. With the help of close friends and family, Charlie’s Angels are now hard at work taking advantage of every opportunity to raise funds in support of the research at our Centre of Excellence in the University of Portsmouth. 

 



Circle of Hope

Circle of Hope was formed to raise awareness in the Yorkshire region of the plight of people suffering with a brain tumour. Founding members: Jim Murphy, Gill Murphy, Sarah Smith & Linda Wood have all been touched by this illness through the loss of family members and some very dear friends. The group, who are intent on seeing a cure for this dreadful illness, chose Brain Tumour Research as their charity over other charities because the funds go directly to research. They hope that by having their own local identity that they will appeal to local businesses and individuals whilst enjoying national impact through being part of Brain Tumour Research.

 



the dandy trust

The dandy trust has been set up in memory of beloved husband and father, Mike Dandy, who lost his fight with a brain tumour at the age of 56 in April 2011.  As well as raising funds for Brain Tumour Research, the mission of the dandy trust is to strive for early diagnosis through better education of, in particular, GPs.  So often early warning signs for brain tumours are missed meaning patients are not referred at the earliest possible opportunity. Read Mike's story.

 

 



The Diana Ford Trust

The Diana Ford Trust was established as a charity to fund brain tumour research by Sandy and Rosemary Saunders, in memory of their daughter Diana who died from a brain tumour in 2002. They re-registered as Brain Tumour Research in 2008, using their cash deposits to provide seed-funding the first stage of a new national brain tumour reserach funding and awareness campaign lead by Brain Tumour Research. Sandy and Rosemary continue to support our mission as one of our amazing umbrella groups, fundraising to purchase equipment and researchers at our Centres of Excellence to help understand the cause of and find treatments for all forms of brain tumours. Read Diana's story ...

 

 

 



The Diane Wright Trust

The Diane Wright Trust was created in June 2012 by her two sons, Matthew and Adam, following the loss of their beloved Mum & best friend suddenly to a brain tumour on the 9th March 2012, aged only 59 years. The trust has been set up to follow on the good work that their Mum did throughout her life and to stop other families from having to experience what they have been through.  Diane touched the hearts of everyone she met and the trust will enable her to carry on doing this.  She was the type of person that would always help others even when she was unwell herself and is why her sons want to carry on helping others in Diane’s name. Read Diane's story.



Erin's Angel

Erin’s Angel has been set up by Karen Adams in memory of her sister-in-law, Caroline Foster, who sadly passed away on 31st May 2010, eight weeks after being diagnosed with a brain tumour.  Caroline left behind her husband Andy and daughter Erin, who was just two and a half years old at the time.

Karen chose the name Erin’s Angel because little Erin knows her mummy is now an angel.  She hopes to create greater awareness of brain tumours via the umbrella group, as well as raise funds for research while keeping Caroline’s memory alive and positive for Erin. 

Read Caroline's story.



Free Bird Trust

Dean was a healthy man who loved his family and was very loyal to his friends – he had the same best friend since the age of seven.  When Dean was 27 he was diagnosed with a glioblastoma multiforme grade IV which he fought with so much courage and his indomitable sense of humour; nevertheless he was cruelly taken from us just seven months later. Read Dean's story here.

 

Dean will always remain in our thoughts and in our lives and we talk about him daily. We, as a family, promise to continue the fight against brain tumours in his honour. We want to know why so many people die very quickly from this aggressive form of brain cancer?  We hope that the funds raised by the Free Bird Trust in Dean’s memory will make a difference and help find answers to many questions – so little is known about brain tumours.



Hazel's Light

Hazel Thomas was a devoted mother to three much loved children.  She passed away in December 2011 at the age of 48, having been diagnosed 13 years earlier with a grade I Astrocytoma, which tragically had progressed to being a grade IV at the end.
 

Having realised how far brain tumour research is behind research into other cancers, Hazel's Light has been set up by sisters, Emma and Nia, and brother, Martin, to commemorate their mother and to bring hope to other families who may be touched by brain tumours.



Head 1st

Head 1st has been set up by Nicole Witts who, having been lucky enough to just survive an undiagnosed big brain tumour, is committed to achieving:

* Awareness
* Information
* More fundraising for this awful illness

She is prepared to jump all hurdles to get there and make people aware of the illness and its awful effects on individuals and families involved.

