New research presented to MPs reveals startling new fact:
one in 50 people who die under the age of 60 die from a brain tumour

In our new report, presented to MPs at Westminster on July 1st, we update on the groundbreaking National Research Funding report, published in July last year. It presents stark new facts about the impact of this devastating disease.

Startlingly, one in 50 people who die under the age of 60 years are dying from brain cancer. And, just as shockingly, 71% of those who die of a brain tumour will be under 75 years old, compared to 47% for all cancers.

 

Brain Tumour Research brought together leading research scientists in the field of brain tumour research along with patients and their families to meet MP David Willetts, Minister of State for Universities and Science, and present the findings. 

 

The group presented two critical issues to the Minister, asking for clarification around funding flows and the need for a complete register of research taking place in the UK.

 

Read our full press release here and download the Report Update PDF here. Click here to view previous published reports. 

 

Please sign our e-petition today.
 



 

 

 

 

 

 

 

Brain and Spinal Cord Tumour Survey.

If a brain or spinal cord tumour has touched your life - whether you are a patient, carer, family member, medical professional, nurse, allied healthcare worker or simply someone who is interested in these disease areas - we need your help.

A survey being conducted by the James Lind Alliance is asking for your ideas about unanswered research questions regarding brain and spinal cord tumours in children and adults to help direct areas of research that are important for patients in future.

 

Questions can be short or long, complex or simple; a single burning question or as many as you like.  You can submit any questions that are about prevention, diagnosis, treatment or support.


Tell others about the project.  The more people who know, the more questions can be received and the strong the outcome of the survey.
 
All questions received will be prioritised by a panel of patients, clinicians and charity members to arrive at a 'Top 10'. The Top 10 will be reported to the National Institute for Health Research and promoted to leading research organisations such as National Cancer Research Institute and Cancer Research UK.
 
Click here to go through to the JLA site and complete the survey. For more information or a paper copy of the survey, please contact 0131 537 2875 or jlagroup@exseed.ed.ac.uk.
 
This project is sponsored by the University of Edinburgh and NHS Lothian, and guided by the James Lind Alliance. It is being supported financially by the Cochrane Collaboration's Neuro-Oncology Group and four charities: brainstrust, The Brain Tumour Charity, Brain Tumour Research and Children with Cancer UK.



 

Wear A Hat Day is a huge success.

THANK YOU EVERYONE! The support for Wear A Hat Day 2014 has been amazing. The early indications of funds raised are very promising, not least swelled by the fantastic text donate enthusiasm.

We're busy sending out Thank You letters and Fundraising Certificates - look out for yours in the post and maybe Tweet a photo when you get it or share the news with us on Facebook.

 

We don't let the dust the settle around here, much more to be done to keep brain tumour research funded, so we're working on an exciting all-new fundraising campaign right now, and we'll share all the good news and fun ideas we're creating with you just as soon as we can.

 

In the mean time, if you're not already on our database and would like to be kept informed about all our latest activities, then please drop us a line on 01296 733011 or send a quick email with your details and we'll get right back to you! 

 



 

New hope for 16,000 people diagnosed with brain tumours each year as three new research partnerships are announced at Speaker’s House

Patients, carers, scientists, clinicians and charities from across the UK head to Westminster for the launch of ground-breaking new collaborative partnerships between Brain Tumour Research and Research Centres of Excellence. The announcement opens a new chapter in long-term sustainable and continuous research into the biggest cancer killer of children and adults under 40. 

After a robust selection process including the formation of a Scientific and Medical Advisory Board and completing a series of stringent international peer reviews, we are very pleased to launch partnerships with three new Research Centres, paving the way for a £20 million investment in brain tumour research over the next five years. The new Centres are: Queen Mary University of London in collaboration with UCL Institute of NeurologyImperial College Healthcare NHS Trust (London) and Plymouth University Peninsula Schools of Medicine and Dentistry.

 

Read the full press release here.

 

 



Sarah Beeny Launches New E-petition for Brain Tumour Research.

Sarah Beeny Launches Brain Tumour Research E-petitionEntrepreneur, Property Expert, TV Presenter and active campaigner on behalf of Brain Tumour Research, Sarah Beeny is launching our new e-petition. Sarah is leading our call to action for everyone to get behind this e-petition.

“I am asking YOU to PLEASE sign this e-petition TODAY. I’ve lost two people dear to me from brain tumours and I’m campaigning with Brain Tumour Research. With your help, we can achieve the greatest groundswell of support in lobbying our government since the idea of a united campaign voice against brain tumours was first conceived over 10 years ago. The brain is often seen as the last battleground of cancer and brain tumours are the number one cancer killer of children and adults under 40. Yet the science seeking a cure is shockingly underfunded, receiving less than 1% of the national spend on cancer research. So please join me and SHOW YOUR SUPPORT so that together we can reach our goal of 100,000 signatures. Thank you.”    

