UNITED... in keeping up the pressure, and making a difference
The brain tumour All Party Parliamentary Group was established on 11th July 2005 under the chair of John Bercow (Con), MP for Buckingham.
Brain Tumour Consortium holding Summit
Brain Tumour Research and other members of The Brain Tumour Consortium are holding a Summit on Wednesday 29th February 2012, at The Abbey Conference Centre, SW1P 3BU
The summit will focus on the success and achievements of the Brain Tumour Consortium and will be based around four sessions:
- Can best practice guidance can ever be universal? (Led by Prof Garth Cruickshank)
- What needs to be done to get more research into brain tumours? (Led by Prof Roy Rampling)
- Examining early diagnosis, particularly in children (Led by Dr David Walker)
- Panel Discussion
Each session will conclude with a Q&A and the event will be followed by a drinks reception.
To be invited please email sue@braintumourresearch.org
Andrew Lansley states that he wants UK brain tumour survival rates to be better than Europe
A packed All Party Brain Tumour Group meeting, on 30th January, provided an opportunity for around 60 members of the Brain Tumour Consortium to quiz Secretary of State for Health, Andrew Lansley MP, over his plans for the NHS and to seek reassurances that the proposed new Health Bill will not set back brain tumour care. Read more
Brain Tumour Research and member charities joined forces with Brain Tumour UK, Samantha Dickson
Brain Tumour Trust and the International Brain Tumour Alliance on 29th March in an unprecedented lobby -
`Don't forget brain tumour care'
Some 200 patients, carers, charities and medical professionals asked MPs to sign up to a brain tumour
care charter in support of the Guidance and make sure the guidelines are not lost in the wider NHS reforms.
Read Press Release
Read Brain Tumour Care Charter
e-Petition Raising Awareness & Funding for those affected by brain tumours
Brain Tumour Research through the Brain Tumour Consortium is calling on its supporters to sign a Government e-Petition
designed to trigger a parliamentary debate on how best to raise awareness and funding for those affected by brain
tumours http://epetitions.direct.gov.uk/petitions/17419
The petition was launched by Rachel Clark and has already attracted many hundreds of signatures but the Brain Tumour
Consortium is backing Rachel's petition in order to draw attention to the `three asks' we have set out in our manifesto.
These are to:
* Ensure early diagnosis and treatment by ensuring that clear guidelines on identifying the signs and symptoms of brain
tumours, and on referring patients for rapid and appropriate assessment, are integrated into General Practice and
Emergency Medicine Practice.
* Implement NICE's best practice guidance by setting a clear timetable to fully implement and audit the Improving
Outcomes Guidance, or its country equivalent, in particular by ensuring that the Health and Social Care Bill maintains
the progress made to date.
* Increase Government investment in brain tumour research and more accurately measure numbers of both primary and
secondary brain tumours by publishing a detailed breakdown of site-specific brain tumour research funding from the
Government and ensure that by 2014 at least 7.5% of adults with primary brain tumours are enrolled in randomised,
controlled clinical trials as part of their therapy.
More details about our three asks can be found in the Brain Tumour Consortium Manifesto on the following link:
http://www.braintumourconsortium.org.uk/pdf/Brain%20Tumour%20Manifesto%202011.pdf
If you do sign up to the petition and would like to be kept informed of the progress we are making with the `three asks'
please do email us on btc@luther.co.uk cc: sue@braintumourresearch.org and we will make sure we keep you up-to-date
with developments.
October 2010 - Coalition of brain tumour charities launch manifesto at Houses of Parliament
Brain Tumour Research, Brain Tumour UK and the Samantha Dickson Brain Tumour Trust, with the International Brain Tumour Alliance, have launched a manifesto for everyone affected by a bra