Read Nicole's Story...



The Ian Meek Fund

Ian Meek was an extraordinary man, living for 15 years with a low grade brain tumour before it became aggressive and took his life aged 42. Just before he died, Ian was thrilled to know that he had smashed his target and had raised over £105k for research into brain tumours. He was a truly amazing man who, after just one conversation with a stranger, was certain to be a friend for life.  Ian’s lasting message: “When diagnosed with cancer, don’t think about the things you can’t do, dream and do the things you can.”
 
Read Ian's full story here


Lisa's Gift

Lisa's Gift was set up by family and friends of Lisa Wray neé Russell after losing her battle with a brain tumour on the 16th May 2009.

Read Lisa's Story...




Loubob's Legacy

Loubob's Legacy was set up by family and friends of a totally unique young man who passed away at the age of 13, having endured leukaemia, a crushed leg in an accident with a lorry and then secondary brain cancer when it seemed that the doctors had written him off. Throughout his short life, Louis was almost never without a smile or a joke. He kept everyone strong when they were supposed to be keeping him strong. Weeks before his family lost him, his baby brother Jesse was induced so that Louis could get to know him and hold him. Jesse looks a lot like his brother Louis. His mother can't wait to tell Jesse about his amazing big brother. Read Louis' story here.



Maggie Harvey Trust

Maggie is a vivacious and loveable person who lives life to the full. Her diagnosis with Glioblastoma Multiforme in 2010 was an unexpected blow that turned her world upside down. Determined as ever, Maggie focused on fighting this devastating disease and helping others in a similar situation. This determination has been instrumental in the founding of the Maggie Harvey Trust, which has been created to provide much needed funding for research into this form of brain tumour. Maggie would like you to be part of her vision and help towards researching causes, treatments and ultimately a cure. Read Maggie's story



Maggie's Memory

Maggie Davis was living in the United States when she was diagnosed with a massive tumour in her brain, not long after her daughter, Clare, had discovered she was pregnant. Seven months later and two weeks after the birth of Clare’s son, Maggie passed away in the US having only seen her first grandchild, Jackson, over the internet.

 

Maggie was an amazing lady who now leaves a legacy of inspiration with her daughter Clare alongside three of her close friends, Emma Probyn, Helen Carbutt and Kate McNeill, who are all raising awareness and generating vital funds to support long-term and sustainable research into this devastating disease. In the first year since Maggie’s death, the four women generated enough money to sponsor three days of research at the Brain Tumour Research Centre of Excellence in the University of Portsmouth. In January 2014 they formed Maggie’s Memory and launched with a new target to sponsor five more days and place more tiles on the charity’s Wall of Hope.

 



Mark “Bomber” Lancaster Trust

Sheila Lancaster set up the Mark “Bomber” Lancaster Trust with her young sons, Harry and Alex, in memory of her husband and their Daddy, Mark. The  “Bomber” nickname came about through sharing a surname with the famous WWII aircraft.

Mark was diagnosed in January 2008 with an anaplastic oligodendroglioma and lost his brave fight against the brain tumour on 16th December 2012, aged 39. Sheila would very much like Harry and Alex to become involved with the Trust and take over when they are older so that they keep alive their daddy’s memory and remember his courageous spirit. Her dream is that the boys will see a cure for brain tumours during their lifetime and will be proud that funds raised for research through their daddy's charitable trust was part of this pioneering breakthrough.   



The Mark Cogan Foundation

The Mark Cogan Foundation has been set up by Mark's brother, Simon, to raise funds for research and to keep Mark's memory alive, particularly for his two young children. Mark Cogan was an inspirational martial artist and an awesome friend, brother, husband and son, who fought a 16 month battle with a brain tumour and lost. Read Mark's story.



M.I.N.E

Having suffered with headaches for many years, Mel Hennessy was diagnosed with two meningioma tumours just a few weeks after miraculously giving birth to her daughter Daisy Boo in 2009.  Mel has lost the sight in her left eye, but she is just thankful to be alive.  She wants to do anything she can to raise awareness and funds for brain tumour research.  Her Umbrella Group name M.I.N.E stands for Money Is Needed Everyday. Read Mel's story. 



