NEED SUPPORT...contact your local support group, or set one up yourself!

This list represents a range of support groups for patients and families affected by brain tumours. We thought you'd like to know where they are and how you can contact them. Please note, this list is only as effective as information we've been given at the time of adding it.* 

Sadly, diagnoses of brain tumours are increasing so there is always going to be a need for more support groups. If you have a group but it is not shown in our list, please send your details to info@braintumourresearch.org so we can include it. If you want to get involved and would like to run a group in your area, please contact the Hammerout charity who will be able to provide further guidance and advice.
 

 
Location
Meeting times
More information
Belfast
Ward 4A
Seminar Room
Royal Victoria Hospital
Belfast
Monthly
Second Wednesday of each month except July, August and December.  7.30pm – 9.30 pm
Run by Brainwaves 0289 337 2505
Key co-ordinator: Kate Ferguson
Birmingham
The Health Exchange Meeting Room
Fifth floor  
Birmingham Central Library
Monthly
Third Friday of every month. In 2008 they will meet at 2pm - 4pm and in 2009 they will meet at 10am – 12 noon.  
Contact Ann Atkins on 0121 745 3812 or 0781 841 7601 or email her at
annandstuartatkins@blueyonder.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
or contact Sue Watson Jones on 0121 608 2741 or email Sue at
paulbwj@blueyonder.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
Bristol
Unit One
Thornbury Office Park
Midland Way
Thornbury
Bristol
BS35 2BS 
 
Every other Third Wednesday of month
11.00am - 3.00pm
Run by Hammer Out
Contact Anne Coles
Patient & Family Support Co-ordinator 
0845 4501039
support@hammerout.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
or
Toni Lawton
Neuro-Oncology Nurse Specialist
01179 753723
Cambridge Regional Brain Tumour Support Group
The Mary Wallace Centre
7 Red Cross Lane
Cambridge
(near Addenbrooke’s Hospital)
Monthly
Meets last Tuesday of each month from 2.30 to 4.30 pm.
For brain tumour patients and carers. Run by Ella Pybus, Brain Tumour UK Trustee. Phone Ella on 01787 374 084
 
Cambridge -The Acoustic Neuroma and Meningioma Network (AMNET)
Addenbrooke’s Hospital
Cambridge
Quarterly meetings
Nov 29 2008
March 28 or April 5 2009
July 11 2009
Nov 28 2009
For patients diagnosed with an acoustic neuroma or vestibular schwannoma brain tumour
www.amnet-charity.org.uk or call Alison Frank on 01953 860692
Cheltenham
Maggie's Centre
College Bath Road
Cheltenham
GL53 7QB

 
Monthly
Every second Tuesday of month (except August)
2-3.30pm
 
 
Run by Hammer Out
Contact Rosemary Wormington
on 07546 912594
Or Ann Coles
07923 413304
support@hammerout.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
Cork
Cork University Hospital
 
Contact :
Avril O’Sullivan - Patient Support Services Administrator
Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4
Ph: +353 1 2310533  Fax: +353 1 2310555
Email: aosullivan@irishcancer.ie This e-mail address is being protected from spambots, you need JavaScript enabled to view it
Web: www.cancer.ie 

 
Coventry
Social Club
Walsgrave Hospital
Clifford Bridge Road Coventry
Monthly
Open to all patients diagnosed with a brain tumour, and families, friends.
Contact Ian Edwards on
02476 965 326
 
Dublin
St Lukes Hospital Dublin
 
Contact:
Avril O’Sullivan - Patient Support Services Administrator
Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4
Ph: +353 1 2310533  Fax: +353 1 2310555
Email: aosullivan@irishcancer.ie This e-mail address is being protected from spambots, you need JavaScript enabled to view it
Web: www.cancer.ie 

 
Edinburgh
Maggie’s Centre
Western General Hospital
Edinburgh
 
Monthly
First Tuesday at 7pm
No meetings in Jan or Jul
 
Contact Alice MacGregor
0131 334 3609
Exeter
Force Cancer Support Centre
Corner House
Barrack Road
Exeter
Monthly
First Friday of month 
(Except August) 
2 – 3.30 pm
 
Run by Hammer Out
Contact Ann Coles
Patient & Family Support Co-ordinator 
0845 4501039
support@hammerout.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
or
Robert Oliver
Information Support Nurse (Force)
01392 406151
Galway
University Hospital Galway
 
Contact:
Avril O’Sullivan - Patient Support Services Administrator
Irish Cancer Society, 43/45 Northumberland Rd, Dublin 4
Ph: +353 1 2310533  Fax: +353 1 2310555
Email: aosullivan@irishcancer.ie This e-mail address is being protected from spambots, you need JavaScript enabled to view it
Web: www.cancer.ie
 


 
Glasgow
The PRTC
West Glasgow Carers Centre, Anniesland Cross, 1561 Great Western Road
 
Monthly
Second Monday from 7pm - 9pm
 
Contact Sheena Muir
0141 942 4475
Guildford
The Fountain Centre
St Lukes Centre
Royal Surrey Hospital
Egerton Road
Guildford
GU2 7XX
Monthly
Second Tuesday from
12 noon to 3pm
Contact Anne Wittle
01252 834784
Haywards Heath
Sussex Brain Tumour Support Group
Monthly
2nd Tuesday from 7pm to 9pm
 
Please contact either Jill Collins 01444 243492 or Charlotte Tripp 01273 412519 (after 7pm) to confirm your attendance and where to meet.
 
