Posted on 21st March 2013 by Crispin in Lobbying, News
Data from our new report, published by New Philanthropy Capital, speaks for itself:
People with brain tumours have incredibly low survival rate – just 18.8% of those diagnosed between 2006 and 2010 alive in 2011.
More average years of life lost to brain tumours than any other cancer – average of 20.1 years earlier for brain tumour compared with average of 12.5 years earlier when looking at all cancers.
16% increase in deaths from brain tumours over last 10 years.
Five site-specific cancers – Breast cancer, leukaemia, colon and rectal cancer, prostate cancer and ovarian cancer – receive 60% of all national funding, the remaining 40% spread across 43 remaining site-specific cancers, including brain tumours.
The message is simple: we need a sea-change in the way brain tumour research is funded. PLEASE add your signature to our e-petition and let’s get the government to act. Share this please with everyone you know.
http://epetitions.direct.gov.uk/petitions/35167
For the full report, visit: http://www.thinknpc.org/publications/brain-tumour-research-funding-flows/
Posted on 15th March 2013 by Liz in Fundraising
Grateful thanks to impersonator, Mo Shapiro, who is performing a tribute to Victoria Wood at Leighton Buzzard theatre (in Beds) in aid of Brain Tumour Research. The show, which will take place at 8pm on Weds 27 March, will introduce the audience via the character ‘Gladys’, Victoria Wood’s biggest fan, to a host of Victoria’s best-loved characters and include Victoria’s songs and monologues, guaranteeing a night of fun and laughter.
To book tickets – £12 each – with more than 60% of sales going to Brain Tumour Research, phone 0300 300 8125 or email lbtboxoffice@centralbedfordshire.gov.uk and help fund research to find a cure for brain tumours.
Posted on 11th January 2013 by Crispin in News
Brain Tumour Research (which includes 20 member charities and 17 umbrella groups) welcomes the news that The Brain Tumour Charity and Brain Tumour UK have merged into one organisation. We congratulate these two charities for recognising the value of a merger to bring increased focus and resource available for the support of brain tumour patients and their carers. This unification will improve the flow of information and care provided for thousands of people.
Brain Tumour Research is a young organisation compared with these other two charities, and we have grown rapidly since our launch in 2009.
In collaboration with our member charities, we jointly raised over £2 million in 2011 and Brain Tumour Research now supports an annual £1 million programme of research into brain tumours. Indeed, the charity has evolved now to become a leading voice calling for greater support and action to fund consistent and sustainable research into brain tumours in the UK. Funding for brain tumour scientific research has been woefully inadequate for far too long and our mission is clear: we need to raise £7 million a year to fund seven Research Centres of Excellence across the UK.
Brain Tumour Research has already established our first Centre at the University of Portsmouth in 2010, with an important expansion to the laboratory announced in November 2012. We are well into a stringent, open and transparent selection process of establishing the second and potentially third Centre in 2013. We have been overwhelmed by enthusiastic applications from 12 different research centres across the UK all of whom, in recognition of our achievements and strategy, are very keen to become Brain Tumour Research Centres of Excellence.
Sue Farrington Smith, Trustee of Ali’s Dream and Director of Brain Tumour Research, has led the lobbying campaign to raise awareness in government for brain tumours, having established the Brain Tumour All Party Parliamentary Group in 2005. Brain Tumour Research was a founder member of the Brain Tumour Consortium alongside the two merging charities and the International Brain Tumour Alliance, and has been collaborating on lobbying since 2010.
We will follow developments closely; our priority is finding a cure for this devastating disease, and increasing survivorship and quality of life for those affected by brain tumours. We very much look forward to working in harmony with the all-new The Brain Tumour Charity and coordinating awareness-raising campaigns to create opportunities for the public to help fund scientific research as well as support for patients and survivors, their families and carers.
Sue Farrington Smith says: “Our ethos has always been to raise awareness within the general public in the UK and grow the market for fundraising directed towards brain tumour research and support. We believe in working together with other brain tumour charities toward this goal.”
Notes:
Brain Tumour Research was launched in April 2009 to raise the awareness of and funding for scientific research into brain tumours and improve outcomes for brain tumour patients in the UK. We are the only national brain tumour charity in the UK that is dedicated to granting 100% of our funds to continuous and sustainable scientific research.
Brain Tumour Research comprises the following 20 member charities who have united together under our banner: Ali’s Dream, Anna’s Hope, Astro Brain Tumour Fund, Brain and Spine Foundation, Brainstrust, Brain Tumour Research Campaign, Brain Tumour Research and Support across Yorkshire, Brainwaves, Charlie’s Challenge, Children’s Brain Tumour Research Centre, Ellie Savage Memorial Trust, Ellie’s Fund, Headcase, Katy Holmes Trust, Levi’s Star, The Diana Ford Trust, The Lisa Wiles Red Wellies Brain Tumour Support Fund, The PPR Foundation, Trudy’s Trust and Thorne Mason Trust.
In addition Brain Tumour Research has a fast growing band of fundraisers and fundraising groups across the UK including: Taylan’s Project, Head 1st, Lisa’s Gift, Maggie Harvey Trust, 4Aurora, Twelfth Man, The Mark Cogan Foundation, Sophie’s Wish, Aaron’s Legacy of Hope, The Robin Menary Foundation, Erin’s Angel, Aladdin’s Lamp Fund, Alexandra’s Angels, MINE, Hazel’s Light, The Diane Wright Trust and The Dandy Trust.
Posted on 8th January 2013 by Liz in Fundraising
We will be thinking of Julian Osborne and his family tomorrow when his beloved Donna is laid to rest having succumbed to a brain tumour on 19th December. Julian pays tribute to his “wonderful wife” and the “proud, protective and perfect mum” of their three children at www.justgiving.com/Donna-Osborne. Thank you so much to all the friends, family and colleagues who have already raised over £7,500 inc gift aid in Donna’s memory. This amazing amount will all go to fund scientific research to help find more effective treatments and ultimately a cure. RIP Donna.
Posted on 8th January 2013 by Liz in Fundraising
Before Christmas is a distant memory… A huge vote of thanks to the 14 members of the Mucklow and Tippins families who all took part in the Santa Run in London’s Greenwich Park in December, raising to date an awesome £7,500 (inc Gift Aid) for Brain Tumour Research. Sam Mucklow – the inspiration for the fundraiser – was diagnosed with a brain tumour three years ago and has been undergoing radiotherapy, yet still managed to walk the route. Here he is with his partner Clare Tippins, and six month old daughter Rose. To add your donation go to http://www.doitforcharity.com/SamsSuperSantas