Naomi's Fight for Life Fund

Naomi was just four years old in 2007 when she was diagnosed with an ependymoma, an aggressive, cancerous brain tumour.   She has undergone three craniotomies, almost 30 long and intensive bouts of chemotherapy and we have endured a number of scares and setbacks, but Naomi is currently stable.  We are now six years post diagnosis and five years post treatment - most brain tumour patients die within that timeframe...

 

We originally set up Naomi's Fight for Life Fund to help other charities find a cure, as well as provide care and quality of life for those touched by cancer, but have now joined Brain Tumour Research as an umbrella group where we can enjoy the security and support of a nationally recognised charity with the use of a range of materials and merchandise, including fundraising packs and T-shirts, as well as the use of a registered charity number which will give us access to Gift Aid, our own logo and PR support.



The Nick Cotton Foundation

Nick was just 30 years old and recently married when he passed away less than 10 months after being diagnosed with an anaplastic oligodendroglioma brain tumour. Throughout his treatment he remained the intelligent and witty man we all knew him to be, putting other people first and making sure they were okay.  Nick wanted to help others suffering from the same condition which took him from his family and loving wife, Rachael Cotton. 

 

Rachael has now helped to set up The Nick Cotton Foundation to raise money for Brain Tumour Research to help others suffering from this devastating disease. We often hear about all the wonderful advances in treatments for so many different illnesses, including other cancers, but Nick’s brain tumour journey highlighted the desperate need for more effective treatments and ultimately a cure to bring hope to the thousands of people diagnosed with a brain tumour every year.

 

Read Nick’s story.

 



The Robin Menary Foundation

The Robin Menary Foundation was set up by Nikki Boyd (Robin's sister), their mother, Paddy Menary, and their uncle, Terry Collins, following Robin's death, in August 2011, leaving his wife, Catherine, and whole family devastated.  When Robin was diagnosed with a grade IV glioblastoma multiforme he was a strong, healthy, happy and very sporty 36 year old, looking forward to the birth of much longed for twins.  He died just 17 months later when his beautiful babies, Rory and Rachel, were just 15 months old. 

 

It was always Robin’s intention to raise funds for brain tumour research when he was well again and his family are determined to do this in his memory. It is this which keeps them strong despite the unbearable grief.  It is their dearest wish that someday someone diagnosed with this type of tumour will be told they can be cured. 

 

Read Robin's story.

 



Sophie's Wish

Sophie's Wish was set up by the family and friends of Sophie Burchill, who was diagnosed with an aggressive ependymoma at the age of just 11 months. Sophie underwent emergency surgery to remove the tumour, followed by 16 months of chemotherapy. Whilst in and out of hospital the family witnessed many other children with brain tumours, some who were worse affected than Sophie, others who passed away.

All those involved in the umbrella group have been shocked to discover that diagnosis and survival rates have not moved on for at least 30 years and hope that Sophie's Wish will help to redress the balance in brain tumour research funding so that better treatments and ultimately a cure can be found.

Read Sophie's Story



Taylan's Project

Taylan Andrew Rawlinson was our beautiful seven year old boy who was sadly taken away from us on 19th August 2009. He was diagnosed with a very rare incurable and inoperable brain tumour located in the brain stem called Diffuse Intrinsic Pontine Glioma (DIPG) on 24th October 2008.

It was so frustrating over the 10 months after Taylan was diagnosed that no one was able to give us any answers or provide that breakthrough we so desperately needed. The price we had to pay was losing our beautiful and precious baby boy. We will never go back to being a `normal'' family again as Taylan is no longer with us. We miss him so much and the pain will never go away - nor will he ever be forgotten. But we feel we cannot allow this to continue and if one day an answer or cure is found, whilst it will be too late for us it may be just in time for another family. We need to start somewhere. So with the help of friends and family we founded Taylan's Project in January 2010.

Read Taylan's Story...



Twelfth Man

Inspired by Angus Anthony's brave battle with an inoperable brain tumour, close friends and family have set up the Twelfth Man umbrella group to raise funds for Brain Tumour Research.

Before he passed away in June 2011, Angus, along with his wife Cary, also gave a tremendous amount of input into the setting up of the umbrella group, particularly with the choice of logo to reflect Angus's two favourite sports - cricket and hockey.

Read Angus's story.





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