UMBRELLA GROUPS... joining the fight against brain tumours, fundraising
for brain tumour research

Brain Tumour Research relies on the support of so many inspirational people, many of whom have been affected either
personally by a brain tumour or who have witnessed the pain and suffering of someone close to them.  These wonderful
people have set up their own fundraising groups under our umbrella in order to raise desperately needed funds for brain tumour research.

If you want to help by setting up your own Umbrella Group, please do not hesitate to contact the team on 01296 733011 or  
by email.


 

The Twelfth Man Inspired by Angus Anthony's brave battle with an inoperable brain tumour, close friends and family have set up the Twelfth Man umbrella group to raise funds  for Brain Tumour Research. Before he passed away in June 2011, Angus, along with his wife Cary, also gave a tremendous amount of input into the setting up of the umbrella group, particularly with the choice of logo to reflect Angus's two favourite sports - cricket and hockey.

4 Aurora 4 Aurora has been set up by Margherita and Francesco Provenzano to raise much needed funds for research into this devastating disease.  They named the group in memory of their beautiful daughter.  Aurora was just 6 years old with her whole life ahead of her when she was diagnosed with a brain tumour.  She fought a brave battle for three and a half years, but sadly lost the fight and left her parents and two sisters, Isabella and Chiara with a huge hole in their family.   Her parents wanted to do something to help because they know that right now another family somewhere is getting the news that their loved one has a brain  tumour.  They also want to raise awareness of brain tumours and let people know how shocking it is that only 1% of national cancer research spending is on brain  tumours.  When Aurora was in hospital, Margherita, Aurora's mother, actually remembers thinking, "why couldn't she have had leukaemia?" as she would then have stood a good chance of surviving.  Read Aurora's Story...

Head 1st Head 1st has been set up by Nicole Witts who, having been lucky enough to just survive an undiagnosed big brain tumour, is committed to achieving: *  Awareness *  Information * More fundraising for this awful illness She is prepared to jump all hurdles to get there and make people aware of the illness and its awful effects on individuals and families involved. Read Nicole's Story...

Lisa's Gift Lisa's Gift was set up by family and friends of Lisa Wray neé Russell after         losing her battle with a brain tumour on the 16th May 2009.  Read Lisa's Story...

Maggie Harvey Trust Maggie is a vivacious and loveable person who lives life to the full.  Her diagnosis with Glioblastoma Multiforme in 2010 was an unexpected blow that turned her world upside down.  Determined as ever, Maggie focused on fighting this devastating disease and helping others in a similar situation.  This determination has been instrumental in the founding of the Maggie Harvey Trust, which has been created to provide much needed funding for research into this form of brain tumour.  Maggie would like you to be part of her vision and help towards researching causes, treatments and ultimately a cure.

The Mark Cogan Foundation The Mark Cogan Foundation has been set up by Mark's brother, Simon, to raise       funds for research and to keep Mark's memory alive, particularly for his two                             young children. Mark Cogan was an inspirational martial artist and an awesome friend, brother, husband and son, who fought a 16 month battle with a brain tumour and lost.

Sophie's Wish Sophie's Wish was set up by the family and friends of Sophie Burchill, who was diagnosed with an aggressive ependymoma at the age of just 11 months.  Sophie underwent emergency surgery to remove the tumour, followed by 16 months of chemotherapy.  Whilst in and out of hospital the family witnessed many other children with brain tumours, some who were worse affected than Sophie, others who passed away.  All those involved in the umbrella group have been shocked to discover that diagnosis and survival rates have not moved on for at least 30 years and hope that Sophie's Wish will help to redress the balance in brain tumour research funding so that better treatments and ultimately a cure can be found.  Read Sophie's Story

Taylan's Project Taylan Andrew Rawlinson was our beautiful seven year old boy who was sadly takenaway from us on 19th August 2009.  He was diagnosed with a very rare incurable and inoperable brain tumour located in the brain stem called Diffuse Intrinsic Pontine Glioma (DIPG) on 24th October 2008. It was so frustrating over the 10 months after Taylan was diagnosed that no one was able to give us any answers or provide that breakthrough we so desperately needed.  The price we had to pay was losing our beautiful and precious baby boy.  We will never go back to being a `normal' family again as Taylan is no longer with us.  We miss him so much and the pain will never go away - nor will he ever be forgotten.  But we feel we cannot allow this to continue and if one day an answer or cure is found, whilst it will be too late for us it may be just in time for another family.  We need to start somewhere.  So with the help of friends and family we founded Taylan's Project in January 2010.  Read Taylan's Story...

Trudy's Trust Trudy was a much loved mother, wife, sister and daughter who was cruelly taken                             from her family at the tender age of 35. Her family want to put something back so that other people and other families don't have to suffer like Trudy and they have.  Brain tumours are so savage - if it had been any other cancer, they would have at least been able to talk to Trudy before she died, but the brain tumour took her ability to communicate. Trudy's Trust has been set up so that her family can do all they can to help find a cure for brain tumours.  Read Trudy's Story...