 
Kent
 
 
Please visit the East Kent Support Group website for the date of their next meeting.
Join like-minded people who care and want to listen! Come and join us for friendship and support whether you’re personally experiencing the condition, you’re a carer, or you know someone and want to support them. Contact Paula or Richard on email: support@ekbtsg.co.uk or phone 07917 529263
Leeds
Crowne Plaza Hotel
Wellington Street
Leeds
LS1 4DL
6:30pm, 1st Tuesday in the month Run by Brain Tumour Research and Support across Yorkshire (BTRS) for adult brain tumour patients and carers. Free car parking and refreshments. Contact Carol on 01904 870770 for more information or www.btrs.org.uk
Leeds
St James Hospital, Leeds
Monthly
1st Tuesday from 6.30pm to 8pm
Run by Neuro Oncology Leeds Teaching Hospitals 01943 870770
Liverpool
Patient Advice and Liaison Service (PALS)
The Walton Neuro Centre
Lower Lane
Liverpool L9 7LJ
0151 5296100
Dates vary, usually quarterly, times between 7pm to 9pm
Contact Tony Murphy, PALS Manager or Maureen Kelly: 0151 298 2999
Maureen@neurosupport.org.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
London
St Thomas Hospital
Richard Dimbleby Centre
Second Floor
Lambeth Palace Road
London
Monthly
First Monday 1.30pm – 3 pm
Contact Barbara - 0207 188 5918.
London
The Resource Room
Bloomsbury Healthcare Library
Bonham Carter House
52 Gower St, London
Monthly
First Tuesday every month, 6pm to 8pm.
Support group for low-grade glioma patients, family and friends. Contact Emma Townsley or Orla McKee, Neuro-Oncology Clinical Nurse Specialists, on 0207 3918833
 
London
London Friend
86 Caledonian Road
LONDON
N1 9DN
 
Monthly
First Monday of the month 7pm to 9pm.
GMAC: offering emotional support and information for gay/bisexual men affected by cancer.
Run by Jose Veiga, Chair, London Friend, a charity supporting the LGBT community
020 78331674
Norwich
The Big C Cancer Centre (entrance of Norfolk & Norwich Uni Hosp)
Monthly
First Wednesday each month from 2pm to 4pm
Run by Brain Tumour UK Trustee, Ella Pybus.
Contact Ella on 01787 374 084
Oxford
5 Abingdon Road
Didcot
OX11 9Bl
 
Quarterly meetings for children with a brain or spinal tumour and their families.  (Information day, Fun Day, Pantomine, Adolescent weekend)
Run by Friends of Oscar
Call Carol on 01235 816310
Shrewsbury
Radbrook Community Centre, Bank Farm Road, Radbrook Green, Shrewsbury
SY3 6DZ
 
Monthly
Second Friday each month at 1pm.
 
Self-help group for patients, relatives and carers, providing hope and inspiration to local people who are touched by brain tumours.
Contact Roderick Marsden on 0800 988 2628
 
 
 
Southampton
The Macmillan Centre
Southampton General Hospital
Tremona Road
Southampton
Monthly
Second Wednesday of month(Except August) 
2– 3.30pm
 
Run by Hammer Out
Contact Ann Coles
Patient & Family Support Co-ordinator 
0845 4501039
support@hammerout.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
or
Jo Reeves
Macmillan Centre Manager
02380 79650
Sutton, Surrey
Royal Marsden NHS Trust
Downs Road
Sutton
Carers’ group and
Patients’ group meet at Richard Wells Rehab Centre
Monthly
Third Thursday at 7.30pm to 9pm.
 
Two support groups: one for carers and one for those diagnosed with a brain tumour
For information, contact Helen White on 020 8661 3038  or Helen.white@rmh.nhs.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
 
 
 
Tamworth,
Coton Centre
Comberford Road
Tamworth
B79 9AA
 
Monthly
First Monday of every month from 11am to 1pm.
The meetings will be confidential and parents can share their stories, talk and listen to each other, and support one another.
 
Poppy Fields Special Mummies and Daddies.   Call Lisa Guilder on 07830 302622 or email lisa.guilder@homecall.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it .
The meetings will be confidential and parents can share their stories, talk and listen to each other, and support one another.
 
Wareham
Springfield Hotel
Grange Road
Wareham
Dorset
BH20 5AL
 
First Tuesday of every other month
1.30pm - 3.00pm
Run by Hammer Out
Contact Anne Coles
Patient & Family Support Co-ordinator 
0845 4501039
support@hammerout.co.uk This e-mail address is being protected from spambots, you need JavaScript enabled to view it
or
Jason Bowie
Neuro-Oncology Clinical Nurse Specialist
01202 263072
Worcestershire
Brain Tumour Support Group
St Richard's Hospice Foundation,
Wildwood Drive, Worcester, WR5 2LG
Tel: 01905 763963
 
Meetings alternate between structured sessions held 10.30 – 12.30 at St. Richard’s Hospice, Worcester and social events held in the evening or at weekends. The social events are organised by group members; venues and times will vary.
Rosemary Wormington
0780 4820351
info@wbtsg.org This e-mail address is being protected from spambots, you need JavaScript enabled to view it
 
For directions, see www.wbtsg.org
 


 

Other helpful organisations where you can receive specific support

Low-grade gliomas
Astro Fund raises money for research into low-grade gliomas and provides support to everyone whose lives are touched by this tumour type through their online support group.  For general enquiries telephone: 01485 572767 www.astrofund.org.uk

Meningioma UK
Offers support and information to anyone who has this kind of primary brain and spine tumour, and raises awareness of its often life-changing effects. www.meningiomauk.org

Pituitary Tumours
Over 40 support groups across the UK run by the Pituitary Foundation www.pituitary.org.uk

*We do not take responsibilty for checking the ongoing accuracy of information provided on this page.  


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