Click here to sign the e-petition today.

 

To read our reports unearthing the truth about the shocking lack of funding and other statisitics relating to brain tumour research, visit our Published Reports page

 



Eight institutions are bidding to be the new Brain Tumour Research
Centre of Excellence

Institutions Bidding To Become New Brain Tumour Research Centre of Excellence Funding the FightEight leading British universities and hospitals have been shortlisted in a stringent, peer-reviewed selection process to become the next Brain Tumour Research Centre of Excellence. The successful institution will enter a funding partnership with us, defining a new chapter in long-term research. Our detailed analysis of the funding flows for brain tumours shows they still receive less than 1% of the national spend on cancer research, despite more children and adults under 40 dying of a brain tumour than any other cancer, and an increasing trend in diagnoses and deaths from this devastating disease.

 

Our unique national strategy means we will be providing 100% of our funds to support sustainable and continuous ground-breaking world class research at two Centres of Excellence from 2014. 


The eight applicants include:

  1. The Blizard Institute at Barts and the London School of Medicine, Queen Mary University of London, in collaboration with UCL Institute of Neurology
  2. Imperial College Healthcare NHS Trust (London)
  3. Centre for Cancer Research and Cell Biology at Queen’s University Belfast
  4. University of Bristol
  5. The Walton Centre NHS Foundation Trust (Liverpool)
  6. The University of Central Lancashire (UCLan)
  7. Plymouth University Peninsula Schools of Medicine and Dentistry
  8. Queen Elizabeth Hospital Birmingham, School of Cancer Sciences

Our vision is to establish seven such centres around the UK. We expect this process to result in closer ties with all these leading centres (and indeed other establishments that were interested but could not apply this time for various reasons) and unsuccessful applicants on this occasion will be encouraged to re-apply to be among our future centres. Read the full press release here

 



Brain tumours are the leading cause of cancer deaths in the young - and research funding is falling

In another pioneering report, we shed more light onto the controversial lack of funding into the deadliest form of cancer for the under 40s.

Exclusive report into funding for brain tumour researchAlmost three quarters (73%) of brain tumour deaths occur in those under 75. For cancer as a whole, deaths under 75 are less than a half (47%). Yet brain cancer continues to receive less than 1% of the national spend on cancer research. An exclusive new report released on 1st July by Brain Tumour Research shows that treatments for brain tumours lag seriously behind other cancers. 

 

For the full press release on this story please click here and for the full report click here. For more information about our groundreaking reports please visit our Published Reports page.

 

Our mission is to raise £7 million a year to fund world-class sustainable and continuous scientific research into all types of brain tumours in seven Centres of Excellence across the UK. Our centres will work together sharing knowledge locally, nationally and internationally to find a cure for brain tumours whilst educating the next generation of leading neuro-oncologists.

Can you Sponsor a Day of Research to help us achieve our mission? Click here to find out more or call 01296 733011 or email info@braintumourresearch.org for more information. Thank you.



HeadSmart Campaign

The HeadSmart campaign is run by a partnership between Brain Tumour Research member charity the Children's Brain Tumour Research Centre (CBTRC) at the University of Nottingham, the Royal College of Paediatrics and Child Health and The Brain Tumour Charity (TBTC), and has been funded by The Health Foundation and TBTC.


 

Research has shown that there is considerable variation in the time taken to diagnose childhood brain tumours in the UK. Half of all children and young people diagnosed with a brain tumour take longer than three months to be diagnosed. The aim of the HeadSmart campaign is to reduce the time taken to diagnose brain tumours so that all children and young people with a brain tumour are diagnosed within five weeks of developing symptoms or signs of a brain tumour.
 

The Diagnosis of brain tumours in Children guideline was produced by the CBTRC, with funding from the Big Lottery Fund in conjunction with the TBTC. In 2008 the guideline was appraised and endorsed by the Royal College of Paediatrics and Child Health (RCPCH). The guideline advises healthcare professionals on the identification, assessment and investigation of children presenting with symptoms and signs that could be caused by a brain tumour.
 

The symptoms covered by the guideline have also been used to produce age-specific symptom cards in order to raise awareness of the signs and symptoms among parents and young people.
 

Download the symptom cards   


We think this is a fantastic initiative and will be working with TBTC and other members of the Brain Tumour Consortium on a similar initiative to speed up diagnosis for adults.  





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