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Stark Facts
Stark Facts
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HEROES WANTED… to be in at the beginning of this vital initiative and make a life-changing difference The diagnosis of a brain tumour is DEVASTATING…
At best an individual diagnosed with a brain tumour will have their tumour removed and their life can resume as normal, albeit scarred both physically and emotionally, at worst an individual diagnosed with a brain tumour will survive only days, weeks or months. In the majority of cases, patients will undergo intrusive surgery and treatments that will give hope but leave them with side effects. Whilst partners and parents may have to give up their careers to become part-time, if not full time, carers. What’s more, whether malignant or benign, both patients and carers are living with a time bomb… However, advances are being made. UK brain tumour charities are formalising themselves and recruiting experienced staff; support is better than it was; funds are being raised and research is underway. But, it is not enough… Over the last fifteen years, individuals galvanised into action through the diagnosis or loss of a loved one, have formed charities to plug the gaps that they discovered along their personal journey of dealing with a brain tumour:
Sadly, in reality, there are not many trying to do something about it. The majority of brain tumour charities are entirely led by volunteers: - They have a day job - They have families to care for - They have a life to lead With the best will in the world, those who are trying to do something about it are frustrated. There is not enough resource to do all of the things we’d like to do to resolve the issues of the brain tumour community. Generally the only people doing anything about brain tumours are those that are motivated because they have been affected in some way, whether professionally or personally. There have been tremendous advances over the last fifteen years, but even now, newly diagnosed brain tumour patients and their families don’t know:
Finding a cure for all types of brain tumours will not happen overnight. It needs more years of dedicated research – if we are to achieve the same successes in treatments as have been discovered for diseases such as leukaemia, breast and lung cancer. Finding a cure and resolving the issues needs heroes to get behind the cause and to raise awareness both within their own communities, companies and nationally. Currently UK brain tumour charities raise around £2million pounds a year between them. This total is a fantastic sum and goes to providing support and information and to funding research. But, it is not enough.
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proportionately to the funding that is received by the more pervasive cancers.
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